Informed consent is valid only if the person giving it is competent. Although allegedly informed consents are routinely tendered, there are nonetheless serious problems with the concept of competence as it stands. First, conceptual work upon competence is incomplete: the concept is unanalyzed and no logic of competence has been identified. It is thus virtually impossible to reliably discern who is competent. ;Traditional work on competence has explicated three dichotomies from which the necessary conditions for the possibility of competence will (...) be identified, viz., that competence is either a global or a specific notion; is present in varying degrees or in virtue of a threshold; and may or not include appeals to consequences. Past efforts have failed to notice a fourth dichotomy: competence as an affective or cognitive notion. Failure to designate the appropriate arms of these dichotomies is responsible for there being, at present, no reliable test for competence. The inadequacies of a highly regarded particular test for competence, the mental status examination, are examined in light of this failure. ;Competence is located within the rule-governed practice of informed consent. That practice and hence, competence, is justified through a Kantian analysis of respect for persons. This analysis reveals that the logic of competence requires assessment in terms of specific rather than global concerns; degrees of ability rather than a threshold; both cognitive and affective abilities; and no appeal to consequences. ;Based upon the analyses of consent as an example of decision making within the practice of informed consent and of respect for persons, the capacities which jointly comprise competence are identified. These are the capacities to receive, recognize, and retrieve information; to reason about, relate to oneself, and rank options; to choose among alternatives; and, under certain circumstances, to defend one's choice. ;Identification of the logic of competence and explication of and justification for the capacities that comprise competence to consent provide a conceptual foundation for the crucial concept of competence that the informed consent process currently lacks. It should facilitate construction of a test for competence. (shrink)

Disability activists' redefinition of “disability” as a social, rather than a medical, problem attempts to reassign causality. We explicate the untenable implications of this approach and argue this definition is maleficent, unjust, and inconsistent. Thus, redefining disability as a socially caused phenomenon is, from a moral point of view, ill-advised.

In a recent critique of informed consent, Robert Veatch argues that the practice is in principle unable to attain the goals for which it was developed. We argue that Veatch's focus on the theoretical impossibility of determining patients' best interests is misapplied to the practical discipline of medicine, and that he wrongly assumes that the patient-physician communication fails to provide the knowledge needed to insure the patient's best interests. We further argue that Veatch's suggested alternative, value-based patient-professional pairing, is, on (...) his own terms, impossible to implement. Finally, we reexamine the philosophical and practical justifications for informed consent and conclude that the practice should be retained. (shrink)

In short, the anticipated harm (death) to Ms. A of telling her about her child greatly outweighs the harm she will experience by being lied to. Also, the latter harm can be ameliorated; the former can not.

Through the analysis of forty ethical dilemmas drawn from real-life situations, _Ethics in Action_ guides the reader through a process of moral deliberation that leads to the resolution of a variety of moral dilemmas. Fosters critical thinking by evaluating the reasons people give to support their choices and actions Challenges the paradigm of moral relativism that often impedes efforts to resolve moral dilemmas Incorporates international perspectives often lacking in texts published for a U.S. audience.

The practice of paying prisoners to for their participation in research has long been debated, and the controversy is reflected in the differing policies in the U.S. prison systems. Empirical study of financial payments to inmates who enroll in research has focused on whether this practice is coercive. In this study, we examined whether monetary incentives have the potential to be unduly influential among fifty HIV‐positive prisoners. The majority of prisoners surveyed believed that inmates should receive some compensation for their (...) involvement in research and disagreed with statements suggesting that the offer of payment constitutes undue influence. However, a sense of potentially being susceptible to undue influence was significantly higher among participants who had spent a longer time in prison and had less education. Overall, our findings suggest that most prisoners feel that they would be able to make a decision about research enrollment that is not solely based on an offer of monetary payment. (shrink)

We reflect personally and historically on some of the institutions that have nurtured and shaped conversations at the intersections of sociology and religious studies, particularly professional associations. Our argument is simple. The ways different scholars understand the relationship between the sociology of religion and religious studies have a lot to do with the institutions that nurtured us and through which we engage in the conversation. We push back on simple black and white distinctions that paint their approaches in oppositions: (...) more historical vs. more contemporary, more qualitative vs. more quantitative, more concerned with normative concerns vs. more “objective”—in favor of a more nuanced view. We keep in mind the Christian origins of the main professional organizations at these intersections and call for deeper dialogue not just between sociologists and scholars in religious studies but with colleagues involved with a range of other groups. (shrink)

This article offers a feminist theory of eating problems based on life history interviews with African-American, Latina, and white women. Until recently, research on eating problems has focused on white middle-and upper-class heterosexual women. While feminist research has established why eating problems are gendered, an analysis of how race, class, and sexual oppression are related to the etiology of eating problems has been missing. The article shows that eating problems begin as strategies for coping with various traumas including (...) sexual abuse, racism, classism, sexism, heterosexism, and poverty. Identifying eating problems as survival strategies shifts the focus from portraying them as issues of appearance to ways women take care of themselves as they cope with trauma. (shrink)

Eugene 'Gene' Vernier worked as a fashion photographer for British Vogue from 1954 to 1967, during one of the most exciting periods in fashion history. Shooting of-the-moment looks from the likes of Christian Dior and Emilio Pucci and top models including Celia Hammond, Jean Shrimpton, and current Vogue creative director Grace Coddington, Vernier worked with some of the biggest names in the industry. Yet he was relatively unconcerned with celebrity. Interested only in bringing out the very best in each frame, (...) Vernier was a true craftsman in the fashion photography trade. Featuring more than one hundred of Vernier's own favorite photographs drawn from Vogue's extensive photo archive, this lavishly illustrated volume reveals remarkable innovation in the use of props, backdrops, and location. Whether he was photographing his subjects by the sea, with a canine companion, or perfectly positioned atop a pale pink convertible, Vernier's careful composition enhanced the essence of his subject. Vernier shot mostly in black-and-white, and his trademark “look” is one of classic femininity. He sought to capture models when they were relaxed, enjoying the clothing, and confident that their photographer would show both only at their best. Providing commentary on the photographs are fashion history expert Becky Conekin and Vogue historian Robin Muir. This is first book to focus on Vernier's work at Vogue and it allows readers a rare glimpse of his inimitable blend of technical excellence and an eye for experimentation. (shrink)

This article considers how those subordinated for their gender and sexual orientation, but privileged for their race and class, may be better allies to people, especially women, of colour. Judith Butler’s Excitable Speech (1997) is a helpful aid. Butler offers us a strategy to think through — albeit by way of supplementary voices such as legal theorist Kimberlé Crenshaw, French sociologist Pierre Bourdieu and philosopher George Yancy — how white women may find an ‘insurrectionary’ form of speech that is (...) both embodied and attentive to how we stand in the pecking order of public sphere expression and exchange. The article considers how white women’s ‘critical freedoms’ have helped shape the discursive preclusions faced by Black women. It analyses the conditions by which white women may assert their freedom of speech without this being to the detriment of women of colour. (shrink)

This article explores the queer qualities of feminist scientist Donna Haraway's ‘A Cyborg Manifesto’. In the first part, the article investigates the similarities between ‘A Cyborg Manifesto’ and the ideas circulating in queer theory, including the hybridity of identity, and the disruption of totalizing social categories such as ‘Gay man’ and ‘Woman’. In the second part, it is argued that ‘A Cyborg Manifesto’ evinced a decolonial feminist form of queerness. The article references the African-American, Chicana and Asian-American feminist sociology, theory, (...) literature and history that ‘A Cyborg Manifesto’ takes up. The article does not wish to position Haraway's white-authored text as an authoritative voice on decolonial feminist queerness, instead arguing for the role of ‘A Cyborg Manifesto’ as a bibliographical work that readers may reference in their exploration of decolonial feminist beginnings of queer theory. (shrink)

Recent research on the life of U Dhammaloka and other early western Buddhists in Asia has interesting implications in relation to class, ethnicity and politics. ‘Beachcomber Buddhists’ highlight the wider situation of ‘poor whites’ in Asia—needed by empire but prone to defect from elite standards of behaviour designed to maintain imperial and racial power. ‘Going native’, exemplified by the European bhikkhu, highlights the difficulties faced by empire in policing these racial boundaries and the role of Asian agency in early ‘western’ (...) Buddhism. Finally, such ‘dissident Orientalism’ has political implications, as with specifically Irish forms of solidarity with Asian anti-colonial movements. Within the limits imposed by the data, this article rethinks ‘early western Buddhism’ in Asia as a creative response to colonialism, shaped by Asian actors, marked by cross-racial solidarity and oriented to alternative possible futures beyond empire. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Reviewed by:Beyond Apathy: A Theology for Bystanders by Elisabeth T. Vasko, and: The Limits of Hospitality by Jessica WrobleskiKathryn Lilla CoxBeyond Apathy: A Theology for Bystanders Elisabeth T. Vasko Minneapolis: Fortress Press, 2015. 269pp. $29.00The Limits of Hospitality Jessica Wrobleski Collegevile, MN: Liturgical Press: A Michael Glazier Book, 2012. 168pp. $19.95At first glance it might seem as if these two books do not belong together since moving beyond apathy (...) requires engaged action, and accepting the limits of hospitality focuses attention on how we step back from particular actions. However, both Vasko and Wrobleski challenge their readers to reconsider how interaction with other people, coupled with honest reflection, stretches the contours of our comfort zones, ultimately leading to conversion, a richer embrace of each other’s humanity, and discipleship practices. Together the works require the reader to grapple with how our apathy not only is culpable as a sin of omission but also functions as another form of inhospitality. In recognizing our various sins, including apathy, how do we practice hospitality for the self while seeking forgiveness and reconciliation?Methodologically, both Vasko and Wrobleski use experience—theirs and others’—in a nuanced, engaging manner. They use narratives to illustrate theory or to prompt critical self-reflection in the context of faith. Their self-revelation is neither overdone nor naïve. Rather, both demonstrate how faith seeks understanding whereby the tradition can help make sense of lived experience, and how experiences at times require theological reconstruction of doctrine in order for the tradition to speak words of hope, salvation, and love in new contexts. Both Vasko and Wrobleski advocate, albeit with different styles, that discipleship requires an honest assessment of contemporary reality while looking toward the future, attending to evidence of an eschatological inbreaking of the kingdom. Together their works bridge the all-too-often divided arenas of theoretical study and religious practice by exploring theological claims and perspectives not their own, as well as prayer and other practices that help correct biases and ideologies.More specifically, Vasko wants to analyze why humans “repeatedly bypass opportunities for resisting violence” (9). Her decision to focus on the “category of bystander” helps her “disrupt the victim-perpetrator and oppressor-oppressed binaries and the hierarchical dualism often accompanying it” (14). This disruption of binary frameworks for considering violence and sin, both between two [End Page 215] individuals or two communities, provides a new consideration of how individuals and communities participate in structural sin, and a compelling assessment of why we are culpable for sins of omission. Vasko advances conversations about white privilege and complicity in structures of sin by considering the question of inaction when confronted with injustice. Why are we bystanders, and how can we move beyond bystander status toward solidarity in the pursuit of justice, especially as it relates to our participation in violence around bullying, racism, sexism, and LGBTQ discrimination? Her theological analysis of the bystander weaves together and demonstrates the interconnectedness of Christology, atonement theory, sin/grace, theological anthropology, and scripture. She demonstrates the importance of drawing on the social sciences for insight into structures and communal norms of behavior as well as strategies for fostering change. While grappling with a tough topic, Vasko ultimately provides a roadmap for acknowledging apathy and beginning the process of moving beyond it, even as some will disagree with the end goal of moving beyond apathy.Wrobleski, too, explores privilege, although in a more understated manner through the category of hospitality. She investigates the limits, along with “the virtues and conditions necessary to sustain the practice of hospitality over time and in diverse circumstance” (ix). It is in the exploration of providing hospitality where the question of privilege arises: Who can offer hospitality? Do we have the means to offer it? What is the risk of hospitality? What form does hospitality take and how does one extend welcome that honors and recognizes the inherent dignity of all people despite different life circumstances? These questions are considered in a richly complex and nuanced way in chapter 4, “The Limits of Security.”Wrobleski explores the communal dimensions of hospitality through narratives of various communities—her own, Catholic Worker houses, and... (shrink)

Bioethics at the Movies explores the ways in which popular films engage basic bioethical concepts and concerns. Twenty philosophically grounded essays use cinematic tools such as character and plot development, scene-setting, and narrative-framing to demonstrate a range of principles and topics in contemporary medical ethics. The first section plumbs popular and bioethical thought on birth, abortion, genetic selection, and personhood through several films, including The Cider House Rules, Citizen Ruth, Gattaca, and I, Robot. In the second section, the contributors examine (...) medical practice and troubling questions about the quality and commodification of life by way of Dirty Pretty Things, Eternal Sunshine of the Spotless Mind, and other movies. The third section's essays use Million Dollar Baby, Critical Care, Big Fish, and Soylent Green to show how the medical profession and society at large view issues related to aging, death, and dying. A final section makes use of Extreme Measures and select Spanish and Japanese films to discuss two foundational matters in bioethics: the role of theories and principles in medicine and the importance of cultural context in devising care. Structured to mirror bioethics and cinema classes, this innovative work includes end-of-chapter questions for further consideration and contributions from scholars from the United States, Canada, the United Kingdom, Israel, Spain, and Australia. Contributors: Robert Arp, Ph.D., Michael C. Brannigan, Ph.D., Matthew Burstein, Ph.D., Antonio Casado da Rocha, Ph.D., Stephen Coleman, Ph.D., Jason T. Eberl, Ph.D., Paul J. Ford, Ph.D., Helen Frowe, M.A., Colin Gavaghan, Ph.D., Richard Hanley, Ph.D., Nancy Hansen, Ph.D., Al-Yasha Ilhaam, Ph.D., Troy Jollimore, Ph.D., Amy Kind, Ph.D., Zana Marie Lutfiyya, Ph.D., Terrance McConnell, Ph.D., Andy Miah, Ph.D., Nathan Norbis, Ph.D., Kenneth Richman, Ph.D., Karen D. Schwartz, LL.B., M.A., Sandra Shapshay, Ph.D., Daniel Sperling, LL.M., S.J.D., Becky Cox White, R.N., Ph.D., Clark Wolf, Ph.D. (shrink)

The widely accepted “continuing bonds” model of grief tells us that rather than bereavement necessitating the cessation of one’s relationship with the deceased, very often the relationship continues instead in an adapted form. However, this framework appears to conflict with philosophical approaches that treat reciprocity or mutuality of some form as central to loving relationships. Seemingly the dead cannot be active participants, rendering it puzzling how we should understand claims about continued relationships with them. In this article, we resolve this (...) tension by highlighting two fundamental aspects of paradigmatic loving relationships that can, and often do, continue in an adapted form following bereavement: love and mutual shaping of interests, choices, and self-concepts. Attention to these continuing features of relationships helps to capture and clarify the phenomenological and behavioral features of continuing bonds. However, love and mutual shaping must also change in important ways following bereavement. Love becomes unreciprocated, and although the dead continue to shape our interests, choices, and self-concepts, we predominantly shape their legacies and memories in return. These changes place important constraints upon the nature of our interpersonal connections with the dead. (shrink)

While many forms of data-driven surveillance are now a ‘fact’ of contemporary life amidst datafication, obtaining concrete knowledge of how different institutions exploit data presents an ongoing challenge, requiring the expertise and power to untangle increasingly complex and opaque technological and institutional arrangements. The how and why of potential surveillance are thus wrapped in a form of continuously produced uncertainty. How then, do affected groups and individuals determine how to counter the threats and harms of surveillance? Responding to an interdisciplinary (...) concern with agency amidst datafication, this article explores what I term ‘anticipatory data practices’ – future-oriented practices which provide a concrete anchor and a heuristic for action amidst the persistent uncertainties of life with data. This article traces how anticipatory data practices have emerged within civil society practices concerned with countering the harms of surveillance and data exploitation. The mixed-method empirical analysis of this article draws from 50 interviews with digital security educators and technology developers; participant observation at 12 civil society events between 2016 and 2019 and the textual analysis of 100 security manuals produced by NGOs and grassroots groups. (shrink)

Achieving space domain awareness requires the identification, characterization, and tracking of space objects. Storing and leveraging associated space object data for purposes such as hostile threat assessment, object identification, and collision prediction and avoidance present further challenges. Space objects are characterized according to a variety of parameters including their identifiers, design specifications, components, subsystems, capabilities, vulnerabilities, origins, missions, orbital elements, patterns of life, processes, operational statuses, and associated persons, organizations, or nations. The Space Object Ontology provides a consensus-based realist framework (...) for formulating such characterizations in a computable fashion. Space object data are aligned with classes and relations in the Space Object Ontology and stored in a dynamically updated Resource Description Framework triple store, which can be queried to support space domain awareness and the needs of spacecraft operators. This paper presents the core of the Space Object Ontology, discusses its advantages over other approaches to space object classification, and demonstrates its ability to combine diverse sets of data from multiple sources within an expandable framework. Finally, we show how the ontology provides benefits for enhancing and maintaining longterm space domain awareness. (shrink)

Empirical research provides striking examples of non-human animal responses to death, which look very much like manifestations of grief. However, recent philosophical work appears to challenge the idea that animals can grieve. Grief, in contrast to more rudimentary emotional experiences, has been taken to require potentially human-exclusive abilities like a fine-grained sense of particularity, an ability to project toward the distal future and the past, and an understanding of death or loss. This paper argues that these features do not rule (...) out animal grief and are present in many animal loss responses. It argues that the principal kind of “understanding” involved in grief is not intellectual but is instead of a practical variety available to animals, and outlines ways that the disruption to an animal’s life following a loss can hinge upon a specific individual and involve a degree of temporal organisation. (shrink)

Poststructuralism and nursing: uncomfortable bedfellows? The benefits and limitations of the application of poststructuralist in nursing research are discussed. The debate concerning the use of poststructuralist theory in feminist research is drawn on to argue a divergence between a deconstructionist poststructuralism and nursing aims. It is argued that there are strong parallels between nursing and social movements such as feminism. The reasons why many feminist and nursing researchers have been attracted to poststructuralist theory are explored, as are the criticisms of (...) poststructuralism as an inadequate, even reactionary theory. It is argued that poststructuralism is useful for examining or deconstructing existing discourse and practice, but incompatible and inadequate for research which aims to develop or change such discourses or practices. (shrink)

Girls are now out-performing boys at GCSE level, giving rise to a debate in the media on boys' underachievement. However, often such work has been a 'knee-jerk' response, led by media, not based on solid research. _Boys, Girls and Achievement - Addressing the Classroom Issues_ fills that gap and: *provides a critical overview of the current debate on achievement; *Focuses on interviews with young people and classroom observations to examine how boys and girls see themselves as learners; *analyses the strategies (...) teachers can use to improve the educational achievements of both boys and girls. Becky Francis provides teachers with a thorough analysis of the various ways in which secondary school pupils construct their gender identities in the classroom. The book also discusses methods teachers might use challenge these gender constructions in the classroom and thereby address the 'gender-gap' in achievement. (shrink)

Farmers’ markets, often structured as non-profit or cooperative organizations, play a prominent role in emerging alternative food networks of western Canada. The contribution of these social economy organizations to network development may relate, in part, to the process of regional clustering. In this study we explore the nature and significance of farmers’ market clustering in the western Canadian provinces of British Columbia and Alberta, focusing on the possible connection between clustering and a “scaling up” of alternative food networks. Survey and (...) interview results from four regional clusters indicate that in addition to spatial agglomeration, dynamic processes of interaction and knowledge exchange are occurring and are shaped by vendor mobility as well as collaborative and competitive forces. Horizontal and vertical collaborations are resulting in innovative strategies to address challenges of scale, scope, infrastructure, and organizational capacity that are prevalent in alternative food networks. Government support for market clustering has been modest to date but, we argue, could play a more prominent role in facilitating cluster development as part of a broader collaborative strategy involving public, private, and social economy sectors in the scaling up of alternative food networks. (shrink)

Objects are central to perception and our interactions with the world. We perceive the world as parsed into discrete entities that instantiate particular properties, and these items capture our attention and shape how we interact with the environment. Recently there has been some debate about whether the sense of smell allows us to perceive odours as discrete objects, with some suggesting that olfaction is aspatial and doesn’t allow for object-individuation. This paper offers two empirically tractable criteria for assessing whether particular (...) objects are exhibited in perceptual experience— susceptibility to figure-ground segregation and perceptual constancies—and argues that these criteria are fulfilled by olfactory perception, and thus there are olfactory objects. I argue that there are, in fact, two different ways that olfaction allows for figure-ground segregation. First, I look at various Gestalt grouping principles, which are thought to govern when features are perceived as grouped into structured wholes, segregated from everything around them. I argue that these principles apply to olfactory experience, providing evidence of non-spatial figure-ground segregation. Second, I defend the contentious idea that a spatial variety of figure-ground segregation can also occur in olfaction. To see this, however, we need to look to empirical evidence showing that tactile stimulation and bodily movements play a crucial role in olfactory phenomenology. Finally, I draw on empirical evidence and olfactory phenomenology to argue that there are perceptual constancies in olfactory experience, allowing us to perceive odours as coherent objects that survive shifts in our perspectives on the world. (shrink)

Achieving space situational awareness requires, at a minimum, the identification, characterization, and tracking of space objects. Leveraging the resultant space object data for purposes such as hostile threat assessment, object identification, and conjunction assessment presents major challenges. This is in part because in characterizing space objects we reference a variety of identifiers, components, subsystems, capabilities, vulnerabilities, origins, missions, orbital elements, patterns of life, operational processes, operational statuses, and so forth, which tend to be defined in highly heterogeneous and sometimes inconsistent (...) ways. The Space Domain Ontologies are designed to provide a consensus-based realist framework for formulating such characterizations in a way that is both consistent and computable. Space object data are aligned with classes and relations in a suite of ontologies built around the existing Space Object Ontology. They are stored in a dynamically updated Resource Description Framework triple store, which can be queried to support space situational awareness and the needs of spacecraft operators and analysts. This paper provides an overview of the Space Domain Ontologies and their development and use. It presents the motivation for and advantages of the Space Domain Ontologies, including the benefits they provide for enhancing and maintaining long-term space situational awareness. (shrink)

It is common to hear talk of the aim of belief and to find philosophers appealing to that aim for numerous explanatory purposes. What belief 's aim explains depends, of course, on what that aim is. Many hold that it is somehow related to truth, but there are various ways in which one might specify belief 's aim using the notion of truth. In this article, by considering whether they can account for belief 's standard of correctness and the epistemic (...) norms governing belief, I argue against certain prominent specifications of belief 's aim given in terms of truth, and advance a neglected alternative. (shrink)

We have begun work on two separate but related ontologies for the study of neurological diseases. The first, the Neurological Disease Ontology (ND), is intended to provide a set of controlled, logically connected classes to describe the range of neurological diseases and their associated signs and symptoms, assessments, diagnoses, and interventions that are encountered in the course of clinical practice. ND is built as an extension of the Ontology for General Medical Sciences — a high-level candidate OBO Foundry ontology that (...) provides a set of general classes that can be used to describe general aspects of medical science. ND is being built with classes utilizing both textual and axiomatized definitions that describe and formalize the relations between instances of other classes within the ontology itself as well as to external ontologies such as the Gene Ontology, Cell Ontology, Protein Ontology, and Chemical Entities of Biological Interest. In addition, references to similar or associated terms in external ontologies, vocabularies and terminologies are included when possible. Initial work on ND is focused on the areas of Alzheimer’s and other diseases associated with dementia, multiple sclerosis, and stroke and cerebrovascular disease. Extensions to additional groups of neurological diseases are planned. The second ontology, the Neuro-Psychological Testing Ontology (NPT), is intended to provide a set of classes for the annotation of neuropsychological testing data. The intention of this ontology is to allow for the integration of results from a variety of neuropsychological tests that assay similar measures of cognitive functioning. Neuro-psychological testing is an important component in developing the clinical picture used in the diagnosis of patients with a range of neurological diseases, such as Alzheimer’s disease and multiple sclerosis, and following stroke or traumatic brain injury. NPT is being developed as an extension to the Ontology for Biomedical Investigations. (shrink)

The global pesticide complex has transformed over the past two decades, but social science research has not kept pace. The rise of an enormous generics sector, shifts in geographies of pesticide production, and dynamics of agrarian change have led to more pesticide use, expanding to farm systems that hitherto used few such inputs. Declining effectiveness due to pesticide resistance and anemic institutional support for non-chemical alternatives also have driven intensification in conventional systems. As an inter-disciplinary network of pesticide scholars, we (...) seek to renew the social science research agenda on pesticides to better understand this suite of contemporary changes. To identify research priorities, challenges, and opportunities, we develop the pesticide complex as a heuristic device to highlight the reciprocal and iterative interactions among agricultural practice, the agrochemical industry, civil society-shaped regulatory actions, and contested knowledge of toxicity. Ultimately, collaborations among social scientists and across the social and biophysical sciences can illuminate recent transformations and their uneven socioecological effects. A reinvigorated critical scholarship that embraces the multifaceted nature of pesticides can identify the social and ecological constraints that drive pesticide use and support alternatives to chemically driven industrial agriculture. (shrink)

The philosophy of grief has directed little attention to bereavement’s impact on perceptual experience. However, misperceptions, hallucinations and other anomalous experiences are strikingly common following the death of a loved one. Such experiences range from misperceiving a stranger to be the deceased, to phantom sights, sounds and smells, to nebulous quasi-sensory experiences of the loved one’s presence. This paper draws upon the enactive sensorimotor theory of perception to offer a phenomenologically sensitive and empirically informed account of these experiences. It argues (...) that they can be understood as deriving from disruption to both sensorimotor expectations and perceived opportunities for action, stemming from the upheaval of bereavement. Different facets of the enactive sensorimotor approach can help to explain different types of post-bereavement perceptual experience. Post-bereavement misperceptions can be accounted for through the way that alterations to sensorimotor expectations can result in atypical ‘amodal completion’, while bereavement hallucinations can be understood as ‘appearances’ that fail to form part of the usual patterns of sensorimotor contingency. Quasi-sensory experiences of the presence of the deceased can be understood as resulting from changes to perceived affordances. This paper aims to demonstrate the explanatory value of key aspects of the sensorimotor approach by highlighting how they can help to explain the phenomenology of post-bereavement experiences. However, it also illuminates certain areas in which the sensorimotor approach ought to be supplemented, especially if it is to account for tight connections between perception, affect, and intersubjectivity that are salient in grief. (shrink)

Before COVID-19, dementia singing groups and choirs flourished, providing activity, cognitive stimulation, and social support for thousands of people with dementia in the UK. Interactive music provides one of the most effective psychosocial interventions for people with dementia; it can allay agitation and promote wellbeing. Since COVID-19 has halted the delivery of in-person musical activities, it is important for the welfare of people with dementia and their carers to investigate what alternatives to live music making exist, how these alternatives are (...) delivered and how their accessibility can be expanded. This community case study examines recent practice in online music-making in response to COVID-19 restrictions for people with dementia and their supporters, focusing on a UK context. It documents current opportunities for digital music making, and assesses the barriers and facilitators to their delivery and accessibility. Online searches of video streaming sites and social media documented what music activities were available. Expert practitioners and providers collaborated on this study and supplied input about the sessions they had been delivering, the technological challenges and solutions they had found, and the responses of the participants. Recommendations for best practice were developed and refined in consultation with these collaborators. Over 50 examples of online music activities were identified. In addition to the challenges of digital inclusion and accessibility for some older people, delivering live music online has unique challenges due to audio latency and sound quality. It is necessary to adapt the session to the technology's limitations rather than expect to overcome these challenges. The recommendations highlight the importance of accessibility, digital safety and wellbeing of participants. They also suggest ways to optimize the quality of their musical experience. The pandemic has prompted innovative approaches to deliver activities and interventions in a digital format, and people with dementia and their carers have adapted rapidly. While online music is meeting a clear current need for social connection and cognitive stimulation, it also offers some advantages which remain relevant after COVID-19 restrictions are relaxed. The recommendations of this study are intended to be useful to musicians, dementia care practitioners, and researchers during the pandemic and beyond. (shrink)

Background The fourth section of the 1967 Abortion Act states that individuals (including health care practitioners) do not have to participate in an abortion if they have a conscientious objection. A conscientious objection is a refusal to participate in abortion on the grounds of conscience. This may be informed by religious, moral, philosophical, ethical, or personal beliefs. Currently, there is very little investigation into the impact of conscientious objection on service users in Britain. The perspectives of service users are imperative (...) in understanding the real-world consequences and potential impact of conscientious objection and should be considered when creating and reviewing policies and guidelines. This research provided a platform for women and those who can become pregnant to share their experiences and opinions at a time when these voices are largely excluded in the great tradition of Western political philosophy and law-making processes. Method Five service users were interviewed using a narrative interview approach to uncover their abortion journeys and experiences of conscientious objection. Findings The findings were presented as found poems and uncovered that doctors are not always: informing service users that they have a conscientious objection to abortion, giving service users enough information to access abortion (indirect referral), treating them non-judgmentally, and providing medically correct information. Service users did not experience burdens such as long waiting times and were still able to access legal abortion. However, service users did experience negative emotional effects, as they were often left feeling scared, angry, and hopeless when they were not referred and/or were mistreated. Conclusions Findings indicate that conscientious objection could work in practice. However, it is currently failing some individuals on an emotional level, as not all doctors are adhering to guidelines. Conscientious objection in Britain needs to be addressed, to ensure service users receive fair, impartial, non-judgmental care. (shrink)