Results for ' Big Data'

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  1.  95
    AI, big data, and the future of consent.Adam J. Andreotta, Nin Kirkham & Marco Rizzi - 2022 - AI and Society 37 (4):1715-1728.
    In this paper, we discuss several problems with current Big data practices which, we claim, seriously erode the role of informed consent as it pertains to the use of personal information. To illustrate these problems, we consider how the notion of informed consent has been understood and operationalised in the ethical regulation of biomedical research (and medical practices, more broadly) and compare this with current Big data practices. We do so by first discussing three types of problems that (...)
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  2. Big data and their epistemological challenge.Luciano Floridi - 2012 - Philosophy and Technology 25 (4):435-437.
    Between 2006 and 2011, humanity accumulated 1,600 EB of data. As a result of this growth, there is now more data produced than available storage. This article explores the problem of “Big Data,” arguing for an epistemological approach as a possible solution to this ever-increasing challenge.
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  3. Big Data, epistemology and causality: Knowledge in and knowledge out in EXPOsOMICS.Stefano Canali - 2016 - Big Data and Society 3 (2).
    Recently, it has been argued that the use of Big Data transforms the sciences, making data-driven research possible and studying causality redundant. In this paper, I focus on the claim on causal knowledge by examining the Big Data project EXPOsOMICS, whose research is funded by the European Commission and considered capable of improving our understanding of the relation between exposure and disease. While EXPOsOMICS may seem the perfect exemplification of the data-driven view, I show how causal (...)
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  4. Big Data Analytics in Healthcare: Exploring the Role of Machine Learning in Predicting Patient Outcomes and Improving Healthcare Delivery.Federico Del Giorgio Solfa & Fernando Rogelio Simonato - 2023 - International Journal of Computations Information and Manufacturing (Ijcim) 3 (1):1-9.
    Healthcare professionals decide wisely about personalized medicine, treatment plans, and resource allocation by utilizing big data analytics and machine learning. To guarantee that algorithmic recommendations are impartial and fair, however, ethical issues relating to prejudice and data privacy must be taken into account. Big data analytics and machine learning have a great potential to disrupt healthcare, and as these technologies continue to evolve, new opportunities to reform healthcare and enhance patient outcomes may arise. In order to investigate (...)
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  5. Big data and prediction: Four case studies.Robert Northcott - 2020 - Studies in History and Philosophy of Science Part A 81:96-104.
    Has the rise of data-intensive science, or ‘big data’, revolutionized our ability to predict? Does it imply a new priority for prediction over causal understanding, and a diminished role for theory and human experts? I examine four important cases where prediction is desirable: political elections, the weather, GDP, and the results of interventions suggested by economic experiments. These cases suggest caution. Although big data methods are indeed very useful sometimes, in this paper’s cases they improve predictions either (...)
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  6.  25
    From big data epistemology to AI politics: rescuing the public dimension over data-driven technologies.Stefano Calzati - 2023 - Journal of Information, Communication and Ethics in Society 21 (3):358-372.
    Purpose The purpose of this paper is to explore the epistemological tensions embedded within big data and data-driven technologies to advance a socio-political reconsideration of the public dimension in the assessment of their implementation. Design/methodology/approach This paper builds upon (and revisits) the European Union’s (EU) normative understanding of artificial intelligence (AI) and data-driven technologies, blending reflections rooted in philosophy of technology with issues of democratic participation in tech-related matters. Findings This paper proposes the conceptual design of sectorial (...)
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  7.  61
    Big Data and Personalized Pricing.Etye Steinberg - 2019 - Business Ethics Quarterly 30 (1):97-117.
    ABSTRACT:Technological advances introduce the possibility that, in the future, firms will be able to use big-data analysis to discover and offer consumers their individual reservation price. This can generate some interesting benefits, such as a better state of affairs in terms of equality of both welfare and resources, as well as increased social welfare. However, these benefits are countered by considerations of relational equality. This article takes up the market-failures approach as its basis to demonstrate what is wrong with (...)
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  8.  57
    Applying big data beyond small problems in climate research.Benedikt Knüsel, Marius Zumwald, Christoph Baumberger, Gertrude Hirsch Hadorn, Erich M. Fischer, Reto Knutti & David M. Bresch - 2019 - Nature Climate Change 9 (March 2019):196-202.
    Commercial success of big data has led to speculation that big-data-like reasoning could partly replace theory-based approaches in science. Big data typically has been applied to ‘small problems’, which are well-structured cases characterized by repeated evaluation of predictions. Here, we show that in climate research, intermediate categories exist between classical domain science and big data, and that big-data elements have also been applied without the possibility of repeated evaluation. Big-data elements can be useful for (...)
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  9.  37
    Big data, surveillance, and migration: a neo-republican account.Alex Sager - 2023 - Journal of Global Ethics 19 (3):335-346.
    Big data, artificial intelligence, and increasingly precise biometric techniques have given state and private organizations unprecedented scope and power for the surveillance and dataveillance of migrants. In many cases, these technologies have evolved faster than our legal, political, and ethical mechanisms. This paper, drawing on current discussions of justice and non-domination, proposes a non-domination-based ethics of digital surveillance and mobility, in which the legitimacy of these technologies depends on their avoidance of the arbitrary use of power. This allows us (...)
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  10.  24
    El big data en los procesos políticos: hacia una democracia de la vigilancia.Carlos Saura García - 2023 - Revista de filosofía (Chile) 80:215-232.
    Este artículo se centra en el análisis del uso de la industria del big data en la política. Se examina de forma pormenorizada el caso de la empresa Cambridge Analytica y se profundiza en los efectos del uso de la tecnología del big data en el referéndum de permanencia de Reino Unido en la Unión Europea y en las elecciones presidenciales estadounidenses de 2016. El objetivo es exponer los efectos nocivos que tiene el uso de la tecnología del (...)
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  11. Big Data and Changing Concepts of the Human.Carrie Figdor - 2019 - European Review 27 (3):328-340.
    Big Data has the potential to enable unprecedentedly rigorous quantitative modeling of complex human social relationships and social structures. When such models are extended to nonhuman domains, they can undermine anthropocentric assumptions about the extent to which these relationships and structures are specifically human. Discoveries of relevant commonalities with nonhumans may not make us less human, but they promise to challenge fundamental views of what it is to be human.
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  12. The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.
    The capacity to collect and analyse data is growing exponentially. Referred to as ‘Big Data’, this scientific, social and technological trend has helped create destabilising amounts of information, which can challenge accepted social and ethical norms. Big Data remains a fuzzy idea, emerging across social, scientific, and business contexts sometimes seemingly related only by the gigantic size of the datasets being considered. As is often the case with the cutting edge of scientific and technological progress, understanding of (...)
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  13. Big Data Analytics and How to Buy an Election.Jakob Mainz, Rasmus Uhrenfeldt & Jorn Sonderholm - 2021 - Public Affairs Quarterly 32 (2):119-139.
    In this article, we show how it is possible to lawfully buy an election. The method we describe for buying an election is novel. The key things that make it possible to buy an election are the existence of public voter registration lists where one can see whether a given elector has voted in a particular election, and the existence of Big Data Analytics that with a high degree of accuracy can predict what a given elector will vote in (...)
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  14.  15
    Big Data, urban governance, and the ontological politics of hyperindividualism.Robert W. Lake - 2017 - Big Data and Society 4 (1).
    Big Data’s calculative ontology relies on and reproduces a form of hyperindividualism in which the ontological unit of analysis is the discrete data point, the meaning and identity of which inheres in itself, preceding, separate, and independent from its context or relation to any other data point. The practice of Big Data governed by an ontology of hyperindividualism is also constitutive of that ontology, naturalizing and diffusing it through practices of governance and, from there, throughout myriad (...)
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  15.  21
    Big Data and the reference class problem: What can we legitimately infer about individuals.Catherine Greene - 2019 - Computer Ethics- Philosophical Inquiry (CEPE) Proceedings 1 (2019).
    Big data increasingly enables prediction of the behaviour and characteristics of individuals. This is ethically concerning on privacy grounds. However, this article discusses other reasons for concern. These predictions usually rely on generalisations about what certain sorts of people tend to do. Generalisations of this sort are often under scrutiny in legal cases, where, for example, lawyers argue that people with prior convictions are more likely to be guilty of the crime they are currently on trial for. This article (...)
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  16.  17
    Eliciting Big Data From Small, Young, or Non-standard Languages: 10 Experimental Challenges.Evelina Leivada, Roberta D’Alessandro & Kleanthes K. Grohmann - 2019 - Frontiers in Psychology 10:429300.
    The aim of this work is to identify and analyze a set of challenges that are likely to be encountered when one embarks on fieldwork in linguistic communities that feature small, young, and/or non-standard languages with a goal to elicit big sets of rich data. For each challenge, we (i) explain its nature and implications, (ii) offer one or more examples of how it is manifested in actual linguistic communities, and (iii) where possible, offer recommendations for addressing it effectively. (...)
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  17. Big Data, Scientific Research and Philosophy.Giovanni Landi - 2020 - Www.Intelligenzaartificialecomefilosofia.Com.
    What is the epistemological status of Big Data? Is there really place for them in a scientific search for new empirical laws?
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  18. Big Data, new epistemologies and paradigm shifts.Rob Kitchin - 2014 - Big Data and Society 1 (1).
    This article examines how the availability of Big Data, coupled with new data analytics, challenges established epistemologies across the sciences, social sciences and humanities, and assesses the extent to which they are engendering paradigm shifts across multiple disciplines. In particular, it critically explores new forms of empiricism that declare ‘the end of theory’, the creation of data-driven rather than knowledge-driven science, and the development of digital humanities and computational social sciences that propose radically different ways to make (...)
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  19.  15
    Distrust: big data, data-torturing, and the assault on science.Gary Smith - 2023 - Oxford: Oxford University Press.
    There is no doubt science is currently suffering from a credibility crisis. This thought-provoking book argues that, ironically, science's credibility is being undermined by tools created by scientists themselves. Scientific disinformation and damaging conspiracy theories are rife because of the internet that science created, the scientific demand for empirical evidence and statistical significance leads to data torturing and confirmation bias, and data mining is fuelled by the technological advances in Big Data and the development of ever-increasingly powerfulcomputers. (...)
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  20.  32
    Big Data and Compounding Injustice.Deborah Hellman - 2023 - Journal of Moral Philosophy 21 (1-2):62-83.
    This article argues that the fact that an action will compound a prior injustice counts as a reason against doing the action. I call this reason The Anti-Compounding Injustice principle or aci. Compounding injustice and the aci principle are likely to be relevant when analyzing the moral issues raised by “big data” and its combination with the computational power of machine learning and artificial intelligence. Past injustice can infect the data used in algorithmic decisions in two distinct ways. (...)
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  21.  86
    Biomedical Big Data: New Models of Control Over Access, Use and Governance.Alessandro Blasimme & Effy Vayena - 2017 - Journal of Bioethical Inquiry 14 (4):501-513.
    Empirical evidence suggests that while people hold the capacity to control their data in high regard, they increasingly experience a loss of control over their data in the online world. The capacity to exert control over the generation and flow of personal information is a fundamental premise to important values such as autonomy, privacy, and trust. In healthcare and clinical research this capacity is generally achieved indirectly, by agreeing to specific conditions of informational exposure. Such conditions can be (...)
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  22. Big Data, Big Problems: Emerging Issues in the Ethics of Data Science and Journalism.Joshua Fairfield & Hannah Shtein - 2014 - Journal of Mass Media Ethics 29 (1):38-51.
    As big data techniques become widespread in journalism, both as the subject of reporting and as newsgathering tools, the ethics of data science must inform and be informed by media ethics. This article explores emerging problems in ethical research using big data techniques. It does so using the duty-based framework advanced by W.D. Ross, who has significantly influenced both research science and media ethics. A successful framework must provide stability and flexibility. Without stability, ethical precommitments will vanish (...)
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  23.  30
    Agricultural Big Data Analytics and the Ethics of Power.Mark Ryan - 2020 - Journal of Agricultural and Environmental Ethics 33 (1):49-69.
    Agricultural Big Data analytics (ABDA) is being proposed to ensure better farming practices, decision-making, and a sustainable future for humankind. However, the use and adoption of these technologies may bring about potentially undesirable consequences, such as exercises of power. This paper will analyse Brey’s five distinctions of power relationships (manipulative, seductive, leadership, coercive, and forceful power) and apply them to the use agricultural Big Data. It will be shown that ABDA can be used as a form of manipulative (...)
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  24.  47
    Big Data and Public-Private Partnerships in Healthcare and Research: The Application of an Ethics Framework for Big Data in Health and Research.Angela Ballantyne & Cameron Stewart - 2019 - Asian Bioethics Review 11 (3):315-326.
    Public-private partnerships are established to specifically harness the potential of Big Data in healthcare and can include partners working across the data chain—producing health data, analysing data, using research results or creating value from data. This domain paper will illustrate the challenges that arise when partners from the public and private sector collaborate to share, analyse and use biomedical Big Data. We discuss three specific challenges for PPPs: working within the social licence, public antipathy (...)
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  25.  9
    Big data and ethics: the medical datasphere.Jérôme Béranger - 2016 - Kidlington, Oxford, UK: Elsevier.
    Faced with the exponential development of Big Data and both its legal and economic repercussions, we are still slightly in the dark concerning the use of digital information. In the perpetual balance between confidentiality and transparency, this data will lead us to call into question how we understand certain paradigms, such as the Hippocratic Oath in medicine. As a consequence, a reflection on the study of the risks associated with the ethical issues surrounding the design and manipulation of (...)
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  26.  50
    Big Data: A Normal Accident Waiting to Happen?Daniel Nunan & Marialaura Di Domenico - 2017 - Journal of Business Ethics 145 (3):481-491.
    Widespread commercial use of the internet has significantly increased the volume and scope of data being collected by organisations. ‘Big data’ has emerged as a term to encapsulate both the technical and commercial aspects of this growing data collection activity. To date, much of the discussion of big data has centred upon its transformational potential for innovation and efficiency, yet there has been less reflection on its wider implications beyond commercial value creation. This paper builds upon (...)
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  27. Big Data: A Revolution That Will Transform How We Live, Work, and Think.[author unknown] - 2013
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  28.  59
    Framing Big Data: The discursive construction of a radio cell query in Germany.Charlotte Fischer & Christian Pentzold - 2017 - Big Data and Society 4 (2).
    The article examines the construction of “Big Data” in media discourse. Rather than asking what Big Data really is or is not, it deals with the discursive work that goes into making Big Data a socially relevant phenomenon and problem in the first place. It starts from the idea that in modern societies the public understanding of technology is largely driven by a media-based discourse, which is a key arena for circulating collectively shared meanings. This largely ignored (...)
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  29.  40
    Big Data and Health Research—The Governance Challenges in a Mixed Data Economy.Søren Holm & Thomas Ploug - 2017 - Journal of Bioethical Inquiry 14 (4):515-525.
    Denmark is a society that has already moved towards Big Data and a Learning Health Care System. Data from routine healthcare has been registered centrally for years, there is a nationwide tissue bank, and there are numerous other available registries about education, employment, housing, pollution, etcetera. This has allowed Danish researchers to study the link between exposures, genetics and diseases in a large population. This use of public registries for scientific research has been relatively uncontroversial and has been (...)
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  30.  74
    Big Data Analytics, Infectious Diseases and Associated Ethical Impacts.Chiara Garattini, Jade Raffle, Dewi N. Aisyah, Felicity Sartain & Zisis Kozlakidis - 2019 - Philosophy and Technology 32 (1):69-85.
    The exponential accumulation, processing and accrual of big data in healthcare are only possible through an equally rapidly evolving field of big data analytics. The latter offers the capacity to rationalize, understand and use big data to serve many different purposes, from improved services modelling to prediction of treatment outcomes, to greater patient and disease stratification. In the area of infectious diseases, the application of big data analytics has introduced a number of changes in the information (...)
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  31.  14
    Social Big Data: Mining, Applications, and Beyond.Xiuzhen Zhang, Shuliang Wang, Gao Cong & Alfredo Cuzzocrea - 2019 - Complexity 2019:1-2.
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  32.  87
    Big Data ethics.Andrej Zwitter - 2014 - Big Data and Society 1 (2).
    The speed of development in Big Data and associated phenomena, such as social media, has surpassed the capacity of the average consumer to understand his or her actions and their knock-on effects. We are moving towards changes in how ethics has to be perceived: away from individual decisions with specific and knowable outcomes, towards actions by many unaware that they may have taken actions with unintended consequences for anyone. Responses will require a rethinking of ethical choices, the lack thereof (...)
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  33. Big data: New science, new challenges, new dialogical opportunities.Michael Fuller - 2015 - Zygon 50 (3):569-582.
    The advent of extremely large data sets, known as “big data,” has been heralded as the instantiation of a new science, requiring a new kind of practitioner: the “data scientist.” This article explores the concept of big data, drawing attention to a number of new issues—not least ethical concerns, and questions surrounding interpretation—which big data sets present. It is observed that the skills required for data scientists are in some respects closer to those traditionally (...)
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  34.  9
    Refining Big Data.Włodzimierz Gogołek - 2017 - Bulletin of Science, Technology and Society 37 (4):212-217.
    Refining big data is a new multipurpose way to find, collect, and analyze information obtained from the web and off-line information sources about any research subject. It gives the opportunity to investigate (with an assumed level of statistical significance) the past and current status of information on a subject, and it can even predict the future. The refining of big data makes it possible to quantitatively investigate a wide spectrum of raw information on significant human issues—social, scientific, political, (...)
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  35.  57
    A Big-Data Approach to Understanding the Thematic Landscape of the Field of Business Ethics, 1982–2016.Ying Liu, Feng Mai & Chris MacDonald - 2019 - Journal of Business Ethics 160 (1):127-150.
    This study focuses on examining the thematic landscape of the history of scholarly publication in business ethics. We analyze the titles, abstracts, full texts, and citation information of all research papers published in the field’s leading journal, the Journal of Business Ethics, from its inaugural issue in February 1982 until December 2016—a dataset that comprises 6308 articles and 42 million words. Our key method is a computational algorithm known as probabilistic topic modeling, which we use to examine objectively the field’s (...)
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  36.  28
    Big Data.Wolfgang Pietsch - 2021 - Cambridge University Press.
    Big Data and methods for analyzing large data sets such as machine learning have in recent times deeply transformed scientific practice in many fields. However, an epistemological study of these novel tools is still largely lacking. After a conceptual analysis of the notion of data and a brief introduction into the methodological dichotomy between inductivism and hypothetico-deductivism, several controversial theses regarding big data approaches are discussed. These include, whether correlation replaces causation, whether the end of theory (...)
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  37.  6
    Big Data for a Fairer Democracy?Jessica Heesen - 2016 - International Review of Information Ethics 24.
    Big data-analysis is linked to the expectation to provide a general image of socially relevant topics and processes. Similar to this, the idea of the public sphere involves being representative of all citizens and of important topics and problems. This contribution, on one side, aims to explain how a normative concept of the public sphere could be infiltrated by big data. On the other, it will discuss how participative processes and common wealth can profit from a thorough use (...)
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  38.  48
    Big Data in food and agriculture.Irena Knezevic & Kelly Bronson - 2016 - Big Data and Society 3 (1).
    Farming is undergoing a digital revolution. Our existing review of current Big Data applications in the agri-food sector has revealed several collection and analytics tools that may have implications for relationships of power between players in the food system. For example, Who retains ownership of the data generated by applications like Monsanto Corproation's Weed I.D. “app”? Are there privacy implications with the data gathered by John Deere's precision agricultural equipment? Systematically tracing the digital revolution in agriculture, and (...)
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  39.  3
    Big Data in the 1800s in surgical science: A social history of early large data set development in urologic surgery in Paris and Glasgow.Dennis J. Mazur - 2014 - Big Data and Society 1 (2).
    “Big Data” in health and medicine in the 21st century differs from “Big Data” used in health and medicine in the 1700s and 1800s. However, the old data sets share one key component: large numbers. The term “Big Data” is not synonymous with large numbers. Large numbers are a key component of Big Data in health and medicine, both for understanding the full range of how a disease presents in a human for diagnosis, and for (...)
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  40.  17
    Big Data in the workplace: Privacy Due Diligence as a human rights-based approach to employee privacy protection.Jeremias Adams-Prassl, Isabelle Wildhaber & Isabel Ebert - 2021 - Big Data and Society 8 (1).
    Data-driven technologies have come to pervade almost every aspect of business life, extending to employee monitoring and algorithmic management. How can employee privacy be protected in the age of datafication? This article surveys the potential and shortcomings of a number of legal and technical solutions to show the advantages of human rights-based approaches in addressing corporate responsibility to respect privacy and strengthen human agency. Based on this notion, we develop a process-oriented model of Privacy Due Diligence to complement existing (...)
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  41.  36
    Big Data, Big Waste? A Reflection on the Environmental Sustainability of Big Data Initiatives.Federica Lucivero - 2020 - Science and Engineering Ethics 26 (2):1009-1030.
    This paper addresses a problem that has so far been neglected by scholars investigating the ethics of Big Data and policy makers: that is the ethical implications of Big Data initiatives’ environmental impact. Building on literature in environmental studies, cultural studies and Science and Technology Studies, the article draws attention to the physical presence of data, the material configuration of digital service, and the space occupied by data. It then explains how this material and situated character (...)
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  42.  18
    Big Data, Big Waste? A Reflection on the Environmental Sustainability of Big Data Initiatives.Federica Lucivero - 2020 - Science and Engineering Ethics 26 (2):1009-1030.
    This paper addresses a problem that has so far been neglected by scholars investigating the ethics of Big Data and policy makers: that is the ethical implications of Big Data initiatives’ environmental impact. Building on literature in environmental studies, cultural studies and Science and Technology Studies, the article draws attention to the physical presence of data, the material configuration of digital service, and the space occupied by data. It then explains how this material and situated character (...)
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  43.  6
    Big Data and the danger of being precisely inaccurate.H. Richard McFarland & Daniel A. McFarland - 2015 - Big Data and Society 2 (2).
    Social scientists and data analysts are increasingly making use of Big Data in their analyses. These data sets are often “found data” arising from purely observational sources rather than data derived under strict rules of a statistically designed experiment. However, since these large data sets easily meet the sample size requirements of most statistical procedures, they give analysts a false sense of security as they proceed to focus on employing traditional statistical methods. We explain (...)
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  44.  54
    Big Data for Biomedical Research and Personalised Medicine: an Epistemological and Ethical Cross-Analysis.Thierry Magnin & Mathieu Guillermin - 2017 - Human and Social Studies. Research and Practice 6 (3):13-36.
    Big data techniques, data-driven science and their technological applications raise many serious ethical questions, notably about privacy protection. In this paper, we highlight an entanglement between epistemology and ethics of big data. Discussing the mobilisation of big data in the fields of biomedical research and health care, we show how an overestimation of big data epistemic power – of their objectivity or rationality understood through the lens of neutrality – can become ethically threatening. Highlighting the (...)
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  45.  42
    Big Data from the bottom up.Alison Powell & Nick Couldry - 2014 - Big Data and Society 1 (2).
    This short article argues that an adequate response to the implications for governance raised by ‘Big Data’ requires much more attention to agency and reflexivity than theories of ‘algorithmic power’ have so far allowed. It develops this through two contrasting examples: the sociological study of social actors used of analytics to meet their own social ends and the study of actors’ attempts to build an economy of information more open to civic intervention than the existing one. The article concludes (...)
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  46.  24
    Big Data and surveillance: Hype, commercial logics and new intimate spheres.William Webster & Kirstie Ball - 2020 - Big Data and Society 7 (1).
    Big Data Analytics promises to help companies and public sector service providers anticipate consumer and service user behaviours so that they can be targeted in greater depth. The attempts made by these organisations to connect analytically with users raise questions about whether surveillance, and its associated ethical and rights-based concerns, are intensified. The articles in this special themed issue explore this question from both organisational and user perspectives. They highlight the hype which firms use to drive consumer, employee and (...)
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  47.  19
    Big Data and International Relations.Andrej Zwitter - 2015 - Ethics and International Affairs 29 (4):377-389.
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  48.  13
    We Have Big Data, But Do We Need Big Theory? Review-Based Remarks on an Emerging Problem in the Social Sciences.Hermann Astleitner - 2024 - Philosophy of the Social Sciences 54 (1):69-92.
    Big data represents a significant challenge for the social sciences. From a philosophy-of-science perspective, it is important to reflect on related theories and processes for developing them. In this paper, we start by examining different views on the role of theories in big data-related social research. Then, we try to show how big data is related to standards for evaluating theories. We also outline how big data affects theory- and data-based research approaches and the process (...)
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  49.  16
    Big Data Surveillance and the Body-subject.Daniel Nunan, MariaLaura Di Domenico & Kirstie Ball - 2016 - Body and Society 22 (2):58-81.
    This paper considers the implications of big data practices for theories about the surveilled subject who, analysed from afar, is still gazed upon, although not directly watched as with previous surveillance systems. We propose this surveilled subject be viewed through a lens of proximity rather than interactivity, to highlight the normative issues arising within digitally mediated relationships. We interpret the ontological proximity between subjects, data flows and big data surveillance through Merleau-Ponty’s ideas combined with Levinas’ approach to (...)
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  50.  26
    Big Data, precision medicine and private insurance: A delicate balancing act.Ine Van Hoyweghen, Effy Vayena & Alessandro Blasimme - 2019 - Big Data and Society 6 (1).
    In this paper, we discuss how access to health-related data by private insurers, other than affecting the interests of prospective policy-holders, can also influence their propensity to make personal data available for research purposes. We take the case of national precision medicine initiatives as an illustrative example of this possible tendency. Precision medicine pools together unprecedented amounts of genetic as well as phenotypic data. The possibility that private insurers could claim access to such rapidly accumulating biomedical Big (...)
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