Due to the rapid changes in the medical world and the aging population, the need for advanced care planning grows. Despite efforts to make this topic discussed, only a minority of patients discusses the advance directive with their general practitioner. This study aimed to map thresholds: What barriers are identified by GPs and patients in preparing and discussing an advance directive? A cross section survey in patients and GP’s was performed. Citizens were recruited by multimedia and by street interviews. GP’s (...) were recruited by mailing. Most of the 502 citizens already heard of an advance directive but only 17 had declared one while 21 never want one. Eighty percent wants to take the initiative themselves but half of the participants wants the GP to be actively involved. Thirty percent finds the document too difficult to understand. The need to draw an advance directive grew with increasing age. Of the 117 GP’s involved, 65% drafted five or less advance directives the past year. A lack of time, experience and a poor access to the correct administrative requirements were only a few of the barriers. Preparing and drafting an advance directive is a time-consuming and difficult procedure. Patients and GP’s have the right to be informed and instructed on how to prepare an advance directive. (shrink)

A well-known debate in normative ethics is that between proponents of Act Consequentialism and Rule Consequentialism. Given the structural similarities between Rule Consequentialism and existing forms of Contractualism, one might expect a similar debate to arise among contractualists. However, this is not the case. Some, following T. M. Scanlon, even argue that this question is “misconceived” – that there is something deeply mistaken about considering the possibility of an act-based form of contractualism. In this paper, I challenge this claim.

The article develops a methodological and empirical approach for gauging the ways Big Data can be collected and distributed through mobile apps. This approach focuses on the infrastructural components that condition the disclosure of smartphone users’ data – namely the permissions that apps request and the third-party corporations they work with. We explore the surveillance ecology of mobile apps and thereby the privacy implications of everyday smartphone use through three analytical perspectives: The first focuses on the ‘appscapes’ of individual smartphone (...) users and investigates the consequences of which and how many mobile apps users download on their phones; the second compares different types of apps in order to study the app ecology and the relationships between app and third-party service providers; and the third focuses on a particular app category and discusses the functional as well as the commercial incentives for permissions and third-party collaborations. Thereby, the article advances an interdisciplinary dialogue between critical data studies, political economy and app studies, and pushes an empirical and critical perspective on mobile communication, app ecologies and data economies. (shrink)

Abstract:Since the birth of autism as a psychiatric category, autistic individuals have been described as preoccupied with the world of objects and detached from the world of subjects, thus marking a distinction between the “social” and the “non-social” still prevalent in autism research and diagnostic criteria. The aim of this article is to question this distinction by examining the role of things in autistic forms of social interaction. Drawing on qualitative data from an ongoing qualitative and phenomenological study on social (...) interaction among youth with autism, I argue that material things enjoy a sustaining and facilitating role in autistic social interaction for two reasons: First, by being sensible things open to tactile, auditory, and visual engagement, and second, by being things that incorporate normative practices. This relation between the material and the social in which the latter is mediated by the former, is beneficial to individuals with autism because it exploits a particular relation to materiality to consolidate a shaky attunement to the social world. I propose a materially mediated mode of interaction guided by the approaches to perception, embodiment, and materiality developed by Maurice Merleau-Ponty and James Gibson. This account puts pressure on the phenomenological emphasis on the face-to-face encounter and brings intersubjectivity into view as a many-faceted phenomenon realizable not only through interbodily dynamics but also through the material landscapes situating social encounters. (shrink)

Autism research has recently witnessed an embodied turn. In response to the cognitivist approaches dominating the field, phenomenological scholars have suggested a reconceptualization of autism as a disorder of embodied intersubjectivity. Part of this interest in autistic embodiment concerns the role of sensory differences, which have recently been added to the diagnostic criteria of autism. While research suggests that sensory differences are implicated in a wide array of autistic social difficulties, it has not yet been explored how sensory and social (...) experience in autism relate on a phenomenological level. Given the importance of the sensory dimension of social encounters in phenomenological analyses of autism, this question must be considered crucial. This article investigates the role played by sensory differences in autistic social experience. Through a phenomenological analysis informed primarily by the philosophy of Maurice Merleau-Ponty with particular emphasis on the relation between intersubjectivity and perception, I argue that sensory differences affect the way other people appear in autistic experience on a pre-reflective level. By drawing on autistic young adults’ experiential descriptions of social encounters, this article identifies three aspects of how sensory differences affect social experiences in autism. First, social encounters manifested as sensorially disturbing, chaotic, and unpredictable events. Second, the embodied expressions of others appeared unfamiliar, threatening, and promoted a sense of detachment from the social world. Third, deliberate practices were employed to actively seek perceptual and social meaning in these disorienting social encounters. This analysis stresses the importance of understanding embodied intersubjectivity through its sensory dimensions. In addition, it indicates an important avenue for future research in exploring the potential role of practice in maintaining an intuitive grip on social meaning. By approaching social encounters as sensory and perceptual events, I emphasize how social difficulties in autism are inherently world-involving phenomena rather than a cognitive deficit reducible to the autistic person. (shrink)

Autistic difficulties with social interaction have primarily been understood as expressions of underlying impairment of the ability to ‘mindread.’ Although this understanding of autism and social interaction has raised controversy in the phenomenological community for decades, the phenomenological criticism remains largely on a philosophical level. This article helps fill this gap by discussing how phenomenology can contribute to empirical methodologies for studying social interaction in autism. By drawing on the phenomenology of Maurice Merleau-Ponty and qualitative data from an ongoing study (...) on social interaction in autism, I discuss how qualitative interviews and participant observation can yield phenomenologically salient data on social interaction. Both, I argue, enjoy their phenomenological promise through facilitating attention to the social-spatial-material fields in and through which social interactions and experiences arise. By developing phenomenologically sound approaches to studying social interaction, this article helps resolve the deficiency of knowledge concerning experiential dimensions of social interaction in autism. (shrink)

I'd like to say a few things about the quality of life of people like me. We can have – and now I do have – a good quality of life, but we still have to fight for it. We have to take back control of our lives from the KEEPERS, from the professionals.

Although compassion in healthcare differs in important ways from compassion in everyday life, it provides a key, applied microcosm in which the science of compassion can be applied. Compassion is among the most important virtues in medicine, expected from medical professionals and anticipated by patients. Yet, despite evidence of its centrality to effective clinical care, research has focused on compassion fatigue or barriers to compassion and neglected to study the fact that most healthcare professionals maintain compassion for their patients. In (...) contributing to this understudied area, the present report provides an exploratory investigation into how healthcare professionals report trying to maintain compassion. In the study, 151 professionals were asked questions about how they maintained compassion for their patients. Text responses were coded, with a complex mixture of internal vs. external, self vs. patient, and immediate vs. general strategies being reported. Exploratory analyses revealed reliable individual differences in the tendency to report strategies of particular types but no consistent age-related differences between older and younger practitioners emerged. Overall, these data suggest that while a range of compassion-maintaining strategies were reported, strategies were typically concentrated in particular areas and most professionals seek to maintain care using internal strategies. A preliminary typology of compassion maintaining strategies is proposed, study limitations and future directions are discussed, and implications for the study of how compassion is maintained are considered. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:What, Exactly, Does the Madperson Lack?Sofie Jeppsson, PhD (bio)Justin garson has already received well-earned recognition for his Madness: A philosophical exploration (2022), in which he distinguishes the view of madness as a dysfunction from madness as a strategy—a distinction that cuts across traditional distinctions between, for example, biological/neurological and psychological/social views. On the dysfunction view, going mad might be comparable to something like having an asthma attack or, (...) more long-term, developing type 1 diabetes. If the trachea closes up and prevents air from passing through, that is a dysfunction in the breathing apparatus. If the islets of Langerhans in the pancreas cease to produce insulin, making the person dependent on insulin shots to stay alive, that is a dysfunction. On the strategy view, going mad is rather like getting a fever when already infected with some pathogen. Given that you have the pathogen reproducing inside you, a rising body temperature provides a strategy (although not, of course, something the ill person chose) to keep the reproduction rate down, thus giving the immune system a better chance at vanquishing the infection. That does not mean that fevers are harmless—if a fever becomes high enough, it might itself do damage to the body. Still, it is a strategy, not a mere dysfunction. Analogously, on the Madness as strategy view, going mad might help a person deal with old traumas or an ongoing terrible situation, even as the madness may also be damaging in itself.In this paper, Garson introduces us to another interesting distinction: between seeing madness as a lack of reason, or as a perversion of or difference in reason. Garson writes that present-day psychiatry tends to see madness as a lack, whereas the late modern thinkers conceived of it as a perversion of reason. The late moderns clearly saw madness as something negative, but if we retain something like their basic view, merely change our evaluation from the negative perversion to the more neutral difference, we have a better basis for regarding Madness as a complicated and problematic but still cherished identity, and for Mad Pride.This is another interesting distinction well worth calling attention to. I’m uncertain how well the J.C.A. Heinroth example works—the text cited seems to show that he had a Madness as strategy view, but is it a Madness as a different kind of reason view?—but the other examples work better. Nevertheless, I want to push back a little against the claim that present-day psychiatry and philosophy of psychiatry tend to regard madness as a lack of something whereas the early moderns saw it as a difference. (Just a friendly little push, mind you, but still.)Arthur Wigan’s description of two brains, one functional and one dysfunctional, still seems to posit a lack of proper function in one of them. Sure, he does not say that the madperson lacks as much as the [End Page 313] idiot, who has two dysfunctional brains whereas the madperson has one functional and one dysfunctional. Still, there’s a lack. This two-brain picture also has its modern analogues: It brings to mind (albeit in a less biologically concrete and reified form) much psycho-educational material on, for example, how to live with bipolar disorder, according to which a supposed sane and rational part of the psychiatric patient’s mind should learn to handle and control the other, mad part (e.g., Miklowitz, 2012).According to John Locke, madpeople reason just fine, but they start from false premises. Is not this, too, something that madpeople are supposed to lack? Correct and realistic premises to start from? Locke writes that madpeople have “taken their fancies for realities,” but “make right deductions from them.” Moreover, Locke’s theory is reminiscent of modern bottom-up theories like Brendan Maher’s (1999)—madpeople have bizarre experiences on the basis of which they form bizarre beliefs, but we need not postulate that they suffer from any problems with, for example, reasoning and drawing inferences to explain why they believe what they do. Theorists who instead argue for a top-down or two-factor account of why madpeople stick... (shrink)

Research has shown the importance of engaging in networking behaviors for employees’ career success. Networking behaviors can be seen as a proactive way of creating access to career-related social resources and we argue that this type of proactive career behaviors might be particularly relevant for freelancers who cannot depend on an organizational career system supporting their further development, yet whose careers are characterized by high levels of uncertainty and unpredictability. To date, however, our understanding of how freelancers, being a category (...) of workers that are deprived of an organizational context of support for career development, can safeguard their employability, is limited. Therefore, this study addresses this gap and investigates whether freelancers’ networking behaviors are positively associated with career outcomes, through the mediating role of the need for relatedness fulfillment and employability-enhancing competencies. Hypotheses are tested via Structural Equation Modelling using a sample of 1,874 freelancers from Belgium, France, Germany, the Netherlands and the United Kingdom. The results generally support our hypotheses, providing evidence for a significant association between networking behaviors and need for relatedness fulfillment, and between networking behaviors and employability-enhancing competencies. Moreover, we found a significant association between need for relatedness fulfillment and employability-enhancing competencies, being the mediators in our research model and the outcomes of career satisfaction and future career opportunities. Implications for career development in the contemporary workplace are discussed, with particular attention for need for relatedness fulfillment, employability, and sustainable careers of freelance workers. (shrink)

In Ecowomanism at the Panamá Canal: Black Women, Labor, and Environmental Ethics, Sofía Betancourt constructs environmental ethics at the intersection of the global North and global South. Betancourt explores transnational environmental justice through the lived experience of women from the African Diaspora who migrated to Panamá to work on the Canal.

BackgroundDementia care is essential to promote the well-being of patients but remains a difficult task prone to ethical issues. These issues include questions like whether manipulating a person with dementia is ethically permissible if it promotes her best interest or how to engage with a person who is unwilling to recognize that she has dementia. To help people living with dementia and their carers manage ethical issues in dementia care, we developed the CARE intervention. This is an intervention focused on (...) promoting the ethical self-efficacy of people living with dementia and carers, i.e., their confidence that they can manage ethical issues when they occur. The purpose of this paper is to explain and discuss how we have developed the CARE intervention to promote the ethical self-efficacy of people living with dementia, their family, and professional carers through a specific and, we believe, new use of literary texts.MethodsThe CARE intervention has been developed in two phases: First, we conducted a needs assessment of the occurrence of ethical issues in dementia care and the need for an intervention to support people living with dementia and their carers in managing such issues. Second, in a design phase, we developed the CARE intervention to meet identified needs.ResultsTo address identified ethical issues in dementia care we designed the CARE intervention as a workshop format where people living with dementia and carers can meet, discuss literary texts, and deliberate on how to solve such issues. The workshop is structured by the following elements: An agenda of ethical issues, a collection of literary cases exemplifying ethical issues, a moderator with an understanding of dementia care, and an overview of the ethical principles relevant to the discussion of ethical issues. >This workshop concept is operationalized in three applications tailored to meet the specific ethical issues of each of the study´s three target groups: people living with dementia and family carers, professional and family carers, and professional carers.ConclusionWe conclude the paper by stating that it is possible to develop an intervention that promotes the ethical self-efficacy of people living with dementia and family and professional carers. (shrink)

Autism is a highly heterogeneous phenomenon. Not only is it difficult to understand the various and diverse aspects of autism, their relation to each other is also complex and still poorly understood. In my article, “Material encounters. A phenomenological account of social interaction in autism,” I have addressed this heterogeneity by presenting an understanding of how social features of autism relate to behavioral features. Straddling this divide between the social and the non-social that still pervades much thinking in philosophy, psychiatry, (...) and psychology is crucial for understanding the diverse experiences of autistic persons and... (shrink)

Dit jaarboek van het 'Studium Generale' van de Hogeschool Gent bevat essays van de sprekers die tijdens het academiejaar 2012-2013 een lezing hebben gehouden over het jaarthema ‘Normaal!? Waar is de norm?’. In deze bundel wordt stilgestaan bij de vraag hoe de tweedeling normaal/abnormaal aan de orde is in de maatschappij, in de kunsten en in de (medische) wetenschappen.0Deze lezingenreeks werd samengesteld door Sofie Vandamme en georganiseerd i.s.m. Jeroen Cluckers. Het boek bevat bijdragen van Sofie Vandamme, Charlotte Mutsaers, (...) Peter Hinssen, Dirk De Wachter, Maartje Schermer, Piet Hoebeke, Kristien Hemmerechts, Patrick Allegaert en Bart Marius, Stijn Vanheule, Paul De Grauwe, Hilde Van den Bulck, Jens Franssen en Dieter Ceustermans. Ook de beste paper van de deelnemende studenten werd mee opgenomen. (shrink)

Dit jaarboek van het Studium Generale van de Hogeschool Gent bevat essays van de sprekers die tijdens het academiejaar 2013-2014 een lezing hebben gehouden over het jaarthema "Tijd? Altijd!". In deze bundel wordt stilgestaan bij de vraag hoe allerlei vormen van en opvattingen over tijd aan de orde zijn in de maatschappij, in de kunsten en in het wetenschappelijk onderzoek.0Deze lezingenreeks werd samengesteld en georganiseerd door Sofie Vandamme i.s.m. Jeroen Cluckers. Het boek bevat bijdragen van Sofie Vandamme, Benno (...) Barnard, Mark Fisher, Pedro De Bruyckere, Els Stuyven, Joke J. Hermsen, Marli Huijer, Dieter Ceustermans, Carl Devos, Petra Van Brabandt en Lisaboa Houbrechts"--Page 4 of cover. (shrink)

Les sources de la pratique judiciaire du xve siècle dans les Pays-Bas bourguignons font apparaître, classiquement, le faible nombre des femmes présentes en justice. Elles y sont pourtant bien présentes et capables. On note l’aspect ordinaire des crimes et délits pour lesquels elles sont condamnées. Loin d’être marginales, les coupables sont assez « ordinaires » d’un point de vue « social ». Pour autant on voit les stéréotypes à propos des femmes agir sur la conception que s’en font les juges. (...) Au final, au xve siècle, on ne rencontre pas de figure archétypale d’une femme criminelle. (shrink)

Indoor radon is a natural radioactive gas that enters homes through cracks in the foundations. It is one of the leading causes of lung cancer. Although radon can be detected with an indoor radon test and can be mitigated by means of either ventilation or professional measures, testing and mitigating rates of the at-risk population remain insufficient. The objective of this study is to systematically review the current level of evidence regarding the design and effectiveness of mass media campaigns to (...) address the health risks of indoor radon to homeowners. The results show that informative tone of voices prevailed, other components, such as emotional or social components, were often not included. Furthermore, the focus was mostly on intention and less on behavior itself, and on testing instead of mitigation. Further research is needed to test effective and innovative communication strategies to increase protective behavior concerning indoor radon. (shrink)

This paper explores trans poetics as a way of doing trans philosophy. I begin by giving an overview of the current state of trans philosophy. I then give examples of other literatures wherein poetics is taken to be philosophically robust. After giving a brief history of trans poetics, I turn to the poetics statements and poetry of three trans poets—D'Lo, Ching-In Chen, and micha cárdenas—featured in the 2013 anthology Troubling the Line. I show how poetry is often uniquely able to (...) capture the ambiguity of the WTF of trans experience in ways that differ from philosophical argumentation. I conclude by suggesting that poetics might move us away from a potential politics of suffering in trans philosophy to a politics of liberation. (shrink)

In historiography there is a tendency to see the Great War as marking the end of scientific optimism and the period that followed the war as a time of discord. Connecting to current (inter)national historiographical debate on the question of whether the First World War meant a disruption from the pre-war period or not, this article strives to prove that faith in scientific progress still prevailed in the 1920s. This is shown through the use of Belgium as a case study, (...) which suggests that the generally adopted cultural pessimism in the post-war years did not apply to the public rhetoric of science in this country. Diverse actors—scientists, industrialists, politicians, the public opinion and the military staff—declared a confidence in science, enhanced by wartime results. Furthermore, belief in science in Belgium was not affected by public outcry over the use of mustard gas, unlike in the former belligerent countries where the gas became an unpleasant reminder of how science was used during the war. Even German science with its industrial applications remained the norm after 1918. In fact, the faith in science exhibited during the pre-war years continued to exist, at least until the 1920s, despite anti-German sentiments being voiced by many sections of Belgian society in the immediate aftermath of the war. (shrink)

SummaryThis paper discusses how the notion of clock time was introduced in the Greek world. On the basis of an analysis of the earliest (potential) references to hours and clocks in texts from the late fifth to the early third century BC in their historical context, and with reference to the earliest archaeologically attested clocks, it proposes a scenario for the conception and development of this conventional system. It offers a new interpretation of the problematic passage Herodotus 2.109 and argues (...) that an hour-like unit was developed by late fifth century astronomers, under Babylonian influence, to denote the time in which a celestial body moves through a section of its diurnal circle. When this astronomical concept moved to the civic sphere in the second half of the fourth century, it changed from a scientific unit of duration to a civic unit for measuring the time of day. This shift probably took place in Athens, where the first references to hours appear in this period together with multiple experiments in clock making, as well as humorous reactions to the newfound sense of temporal precision. The paper will also show, however, that these first clocks did not yet tell seasonal hours – the type of hours that would eventually define Greco-Roman clock time – and still measured the lapse of time rather than enabling the location of moments in time. Greco-Roman clock time was only fully formed when it incorporated Egyptian notions of the hour in the Ptolemaic kingdom of the early third century BC. (shrink)

Kant's Critique of Pure Reason, his main work of theoretical philosophy, frequently uses metaphors from law. In this first book-length study in English of Kant's legal metaphors and their role in the first Critique, Sofie Møller shows that they are central to Kant's account of reason. Through an analysis of the legal metaphors in their entirety, she demonstrates that Kant conceives of reason as having a structure mirroring that of a legal system in a natural right framework. Her study (...) shows that Kant's aim is to make cognisers become similar to authorized judges within such a system, by proving the legitimacy of the laws and the conditions under which valid judgments can be pronounced. These elements consolidate her conclusion that reason's systematicity is legal systematicity. (shrink)

Increasingly, corporations are championing the cause of gender equality and women’s empowerment in the Global South. Tapping into notions about women’s role as caregivers, empowerment promotion is simultaneously meant to lead to family and community development, profitability for those who invest in women and girls and economic growth. While emerging feminist scholarship on this kind of ‘transnational business feminism’ (TBF) (Roberts, 2012, 2015) has largely scrutinised gender governance based on visual and textual materials produced by corporations themselves, this article expands (...) the methodological engagement with TBF by reflecting on how we translated the concept into two distinct field-based research projects. The article compares and contrasts our situated fieldwork experiences, focusing in particular on accessing corporate elites and development partners and the epistemological rifts that emerged in conversations with them. It documents how our experiences of blockages, hostile relations and miscommunications have shaped our critical feminist research, and points to some of the power relations at work within TBF. (shrink)

ABSTRACT This article is written in the field of the philosophy of science. The aim is to express how painting and drawing can be used as part of a phenomenological research method. The painter or drawer is a visual researcher in the process of capturing a holistic and truthful experience of a cultural phenomenon. We will highlight the visual researcher process and how the experience of truth is known throughout this process. The paining and sketches, which we present in this (...) article, are part of a book, together with written narratives and pedagogical theory – on teaching as a phenomenon – called Lærerpraksis og Pedagogisk teori. The paintings and drawings present teaching in a way that complements and expands the written text. The sketches and painting of teaching attempt to establish the truth as unconcealment of a phenomenon. Our argumentation is based on the theories of Gadamer, Cassirer, Panofsky and Heidegger. Gadamer connects humanistic research with artistry and the experience of truth. Cassirer argues that the perception of a cultural phenomenon begins as a holistic understanding to bring forth the symbolic form or essence of the phenomenon. Panofsky transfers the theory of Cassirer into the field of painting. The concept of synthetic intuition is the intrinsic knowing of a painting, which corresponds to Cassirer’s concept of symbolic forms. Heidegger’s theory explores how art unfolds and preserves the truth. We will argue that the connection between art and truth could bring forth important perspectives on phenomenological science and turn the research activity closer to an artistic form. (shrink)

La déshumanisation à l’œuvre dans le projet génocidaire et l’héritage d’un tel événement traumatique entraîne une catastrophe de la transmission et de la filiation. S’ensuit une impasse des processus d’identification et de différenciation sur plusieurs générations. Dans cette contribution, on interroge la nature des obstacles entravant le processus de deuil, de séparation et l’investissement de la vie après une catastrophe sociale. Il s’agit pour cela de rendre compte du travail de subjectivation nécessaire à l’appropriation de sa propre histoire et de (...) celle de sa propre famille de manière à pouvoir engager un processus de séparation/différenciation. À travers une étude de cas, l’article montre la pertinence d’une rencontre clinique « médiatisée » pour la compréhension et la perlaboration du vécu traumatique d’une famille survivante qui vit entre-soi. Nous discuterons, en particulier, l’apport de la photographie comme une première tentative de figuration des affects et de mise au travail des processus intermédiaires garants de leur symbolisation. (shrink)

In combining the micropolitics approach in international management, the industrial relations literature and business ethics, this article conceptualizes global framework agreements as an alliance between central CSR managers of transnational corporations and central actors within trade unions to monitor subsidiaries in the implementation of CSR policies. The empirical investigation, based on the qualitative analysis of ten French multinational companies, confirms the relevance of such a conceptualization. It particularly shows that central CSR managers hope mobilizing the union network to increase their (...) capacity to supervise subsidiaries. Over there, it helps understanding concrete mechanisms adopted to implement global framework agreements since, in some of the studied cases, the managerial and union channels are coordinated precisely to strengthen this capacity. It, then, highlights the procedural nature of policies regarding global framework agreements. Overall, this paper examines the conditions necessary for mobilization of the union network and suggests avenues for future research. (shrink)