About this topic
Summary Genetic ethics is the study of the moral and political implications of (A) discoveries in the field of genetics (B) advances in genetic technology. For example, a study of the ethical, legal and social issues (ELSI) of (A) and (B) was funded as part of the Human Genome Project, started in 1986 and concluded in 2003, whose main goal was to identify all the genes in the human DNA and determine the sequence of all DNA chemical bases of a human being. Genes are units of biological hereditary information, which can be coded by different molecules (sharing similar characteristics), the most stable of which is the DNA. Since the information stored in genes influences the development of a whole organism, it is often regarded as having special importance, thus raising issues of privacy protection or discrimination. It is also apt to be used in controversial ways, e.g. deciding whether a future human person ought to exist or not (such as in selective preimplantation genetic diagnosis or abortion).  
Key works Harris 1992 argues that it is mandatory to use advances in gene therapy to remove vulnerability to infections and pollutants or to radiation damage. It advances an argument that, beside removing the genetic causes of what we regard today as "disability", it is equally mandatory to retard the ageing process, remove predispositions to heart disease, destroy carcinogens and permit human beings to tolerate other environmental pollutants.  Buchanan et al 2000 focuses on justice in the access to human genetic technology, but considers a broad range of themes and arguments: the moral heredity of eugenics, the distinction between therapy and enhancement, constrains and permissions on parental choices of genetic selection, and the disability critique of liberal eugenics. It maintains a position that is liberal, in that it permits individuals a wide range of choices concerning the genetic endowments of their future children, yet constrains it by blocking interventions which would harm the future person (by reducing future options) or society (by causing an unfair distribution of social goods). Fukuyama 2002 regards genetic technology the practice that will radically change human nature with irreversible moral implications. Genetic technology is thus objectionable, in that undermines the natural presuppositions of egalitarian liberalism. Habermas 2003 defends a principled distinction between gene-therapy to cure disease and genetic manipulation allowing parents to select the traits of future children. The latter is seen as incompatible with egalitarian relationships between human beings and their freedom of choice. 
Introductions Buchanan et al manuscript; Brock 2003.
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  1. Genetics and justice, non-ideal theory and the role of patents : the case of CRISPR-Cas9.Oliver Feeney - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  2. The object-based and process-based regulation of genome editing.Michal Koščík & Eliška Vladíková - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  3. A room with a view (and with a gene therapy drug) : gene therapy medicinal products and genetic tourism in Europe.Vera Lucia Raposo - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  4. The European Court of Human Rights and the emergence of human germline genome editing-'The right to life' and 'the right to (artificial) procreation'.Merel M. Spaander - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  5. Regulating heritable human genome editing : drawing the line between legitimate and controversial use.Noemi Conditi - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  6. Addressing cognitive vulnerabilities through genome and epigenome editing : techno-legal adaptations for persons with intellectual disabilities.Pin Lean Lau - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  7. Transformation of medical care through gene therapy and human rights to life and health -balancing risks and benefits.Anne Kjersti Befring - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
  8. Somatic genome editing with the use of AI : big promises but doubled legal issues.Anastasiya Kiseleva - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  9. Genome editing : learning from its past and envisioning its future.Judit Sandor - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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  10. Ji yin quan li fa lü bao zhang yan jiu =.Xiaoluo Zhang - 2013 - Beijing Shi: Zhi shi chan quan chu ban she.
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  11. Genetichna diskriminat︠s︡ii︠a︡: sŭshtnost, reglamentat︠s︡ii︠a︡ i zashtita.Mariela Deliverska - 2013 - Sofii︠a︡: Sibi.
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  12. Bioinformatics law: legal issues for computational biology in the post-genome era.Jorge L. Contreras & A. Jamie Cuticchia (eds.) - 2013 - Chicago: ABA Secton of Science & Technology Law.
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  13. Génome humain, espèce humaine et droit.Nadia Belrhomari - 2013 - Paris: L'Harmattan.
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  14. Ren ti ji yin ke ji yi xue yun yong li fa gui zhi yan jiu.Xiuqin Shen - 2015 - Jinan Shi: Shandong da xue chu ban she.
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  15. Protecting the genetic self from biometric threats: autonomy, identity, and genetic privacy.Christina Akrivopoulou (ed.) - 2015 - Hershey PA: Information Science Reference.
    This book considers all aspects of privacy and security relating to an individual's DNA, with a concentration on fundamental human rights as well as specific cases and examples, in addressing greater security and privacy in the modern world.
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  16. Genetic discrimination : is it time for the EU to take on a new challenge?Delia Ferri - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  17. Accommodating genes : disability, discrimination and international human rights law.Janet E. Lord - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  18. Genetic discrimination and the draft European Union General Data Protection Regulation.Mark Taylor - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  19. National legal and policy responses to genetic discrimination in Europe : the difficulties of regulation.Ine Van Hoyweghen - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  20. Medical (genetic) examinations for non-health purposes : the relevance of European legal standard setting.Henriette Roscam Abbing - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  21. Employment practices in a new genomic era : acknowledging competing rights and striking a balance.Aisling de Paor - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  22. Genetic discrimination in insurance : lessons from Test Achats.James Davey - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  23. Genetic discrimination in the workplace after GINA.Robert S. Olick - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  24. US legislative and policy response : some historical context to GINA.Peter Blanck & Aisling de Paor - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  25. The Genetic Informatin Nondiscrimination Act (GINA) 2008.Anya Prince & Michael Waterstone - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  26. The use of genetic information outside of the therapeutic health relationship : an international perspective.J. Rosel Kim, Shahad Salman & Yann Joly - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  27. Genes, identity and clinical ethics under conditions of uncertainty.Rebecca Wolf, Michael Joseph Young, Michael Ashley Stein & Harold J. Bursztajn - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  28. Diversity ethics and the impact of genetic technologies.Javier Romaînach Cabrero - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  29. Tracing the history, evolutin and future orientation of genetic science and technology.Aisling de Paor & Noel Lowndes - 2015 - In G. Quinn, Aisling De Paor & Peter David Blanck (eds.), Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Routledge.
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  30. Genetic discrimination: transatlantic perspectives on the case for a European-level legal response.G. Quinn, Aisling De Paor & Peter David Blanck (eds.) - 2015 - New York, NY: Routledge.
    The science and technology of genetic testing is rapidly advancing with the consequences that genetic testing may well offer the prospect of being able to detect the onset of future disabilities. Some recent research also indicates that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed and win or the propensity for risk-taking, which may be of interest to third parties. However, as this technology becomes more prevalent there is a danger that the genetic (...)
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  31. Bioética e biodireito: fim da vida.Dalmir Lopes Jr, Vanessa Iacomini & Charlene Maria C. De Avila Plaza (eds.) - 2015 - Curitiba: Juruá Editora.
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  32. Gamete donation: anti-anonymity does not equate to anti-donation.Daniel Groll - 2022 - Human Reproduction Open 1 (4).
    What is the relationship between the position that anonymous gamete donation is wrong (i.e. the anti-anonymity position) and the position that all gamete donation is wrong (i.e. the anti-donation position)? Some argue that people who accept the anti-anonymity position should also accept the anti-donation position on the grounds that the two positions share the same main arguments. But that’s not true. One argument in favor of anti-anonymity does not generate genuine dialectical pressure to accept the anti-donation position. The other anti-anonymity (...)
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  33. Troppo umano: sociologia della genetica.Fulvio Palmieri - 2016 - Milano: Mimesis.
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  34. GMO sapiens: the life-changing science of designer babies.Paul Knoepfler - 2016 - New Jersey: World Scientific.
    An introduction to playing god -- The birth and explosive growth of GMOs -- Human cloning -- Messing with mother nature : the first GMO sapiens -- Build-a-baby better via genetics -- DIY guide to creating GMO sapiens -- Eugenics and transhumanism -- Cultural views on human genetic modification -- GMO sapiens today and tomorrow.
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  35. Ren lei yi chuan yan jiu huo dong zhong de zhi qing tong yi: lun li, fa lü yu she hui de duo wei si kao = A study on informed consent in human genetic research: from the perspective of ethical, legal and social implications.Chunyan Wu - 2016 - Beijing Shi: Fa lü chu ban she.
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  36. Ningen no songen to ningen no seimei.Mototsugu Nishino - 2016 - Tōkyō-to Shinjuku-ku: Seibundō.
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  37. El ADN: un microcosmos al servicio de la justicia.Francesc Frances I. Bozal - 2016 - Granada: Editorial Comares.
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  38. Xian fa shang de ji yin quan li ji qi bao hu ji zhi yan jiu =.Xiaoluo Zhang - 2017 - Beijing Shi: Zhongguo zheng fa da xue chu ban she.
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  39. Giustizia genetica e tutela della persona: uno studio comparato sull'uso (e abuso) delle Banche dati del DNA a fini giudiziari.Lucia Scaffardi - 2017 - [Padova]: CEDAM.
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  40. Ethical and philosophical issues in genetic techology.Ferosh M. Basheer - 2017 - Thiruvanathapuram: Melinda Books.
    1. Introduction -- 2. Philosophy of genetic technology and its relation to ethical theories -- 3. Ethics of genetic technology in plants and animals -- 4. Ethics of genetic technology in humans -- 5. Conclusion.
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  41. Gene editing, law, and the environment: life beyond the human.Irus Braverman (ed.) - 2017 - New York, NY: Routledge.
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  42. Bioética laica: vida, muerte, género, reproducción y familia.Pauline Capdevielle, Medina Arellano & María de Jesús (eds.) - 2018 - México: Cátedra Extraordinaria "Benito Juárez" UNAM.
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  43. Genetica e costituzione: esercizi di eguaglianza, solidarietà e responsabilità.Marta Tomasi - 2019 - Napoli: Editoriale scientifica.
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  44. Human germline genome modification and the right to science: a comparative study of national laws and policies.Andrea Boggio, Cesare Romano & Jessica Almqvist (eds.) - 2019 - New York, NY: Cambridege University Press.
    The governance of human (germline) genome modification at the international and transnational level -- The regulation of human germline genome modification in Canada (E Kleiderman) -- The regulation of human germline genome modification in the United States (Kerry Macintosh) -- The regulation of human germline genome modification in Mexico (M Medina Arellano) -- The regulation of human germline genome modification in Europe (J Almqvist, C Romano) -- The regulation of human germline genome modification in the United Kingdom (J Lawford Davies) (...)
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  45. Le virage bioéthique.Denis Berthiau - 2019 - Paris: L'Harmattan.
    La révision imminente de la loi bioéthique ouvre un moment où tout est possible. Ecrit par un juriste universitaire spécialisé dans les questions médicales et impliqué dans la pratique quasi quotidienne de l'éthique clinique depuis des années, cet essai éclaire l'urgence éthique qu'imposent certaines situations humaines souvent dramatiques. Face aux questions si complexes qu'elles soulèvent, il convie à abandonner le manteau du péremptoire et à endosser la responsabilité du faire réfléchir. Fin de vie, assistance médicale à la procréation, gestation pour (...)
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  46. Aḥkām ḥimāyat al-nasl al-ādamī fī ẓill al-handasah al-wirāthīyah wa-al-tiqniyāt al-mustaḥdathah.ʻAdlī Amīr Khālid - 2020 - al-Iskandarīyah: Munshaʼat al-Maʻārif.
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  47. Rewriting nature: the future of genome editing and how to bridge the gap between law and science.Paul Enríquez - 2021 - New York, NY: Cambridge University Press.
    For the first time in the history of civilization, humans have procured the power to rewrite nature's book of life. Following the discovery of CRISPR and other key scientific developments at the dawn of the twenty-first century, humankind has-for better or worse-reached the Rubicon of precise genetic manipulation, which existed only in science fiction until now. Those familiar with genome editing understand its colossal power and potential to become a global transformative agent that surpasses the impact of electricity, the atomic (...)
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  48. Genom, chelovek, pravo: problemy teorii i praktiki pravovogo vozdeĭstvii︠a︡.L. N. Berg (ed.) - 2021 - Moskva: Izdatelʹstvo "I︠U︡rlitinform".
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  49. Physician-mediated elective whole genome sequencing tests : impacts on informed consent.Magalie Leduc Emily Qian, Bryan Cosca Rebecca Hodges, Laurie McCright Ryan Durigan & Birgit Funke Doug Flood - 2021 - In I. Glenn Cohen, Nita A. Farahany, Henry T. Greely & Carmel Shachar (eds.), Consumer genetic technologies: ethical and legal considerations. Cambridge University Press.
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  50. An ethical framework for genetic counseling in the genomic era.Leila Jamal, Will Schupmann & Benjamin E. Berkman - 2021 - In I. Glenn Cohen, Nita A. Farahany, Henry T. Greely & Carmel Shachar (eds.), Consumer genetic technologies: ethical and legal considerations. Cambridge University Press.
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