37 found
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  1.  30
    Design Bioethics: A Theoretical Framework and Argument for Innovation in Bioethics Research.Gabriela Pavarini, Robyn McMillan, Abigail Robinson & Ilina Singh - 2021 - American Journal of Bioethics 21 (6):37-50.
    Empirical research in bioethics has developed rapidly over the past decade, but has largely eschewed the use of technology-driven methodologies. We propose “design bioethics” as an area of conjoined theoretical and methodological innovation in the field, working across bioethics, health sciences and human-centred technological design. We demonstrate the potential of digital tools, particularly purpose-built digital games, to align with theoretical frameworks in bioethics for empirical research, integrating context, narrative and embodiment in moral decision-making. Purpose-built digital tools can engender situated engagement (...)
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  2.  35
    The Hopkins-Oxford Psychedelics Ethics (HOPE) Working Group Consensus Statement.Edward Jacobs, Brian D. Earp, Paul S. Appelbaum, Lori Bruce, Ksenia Cassidy, Yuria Celidwen, Katherine Cheung, Sean K. Clancy, Neşe Devenot, Jules Evans, Holly Fernandez Lynch, Phoebe Friesen, Albert Garcia Romeu, Neil Gehani, Molly Maloof, Olivia Marcus, Ole Martin Moen, Mayli Mertens, Sandeep M. Nayak, Tehseen Noorani, Kyle Patch, Sebastian Porsdam-Mann, Gokul Raj, Khaleel Rajwani, Keisha Ray, William Smith, Daniel Villiger, Neil Levy, Roger Crisp, Julian Savulescu, Ilina Singh & David B. Yaden - 2024 - American Journal of Bioethics 24 (7):6-12.
    Volume 24, Issue 7, July 2024, Page 6-12.
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  3. Will the "real boy" please behave: Dosing dilemmas for parents of boys with ADHD.Ilina Singh - 2005 - American Journal of Bioethics 5 (3):34 – 47.
    The use of Ritalin and other stimulant drug treatments for attention-deficit hyperactivity disorder (ADHD) raises distinctive moral dilemmas for parents; these moral dilemmas have not been adequately addressed in the bioethics literature. This paper draws upon data from a qualitative empirical study to investigate parents' use of the moral ideal of authenticity as part of their narrative justifications for dosing decisions and actions. I show that therapeutic decisions and actions are embedded in valued cultural ideals about masculinity, self-actualization and success, (...)
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  4.  36
    Cognitive Enhancement and Social Mobility: Skepticism from India.Jayashree Dasgupta, Georgia Lockwood Estrin, Jesse Summers & Ilina Singh - 2023 - American Journal of Bioethics Neuroscience 14 (4):341-351.
    Cognitive enhancement (CE) covers a broad spectrum of methods, including behavioral techniques, nootropic drugs, and neuromodulation interventions. However, research on their use in children has almost exclusively been carried out in high-income countries with limited understanding of how experts working with children view their use in low- and middle- income countries (LMICs). This study examines perceptions on cognitive enhancement, their techniques, neuroethical issues about their use from an LMICs perspective.Seven Indian experts were purposively sampled for their expertise in bioethics, child (...)
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  5.  63
    Not robots: children's perspectives on authenticity, moral agency and stimulant drug treatments.Ilina Singh - 2013 - Journal of Medical Ethics 39 (6):359-366.
    In this article, I examine children's reported experiences with stimulant drug treatments for attention deficit hyperactivity disorder in light of bioethical arguments about the potential threats of psychotropic drugs to authenticity and moral agency. Drawing on a study that involved over 150 families in the USA and the UK, I show that children are able to report threats to authenticity, but that the majority of children are not concerned with such threats. On balance, children report that stimulants improve their capacity (...)
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  6.  23
    Merging Minds: The Conceptual and Ethical Impacts of Emerging Technologies for Collective Minds.David M. Lyreskog, Hazem Zohny, Julian Savulescu & Ilina Singh - 2023 - Neuroethics 16 (1):1-17.
    A growing number of technologies are currently being developed to improve and distribute thinking and decision-making. Rapid progress in brain-to-brain interfacing and swarming technologies promises to transform how we think about collective and collaborative cognitive tasks across domains, ranging from research to entertainment, and from therapeutics to military applications. As these tools continue to improve, we are prompted to monitor how they may affect our society on a broader level, but also how they may reshape our fundamental understanding of agency, (...)
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  7.  24
    The Mystery of Mental Integrity: Clarifying Its Relevance to Neurotechnologies.Hazem Zohny, David M. Lyreskog, Ilina Singh & Julian Savulescu - 2023 - Neuroethics 16 (3):1-12.
    The concept of mental integrity is currently a significant topic in discussions concerning the regulation of neurotechnologies. Technologies such as deep brain stimulation and brain-computer interfaces are believed to pose a unique threat to mental integrity, and some authors have advocated for a legal right to protect it. Despite this, there remains uncertainty about what mental integrity entails and why it is important. Various interpretations of the concept have been proposed, but the literature on the subject is inconclusive. Here we (...)
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  8. Pragmatic Neuroethics: Lived Experiences as a Source of Moral Knowledge.Gabriela Pavarini & Ilina Singh - 2018 - Cambridge Quarterly of Healthcare Ethics 27 (4):578-589.
    Abstract:In this article, we present a pragmatic approach to neuroethics, referring back to John Dewey and his articulation of the “common good” and its discovery through systematic methods. Pragmatic neuroethics bridges philosophy and social sciences and, at a very basic level, considers that ethics is not dissociable from lived experiences and everyday moral choices. We reflect on the integration between empirical methods and normative questions, using as our platform recent bioethical and neuropsychological research into moral cognition, action, and experience. Finally, (...)
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  9.  30
    Ethics of Early Intervention in Alzheimer’s Disease.Alex McKeown, Gin S. Malhi & Ilina Singh - forthcoming - American Journal of Bioethics Neuroscience:1-18.
  10.  37
    Just Policy? An Ethical Analysis of Early Intervention Policy Guidance.Rose Mortimer, Alex McKeown & Ilina Singh - 2018 - American Journal of Bioethics 18 (11):43-53.
    Early intervention aims to identify children or families at risk of poor health, and take preventative measures at an early stage, when intervention is more likely to succeed. EI is concerned with the just distribution of “life chances,” so that all children are given fair opportunity to realize their potential and lead a good life; EI policy design, therefore, invokes ethical questions about the balance of responsibilities between the state, society, and individuals in addressing inequalities. We analyze a corpus of (...)
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  11.  36
    Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.Alex McKeown, Miranda Mourby, Paul Harrison, Sophie Walker, Mark Sheehan & Ilina Singh - 2021 - Science and Engineering Ethics 27 (1):1-21.
    Data platforms represent a new paradigm for carrying out health research. In the platform model, datasets are pooled for remote access and analysis, so novel insights for developing better stratified and/or personalised medicine approaches can be derived from their integration. If the integration of diverse datasets enables development of more accurate risk indicators, prognostic factors, or better treatments and interventions, this obviates the need for the sharing and reuse of data; and a platform-based approach is an appropriate model for facilitating (...)
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  12.  59
    Fair, just and compassionate: A pilot for making allocation decisions for patients requesting experimental drugs outside of clinical trials.Arthur L. Caplan, J. Russell Teagarden, Lisa Kearns, Alison S. Bateman-House, Edith Mitchell, Thalia Arawi, Ross Upshur, Ilina Singh, Joanna Rozynska, Valerie Cwik & Sharon L. Gardner - 2018 - Journal of Medical Ethics 44 (11):761-767.
    Patients have received experimental pharmaceuticals outside of clinical trials for decades. There are no industry-wide best practices, and many companies that have granted compassionate use, or ‘preapproval’, access to their investigational products have done so without fanfare and without divulging the process or grounds on which decisions were made. The number of compassionate use requests has increased over time. Driving the demand are new treatments for serious unmet medical needs; patient advocacy groups pressing for access to emerging treatments; internet platforms (...)
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  13.  51
    Testing Design Bioethics Methods: Comparing a Digital Game with a Vignette Survey for Neuroethics Research with Young People.David M. Lyreskog, Gabriela Pavarini, Edward Jacobs, Vanessa Bennett, Geoffrey Mawdsley & Ilina Singh - 2023 - AJOB Empirical Bioethics 14 (1):55-64.
    Background Over the last decades, the neurosciences, behavioral sciences, and the social sciences have all seen a rapid development of innovative research methods. The field of bioethics, however, has trailed behind in methodological innovation. Despite the so-called “empirical turn” in bioethics, research methodology for project development, data collection and analysis, and dissemination has remained largely restricted to surveys, interviews, and research papers. We have previously argued for a “Design Bioethics” approach to empirical bioethics methodology, which develops purpose-built methods for investigation (...)
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  14.  67
    Neuroenhancements in the Military: A Mixed-Method Pilot Study on Attitudes of Staff Officers to Ethics and Rules.Agnes Allansdottir, Gian Galeazzi, Jonathan Moreno, Imre Bárd, David Whetham, Ilina Singh, Edward Jacobs & Sebastian Sattler - 2022 - Neuroethics 15 (1):1-18.
    Utilising science and technology to maximize human performance is often an essential feature of military activity. This can often be focused on mission success rather than just the welfare of the individuals involved. This tension has the potential to threaten the autonomy of soldiers and military physicians around the taking or administering of enhancement neurotechnologies (e.g., pills, neural implants, and neuroprostheses). The Hybrid Framework was proposed by academic researchers working in the U.S. context and comprises “rules” for military neuroenhancement (e.g., (...)
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  15. Bottom Up Ethics - Neuroenhancement in Education and Employment.Hub Zwart, Márton Varju, Vincent Torre, Helge Torgersen, Winnie Toonders, Han Somsen, Ilina Singh, Simone Seyringer, Júlio Santos, Judit Sándor, Núria Saladié, Gema Revuelta, Alexandre Quintanilha, Salvör Nordal, Anna Meijknecht, Sheena Laursen, Nicole Kronberger, Christian Hofmaier, Elisabeth Hildt, Juergen Hampel, Peter Eduard, Rui Cunha, Agnes Allansdottir, George Gaskell & Imre Bard - 2018 - Neuroethics 11 (3):309-322.
    Neuroenhancement involves the use of neurotechnologies to improve cognitive, affective or behavioural functioning, where these are not judged to be clinically impaired. Questions about enhancement have become one of the key topics of neuroethics over the past decade. The current study draws on in-depth public engagement activities in ten European countries giving a bottom-up perspective on the ethics and desirability of enhancement. This informed the design of an online contrastive vignette experiment that was administered to representative samples of 1000 respondents (...)
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  16. Bottom Up Ethics - Neuroenhancement in Education and Employment.Imre Bard, George Gaskell, Agnes Allansdottir, Rui Vieira da Cunha, Peter Eduard, Juergen Hampel, Elisabeth Hildt, Christian Hofmaier, Nicole Kronberger, Sheena Laursen, Anna Meijknecht, Salvör Nordal, Alexandre Quintanilha, Gema Revuelta, Núria Saladié, Judit Sándor, Júlio Borlido Santos, Simone Seyringer, Ilina Singh, Han Somsen, Winnie Toonders, Helge Torgersen, Vincent Torre, Márton Varju & Hub Zwart - 2018 - Neuroethics 11 (3):309-322.
    Neuroenhancement involves the use of neurotechnologies to improve cognitive, affective or behavioural functioning, where these are not judged to be clinically impaired. Questions about enhancement have become one of the key topics of neuroethics over the past decade. The current study draws on in-depth public engagement activities in ten European countries giving a bottom-up perspective on the ethics and desirability of enhancement. This informed the design of an online contrastive vignette experiment that was administered to representative samples of 1000 respondents (...)
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  17.  46
    Cognitive Enhancement in Healthy Children Will Not Close the Achievement Gap in Education.Sebastian Sattler & Ilina Singh - 2016 - American Journal of Bioethics 16 (6):39-41.
  18.  64
    Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.Ilina Singh, Dorcas Kamuya, Dan J. Stein & Jantina de Vries - 2017 - American Journal of Bioethics 17 (4):17-19.
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  19.  29
    Towards a Moral Ecology of Pharmacological Cognitive Enhancement in British Universities.Meghana Kasturi Vagwala, Aude Bicquelet, Gabija Didziokaite, Ross Coomber, Oonagh Corrigan & Ilina Singh - 2017 - Neuroethics 10 (3):389-403.
    Few empirical studies in the UK have examined the complex social patterns and values behind quantitative estimates of the prevalence of pharmacological cognitive enhancement. We conducted a qualitative investigation of the social dynamics and moral attitudes that shape PCE practices among university students in two major metropolitan areas in the UK. Our thematic analysis of eight focus groups suggests a moral ecology that operates within the social infrastructure of the university. We find that PCE resilience among UK university students is (...)
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  20.  24
    Investigating assumptions of vulnerability: A case study of the exclusion of psychiatric inpatients as participants in genetic research in low‐ and middle‐income contexts.Andrea C. Palk, Mary Bitta, Eunice Kamaara, Dan J. Stein & Ilina Singh - 2020 - Developing World Bioethics 20 (3):157-166.
    Psychiatric genetic research investigates the genetic basis of psychiatric disorders with the aim of more effectively understanding, treating, or, ultimately, preventing such disorders. Given the challenges of recruiting research participants into such studies, the potential for long‐term benefits of such research, and seemingly minimal risk, a strong claim could be made that all non‐acute psychiatric inpatients, including forensic and involuntary patients, should be included in such research, provided they have capacity to consent. There are tensions, however, regarding the ethics of (...)
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  21.  15
    ‘A commitment to Equality, Diversity and Inclusion’: a conceptual framework for equality of opportunity in Patient and Public Involvement in research.Sapfo Lignou, Mark Sheehan & Ilina Singh - 2024 - Research Ethics 20 (2):288-303.
    Many research institutions and funders have recently stated their commitment to actively support and promote ‘Equality, Diversity and Inclusion’ (EDI) in various aspects of health research including Patient and Public Involvement (PPI). However, translating this commitment into specific research projects presents significant challenges that existing approaches, practical guidelines and initiatives have not adequately addressed. In this paper, we explore how the lack of clear justifications for the EDI commitment in existing guidelines inadvertently complicates the work of those involved with PPI (...)
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  22.  26
    Co-Production: An Ethical Model for Mental Health Research?Sapfo Lignou, Liliana Capitao, Julia Madeleine Hamer-Hunt & Ilina Singh - 2019 - American Journal of Bioethics 19 (8):49-51.
    In this commentary we argue for the value of involving people with a diagnosis of mental health disorders and/or their caregivers as co-researchers in mental health research. We claim that co-produ...
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  23.  52
    Authenticity, Values, and Context in Mental Disorder: The Case of Children With ADHD.Ilina Singh - 2014 - Philosophy, Psychiatry, and Psychology 21 (3):237-240.
  24.  35
    Bad Boys, Good Mothers, and the Miracle of Ritalin.Ilina Singh - 2002 - Science in Context 15 (4):577-603.
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  25.  23
    Philosophical Bioethics in the Policy Arena: A Response to Open Peer Commentaries on “Just Policy? An Ethical Analysis of Early Intervention Policy Guidance”.Ilina Singh, Alex McKeown & Rose Mortimer - 2019 - American Journal of Bioethics 19 (1):W14-W18.
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  26.  11
    Flourishing, Mental Health Professionals and the Role of Normative Dialogue.Hazem Zohny, Julian Savulescu, Gin S. Malhi & Ilina Singh - forthcoming - Health Care Analysis:1-16.
    This paper explores the dilemma faced by mental healthcare professionals in balancing treatment of mental disorders with promoting patient well-being and flourishing. With growing calls for a more explicit focus on patient flourishing in mental healthcare, we address two inter-related challenges: the lack of consensus on defining positive mental health and flourishing, and how professionals should respond to patients with controversial views on what is good for them. We discuss the relationship dynamics between healthcare providers and patients, proposing that ‘liberal’ (...)
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  27.  14
    The Ethics of Thinking with Machines: Brain-Computer Interfaces in the Era of Artificial Intelligence.David M. Lyreskog, Hazem Zohny, Ilina Singh & Julian Savulescu - 2023 - International Journal of Chinese and Comparative Philosophy of Medicine 21 (2):11-34.
    LANGUAGE NOTE | Document text in English; abstract also in Chinese. 腦機介面 (BCIs) 是大腦和電腦無需人工交互即可直接交流的一系列技術。隨著人工智能 (AI) 時代的到來,我們需要更多地關注腦機介面和人工智能的融合所帶來的倫理問題。那麼,與機器一起思考會帶來什麼樣的倫理問題?在本文中,圍繞這一主題,我們將重點關注以下問題:自主性、完整性、身分認同、隱私,以及 作為一種增強的方式,該技術在兒科領域的應用會帶來怎樣的風險和潛在收益。我們的結論是,雖然該技術存在多種令人擔憂的問題,同時也有可能帶來好處,但仍存在很大的不確定性。如果生命倫理學家想在這一領域有所建樹 ,他們就應該做好準備來迎接我們對醫學和醫療保健領域中一些我們視為核心價值的理解的重大轉變。 Brain-Computer Interfaces – BCIs – are a set of technologies with which brains and computers can communicate directly, without the need for manual interaction. As we are witnessing the dawn of an era in which Artificial Intelligence (AI) quite possibly will come to dominate the technological innovation landscape, we are compelled to ask questions about the ethical issues which the convergence of BCIs and AI (...)
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  28.  55
    Response to Commentators on “Will the 'Real Boy' Please Behave: Dosing Dilemmas for Parents of Boys with ADHD”.Ilina Singh - 2005 - American Journal of Bioethics 5 (3):W10-W12.
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  29.  19
    Victimology versus character: new perspectives on the use of stimulant drugs in children.Ilina Singh - 2013 - Journal of Medical Ethics 39 (6):372-373.
    The VOICES study involved at least one radical move in the decades-old debates about attention deficit hyperactivity disorder diagnosis and stimulant drug treatments: to systematically investigate young people's perspectives and experiences so that these could be included as evidence in social, ethical and policy deliberations about the benefits and risks of these interventions. The findings reported in this article were both surprising and unsurprising to us as researchers. We were surprised at the consistency of children's positive responses to stimulant medication, (...)
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  30.  39
    What we should really worry about in pediatric functional magnetic resonance imaging (fmri).Caitlin M. Connors & Ilina Singh - 2009 - American Journal of Bioethics 9 (1):16 – 18.
  31. Is coercion ever beneficent? Public health ethics in early intervention and prevention for mental health.Alex McKeown, Rose Mortimer, Arianna Manzini & Ilina Singh - 2019 - In Kelso Cratsley & Jennifer Radden (eds.), Mental Health as Public Health: Interdisciplinary Perspectives on the Ethics of Prevention. San Diego, CA: Elsevier.
  32.  43
    Cryptic Coercion.Ilina Singh - 2010 - Hastings Center Report 40 (1):22-23.
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  33.  18
    Disciplinary Crossings.Ilina Singh - 2016 - Hastings Center Report 46 (5):inside back cover-inside back co.
    Eighteen months ago, I left a permanent professorship in a generously interdisciplinary department of sociology and took an impermanent, lower-paying job at a university where I had to apply to something called the “Committee on Distinction” to retain the title of “Professor.” Some people say, “That's what happens when Oxford calls.” But it wasn't just that. It was the opportunity to engage in a groundbreaking experiment: to embed and integrate ethics within the Oxford Department of Psychiatry and Neuroscience. It's a (...)
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  34.  29
    Listening to Children with ADHD.Ilina Singh - 2011 - Hastings Center Report 41 (2):S26-S26.
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  35.  16
    Making Progress in the Ethics of Digital and Virtual Technologies for Mental Health.Ilina Singh - 2022 - American Journal of Bioethics Neuroscience 13 (3):141-143.
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  36.  21
    The Case of Stimulants.Ilina Singh - forthcoming - Pediatric Bioethics.
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  37.  47
    Parental Responsibility in the Context of Neuroscience and Genetics, by Kristien Hens, Daniela Cutas, and Dorothee Horstkötter. Cham, Switzerland: Springer International Publishing; 2017. 246 pp. [REVIEW]Arianna Manzini, Rose Mortimer & Ilina Singh - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (4):681-685.
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