43 found
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  1.  30
    Social determinants of health and slippery slopes in assisted dying debates: lessons from Canada.Jocelyn Downie & Udo Schuklenk - 2021 - Journal of Medical Ethics 47 (10):662-669.
    The question of whether problems with the social determinants of health that might impact decision-making justify denying eligibility for assisted dying has recently come to the fore in debates about the legalisation of assisted dying. For example, it was central to critiques of the 2021 amendments made to Canada’s assisted dying law. The question of whether changes to a country’s assisted dying legislation lead to descents down slippery slopes has also come to the fore—as it does any time a jurisdiction (...)
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  2.  29
    From Prohibition to Permission: The Winding Road of Medical Assistance in Dying in Canada.Jocelyn Downie - 2022 - HEC Forum 34 (4):321-354.
    In this paper, I offer a personal and professional narrative of how Canada went from prohibition to permission for medical assistance in dying. I describe the legal developments to date and flag what might be coming in the near future. I also offer some personal observations and reflections on the role and impact of bioethics and bioethicists, on what it was like to be a participant in Canada's law reform process, and on lessons that readers in other jurisdictions might take (...)
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  3.  74
    End-of-Life Decision-Making in Canada: The Report by the Royal Society of Canada Expert Panel on End-of-Life Decision-Making.Udo Schüklenk, Johannes J. M. van Delden, Jocelyn Downie, Sheila A. M. Mclean, Ross Upshur & Daniel Weinstock - 2011 - Bioethics 25 (s1):1-73.
    ABSTRACTThis report on end‐of‐life decision‐making in Canada was produced by an international expert panel and commissioned by the Royal Society of Canada. It consists of five chapters.Chapter 1 reviews what is known about end‐of‐life care and opinions about assisted dying in Canada.Chapter 2 reviews the legal status quo in Canada with regard to various forms of assisted death.Chapter 3 reviews ethical issues pertaining to assisted death. The analysis is grounded in core values central to Canada's constitutional order.Chapter 4 reviews the (...)
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  4.  87
    Welcome to the Wild, Wild North: Conscientious Objection Policies Governing Canada's Medical, Nursing, Pharmacy, and Dental Professions.Jacquelyn Shaw & Jocelyn Downie - 2013 - Bioethics 28 (1):33-46.
    In Canada, as in many developed countries, healthcare conscientious objection is growing in visibility, if not in incidence. Yet the country's health professional policies on conscientious objection are in disarray. The article reports the results of a comprehensive review of policies relevant to conscientious objection for four Canadian health professions: medicine, nursing, pharmacy and dentistry. Where relevant policies exist in many Canadian provinces, there is much controversy and potential for confusion, due to policy inconsistencies and terminological vagueness. Meanwhile, in Canada's (...)
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  5.  32
    Let Conscience Be Their Guide? Conscientious Refusals in Health Care.Carolyn McLeod & Jocelyn Downie - 2013 - Bioethics 28 (1):ii-iv.
    The introduction to a special issue of the journal Bioethics that we edited.
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  6.  11
    Transnational Trade in Human Eggs: Law, Policy, and (In)Action in Canada.Jocelyn Downie & Françoise Baylis - 2013 - Journal of Law, Medicine and Ethics 41 (1):224-239.
    In Canada there is a growing demand for human eggs for reproductive purposes and currently demand exceeds supply. This is not surprising, as egg production and retrieval is onerous. It requires considerable time, effort, and energy and carries with it significant physical and psychological risks. In very general terms, one cycle of egg production and retrieval involves an estimated total of 56 hours for interviews, counseling, and medical procedures. The screening carries risks of unanticipated findings with severe consequences for insurability. (...)
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  7.  21
    Transnational Trade in Human Eggs: Law, Policy, and (In)Action in Canada.Jocelyn Downie & Françoise Baylis - 2013 - Journal of Law, Medicine and Ethics 41 (1):224-239.
    In this paper, we provide as accurate a picture as possible of transnational trade in human eggs involving Canadians. We explain the legal status in Canada, and call for reform in the regulation, of such trade.
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  8.  28
    Children and Decisionmaking in Health Research.Françoise Baylis, Jocelyn Downie & Nuala Kenny - 1999 - IRB: Ethics & Human Research 21 (4):5.
  9.  51
    Pediatric Neuroimaging Ethics.Jocelyn Downie & Jennifer Marshall - 2007 - Cambridge Quarterly of Healthcare Ethics 16 (2):147-160.
    Neuroimaging has provided insight into numerous neurological disorders in children, such as epilepsy and cerebral palsy. Many clinicians and investigators believe that neuroimaging holds great promise, especially in the areas of behavioral and cognitive disorders. However, concerns about the risks of various neuroimaging modalities and the potential for misinterpretation of imaging results are mounting. Imaging evaluations also raise questions about stigmatization, allocation of resources, and confidentiality. Children are particularly vulnerable in this milieu and require special attention with regards to safety (...)
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  10. Being Relational: Reflections on Relational Theory and Health Law and Policy.Jocelyn Downie & Jennifer Lewellyn (eds.) - 2011 - University of British Columbia Press.
     
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  11.  15
    An Alternative to Medical Assistance in Dying? The Legal Status of Voluntary Stopping Eating and Drinking (VSED).Jocelyn Downie - unknown
    Medical assistance in dying (MAiD) has received considerable attention from many in the field of bioethics. Philosophers, theologians, lawyers, and clinicians of all sorts have engaged with many challenging aspects of this issue. Public debate, public policy, and the law have been enhanced by the varied disciplinary analyses. With the legalization of MAiD in Canada, some attention is now being turned to issues that have historically been overshadowed by the debate about whether to permit MAiD. One such issue is voluntary (...)
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  12.  4
    Comparisons Only Yield Valid Mutual Learnings If Based on Accurate Descriptions of the Comparators.Jocelyn Downie - 2023 - American Journal of Bioethics 23 (11):94-96.
    In “Slowing the slide down the slippery slope of Medical Assistance in Dying: Mutual Learnings for Canada and the US,” Daryl Pullman (2023) gets a variety of empirical, logical and legal things wro...
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  13. Moving Forward with a Clear Conscience: A Model Conscientious Objection Policy for Canadian Colleges of Physicians and Surgeons.Jocelyn Downie, Carolyn McLeod & Jacquelyn Shaw - 2013 - Health Law Review 21 (3):28-32.
    A model policy for conscientious objection in medicine.
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  14.  20
    Refusing care as a legal pathway to medical assistance in dying.Jocelyn Downie & Matthew J. Bowes - unknown
    Can a competent individual refuse care in order to make their natural death reasonably foreseeable in order to qualify for medical assistance in dying (MAiD)? Consider a competent patient with left-side paralysis following a right brain stroke who is not expected to die for many years; normally his cause of death would not be predictable. However, he refuses regular turning, so his physician can predict that pressure ulcers will develop, leading to infection for which he will refuse treatment and consequently (...)
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  15.  50
    Organizational ethics canadian style.Nuala P. Kenny, Jocelyn Downie, Carolyn Ells & Chris MacDonald - 2000 - HEC Forum 12 (2):141-148.
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  16.  48
    The limits of altruism and arbitrary age limits.Françoise Baylis & Jocelyn Downie - 2003 - American Journal of Bioethics 3 (4):19 – 21.
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  17.  27
    Health Care Ethics in Canada.Françoise Baylis, Jocelyn Downie, Barry Hoffmaster & Susan Sherwin (eds.) - 2004 - Harcourt Brace.
    The third edition of Health Care Ethics in Canada builds on the commitment to Canadian content established in earlier editions without sacrificing breadth or rigor.
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  18.  18
    Finding the right compass for issue-mapping in neuroimaging.Jocelyn Downie & Michael Hadskis - 2005 - American Journal of Bioethics 5 (2):27 – 29.
  19. Child abuse and neglect: cross-cultural considerations.Francoise Baylis & Jocelyn Downie - 1997 - In Hilde Lindemann (ed.), Feminism and Families. Routledge. pp. 173--187.
     
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  20.  19
    An Assessment of Ethical Climate in Three Healthcare Organizations.Carolyn Ells, Jocelyn Downie & Nuala Kenny - 2002 - Journal of Clinical Ethics 13 (1):18-28.
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  21.  12
    A qualitative study of experiences of institutional objection to medical assistance in dying in Canada: ongoing challenges and catalysts for change.Eliana Close, Ruthie Jeanneret, Jocelyn Downie, Lindy Willmott & Ben P. White - 2023 - BMC Medical Ethics 24 (1):1-24.
    Background In June 2016, Canada legalized medical assistance in dying (MAiD). From the outset, some healthcare institutions (including faith-based and non-faith-based hospitals, hospices, and residential aged care facilities) have refused to allow aspects of MAiD onsite, resulting in patient transfers for MAiD assessments and provision. There have been media reports highlighting the negative consequences of these “institutional objections”, however, very little research has examined their nature and impact. Methods This study reports on findings from 48 semi-structured qualitative interviews conducted with (...)
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  22.  31
    Achieving national altruistic self-sufficiency in human eggs for third-party reproduction in Canada.Françoise Baylis & Jocelyn Downie - 2014 - International Journal of Feminist Approaches to Bioethics 7 (2):164-184.
    In Canada, the use of reproductive technologies is largely governed by the Assisted Human Reproduction Act . One of the founding principles of the AHR Act is that “trade in the reproductive capabilities of women and men, and the exploitation of children, women and men for commercial ends raise health and ethical concerns that justify their prohibition” ). This principle is instantiated in several sections of the AHR Act, including s. 7, which prohibits the purchase of gametes. It follows that, (...)
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  23.  9
    Achieving national altruistic self-sufficiency in human eggs for third-party reproduction in canada.Françoise Baylis & Jocelyn Downie - 2014 - International Journal of Feminist Approaches to Bioethics 7 (2):164-184.
    To avoid the commercialization of reproduction, the Canadian Assisted Human Reproduction Act prohibits the purchase of human eggs. We endorse this legal prohibition and moreover believe that this facet of the law should not be allowed to have as an unintended consequence an increase in transnational trade in human eggs. In an effort to avoid this consequence, and to be consistent with the AHR Act, we advocate the pursuit of national altruistic self-sufficiency. This article briefly outlines a number of strategies (...)
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  24.  15
    Assisted Dying for Individuals with Dementia: Challenges for Translating Ethical Positions into Law.Georgia Lloyd-Smith & Jocelyn Downie - 2015 - In Michael Cholbi & Jukka Varelius (eds.), New Directions in the Ethics of Assisted Suicide and Euthanasia. Cham: Springer Verlag. pp. 67-92.
    In this chapter, we explore the issue of assisted dying for individuals with dementia at the nexus of ethics and law. We set out the basic medical realities of dementia and the available data about the desire for the option of assisted dying in the face of dementia. We then describe law and practice with respect to voluntary euthanasia and assisted suicide in jurisdictions that permit at least some assisted dying. We conclude that, because of the peculiar ways in which (...)
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  25.  32
    Integrating Bioethics and Health Law Into the Canadian Institutes of Health Research.Susan Sherwin, Françoise Baylis, Alan Bernstein, Timothy Caulfield, Bernard Dickens, Jocelyn Downie, Bartha Knoppers, Thérèse Leroux, Neil MacDonald, Michael McDonald, Janet Storch & Charles Weijer - unknown
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  26.  22
    Notes on contributors.Erdem Aydin, Evan G. DeRenzo & Jocelyn Downie - 2000 - HEC Forum 12 (2):181-184.
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  27.  56
    Drilling down in neuroethics.Françoise Baylis & Jocelyn Downie - 2009 - Bioethics 23 (6):iii-iv.
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  28.  8
    From theory, to practice, to policy.Franfoise Baylis, Jocelyn Downie & Susan Sherwin - 2002 - In Ruth F. Chadwick & Doris Schroeder (eds.), Applied Ethics: Critical Concepts in Philosophy. Routledge. pp. 1--140.
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  29.  34
    Introduction.Françoise Baylis & Jocelyn Downie - 2014 - International Journal of Feminist Approaches to Bioethics 7 (2):1-9.
    Transnational reproductive travel is a largely unfettered multibillion-dollar global industry that flourishes, in part, by capitalizing on differences in legal regimes, wages and standards of living, and cultural and ethical norms. Indeed, as Scott Carney explains with respect to the commercialization of human eggs for third-party reproduction, “internationalization has made oversight laughable. … [R]egulators are dogs with no teeth” . While professional organizations can introduce guidelines and nation-states can introduce laws, the fact is that patients can travel to places where (...)
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  30. Where there's smoke, there's Pfizer".Francoise Baylis & Jocelyn Downie - 2018 - In Françoise Baylis & Alice Domurat Dreger (eds.), Bioethics in action. New York, NY: Cambridge University Press.
     
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  31.  10
    An Alternative to Medical Assistance in Dying? The Legal Status of Voluntary Stopping Eating and Brinking.Jocelyn Downie - 2018 - Canadian Journal of Bioethics/Revue canadienne de bioéthique 1 (2):48-58.
    Medical assistance in dying has received considerable attention from many in the field of bioethics. Philosophers, theologians, lawyers, and clinicians of all sorts have engaged with many challenging aspects of this issue. Public debate, public policy, and the law have been enhanced by the varied disciplinary analyses. With the legalization of MAiD in Canada, some attention is now being turned to issues that have historically been overshadowed by the debate about whether to permit MAiD. One such issue is voluntary stopping (...)
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  32.  26
    Brain death and brain life: Rethinking the connection.Jocelyn Downie - 1990 - Bioethics 4 (3):216–226.
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  33.  9
    Brain Death and Brain Life: Rethinking the Connection.Jocelyn Downie - 1990 - Bioethics 4 (3):216-226.
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  34.  40
    Feminist health care ethics consultation.Jocelyn Downie & Susan Sherwin - 1993 - HEC Forum 5 (3):165-175.
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  35.  14
    Glass houses: The power of money in bioethics research.Jocelyn Downie - 2009 - International Journal of Feminist Approaches to Bioethics 2 (2):97-115.
    In this paper I explore the power of money in bioethics research and ask whether, while casting stones regarding financial conflicts of interest in health research, bioethics researchers are in fact living in glass houses. I first review the need for money in bioethics research, the sources of money, and key features of the money. Next I explore a range of possible objectives for the money transfer. I then examine the effects of this transfer and raise some questions and concerns (...)
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  36.  20
    Inadmissible, Eh?Jocelyn Downie & Ronalda Murphy - 2007 - American Journal of Bioethics 7 (9):67-69.
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  37.  45
    The Olivieri case: Lessons for australasia.Jocelyn Downie, Jon Thompson, Patricia Baird & Susan Dodds - 2005 - Journal of Bioethical Inquiry 2 (2):90-105.
    The case of Dr. Nancy Olivieri, the Hospital for Sick Children, the University of Toronto, and Apotex Inc. vividly illustrates many of the issues central to contemporary health research and the safety of research participants. First, it exemplifies the financial and health stakes in such research. Second, it shows deficits in the ways in which research is governed. Finally, it was and remains relevant not only in Toronto but in communities across Canada and well beyond its borders because, absent appropriate (...)
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  38.  7
    Why Feminist Philosophy (Especially Sue Sherwin’s) Matters: Reflections through the Lens of Medical Assistance in Dying.Jocelyn Downie - 2020 - International Journal of Feminist Approaches to Bioethics 13 (2):21-27.
    In the not-too-distant past, medical assistance in dying was illegal in Canada. Assisted suicide and voluntary euthanasia were prohibited by the Criminal Code. Many attempts were made to change the law. The most famous of these was the case of Sue Rodriguez, who took a Charter challenge of the prohibition to the Supreme Court of Canada. A number of bills were also introduced in the Federal Parliament. All were doomed to failure. But then … change came.First, the province of Quebec (...)
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  39. Respectful involvement of children in medical decision making.Nuala Kenny, Jocelyn Downie & Christine Harrison - 2008 - In Peter A. Singer & A. M. Viens (eds.), The Cambridge Textbook of Bioethics. Cambridge University Press. pp. 121.
     
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  40. Pediatric Magnetic Resonance Research and the Minimal-Risk Standard.Matthias Schmidt, Jennifer Marshall, Jocelyn Downie & Michael Hadskis - 2011 - IRB: Ethics & Human Research 33 (5):1-6.
    While an accurate assessment of risk is always important, it is especially so in pediatric research. Recognizing the pivotal nature of the minimal-risk standard, we set out to determine under what circumstances pediatric magnetic resonance imaging research does or does not meet this standard. We found that while the physical and psychological risks that attend the MRI procedure do not exceed minimal risk, the sedation and contrast enhancement that are sometimes associated with MRI research do, as both exceed the level (...)
     
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  41.  7
    Attitudes toward withholding antibiotics from people with dementia lacking decisional capacity: findings from a survey of Canadian stakeholders.Lise Trottier, Marcel Arcand, Jocelyn Downie, Lieve Van den Block & Gina Bravo - 2021 - BMC Medical Ethics 22 (1):1-11.
    BackgroundHealthcare professionals and surrogate decision-makers often face the difficult decision of whether to initiate or withhold antibiotics from people with dementia who have developed a life-threatening infection after losing decisional capacity.MethodsWe conducted a vignette-based survey among 1050 Quebec stakeholders (senior citizens, family caregivers, nurses and physicians; response rate 49.4%) to (1) assess their attitudes toward withholding antibiotics from people with dementia lacking decisional capacity; (2) compare attitudes between dementia stages and stakeholder groups; and (3) investigate other correlates of attitudes, including (...)
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  42. Watch Your Language: A Review of the Use of Stigmatizing Language by Canadian Judges. [REVIEW]Michelle Black & Jocelyn Downie - 2010 - Journal of Ethics in Mental Health 5:1-5.
    E-therapy is fast becoming an inevitable addition to counseling due to the increased use and accessibility, the internet and advances in e-therapy technology in the U.S. With the growth of any method of treatment, awareness of ethical concerns regarding best practices is a necessity. E-therapy has unqiue ethical challenges that mental health professionals should be aware of when utilizing computer mediated counseling. Specifi cally, there are fi ve common ethical concerns of on-line counseling that should be addressed during the informed (...)
     
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  43.  49
    Paediatric MRI research ethics: The priority issues. [REVIEW]Jocelyn Downie, Matthais Schmidt, Nuala Kenny, Ryan D’Arcy, Michael Hadskis & Jennifer Marshall - 2007 - Journal of Bioethical Inquiry 4 (2):85-91.
    In this paper, we first briefly describe neuroimaging technology, our reasons for studying magnetic resonance imaging (MRI) technology, and then provide a discussion of what we have identified as priority issues for paediatric MRI research. We examine the issues of respectful involvement of children in the consent process as well as privacy and confidentiality for this group of MRI research participants. In addition, we explore the implications of unexpected findings for paediatric MRI research participants. Finally, we explore the ethical issues (...)
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