Pediatric cancer is accompanied by many ethical challenges, particularly those related to respecting the child's opinion and parental responsibility and consent.Questionnaires were collected from 400 participants, from four equal groups: doctors, nurses, parents and medical students, from three cities in Saudi Arabia, about three problematic issues which revolve around the mandatory consent of one or both parents, the extent of a child’s assent, and the acceptable form of consent and assent.Despite the diversity of the participants' cultural backgrounds, most preferred both (...) parents to give consent, followed by either parent without differentiation between parents, which reinforced a trend towards more gender equality. The majority of participants preferred that parental consent forms be detailed enough to obtain the maximum information, while others chose medium‐size consent forms; a large majority preferred that the form seeking to obtain the assent of the child with cancer be short, reflecting their desire not to increase the burden on the child, in addition to the fact that the final decision belongs to the parents rather than the child. Most participants preferred to rely on a child's level of maturity rather than having reached a certain age so that they could give assent, while the rest considered the age of 13‐14 as a suitable age.These findings reflect an increasing ethical awareness regarding parental consent and child assent, and they can be formulated in a recommendation for a more ethical practice in the field of childhood cancer and pediatrics in general. (shrink)

During the last decade, children have shown an increasing need for mental wellbeing interventions due to their anxiety and depression issues, which the COVID-19 pandemic has exacerbated. Socially Assistive Robotics have been shown to have a great potential to support children with mental wellbeing-related issues. However, understanding how robots can be used to aid the measurement of these issues is still an open challenge. This paper presents a narrative review of child-robot interaction (cHRI) papers (IEEE ROMAN proceedings from 2016–2021 and (...) keyword-based article search using Google Scholar) to investigate the open challenges and potential knowledge gaps in the evaluation of mental wellbeing or the assessment of factors affecting mental wellbeing in children. We exploited the SPIDER framework to search for the key elements for the inclusion of relevant studies. Findings from this work (10 screened papers in total) investigate the challenges in cHRI studies about mental wellbeing by categorising the current research in terms of robot-related factors (robot autonomy and type of robot), protocol-related factors (experiment purpose, tasks, participants and user sensing) and data related factors (analysis and findings). The main contribution of this work is to highlight the potential opportunities for cHRI researchers to carry out measurements concerning children’s mental wellbeing. (shrink)

Protecting confidentiality is an essential value in all human relationships, no less in medical practice and research.1 Doctor‐patient and researcher‐participant relationships are built on trust and on the understanding those patients' secrets will not be disclosed.2 However, this confidentiality can be breached in some situations where it is necessary to meet a strong conflicting duty.3Confidentiality, in a general sense, has received much interest in Islamic resources including the Qur'an, Sunnah and juristic writings. However, medical and research confidentiality have not been (...) explored deeply. There are few fatwas about the issue, despite an increased effort by both individuals and Islamic medical organizations to use these institutional fatwas in their research.Infringements on confidentiality make up a significant portion of institutional fatwas, yet they have never been thoroughly investigated. Moreover, the efforts of organizations and authors in this regard still require further exploration, especially on the issue of research confidentiality.In this article, we explore medical and research confidentiality and potential conflicts with this practice as a result of fatwas released by international, regional, and national Islamic Sunni juristic councils. We discuss how these fatwas affect research and publication by Muslim doctors, researchers, and Islamic medical organizations.We argue that more specialized fatwas are needed to clarify Islamic juristic views about medical and research confidentiality, especially the circumstances in which infringements on this confidentiality are justified. (shrink)

Background With the huge number of patients who suffer from chronic and incurable diseases, medical scientists continue to search for new curative methods for patients in dire need of treatment. Interest in stem cells is growing, generating high expectations in terms of the possible benefits that could be derived from stem cell research and therapy. However, regardless of the hope of stem cells changing and improving lives, there are many ethical, religious, and political challenges and controversies that affect the research, (...) and mandated to establish ethical guidelines and regulations. In Saudi Arabia, key stakeholders play an active role in discussing the ethics of stem cell research and therapy. The focus of the study was to explore professionals’ perceptions related to the ethical challenges of using stem cells in research and treatment in Saudi Arabia. Results A qualitative research study was conducted to explore and describe the perceptions of 25 professionals employed at different tertiary hospitals in the various regions of Saudi. A thematic analysis was performed to search for and identify the most significant perceptions shared by the participants. Four themes were generated based on the ethical challenges of four areas related to stem cell use, including forbidden and permitted sources of stem cells, informed consent, beneficence, and ethical regulations and guidelines. Conclusion The study identified that there is a growing need to advance the knowledge, education, and awareness related to stem cell research and treatment in Saudi Arabia. (shrink)

Ethical issues regarding research biobanks continue to be a topic of intense debate, especially issues of confidentiality, informed consent, and child participation. Although considerable empirical literature concerning research biobank ethics exists, very little information is available regarding the opinions of medical professionals doing genetics research from the Middle East, especially Arabic speaking countries. Ethical guidelines for research biobanks are critically needed as some countries in the Middle East are starting to establish national research biobanks. Islam is the dominant religion in (...) these countries, and it affects people’s behavior and influences their positions. Moreover, communities in these countries enjoy a set of customs, traditions and social norms, and have social and familial structures that must be taken into account when developing research policies. We interviewed 12 medical professionals from the Middle East currently working with stored tissue samples to document their opinions. We found general agreement. Participants’ primary concerns were similar to the views of researchers internationally. Since children tend to represent a high percentage of Middle Eastern populations, and because children’s bodies are not just small adult bodies, the interviewed professionals strongly believed that it is imperative to include children in biobank research. Participants generally believed that protecting confidentiality is socially very important and that informed consent/assent must be obtained from both adult and child participants. This study provides a starting point for additional studies. (shrink)

Protecting confidentiality is an essential value in all human relationships, no less in medical practice and research.1 Doctor-patient and researcher-participant relationships are built on trust and on the understanding those patients' secrets will not be disclosed.2 However, this confidentiality can be breached in some situations where it is necessary to meet a strong conflicting duty.3Confidentiality, in a general sense, has received much interest in Islamic resources including the Qur'an, Sunnah and juristic writings. However, medical and research confidentiality have not been (...) explored deeply. There are few fatwas about the issue, despite an increased effort by both individuals and Islamic medical organizations to use these institutional fatwas in their research.Infringements on confidentiality make up a significant portion of institutional fatwas, yet they have never been thoroughly investigated. Moreover, the efforts of organizations and authors in this regard still require further exploration, especially on the issue of research confidentiality.In this article, we explore medical and research confidentiality and potential conflicts with this practice as a result of fatwas released by international, regional, and national Islamic Sunni juristic councils. We discuss how these fatwas affect research and publication by Muslim doctors, researchers, and Islamic medical organizations.We argue that more specialized fatwas are needed to clarify Islamic juristic views about medical and research confidentiality, especially the circumstances in which infringements on this confidentiality are justified. (shrink)

The rational choice paradigm has proved to be a fruitful means of analysis and explanation in various disciplines concerned with questions of practical rationality, but in various attempts to extend its fields of application the deficiencies of the original account of rational choice have become evident. This paper tries to give a systematic overview of ways in which the rational choice paradigm can be extended and modified.

The Kingdom of Saudi Arabia passed a Law and Implementing Regulations of Ethics of Research on Living Creatures in 14/09/1431 Hijri. We have performed an ethical analysis of this law and, accordingly, this paper discusses the major components, key strengths, and weaknesses of this law. The Saudi system considers Islamic Shariah in addition to international research ethics guidelines. The Law and its Implementing Regulations contain all ethical requirements for research. We conclude that this law can serve as an example, not (...) only for other Arab countries in the region that have similar values and social structure to the Kingdom of Saudi Arabia, but also for other Islamic countries. (shrink)

Pervasive usage and the development of social media networks have provided the platform for the fake news to spread fast among people. Fake news often misleads people and creates wrong society perceptions. The spread of low-quality news in social media has negatively affected individuals and society. In this study, we proposed an ensemble-based deep learning model to classify news as fake or real using LIAR dataset. Due to the nature of the dataset attributes, two deep learning models were used. For (...) the textual attribute “statement,” Bi-LSTM-GRU-dense deep learning model was used, while for the remaining attributes, dense deep learning model was used. Experimental results showed that the proposed study achieved an accuracy of 0.898, recall of 0.916, precision of 0.913, and F-score of 0.914, respectively, using only statement attribute. Moreover, the outcome of the proposed models is remarkable when compared with that of the previous studies for fake news detection using LIAR dataset. (shrink)

Edmund Burke’s speeches and writings during the trial of Warren Hastings—from 1788 to 1795—remain one of the most comprehensive assessments of the effects of colonial trade and territorial expansion on Britain’s nationalist self. A rhetorical reading of his prosecution speeches reveals how they affected the public response to the trial by evoking the sublime and framing terror as the basic feature of Britain’s mercantile imperialist agenda in the colonies. Moreover, by associating Hastings’s governance of Bengal with sublime terror, Burke altered (...) the interpretations of virtue and corruption, thus distancing both Britain and India from the rampant profiteering of the East India Company. Burke’s critique of the degenerative influences of commercial imperialism along with the reformulation of his ideas in subsequent colonial historiography is crucial for assessing how the aesthetics of the sublime conferred greater moral force to the sporadic and fragmented reports about the Company’s abuses of power in India. (shrink)

Sowohl die wissenschaftliche als auch die lebensweltliche Praxis sind ohne den Austausch von Gründen nicht denkbar, und dennoch ist notorisch unklar, was man unter Gründen eigentlich verstehen sollte: Was ist ihr ontologischer und erkenntnistheoretischer Status? Sind sie objektiv oder subjektiv? In welchem Verhältnis stehen praktische und theoretische Gründe zueinander? Was können Gründe überhaupt leisten? Die in diesem Band versammelten Kongressbeiträge untersuchen das Thema »Gründe« aus den unterschiedlichen Perspektiven der verschiedenen Strömungen der zeitgenössischen Philosophie. Dieser Pluralismus spiegelt sich auch in den (...) Hauptvorträgen wider, für die Seyla Benhabib, Lorraine Daston, Peter Gärdenfors, Jürgen Habermas, Franz von Kutschera, Susan Neiman und Robert Pippin gewonnen werden konnten. (shrink)

Background Research ethics guidelines are essential for conducting medical research. Recently, numerous attempts have been made to establish national clinical research documents in the countries of the Middle East. This article analyzes these documents. Methods Thirteen Arab countries in the Middle East were explored for available national codes, regulations, and guidelines concerning research ethics, and 10 documents from eight countries were found. We studied these documents, considering the ethical principles stated in the Declaration of Helsinki, the Council for International Organizations (...) of Medical Sciences (CIOMS) guidelines, and the International Conference of Harmonization - Guidelines for Good Clinical Practice (ICH-GCP). Our paper comprises a complete list of protections, such as confidentiality, informed consent, ethics committees, and others. Results This study found different levels and kinds of research ethics regulations and guidelines in the countries examined. Two groups can be distinguished: the countries in the first group have one or more research ethics regulations or guidelines, while the countries in the second group have not yet established any. Most of the documents showed various degrees of deficiencies in regard to ethical protection. The majority of the documents that were examined refer to one or more international documents on biomedical research ethics. Conclusions Recently, a lot of efforts have been made in many countries in the Middle East. However, compared with international documents, most of the research ethics documents in use in this region demonstrate numerous deficiencies. As it relates to these documents, extensive differences could be observed in regard to development, structure, content, and reference to international guidelines. (shrink)

Various leadership styles have been widely studied to understand success. However, little research has empirically explored how entrepreneurial leadership influences entrepreneurial success. Moreover, the role of knowledge management processes and knowledge entrepreneurship have been overlooked. Thus, using a knowledge-based view theory, this study aims to determine the relationship between EL and ES, mediated through KMPs. In addition, for a better understanding, the study also used KE as a moderator. A quantitative survey method has been employed to collect data from 390 (...) entrepreneurial venture owners, co-founders, and managers in tech-oriented ventures operating in Pakistan. Smart partial least squares statistical software was used to analyze the impact mechanism of EL on ES through the structural equation model. The findings revealed that EL style positively influences ES. In addition, KMPs fully mediate the relationship between EL and ES. Furthermore, KE as a moderator, strengthens the relationships between EL and the knowledge management process. Theoretically, this study has complemented and enriched research on the influence mechanism between EL and ES. Practically, this study has important implications for leaders, managers, and founders to promote KMPs to achieve ES. (shrink)

The study is based on validating and exploring the effects of a mega project plan on infrastructure development and Sustainable Project Management. The CPEC has great importance to infrastructure development and economy-boosting. The current study's primary aim is to deal with environmental protection, economic boost up, international relations influencing to the Project's success. The paper also addressed project management as a moderator between environmental protection, economic boost up, international relations, and the CPEC project's success. The primary data has been gathered (...) by using questionnaires, and PLS-SEM has been employed for the analysis. The results revealed that environmental protection, economy boost up, and international relations have a positive association with the success of CPEC. The outcomes also exposed that project management moderating among the nexus of economy boosts up the international relations and success of CPEC. The present study results guided how Pakistan and China make the CPEC project stronger with the efficient implementation of practices required for protecting the environment, with the economic growth and boost up, and good strong relations with foreign countries. This study was an attempt to validate the different factors to check their association with each other in a new environment, resulting in a leading edge for the success of mega projects that influence project management. (shrink)

Universities are specialized units aimed to deliver quality education and shaping future leadership to provide competent professionals to the industry. The establishment of ORIC in universities and significant increase in academia-industry linkage activities is strategic move towards achievement of the mentioned objectives. Bridging up the gap between academia and industry by adopting such strategies defines the successful role of HEIs. In view of increasing number of universities and continuous outflow of graduates it seems imperative to analyze and capitalize their potential (...) towards the growth of economy. However, the unemployment ratio and limited growth in SME sector reflect the insignificant absorption of graduates in corporate sector. The study aims to determine the factors that serve as barriers in achieving goals of HEIs by understanding the problems faced by university students in general and business graduates in particular on the basis of data gathered from 100 students from different universities present in Karachi. It shall also assists the policy makers in devising policy as per market demands, level of quality attained by universities, their involvement with corporate sector and in turn need of the industry to keep both parties at par in the fluctuating and contemporary era. (shrink)

Advance Care Planning, of which Advance directive is only a part, is a process of planning for future medical care under circumstances of impaired decisional capacity. Advance care planning involves a structured discussion between patient and ideally their primary care physician to explore the goals of care in the context of current and hypothetical illness states, discusses treatment options in the context of these goals of care and finally articulates and docu- ments treatment and care preferences of the patient.1 Advance (...) care planning should be a routine part of preventive health care in order to avoid unneces- sary extra ordinary measures against a person’s wishes and to reserve resources which are wasted in futile care. Instead advance care planning is either non-existent or severely under-utilized in primary care practice in Pakistan. The author explores the factors that prevent Pakistani physicians’ from incorporating advance care planning into practice. In addition to this, various steps in terms of the principles, policies and procedures are discussed which could help physicians and institutions navigate the advance care planning process. (shrink)

This article is an outline of the current issue of Filosofija.Sociologija, thematically divided into five sections. Starting from the most abstract thematically one and going down to reflections on actualities. Here I try to give it a meaningful structure and a flavour of a general Zeitgeist residing now in our contemporary academia.

A number of companies including Google and BMW are currently working on the development of autonomous cars. But if fully autonomous cars are going to drive on our roads, it must be decided who is to be held responsible in case of accidents. This involves not only legal questions, but also moral ones. The first question discussed is whether we should try to design the tort liability for car manufacturers in a way that will help along the development and improvement (...) of autonomous vehicles. In particular, Patrick Lin’s concern that any security gain derived from the introduction of autonomous cars would constitute a trade-off in human lives will be addressed. The second question is whether it would be morally permissible to impose liability on the user based on a duty to pay attention to the road and traffic and to intervene when necessary to avoid accidents. Doubts about the moral legitimacy of such a scheme are based on the notion that it is a form of defamation if a person is held to blame for causing the death of another by his inattention if he never had a real chance to intervene. Therefore, the legitimacy of such an approach would depend on the user having an actual chance to do so. The last option discussed in this paper is a system in which a person using an autonomous vehicle has no duty of interfering, but is still held responsible for possible accidents. Two ways of doing so are discussed, but only one is judged morally feasible. (shrink)

We discuss two modal claims about the phenomenal structure of color experiences: (i) violet experiences are necessarily experiences of a color that is for the subject on that occasion phenomenally composed of red and blue (the modal claim about violet) and (ii) no subject can possibly have an experience of a color that is for it then phenomenally composed of red and green (the modal claim about reddish green). The modal claim about reddish green is undermined by empirical results. We (...) discuss whether these empirical results cast doubt on the other modal claims as well. We argue that this not the case. Our argument is based on the thesis that the best argument for the modal claim about violet is quite different from the best argument for the modal claim about reddish green. To argue for this disanalogy we propose a reconstruction of the best available justification for both claims. (shrink)

Is a subject who undergoes an experience necessarily aware of undergoing the experience? According to the view here developed, a positive answer to this question should be accepted if ‘awareness’ is understood in a specific way, - in the sense of what will be called ‘primitive awareness’. Primitive awareness of being experientially presented with something involves, furthermore, being pre-reflectively aware of oneself as an experiencing subject. An argument is developed for the claims that pre-reflective self-awareness is the basis of our (...) understanding of what it is to be an experiencing subject and that that understanding reveals what being an experiencing subject consists in and what it is for experiences to belong to one single experiencer. Claim is used in an argument in favor of the so-called simple view with respect to synchronic and diachronic unity of consciousness. (shrink)

In November 2003, the University of Fribourg hosted a symposium on the ontology of colors. The invited participants included Justin Broackes, Alex Byrne, David Chalmers, Larry Hardin, Joe Levine and Barry Maund. The points of view presented by the participants in their thought-provoking papers were highly divergent. The presentation of each paper was followed by a long and intense discussion. Despite the divergence of the views proposed, the discussion during the symposium was highly focused. Several specific issues came up repeatedly (...) in the debate and illuminated the puzzle about the nature of colors in a thought provoking way from different angles. We include these papers in our brief description in the present introduction to present to the reader all the different viewpoints that have nourished the debate throughout the symposium. We are glad to be able to include one further invited paper by Jonathan Cohen in the present volume. In an attempt to transfer some of the atmosphere of the meeting to the reader and in order to make this collection still more stimulating we invited each participant to contribute comments on the other papers. (shrink)

The idea of responsibility is deeply embedded into the “lifeworld” of human beings and not subject to change. However, the empirical circumstances in which we act and ascribe responsibility to one another are subject to change. Science and technology play a great part in this transformation process. Therefore, it is important for us to rethink the idea, the role and the normative standards behind responsibility in a world that is constantly being transformed under the influence of scientific and technological progress. (...) This volume is a contribution to that joint societal effort. (shrink)

1 Grasping Properties I will present an argument for property dualism. The argument employs a distinction between having a concept of a property and grasping a property via a concept. If you grasp a property P via a concept C, then C is a concept of P. But the reverse does not hold: you may have a concept of a property without grasping that property via any concept. If you grasp a property, then your cognitive relation to that property is (...) more intimate then if you just have some concept or other of that property. To grasp a property is to understand what having that property essentially consists in. (shrink)

The theme of this issue of the St. Gallen Business Review is "Harmony". For this reason, we would like to discuss whether two aspects of our life- world are in harmony, namely economic optimization and morality. What is the relation between them? According to a widely shared view, which is one aspect of the doctrine of "mainstream economics", the functioning of an economic system does not require moral behaviour on the part of the individual economic agent. In what follows, we (...) will try to convince you that this is false. If all economic agents – managers, employees, bankers, consumers and so on – were purely self-interested, as mainstream economics assumes, our economic practice would fail. There are various reasons for this. Here we will focus on one of them, namely the pivotal role of interpersonal communication. (shrink)

The empirical circumstances in which human beings ascribe responsibility to one another are subject to change. Science and technology play a great part in this transformation process. Therefore, it is important for us to rethink the idea, the role and the normative standards behind responsibility in a world that is constantly changing under the influence of scientific and technological progress. This volume is a contribution to that joint societal effort.

Die Reihe "Philosophie und Politik" gibt der praktischen Politik Impulse aus der politischen Philosophie. Führende Politikerinnen und Politiker der deutschen Sozialdemokratie antworten auf die Anstöße aus philosophischer Sicht. Thomas M. Scanlon diskutiert in dem Band die Bedingungen, unter denen Gleichheit politisch relevant und ethisch begründet ist. Scanlon ist einer der profiliertesten zeitgenössischen Philosophen im Bereich der Ethik und der politischen Theorie. Er zählt zu den so genannten New Contractarians, also den Theoretikern, die mit und gegen John Rawls Gerechtigkeitstheorie zur Renaissance (...) des Vertragsargumentes in der politischen Philosophie beigetragen haben. Damit wurde eine Denkfigur wiederbelebt, die am Beginn der modernen europäischen Demokratie steht, die die Begründung politischer Ordnungen an individuelle Rationalität bindet und alle Bürger als gleiche und freie einbezieht. (shrink)

In this book, German philosopher Julian Nida-Rümelin presents a theory of practical reason that is objectivist, or rather realist, as an alternative to the widespread subjectivism in the theory of rationality. This theory has pragmatic traits that can be read as a constructive counterpart to Nida-Rümelin's critique of consequentialism whilst embedding its conception of rationality in the conceptual framework of decision and game theory.

According to the experience property framework qualia are properties of experiences the subject undergoing the experience is aware of. A phenomenological argument against this framework is developed and a few mistakes invited by the framework are described. An alternative to the framework, the framework of experiential properties is presented and defended as preferable. It is argued that the choice between these two frameworks makes a substantial difference for theoretical purposes.

In this essay, we argue against radical ethical views about human enhancement that either dismiss or endorse it tout court. Instead, we advocate the moderate stance that issues of enhancement should be examined with an open mind and on a case-by-case basis. To make this view plausible, we offer three reasons. The first lies in the fact that it is difficult to delineate enhancement conceptually, which makes it hard to argue for general ethical conclusions about it. The second is that (...) an appropriate view of the edifice of moral theory suggests that tenable moral judgements about human enhancement are the result of a careful consideration of the pros and cons that attach to the use of a specific enhancement technology. Lastly, we show that important normative factors in the enhancement debate can be used both in arguments for and in arguments against enhancement. The bottom line of our discussion is that we should treat issues of human enhancement like we do any other ethical issue, viz. by weighing up the reasons pro and con. (shrink)

A central thesis of Frankish's argument for illusionism is the claim that illusionism is possibly true. This is what the realist about phenomenal consciousness must deny. Frankish's argument for that premise is based on a widely shared understanding of phenomenal consciousness as being a matter of certain events instantiating special properties. I argue that the illusionist's reasoning is difficult to avoid if one accepts this common account. A positive argument for the thesis that the mere possibility of illusionism can be (...) excluded is developed. It uses a proposal about how the notion of phenomenal consciousness should be taken to pick out the phenomenon it refers to. Given that account it becomes obvious that the illusionist cannot be understood as seriously accepting his own theory. The belief in illusionism thus turns out to be an illusion. (shrink)

Biographical note: Detlef Ganten, Charité-Universitätsmedizin Berlin; Volker Gerhardt, Humboldt-Universität zu Berlin; Julian Nida-Rümelin, Ludwig-Maximilians-Universität München.

Name der Zeitschrift: Jahrbuch für Wissenschaft und Ethik Jahrgang: 19 Heft: 1 Seiten: 5-24.