Discussion about a dignified death has almost exclusively been applied to palliative care and people dying of cancer. As populations are getting older in the western world and living with chronic illnesses affecting their everyday lives, it is relevant to broaden the definition of palliative care to include other groups of people. The aim of the study was to explore the views on dignity at the end of life of 12 elderly people living in two nursing homes in Sweden. A (...) hermeneutic approach was used to interpret the material, which was gathered during semi-structured interviews. A total of 39 interviews were transcribed. The analysis revealed three themes: (1) the unrecognizable body; (2) fragility and dependency; and (3) inner strength and a sense of coherence. (shrink)

Research linking reading literary fiction to empathy supports health humanities programs in which reflective writing accompanies close readings of texts, both to explore principles of storytelling and to promote an examination of biases in care. Little attention has been paid to the possible contribution of guided fiction-writing in health humanities curricula toward enhancing cultural competence among health professionals, both clinical and community-based. Through an analysis of the short story “Pie Dance” by Molly Giles, juxtaposed with descriptions of specific writing exercises, (...) this paper explains how the demands of writing fiction promote cultural competency. (shrink)

Background: In this study, we aimed to investigate the effects of a mindfulness program including Mindfulness-Based Stress Reduction on the mental health of student teachers when offered at their educational institution in a real-life context.Methods: A parallel randomized controlled trial was conducted among self-selected student teachers at a Danish undergraduate program for teacher education in the autumns of 2019 and 2020. Participation was not recommended in case of clinical depression or a diagnosis of psychosis or schizophrenia, abuse of alcohol, drugs, (...) and/or medicine. Randomization was performed by a Statistician who was blinded to the identity of the students. Data was collected using self-reported questionnaires. The primary outcome was a change in perceived stress 3 months from baseline. Secondary outcome measures were symptoms of anxiety and depression, well-being, resilience, mindfulness, and thoughts and feelings during rest. The effects were analyzed according to the intention-to-treat principle using mixed-effect linear regression models. Mediating effects of mindfulness skills on the mental health outcomes were explored using structural equation modeling.Results: The study group included 67 student teachers with 34 allocated to the intervention group ; and 33 students allocated to a waiting list control group. At baseline, mean Perceived Stress Scale scores were 18.88 in the intervention group and 17.91 in the waiting list control group. A total of 56 students completed the questionnaire at a 3-month follow-up. Statistically significant effects of the intervention were found on perceived stress, symptoms of anxiety and depression, well-being, and on three of seven resting-state dimensions. No effects were found on resilience or mindfulness. Statistically significant mediated effects via resting-state dimensions were found.Conclusion The findings suggested that offering a mindfulness program at an undergraduate program for teacher education could significantly improve the mental health among self-selected students within 3 months. Results of mediation analysis supported the hypothesis that some of the effects might be explained by reduced distracting thoughts.Clinical Trial Registration: [www.ClinicalTrials.gov], identifier [NCT04558099]. (shrink)

Responsible conduct of research and research integrity has become a key concern in both research policy and public media resulting in a number of soft law documents, such as codes of conduct at national and supranational levels. This article zooms in on the institutions that are supposed to translate these overall policies and guidelines into workable and recognizable structures for researchers, that is, the mediating layer between the policy articulations and the individual researchers and research groups; a perspective which has (...) been notably lacking in the literature on research integrity. Document analysis demonstrated how research organizations translated and integrated demands for research integrity measures differently, and interviews explored how department heads made sense of these organizational efforts. Results show that department heads did not seem to use organizational policies in their sensemaking around research integrity. To a much larger degree, they used disciplinary norms, systemic pressures and other cues to construct the meaning of integrity. The heads of department articulated integrity as a “non-problem” in their own local context, rather, it was other departments and other countries that experienced lack of research integrity. This meant that the origin of the problem of integrity is located in the system, but to a large extent the department heads describe the solution of the problem to be in the culture of research. The implications of this dis-location and externalizing of integrity are discussed. (shrink)

Dans un article intitulé "Féminisme et théorie politique" inclus dans cet ouvrage collectif, Guy Bouchard présente la critique féministe de la théorie politique, tant dans son volet philosophique que dans sa dimension scientifique; il insiste sur l'actualité de cette critique, puisque l'image officielle d'elle-même que projette la discipline continue à ignorer les femmes; et il discute trois modèles de rapports entre féminisme et théorie politique: (1) le rejet féministe de cette théorie; (2) l'intégration à celle-ci des préoccupations féministes; (3) sa (...) reconstruction dans une perspective féministe, reconstruction pouvant emprunter trois voies: remplacer l'androcentrisme par le gynocentrisme; juxtaposer la théorie politique traditionnelle et une théorie politique féministe; élaborer une orientation qui ne soit ni androcentrique ni gynocentrique et qui transcende la simple juxtaposition. (shrink)

BackgroundHealthcare professionals and surrogate decision-makers often face the difficult decision of whether to initiate or withhold antibiotics from people with dementia who have developed a life-threatening infection after losing decisional capacity.MethodsWe conducted a vignette-based survey among 1050 Quebec stakeholders (senior citizens, family caregivers, nurses and physicians; response rate 49.4%) to (1) assess their attitudes toward withholding antibiotics from people with dementia lacking decisional capacity; (2) compare attitudes between dementia stages and stakeholder groups; and (3) investigate other correlates of attitudes, including (...) support for continuous deep sedation (CDS) and medical assistance in dying (MAID). The vignettes feature a woman moving along the dementia trajectory, who has refused in writing all life-prolonging interventions and explicitly requested that a doctor end her life when she no longer recognizes her loved ones. Two stages were considered after she had lost capacity: the advanced stage, where she likely has several more years to live, and the terminal stage, where she is close to death.ResultsSupport for withholding antibiotics ranged from 75% among seniors and caregivers at the advanced stage, to 98% among physicians at the terminal stage. Using the generalized estimating equation approach, we found stakeholder group, religiosity, and support for CDS and MAID, to be associated with attitudes toward antibiotics.ConclusionsFindings underscore the importance for healthcare professionals of discussing underlying values and treatment goals with people at an early stage of dementia and their relatives, to help them anticipate future care decisions and better prepare surrogates for their role. Findings also have implications for the scope of MAID laws, in particular in Canada where the extension of MAID to persons lacking decisional capacity is currently being considered. (shrink)

In recent years, policymakers have begun to problematize how legislation stands in the way of the digitalization of the public sector. We are witnessing the emergence of a new phenomenon, digital-ready legislation, which implies that, whenever possible, new legislation should build on simple rules and unambiguous terminology to reduce the need for professional discretion and allow for the extended use of automated case processing in public-sector organizations. Digital-ready legislation has potentially wide-ranging consequences because it creates the conditions for how public (...) organizations are digitalized. The processes, practices, choices, and responsibilities for drafting digital-ready legislation, however, are not well-described or debated. Digital-ready legislation is a dormant issue. This paper develops the notion of the “double darkness” of digitalization to account for this. Based on a qualitative study, the paper investigates how digital-ready legislation as a sociotechnical arrangement is shaped by policy tools and by a complex, collaborative process where responsibility for legislation is fragmented. It argues that although the policy tools are aimed at making actors responsible for digitalization and creating clarity about the process, actors seem to be reluctant to take on the responsibility for making political decisions related to digitalization. (shrink)

The value of diaconia is difficult to measure, its immaterial assets not easily grasped. In this article, I contribute to the area in analysing the perspective of 22 deacons on what is most important in their job and what could potentially be of greatest value if there were no restrictions of money and other resources. Data were collected in the midst of the Corona crisis in 2021 in the Porvoo diocese in the Evangelical Lutheran Church of Finland. The timing of (...) data collection therefore coincides with a unique chance to rethink ways of doing things. International research shows that the religious heritage of diaconia has changed from merely supporting people in need to also advocating marginalized groups and building bridges to other actors. This intangible heritage is sensitive to changes in society, whereby latent sources of value creation may be traced. Key contributions are identifying new areas of development of this religious heritage and assessing the value creation taking place – now and in a potential future. For this, understanding the changed role of diaconia in society and in the church are central. (shrink)

A recent qualitative study published in Neuroethics by Schembs and colleagues explores how functional neurodiagnostics of consciousness inform surrogate decision making in cases of disorders of consciousness. In this commentary, we argue that the chosen methodology significantly limits the scope of the potential conclusions and suggest an embedded ethnographic approach of co-presence as an alternative.

The authors of the "Saṃnyāsa Upaniṣads", manuals of ascetic lifestyle and practice, recommend that wanderers renounce behavioral standards of their formerly Brahmin householder life, including ritual purity and familial duties. Patrick Olivelle argues that these ascetics are thereafter considered impure and corpse- or ghoul-like, clearly lacking in dharma. However, these Upanisads counsel pursuing mental purity and moral behavior, and modeling oneself after the perfection of the Absolute. This essay investigates ascetic notions of purity and identity, and virtues such as non-violence (...) and kindness cultivated in forest isolation. Is ascetic dharma universal in intent, and is it conceptually opposed to householder dharma? What type of ethics is admired by the authors, what type deprecated? Olivelle's position is reevaluated, as is Jeffrey Kripal's notion that monistic mysticism does not support ethics adequately. (shrink)

The authors of the Samnyāsa Upanisads, manuals of ascetic lifestyle and practice, recommend that wanderers renounce behavioral standards of their formerly Brahmin householder life, including ritual purity and familial duties. Patrick Olivelle argues that these ascetics are thereafter considered impure and corpse– or ghoul–like, clearly lacking in dharma. However, these Upanisads counsel pursuing mental purity and moral behavior, and modeling oneself after the perfection of the Absolute. This essay investigates ascetic notions of purity and identity, and virtues such as non–violence (...) and kindness cultivated in forest isolation. Is ascetic dharma universal in intent, and is it conceptually opposed to householder dharma? What type of ethics is admired by the authors, what type deprecated? Olivelle’s position is reevaluated, as is Jeffrey Kripal’s notion that monistic mysticism does not support ethics adequately. (shrink)

In modern and well-structured universities, ethics centers are playing a key role in hosting, organizing, and managing activities to enrich and guide students’ ethical thinking and analysis. This paper presents a comprehensive survey of the goals, activities, and administration of ethics centers, as well as their role in promoting ethical thinking for academic, career, and business purposes. The paper also gives an overview of the most common activities organized by these hubs in order to highlight their contributions to pedagogy, student (...) learning and intellectual growth, research development, and community service. This study is based on an intensive review conducted on seventy-five ethics centers established in universities and colleges around the globe. First, it provides administrations of academic institutions with the basic knowledge needed to plan for potential new ethics centers. They can benefit from the present expertise of described ethics centers and project the practical methodologies on their university needs. In addition, directors and coordinators of established ethics centers would enhance their experience by including new activities and collaborations to their plans. Finally, ethics course instructors can benefit from the listed activities to increase student involvement by including practical methods and discussions beyond the classroom. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Philosophy of Music Education Review 15.2 (2007) 177-179MuseSearchJournalsThis JournalContents[Access article in PDF]Reviewed byLise Vaugeois University of TorontoHildegard C. Froehlich, Sociology for Music Teachers:Perspectives for Practice (Upper Saddle River, NJ: Pearson Prentice Hall, 2007)Hildegard Froehlich's book, Sociology for Music Teachers, provides an important and much needed resource for undergraduate and advanced music education programs. Music students tend to see their interests and goals within a narrow framework, one that is (...) reinforced by the intensely personal nature of music-making as well as the material and psychological separation that inheres from our location in physically detached faculties of music. Froehlich's book provides a resource that directly addresses this tendency towards narrowness by inviting students to engage with sociological questions as they affect us personally, professionally, and in the context of questions much larger than ourselves.The book is organized into eight chapters, each of which explores a particular set of questions and introduces related studies and resources. She recommends that students actively engage with the material and provides suggestions for group discussion throughout the book. Each chapter introduces a comprehensive survey of related questions and the body of literature that investigates these questions. Thus, it can be used as the basis to structure an undergraduate course as well as a literature guide for graduate students.Undergraduate students are often resistant to exploring ideas beyond their [End Page 177] immediate conceptions of themselves as musicians and Froehlich addresses this resistance by discussing concepts about identity formation in the first chapter. Students are thus asked to consider a series of questions they can easily recognize as relevant to their own lives. She begins with the personal and the familiar and then brings in ideas that broaden the range of inquiry, gradually introducing concepts that challenge many of our assumptions about the meaning of music in different people's lives; the range of meanings possible within sounds and musical practices; the role of public education and various ways that music education functions within this larger system, and important questions about how we might conceive of ourselves as transmitters of extant cultural values or transformers of values and social relations.The chapter headings give an indication of the range of material introduced in her text: "The Performer and Teacher in You: A Matter of Identity"; "Teaching as Work: What Educational Sociologists Tell Us"; "Music Learning and Teaching as Socially Situated Acts"; "Music and Social Context: Macro, Micro, and Interactive Perspectives in Selected Texts on the Sociology of Music"; "Musical Meaning and Social Context: Thoughts by Selected Ethnomusicologists and Cultural Theorists"; "Sociology of Education: Major Theories and Their Connection to School Practice"; "Application of Sociological Constructs in Education to Music Schooling"; "Conclusion: You and the Big Picture." Each chapter gives a historical survey of the literature pertaining to the area of inquiry plus an introduction to contemporary writing. Competing discourses are introduced throughout.Froehlich's survey of disciplines that intersect with sociology is quite comprehensive. Amongst other disciplines, she includes foundational literature from musicology, philosophy of music education, sociology of education, and social psychology. The book is thus valuable as a resource for its bibliography alone. She also includes a glossary of terms, another feature that makes the book particularly helpful to undergraduate students. One writer I was surprised not to see included is Jacques Attali. His theoretical arguments on the relations of musical culture to economy provide a significant lens for considering the influence of music on social development and would have been an appropriate addition to the chapter on "Music and Social Context." I also missed work by musicologists and human geographers who have explored the role of race in music and music education.Related to these missing discourses, I have a major concern that is less a critique of Froehlich than an acknowledgement that this position has not yet been given sufficient consideration in our field, and to which Deborah Bradley refers as the "normative centering of whiteness."1 Froehlich bases her work on the assumption that her audience consists of a... (shrink)

This article employs the concept of respectability and the discursive representation of gender equality policies to discuss how surrogacy is represented in Nordic parliamentary debates and policy documents. The article’s objective is to study how respectability, problems and equality are represented and discursively and rhetorically produced through a comparative study of Finnish and Norwegian political discourses on domestic unpaid surrogacy and cross-border commercial surrogacy. The article uses rhetorical and discursive analysis to analyse the Finnish and Norwegian Parliaments’ bills, members’ initiatives (...) and proceedings from 2002 to 2018. Finland’s policy on surrogacy has evolved from an unregulated and permissive approach towards a more restrictive one, with discourses focusing on medicalisation, equality, altruism and safety concerning domestic surrogacy and problems and risks concerning cross-border surrogacy. Norway’s policy on surrogacy has been restrictive consistently, with discourses focusing on surrogacy as a transnational social problem involving exploitation of women and children, and biocentrism. Analysing surrogacy regulation in Nordic welfare states, the author concludes that policies and parliamentary debates in both countries have expressed expectations for inclusive health policies and social security for families. Cross-border surrogacy is characterised as an unwanted consequence of globalisation and marketisation of reproduction. Surrogate mothers’ respectability is constructed through rhetoric on differences in terms of nationality, class and binary representations of female caring and instrumentalism. (shrink)

This article provides a deeper understanding of how meaning can be created in everyday life at a nursing home. It is based on a primary study concerning dignity involving 12 older people living in two nursing homes in Sweden. A secondary analysis was carried out on data obtained from three of the primary participants interviewed over a period of time (18—24 months), with a total of 12 interviews carried out using an inductive hermeneutic approach. The study reveals that sources of (...) meaning were created by having a sense of: physical capability, cognitive capability, being needed, and belonging. Meaning was created through inner dialogue, communication and relationships with others. A second finding is that the experience of meaning can sometimes be hard to realize. (shrink)

Co-authored by a Computer Scientist and a Digital Humanist, this article examines the challenges faced by cultural heritage institutions in the digital age, which have led to the closure of the vast majority of born-digital archival collections. It focuses particularly on cultural organizations such as libraries, museums and archives, used by historians, literary scholars and other Humanities scholars. Most born-digital records held by cultural organizations are inaccessible due to privacy, copyright, commercial and technical issues. Even when born-digital data are publicly (...) available, users often need to physically travel to repositories such as the British Library or the Bibliothèque Nationale de France to consult web pages. Provided with enough sample data from which to learn and train their models, AI, and more specifically machine learning algorithms, offer the opportunity to improve and ease the access to digital archives by learning to perform complex human tasks. These vary from providing intelligent support for searching the archives to automate tedious and time-consuming tasks. In this article, we focus on sensitivity review as a practical solution to unlock digital archives that would allow archival institutions to make non-sensitive information available. This promise to make archives more accessible does not come free of warnings for potential pitfalls and risks: inherent errors, "black box" approaches that make the algorithm inscrutable, and risks related to bias, fake, or partial information. Our central argument is that AI can deliver its promise to make digital archival collections more accessible, but it also creates new challenges - particularly in terms of ethics. In the conclusion, we insist on the importance of fairness, accountability and transparency in the process of making digital archives more accessible. (shrink)

Résister à teinter l’information dans un monde polarisé, ainsi pourrait se résumer le principal défi des salles de presse contemporaines, soumises à la transmission rapide et à une circulation de l’information qui n’a pas toujours le luxe du temps et donc, du nécessaire recul pour bien témoigner des faits. Lise Millette, journaliste à la Presse Canadienne et rédactrice en chef de la revue Trente, croit que l’heure n’est plus à la hantise des médias sociaux, mais qu’en revanche, les journalistes (...) doivent s’imposer eux-mêmes des normes d’utilisation et assumer leurs responsabilités professionnelles. Les débats polarisés de la der­nière année ont plus que jamais divisé le Québec. Ces scissions ont pris d’assaut les réseaux sociaux, qui sont devenus le carrefour et le nerf d’une guerre de mots. Les journalistes ont été sur les lignes de front que sont le terrain et la couverture quotidienne, mais ils ont aussi été confrontés à leurs propres réflexions. La profession journalistique exige de la rigueur. Les responsabilités de la presse sont grandes, comme le sont les attentes du public. (shrink)

Dans cet ouvrage collectif, l'article de Guy Bouchard intitulé "Comment émasculiniser l' écriture philosophique" met d'abord en lumière le sexisme qui a caractérisé tant la philosophie que le langage en général; il s'interroge ensuite sur les façons "d'émasculiniser" l' écriture philosophique et au niveau de la pensée, et à celui du langage.

The essays are grouped in three sections. In Part I Vogel considers the relationship between feminism and socialism.

A recent single cell mRNA sequencing study by Dueck et al. compares neuronal transcriptomes to the transcriptomes of adipocytes and cardiomyocytes. Single cell ‘omic approaches such as those used by the authors are at the leading edge of molecular and biophysical measurement. Many groups are currently employing single cell sequencing approaches to understand cellular heterogeneity in cancer and during normal development. These single cell approaches also are beginning to address long‐standing questions regarding nervous system diversity. Beyond an innate interest in (...) cataloging cell type diversity in the brain, single cell neuronal diversity has important implications for neurotypic neural circuit function and for neurological disease. Herein, we review the authors’ methods and findings, which most notably include evidence of unique expression profiles in some single neurons. (shrink)

In contemporary philosophy of science, the consensus view seems to be that scientific explanations describe mechanisms responsible for the phenomena to be explained. Two kinds of explanatory relevance figure in mechanistic accounts of explanation: causal and constitutive. Following prominent accounts, it seems natural to analyze both these relations in terms of systematic interventions into some factor X with respect to another factor Y. However, such interventions are tailored to uncover causal relations only. Construing the constitutive relationship between parts and wholes (...) in terms of interventions thus raises metaphysical, conceptual, and epistemological questions. We here review the barriers that intervention-based inquiry into mechanisms encounters and consider some solutions. (shrink)

The first of its kind, this book provides a full account of 'referential expressions' in language. It offers an integrated framework, which combines perspectives from functional grammar and cognitive linguistics with psycholinguistic evidence. It is essential reading for academic researchers in syntax, discourse analysis and cognitive linguistics.

Ce bilan historiographique repose sur une vaste enquête menée à travers les différents champs historiographiques susceptibles d’informer l’évolution des pratiques et représentations de la nudité. L’objectif est d’éclairer les rapports dialectiques que le corps dénudé entretient avec les normes et les relations de genre en France au cours du second xixe siècle. Au cœur de la fabrique des archétypes du féminin et du masculin, les représentations différenciées du dénudement constituent un maillon essentiel dans la perpétuation de la domination masculine tout (...) au long de la période. Cependant, au tournant du siècle, le dénudement représente paradoxalement un instrument de libération individuelle pour une série de pionnières, artistes et sportives qui, en s’emparant de nouvelles représentations du corps, ont pu subvertir les normes de genre propres à la culture bourgeoise et conquérir ainsi une marge d’autonomie et de liberté sans précédent. (shrink)

Dans cet ouvrage collectif, l'article de Guy Bouchard intitulé "Féminisme, utopie, philosophie" offre d'abord une définition du féminisme et de ses tendances. Il examine ensuite les liens entre le féminisme et la philosophie, laquelle, historiquement, s'est révélée dans l'ensemble à la fois masculine et masculinise. Finalement, il explore les rapports du féminisme à l'hétéropolitique, c'est-à-dire au thème de la société idéalisée soit sur le mode de la fiction (utopie), soit sur celui de la discursivité théorique (para-utopie), afin de faire ressortir (...) les enjeux du rapport des femmes tant à la philosophie qu'à la société nouvelle. (shrink)

It is important to create a framework in the education of professional musicians, whether these musicians are students of music education, performance, composition, musicology, ethnomusicology, or conducting, in which the political dimensions of their lives can be critically examined. Lise Vaugeois argues that creating such a framework would enhance their capacity to thrive as musicians and to function responsibly and pro-actively as citizens in a democracy. By exploring issues pertaining to musicians as workers, teachers, and cultural producers, she examines (...) materiality, ideology, and power in the lives of university and conservatory educated musicians. These examples are followed by an introduction to critical pedagogy, in particular, the work of Paulo Freire, and some of the tools and premises critical pedagogy brings to questions raised in the paper. Strategies and resources that could support a shift in the culture of professional music schools conclude the paper. (shrink)

Background:Nurses working within acute psychiatric settings often face multifaceted moral dilemmas and incompatible demands.Methods:Qualitative individual and focus group interviews were conducted.Ethical considerations:Approval was received from the Norwegian Social Science Data Services. Ethical Research Guidelines were followed.Participants and research context:Thirty nurses working within acute psychiatric wards in two mental health hospitals.Results:Various coping strategies were used: mentally sorting through their ethical dilemmas or bringing them to the leadership, not ‘bringing problems home’ after work or loyally doing as told and trying to make (...) oneself immune. Colleagues and work climate were important for choice of coping strategies.Discussion:Nurses’ coping strategies may influence both their clinical practice and their private life. Not facing their moral distress seemed to come at a high price.Conclusions:It seems essential for nurses working in acute psychiatric settings to come to terms with distressing events and identify and address the moral issues they face. As moral distress to a great extent is an organisational problem experienced at a personal level, it is important that a work climate is developed that is open for ethical discussions and nourishes adaptive coping strategies and moral resilience. (shrink)