About this topic
Summary Genetic ethics is the study of the moral and political implications of (A) discoveries in the field of genetics (B) advances in genetic technology. For example, a study of the ethical, legal and social issues (ELSI) of (A) and (B) was funded as part of the Human Genome Project, started in 1986 and concluded in 2003, whose main goal was to identify all the genes in the human DNA and determine the sequence of all DNA chemical bases of a human being. Genes are units of biological hereditary information, which can be coded by different molecules (sharing similar characteristics), the most stable of which is the DNA. Since the information stored in genes influences the development of a whole organism, it is often regarded as having special importance, thus raising issues of privacy protection or discrimination. It is also apt to be used in controversial ways, e.g. deciding whether a future human person ought to exist or not (such as in selective preimplantation genetic diagnosis or abortion).  
Key works Harris 1992 argues that it is mandatory to use advances in gene therapy to remove vulnerability to infections and pollutants or to radiation damage. It advances an argument that, beside removing the genetic causes of what we regard today as "disability", it is equally mandatory to retard the ageing process, remove predispositions to heart disease, destroy carcinogens and permit human beings to tolerate other environmental pollutants.  Buchanan et al 2000 focuses on justice in the access to human genetic technology, but considers a broad range of themes and arguments: the moral heredity of eugenics, the distinction between therapy and enhancement, constrains and permissions on parental choices of genetic selection, and the disability critique of liberal eugenics. It maintains a position that is liberal, in that it permits individuals a wide range of choices concerning the genetic endowments of their future children, yet constrains it by blocking interventions which would harm the future person (by reducing future options) or society (by causing an unfair distribution of social goods). Fukuyama 2002 regards genetic technology the practice that will radically change human nature with irreversible moral implications. Genetic technology is thus objectionable, in that undermines the natural presuppositions of egalitarian liberalism. Habermas 2003 defends a principled distinction between gene-therapy to cure disease and genetic manipulation allowing parents to select the traits of future children. The latter is seen as incompatible with egalitarian relationships between human beings and their freedom of choice. 
Introductions Buchanan et al manuscript; Brock 2003.
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  1. A genética e a lei: (aplicações à medicina legal e à biologia social).Francisco M. Salzano - 1983 - São Paulo: Editora da Universidade de São Paulo.
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  2. Novos temas de biodireito e bioética.Heloisa Helena Barboza, Jussara Meirelles, Vicente de Paulo Barretto & Eduardo Munaretto (eds.) - 2003 - Rio de Janeiro: Renovar.
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  3. Biohacking: Garage Transhumanism.Piero Gayozzo - 2021 - Revista Iberoamericana de Bioética 16:1-17.
    Biohacking is a grass-roots movement that brings the knowledge and experimen-tal practice of biological sciences to a non-specialized public. This article seeks to identify biohacking as a type of transhumanism and not just as a movement influenced by the latter. To do so, it examines the constitution, history, practi-ces, and moral codes of the biohacker movement. Subsequently, it compares the results with the definition of transhumanism, finding points of similarity in the hypotheses of both, as well as an adaptation of (...)
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  4. Human population genetic research in developing countries: the issue of group protection.Yue Wang - 2014 - London: Routledge.
    Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the capacity for current frameworks of Western developed countries to provide (...)
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  5. Aconselhamento genético e responsabilidade civil: as ações por concepção indevida (wrongful conception), nascimento indevido (wrongful birth) e vida indevida (wrongful life).Iara Antunes de Souza - 2014 - Belo Horizonte: Arraes Editores.
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  6. Ren lei ji yin quan li yan jiu: ke ji fa zhan dong tai zhi wei kao cha.Zhenyuan Du - 2021 - Beijing Shi: Guang ming ri bao chu ban she.
    本书从法理的角度对基因权利进行论述,将基因权利存在的基础,权利的来源,以及具体基因权利的完善皆放入当今科技发展这个动态的背景之下展开讨论.首先从科技发展的角度切入,深入思索基因科技发展所涵盖的伦理,法 律,社会意涵,并在伦理语境下对基因科技展开分析,对传统伦理原则进行反思.最后在经过深入研究基因权利理论基础上,探讨了人类基因权利的保障制度.
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  7. As gods: a moral history of the genetic age.Matthew Cobb - 2022 - New York: Basic Books.
    The thrilling and terrifying history of genetic engineering. In 2018, scientists manipulated the DNA of human babies for the first time. As biologist and historian Matthew Cobb shows in As Gods, this achievement was one many scientists have feared from the start of the genetic age. Four times in the last fifty years, geneticists, frightened by their own technology, have called a temporary halt to their experiments. They ought to be frightened: Now we have powers that can target the extinction (...)
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  8. Regulation of regenerative medicines: a global perspective.William Sietsema & Jocelyn Jennings (eds.) - 2022 - Rockville: Regulatory Affairs Professionals Society.
    Regulation of Regenerative Medicines: A Global Perspective covers regenerative medicine regulations globally where frameworks have been or are being established. Chapters by discipline include manufacturing, supply chain, pharmacology, pharmacokinetics, toxicology, and combination product.
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  9. Quantum Dysgenic Theory.Wilfried Schachter - manuscript
    The utilisation of quantum theories within social science and biology is often reasonably met with dubiety. It would be even more controversial should such theories be applied to concepts under the domain of eugenics. Nonetheless, this can open up a fresh and unique understanding of theories that are usually understood by their classical structure. We will provide quantum interpretations of dysgenics and dysgenic traits from different scopes and procedures. The way dysgenic traits are in a flux with the environment that (...)
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  10. The Privacy Dependency Thesis and Self-Defense.Lauritz Aastrup Munch & Jakob Thrane Mainz - forthcoming - AI and Society:1-11.
    If I decide to disclose information about myself, this act can undermine other people’s ability to effectively conceal information about themselves. One case in point involves genetic information: if I share ‘my’ genetic information with others, I thereby also reveal genetic information about my biological relatives. Such dependencies are well-known in the privacy literature and are often referred to as ‘privacy dependencies’. Some take the existence of privacy dependencies to generate a moral duty to sometimes avoid sharing information about oneself. (...)
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  11. Chancen und Gefahren der Genforschung: Protokolle und Materialien zur Anhörung des Bundesministers für Forschung und Technologie in Bonn, 19. bis 21. September 1979.Eckart Herwig & Sabine Hübner (eds.) - 1980 - Wien: Oldenbourg.
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  12. El hombre, la persona, la personalidad y sus modificaciones: discurso leído el día 14 de diciembre de 1983, en el acto de recepción como Académico de Número.de Pascual Y. Martínez & José Antonio - 1983 - Murcia: Real Academia de Legislación y Jurisprudencia. Edited by Mariano López Alarcón.
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  13. Bioetica, poder y derecho.Serrano Ruiz-Calderon & José Miguel - 1993 - Madrid: Servicio Publicaciones Facultad Derecho, Universidad Complutense Madrid.
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  14. Saengmyŏng konghak kwa pŏp.Mun-Hwan Kim - 1993 - Sŏul Tʻŭkpyŏlsi: Samyŏngsa.
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  15. Idenshi sōsa to hō: shirisugiru chi no tōsei.Ichirō Hokimoto - 1994 - Tōkyō: Nihon Hyōronsha.
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  16. Derecho y manipulación genética: calificación jurídica de la clonación.Enrique Varsi Rospigliosi - 1997 - Lima: Universidad de Lima, Fondo de Desarrollo Editorial.
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  17. El proyecto genoma humano: algunas reflexiones sobre sus relaciones con el derecho.Angela Aparisi Miralles - 1997 - Valencia: Universitat de València.
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  18. Entre el nacer y el morir.Ascensión Cambrón & Manuel Atienza (eds.) - 1998 - Granada: Editorial Comares.
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  19. Biotecnología y derecho: perspectivas en derecho comparado.Romeo Casabona & Carlos María (eds.) - 1998 - Bilbao: Cátedra Interuniversitaria Fundación BBV-Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/EHU.
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  20. Gentechnologie: Fakten und Meinungen zum Kernthema des 21. Jahrhunderts.Dirk Harreus (ed.) - 1999 - Berlin: Ullstein.
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  21. Bioética y derecho: fundamentos y problemas actuales.Rodolfo Vázquez & Manuel Atienza (eds.) - 1999 - México: Fondo de Cultura Económica.
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  22. Etica y manipulación genética.Evandro Agazzi - 2000 - [Argentina]: Universidad Nacional de Córdoba.
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  23. Saengmyong konghak sidae ŭi pŏp kwa yulli.Ŭn-jŏng Pak - 2000 - Sŏul: Ihwa Yŏja Taehakkyo Chʻulpʻanbu.
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  24. Biotecnologie: profili scientifici e giuridico-sociali: atti del convegno, Catania, Villa Cerami, 28 maggio 1999.Bruno Montanari (ed.) - 2000 - Milano: Giuffrè.
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  25. Le nuove frontiere della scienza.Carlo Casini (ed.) - 2001 - Roma: Editoriale Pantheon.
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  26. Prueba del ADN.Primarosa Chieri - 1999 - Ciudad de Buenos Aires: Editorial Astrea de Alfredo y Ricardo Depalma. Edited by Eduardo A. Zannoni.
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  27. L'eugénisme, la science et le droit.Catherine Bachelard-Jobard - 2001 - Paris: Presses universitaires de France.
    Catherine Bachelard-Jobard a choisi une approche pluridisciplinaire afin de comprendre, sans aucun manichéisme, si notre société est réellement en marche vers l'eugénisme. En d'autres termes, sommes-nous en train de nous diriger vers un monde d'enfants parfaits procédant de la sélection pré-natale, décidée par les parents et autorisée par la loi? Les parents peuvent-ils encore choisir de mettre au monde un enfant différent? Enfin, les barrières posées par le législateur aux désirs individuels sont-elles suffisantes? C'est ce débat passionnant que l'auteur se (...)
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  28. Le droit face à l'éthique dans le domaine des thérapies géniques.Damian König - 2002 - Berne: Stæmpfli Editions.
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  29. Ji yin zhi liao yu lun li, fa lü, she hui yi han lun wen xuan ji.Ruiquan Li & Dujian Cai (eds.) - 2003 - Taibei Shi: Tang shan chu ban she.
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  30. Bioética y derecho.Salvador Darío Bergel, Nelly Minyersky & Agustín V. Estévez (eds.) - 2003 - Buenos Aires: Rubinzal-Culzoni.
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  31. Epilogue : cross-cultural discourse in bioethics : it's a small world after all.Nikola Biller-Andorno - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  32. Human reproductive cloning : a test case for individual rights?Florian Braune, Nikola Biller-Andorno & Claudia Wiesemann - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  33. Let probands and patients decide about moral risk in stem cell research and medical treatment.Hans-Martin Sass - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  34. Human cloning as a challenge to traditional health care cultures.Ilhan Ilkilic - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  35. Primordial ownership versus dispossession of the body : a contribution to the problem of cloning from the perspective of classical European philosophy of law.Thomas Sören Hoffmann - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  36. The American debate on human cloning.Nigel M. De S. Cameron - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  37. Bioethics in the perspective of Universalization.Christofer Frey - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  38. The debate on human cloning : some contributions from the Jewish tradition.Y. Michael Barilan - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  39. The debate about human cloning among Muslim religious scholars since 1997.Thomas Eich - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  40. Cultural and religious in Islamic biomedicine : the case of human cloning.Abdulaziz Sachedina - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
  41. The charm of biotechnology : human cloning and Hindu bioethics in perspective.Heinz Werner Wessler - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  42. The ethics of human cloning : with reference to the Malaysian bioethical discourse.Siti Nurani Mohd Nor - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  43. Human cloning : Thai Buddhist perspectives.Pinit Ratanakul - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  44. The cloning debate in South Korea.Marion Eggert & Phillan Joung - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  45. Some observations on Buddhist thoughts on human cloning.Jens Schlieter - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  46. Current debates on 'human cloning' in Korea.Chin Kyo-hun - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  47. Chinese ethics and human cloning : a view from Hong King.Gerhold Becker - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  48. Culture and bioethics in the debate on the ethics of human cloning in China.Ole Döring - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  49. Cloning in Japan : public opinion, expert counselling, and bioethical reasoning.Robert Horres, Hans Dieter Ölschleger & Christian Steineck - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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  50. Cloning issues in China.Uiu Renzong - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
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