Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for (...) citizen science in health and biomedical research. (shrink)

Andrea Wiggins and John Wilbanks offer a rich and nuanced description of citizen science, which they define as “a range of participatory models for involving non-professionals as collaborators in s...

Andrea Wiggins and John Wilbanks’ article (2019) presents us with a welcome overview of the neglected, novel ethical issues raised by the advent of citizen science in health and biomedical contexts. This contribution takes a rather different approach, focusing on a very specific (yet also overlooked) problem in this context - the ethical implications of self-administered genetic testing. This problem, however, is particularly illustrative of the “ethics gap” between traditional medical settings and new public-driven scientific practices, emphasized by (...) Wiggins and Wilbanks in their more wide-ranging treatment. (shrink)

In their target article, “The Rise of Citizen Science in Health and Biomedical Research,” Andrea Wiggins and John Wilbanks (2019) summarize some of the emerging ethical issues related to citizen sc...

Artificial intelligence (AI) systems are quickly gaining ground in healthcare and clinical decision-making. However, it is still unclear in what way AI can or should support decision-making that is based on incapacitated patients’ values and goals of care, which often requires input from clinicians and loved ones. Although the use of algorithms to predict patients’ most likely preferred treatment has been discussed in the medical ethics literature, no example has been realised in clinical practice. This is due, arguably, to the (...) lack of a structured approach to the epistemological, ethical and pragmatic challenges arising from the design and use of such algorithms. The present paper offers a new perspective on the problem by suggesting that preference predicting AIs be viewed as sociotechnical systems with distinctive life-cycles. We explore how both known and novel challenges map onto the different stages of development, highlighting interdisciplinary strategies for their resolution. (shrink)

In this inquiry, I ask what is distinctive about listening as a teacher. I develop the meaning of educative listening as a mode of listening to interruptions in a way that promotes students’ thinking and learning. Interruptions in a teacher’s listening are defined as any unexpected response from a student to the material presented — for example, a challenging viewpoint, a difficult question, or a confusing reply — that opens up possibilities for cultivating learning. To begin, I draw upon Dewey (...) to examine the connections between listening and learning in teacher-student interaction. In the second section, I explicate the implications of Dewey’s theory of learning for a theory of listening in reflective teaching. Here, I contend that reflective teaching entails educative listening. In the final section, I inquire into how teacher education can productively address the connections between learning to listen and learning to teach reflectively. (shrink)

Gestational surrogacy is ethically complex, generating very different responses in law and policy worldwide. This paper argues that contemporary surrogacy law and policy, across many jurisdictions, fail to give sufficient attention to the significance of the relationship between the child and the gestational surrogate. This failure risks repeating the mistakes of historical, discredited approaches to adoption and donor‐assisted conception. This paper argues that proper recognition of the significance of gestation must be an organising principle in surrogacy law and policy. The (...) paper begins by pointing to examples of surrogacy law and practice where the role of the gestator is unacceptably minimised, most notably the framing of the surrogate as a mere ‘carrier’. It goes on to examine the nature of gestation, including consideration of contemporary scholarship on the metaphysics of pregnancy and emerging work in epigenetics, and argues that current evidence supports the view that the gestational relationship must be taken more seriously than it currently is. The paper then draws analogies with parenthood in donor‐assisted conception and adoption to argue that approaches to parental status in novel family formations that fail to promote transparency and seek to deny the truth of familial relationships are doomed to fail. The paper concludes by suggesting some implications for law and policy that flow from placing sufficient emphasis on the gestational role. The overarching thesis of this paper is that gestational surrogacy is ethically permissible when these fundamental requirements are adhered to, and that surrogacy law should proceed on this basis. (shrink)

Gracias a los rápidos progresos de las neurociencias cognitivas, algunos investigadores, sobre todo de áreas anglosajonas, comienzan a utilizar criterios basados sobre la neurobiología para redimensionar o disolver el concepto de persona -fundamentalmente en ámbito bioético- en cuanto definido ilusorio.En particular, se sostiene que exista un network cerebral innato, que comprende cuatro áreas especificas del encéfalo, que produciría en modo automático la percepción de una categoría especial de cosas, definidas personas. Tal hipÓtesis se basa sobre una creciente cantidad de datos (...) experimentales, tomados de modo individual y corroborados en las pruebas acumuladas.Frente a la dificultad de definir con precisión a la "persona" en los casos bioéticamente más dificiles y controvertidos, se sugiere por tanto que la idea misma sea abandonada en cuanto fruto de un mecanismo evolutivo-adaptativo actualmente inadecuado fi-ente a los dilemas creados por la medicina contemporánea. Se realiza así una naturalización total del concepto para luego sugerir el regreso a una perspectiva utilitarista respecto a los casos bioéticos en los cuales falle un acuerdo común.Después de haber presentado en detalle la propuesta presentada por MJ Farah y A.S Heberlein, en el presente articulo se ofrecen algunos argumentos para rejÚtar el monismo metodológico en el cual tal propuesta se basa, en particular subrayando la dimensión histórica del concepto de persona, surgido gradualmente y no en modo homogéneo, en contraste con la perspectiva neurobiológica innatista. Se pone en evidencia, por tanto el necesario pluralismo epistemológico que acompaña la definición de persona. No es posible excfuir a priori la dimensión filosófica, que es siempre jitndamental, mientras los descubrimientos de las neurociencias se proponen como elementos empiricos complementarios, actualmente no prescindibles por su crecienle relevancia. (shrink)

RésuméLe livre ambitieux et nuancé de Sophia Moreau défend une vision pluraliste de la discrimination injuste. Je soutiens trois points. Premièrement, je soutiens que le compte rendu de Moreau sur la liberté délibérative ne fournit pas de motif distinct pour s'opposer à la discrimination. Deuxièmement, je soutiens qu'il n'y a pas, entre sa vision et l'expressivisme, un écart aussi important qu'elle le suggère. Troisièmement, j'avance qu'une lacune intrigante dans l'argument mérite une exploration plus poussée : Moreau ne nous fournit jamais (...) de description détaillée des situations où la subordination sociale est immorale ni des raisons qui expliquent pourquoi elle le devient. (shrink)

L'idée principale qui articule le présent article est la compréhension et la description du phénomène de la liberté à partir de la perspective phénoménologique merleau-pontyenne, donnée par l'explication et la défense du l_ien _comme _empiétement_. Cela nous fait nous situer dans une expérience ambiguë qui révélera une _liberté située_, conséquence de son projet et explication de _l'origine_ des sujets eux-mêmes, ce qui signifiera l'ipséité comme commencement ou nouveau commencement. Par conséquent, les libertés des sujets eux-mêmes, dans cette perspective, seront liées (...) à une coexistence qui est, en même temps, violence et conflit. (shrink)

According to a view called 'nihilism', sentences containing vague expressions cannot strictly speaking be true or false, because they lack definite truth conditions. While most theorists of vagueness tend to regard nihilism as a hopeless view, a few isolated attempts have been made to defend it. This paper aims to develop such attempts in a new direction by showing how nihilism, once properly spelled out, can meet three crucial explanatory challenges that respectively concern truth, assertibility, and communication.

Resumo: Joseph Raz tornou-se bastante conhecido pelo conceito de razões excludentes, que ele aplicou na análise de uma série de conceitos práticos, como decisões, regras e obrigações. No entanto, a literatura especializada exibe um alto grau de ceticismo quanto à existência de razões excludentes, e até sobre a coerência do conceito. Ao longo de sua obra, Raz sempre focou em duas espécies de razões excludentes: as diretamente motivacionais e as evidenciais. Atribui-se a isso o fato de o conceito ter recebido (...) tantas críticas. Neste artigo, dá-se destaque a uma outra categoria de razões excludentes, negligenciada por Raz: as razões que são excluídas por sua própria natureza. Argumenta-se aqui que essa categoria é capaz de mostrar, não apenas que o conceito não é vazio ou inconsistente, mas também que ele tem um papel importante a desempenhar na elucidação de um importante domínio da moralidade: o domínio das relações afetivas. (shrink)

Critical algorithm scholarship has demonstrated the difficulties of attributing accountability for the actions and effects of algorithmic systems. In this commentary, we argue that we cannot stop at denouncing the lack of accountability for algorithms and their effects but must engage the broader systems and distributed agencies that algorithmic systems exist within; including standards, regulations, technologies, and social relations. To this end, we explore accountability in “the Generated Detective,” an algorithmically generated comic. Taking up the mantle of detectives ourselves, we (...) investigate accountability in relation to this piece of experimental fiction. We problematize efforts to effect accountability through transparency by undertaking a simple operation: asking for permission to re-publish a set of the algorithmically selected and modified words and images which make the frames of the comic. Recounting this process, we demonstrate slippage between the “complication” of the algorithm and the obscurity of the legal and institutional structures in which it exists. (shrink)

It is commonly assumed that the scientific study of emotions should focus on discrete categories such as fear, anger, sadness, joy, disgust, shame, guilt, and so on. This view has recently been questioned by the emergence of the “core affect movement,” according to which discrete emotions are not natural kinds. Affective science, it is argued, should focus on core affect, a blend of hedonic and arousal values. Here, I argue that the empirical evidence does not support the thesis that core (...) affect is a more “natural” category than discrete emotions. I conclude by recommending a splitting strategy in our search for natural affective kinds. †To contact the author, please write to: Andrea Scarantino, Department of Philosophy and Neuroscience Institute, Georgia State University, P.O. Box 4089, Atlanta, GA 30302‐4089; email: [email protected]. (shrink)

Minimalism and Trivialism are two recent forms of lightweight Platonism in the philosophy of mathematics: Minimalism is the view that mathematical objects arethinin the sense that “very little is required for their existence”, whereas Trivialism is the view that mathematical statements have trivial truth‐conditions, that is, that “nothing is required of the world in order for those conditions to be satisfied”. In order to clarify the relation between the mathematical and the non‐mathematical domain that these views envisage, it has recently (...) been proposed that both Linnebo's notion of sufficiency and Rayo's “just is”‐operator can, or even should, be interpreted in terms of metaphysicalgrounding. This interpretation makes Minimalism and Trivialism akin to Aristotelianism in the philosophy of mathematics, according to which mathematical entities depend for their existence and their properties on non‐mathematical ones. In this paper we raise a general objection to this interpretation. We highlight a tension – a “Big Picture” Problem – between the metaphysical picture underlying both Minimalism and Trivialism, on the one side, and the metaphysics of Platonism and Aristotelianism on the other. We then consider various ways in which Linnebo and Rayo could respond. We finally argue that Minimalism and Trivialism are closer to Aristotelianism than to Platonism; however, even though these positions are not forms of traditional Platonism, they are not standard forms of Aristotelianism either. (shrink)

Anecdotal evidence has long lamented the status of social studies in elementary classrooms as observed by preservice teachers. As standardized testing has risen for mathematics and language arts, social studies has been pushed aside. In the aftermath of accountability legislation such as No Child Left Behind, research indicates that social studies is less visible in elementary classrooms due to an instructional focus on tested content areas (e.g. math, language arts, reading). In this study, approximately 90 elementary preservice teachers enrolled in (...) a social studies methods course responded to a survey and indicated the frequency and quality of lessons they observed over the course of a single semester. Findings report that preservice elementary teachers witnessed few, if any, lessons in social studies in the elementary classroom. Implications for teacher education are discussed. (shrink)