About this topic
Summary Genetic ethics is the study of the moral and political implications of (A) discoveries in the field of genetics (B) advances in genetic technology. For example, a study of the ethical, legal and social issues (ELSI) of (A) and (B) was funded as part of the Human Genome Project, started in 1986 and concluded in 2003, whose main goal was to identify all the genes in the human DNA and determine the sequence of all DNA chemical bases of a human being. Genes are units of biological hereditary information, which can be coded by different molecules (sharing similar characteristics), the most stable of which is the DNA. Since the information stored in genes influences the development of a whole organism, it is often regarded as having special importance, thus raising issues of privacy protection or discrimination. It is also apt to be used in controversial ways, e.g. deciding whether a future human person ought to exist or not (such as in selective preimplantation genetic diagnosis or abortion).  
Key works Harris 1992 argues that it is mandatory to use advances in gene therapy to remove vulnerability to infections and pollutants or to radiation damage. It advances an argument that, beside removing the genetic causes of what we regard today as "disability", it is equally mandatory to retard the ageing process, remove predispositions to heart disease, destroy carcinogens and permit human beings to tolerate other environmental pollutants.  Buchanan et al 2000 focuses on justice in the access to human genetic technology, but considers a broad range of themes and arguments: the moral heredity of eugenics, the distinction between therapy and enhancement, constrains and permissions on parental choices of genetic selection, and the disability critique of liberal eugenics. It maintains a position that is liberal, in that it permits individuals a wide range of choices concerning the genetic endowments of their future children, yet constrains it by blocking interventions which would harm the future person (by reducing future options) or society (by causing an unfair distribution of social goods). Fukuyama 2002 regards genetic technology the practice that will radically change human nature with irreversible moral implications. Genetic technology is thus objectionable, in that undermines the natural presuppositions of egalitarian liberalism. Habermas 2003 defends a principled distinction between gene-therapy to cure disease and genetic manipulation allowing parents to select the traits of future children. The latter is seen as incompatible with egalitarian relationships between human beings and their freedom of choice. 
Introductions Buchanan et al manuscript; Brock 2003.
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  1. Ren lei pei tai ji yin bian ji li fa yan jiu =.Jiayou Shi - 2022 - Beijing Shi: Fa lü chu ban she. Edited by Ping Jia.
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  2. Bioethics: 50 Puzzles, Problems, and Thought Experiments.Sean D. Aas, Collin O'Neil & Chiara Lepora - 2024 - New York: Routledge.
    Bioethics: 50 Puzzles, Problems, and Thought Experiments collects 50 cases—both real and imaginary—that have been, or should be, of special interest and importance to philosophical bioethics. Cases are collected together under topical headings in a natural order for an introductory course in bioethics. Each case is described in a few pages, which includes bioethical context, a concise narrative of the case itself, and a discussion of its importance, both for broader philosophical issues and for practical problems in clinical ethics and (...)
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  3. Ethical and social reflections on the proposed European Health Data Space.Ciara Staunton, Mahsa Shabani, Deborah Mascalzoni, Signe Mezinska & Santa Slokenberga - 2024 - European Journal of Human Genetics 1 (1):1-9.
    The COVID-19 pandemic demonstrated the benefits of international data sharing. Data sharing enabled the health care policy makers to make decisions based on real-time data, it enabled the tracking of the virus, and importantly it enabled the development of vaccines that were crucial to mitigating the impact of the virus. This data sharing is not the norm as data sharing needs to navigate complex ethical and legal rules, and in particular, the fragmented application of the General Data Protection Regulation (GDPR). (...)
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  4. Genética, bioética y derecho penal.José Sáez Capel - 2003 - Buenos Aires, Argentina: Proa XXI.
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  5. Clonación humana y derecho.Jaime Mamani Mamani - 2003 - La Paz, Bolivia: Servicios Gráficos Illimani.
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  6. Ji Yin Ji Shu Tiao Zhan Yu Fa Lü Hui Ying: Ji Yin Ke Ji Yu Fa Lü Yan Tao Hui Lun Wen Ji.Ziyi Lin & Mingcheng Cai (eds.) - 2003 - Taibei Shi: Xue lin wen hua shi ye you xian gong si.
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  7. Inʼgan paea pokche ŭi pŏpchŏk yullijŏk munjechŏm kwa kŭ haegyŏl pangan.Pyŏng-gyu Chʻoe - 2003 - Sŏul Tʻŭkpyŏlsi: Chimmundang.
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  8. Metodologii︠a︡ pravovogo regulirovanii︠a︡ nauki i nauchnykh issledovaniĭ: mezhdunarodnyĭ i nat︠s︡ionalʹnyĭ podkhody: monografii︠a︡.N. G. Doronina (ed.) - 2020 - Moskva: Institut zakonodatelʹstva i sravnitelʹnogo pravovedenii︠a︡ pri Pravitelʹste Rossiĭskoĭ Federat︠s︡ii.
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  9. Regulatory Environment of Cell, Tissue, and Gene Therapy Products in Singapore.Stefanie Fasshauer - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  10. The Future of Regenerative Medicine.Kristin Van Goor, Dylan Bechtle, Snehal Naik & Rasika Kalameghan - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  11. Regulation of Regenerative Medicines in Australia and New Zealand.Orin Chisholm - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  12. Cell and Gene Therapy Product Regulation in China.Yingying Liu, Linxi Wu Murphy Mao & Anette Hjelmsmark - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  13. Regulation of Regenerative Medicines in Japan.Tomoki Yokoyama & Brett Snyder - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  14. Regulation of Cell and Gene Therapies in Canada.Aileen J. Zhou - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  15. Understanding the Regulatory Framework for Regenerative Medicines in the European Union and the United Kingdom.Christiane Niederlaender - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  16. Regulation of Regenerative Medicines in the US.Stephen Westover & William Sietsema - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  17. Distribution of Regenerative Medicines.Andrea Zobel - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  18. Special Considerations for Cell-Based Advanced Therapies.Bridget Bulwer, Mo Heidaran & Darin J. Weber - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  19. Establishing Manufacturing Controls : A Hurdle for the Cell and Gene Therapy Industry.Mo Heidaran - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  20. Gene Therapy and Viral Vectors : An Overview on Current Trends.Marites T. Woon & Rajesh L. Thangapazham - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  21. Combination Products and Regenerative Medicine.Jocelyn Jennings - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  22. Special Considerations for Gene Therapy.Kristin Van Goor, Snehal Naik & Dylan Bechtle - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  23. History of Regenerative Medicine.Karen M. Hauda, Stephen Westover & Grant S. Griffin - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  24. Unique Properties of Regenerative Medicines : Key Differences From Small Molecules and Non-Regenerative Biologics.David Litwack - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  25. Introduction.Jocelyn Jennings - 2022 - In William Sietsema & Jocelyn Jennings (eds.), Regulation of regenerative medicines: a global perspective. Regulatory Affairs Professionals Society.
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  26. GMOs and political stance: global GMO regulation, certification, labeling, and consumer preferences.Muhammad Amjad Nawaz, Gyuhwa Chung, Kirill Sergeyevich Golokhvast & Aristidis M. Tsatsakis (eds.) - 2022 - San Diego, CA, United States: Academic Press, an imprint of Elsevier.
    GMOS and Political Stance: Global GMO Regulation, Certification, Labeling, and Consumer Preferences provides a foundational-to-current challenges resource for those involved in developing and applying regulations to these important resources. Beginning with basics of GMOs, the book first familiarizes the reader with the history, economic status, associated risks, global politics, and socio-economics of GMOs. From exploring the necessity of GMO regulations with the existing GMO technology as well as new gene editing technologies to discussion by GMO regulations experts from different continents (...)
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  27. Dürfen Gentherapien so viel kosten? – Ethische Bewertung der hohen Preise und des performanceorientierten Erstattungsmodells.Karla Alex & Julia König - 2023 - In Boris Fehse, Hannah Schickl, Sina Bartfels & Martin Zenke (eds.), Gen- und Zelltherapie 2.023 – Forschung, klinische Anwendung und Gesellschaft. Springer. pp. 317-337.
    This chapter examines whether high prices for gene therapies are justified and whether the problems associated with high prices can be solved by the "pay for performance" (P4P) reimbursement model. To this end, we first describe how prices for new drugs, including gene therapies, are set in Germany (section 2.). P4P is then presented as an example of a reimbursement model (section 3.). The subsequent ethical analysis (section 4.) first examines whether P4P models can sustainably guarantee the right to health (...)
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  28. Defusing the legal and ethical minefield of epigenetic applications in the military, defence and security context.Gratien Dalpe, Katherine Huerne, Charles Dupras, Katherine Cheung, Nicole Palmour, Eva Winkler, Karla Alex, Maxwell Mehlmann, John W. Holloway, Eline Bunnik, Harald König, Isabelle M. Mansuy, Marianne G. Rots, Cheryl Erwin, Alexandre Erler, Emanuele Libertini & Yann Joly - 2023 - Journal of Law and the Biosciences 10 (2):1-32.
    Epigenetic research has brought several important technological achievements, including identifying epigenetic clocks and signatures, and developing epigenetic editing. The potential military applications of such technologies we discuss are stratifying soldiers’ health, exposure to trauma using epigenetic testing, information about biological clocks, confirming child soldiers’ minor status using epigenetic clocks, and inducing epigenetic modifications in soldiers. These uses could become a reality. This article presents a comprehensive literature review, and analysis by interdisciplinary experts of the scientific, legal, ethical, and societal issues (...)
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  29. A Wolf in Sheep's Clothing: Idealisations and the aims of polygenic scores.Davide Serpico - 2023 - Studies in History and Philosophy of Science Part A 102 (C):72-83.
    Research in pharmacogenomics and precision medicine has recently introduced the concept of Polygenic Scores (PGSs), namely, indexes that aggregate the effects that many genetic variants are predicted to have on individual disease risk. The popularity of PGSs is increasing rapidly, but surprisingly little attention has been paid to the idealisations they make about phenotypic development. Indeed, PGSs rely on quantitative genetics models and methods, which involve considerable theoretical assumptions that have been questioned on various grounds. This comes with epistemological and (...)
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  30. A genética e a lei: (aplicações à medicina legal e à biologia social).Francisco M. Salzano - 1983 - São Paulo: Editora da Universidade de São Paulo.
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  31. Novos temas de biodireito e bioética.Heloisa Helena Barboza, Jussara Meirelles, Vicente de Paulo Barretto & Eduardo Munaretto (eds.) - 2003 - Rio de Janeiro: Renovar.
    Traz os resultados das investigações levadas a efeito em função de alguns problemas centrais no campo da Bioética e Biodireito: clonagem, patenteamento genético, eutanásia, reprodução assistida e disposição do próprio corpo.
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  32. Responsible risking, forethought, and the case of germline gene editing.Madeleine Hayenhjelm - 2024 - In Adriana Placani & Stearns Broadhead (eds.), Risk and Responsbility in Context. New York and London: Routledge. pp. 149-169.
    This chapter addresses a general question: What is responsible risking? It explores the notion of "responsible risking" as a thick moral concept, and it argues that the notion can be given moral content that could be action-guiding and add an important tool to our moral toolbox. To impose risks responsibly, on this view, is to take on responsibility in a good way. A core part of responsible risking, this chapter argues, is some version of a Forethought Condition. Such a condition (...)
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  33. Biohacking: Garage Transhumanism.Piero Gayozzo - 2021 - Revista Iberoamericana de Bioética 16:1-17.
    Biohacking is a grass-roots movement that brings the knowledge and experimen-tal practice of biological sciences to a non-specialized public. This article seeks to identify biohacking as a type of transhumanism and not just as a movement influenced by the latter. To do so, it examines the constitution, history, practi-ces, and moral codes of the biohacker movement. Subsequently, it compares the results with the definition of transhumanism, finding points of similarity in the hypotheses of both, as well as an adaptation of (...)
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  34. Human population genetic research in developing countries: the issue of group protection.Yue Wang - 2014 - London: Routledge.
    Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the capacity for current frameworks of Western developed countries to provide (...)
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  35. Aconselhamento genético e responsabilidade civil: as ações por concepção indevida (wrongful conception), nascimento indevido (wrongful birth) e vida indevida (wrongful life).Iara Antunes de Souza - 2014 - Belo Horizonte: Arraes Editores.
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  36. Ren lei ji yin quan li yan jiu: ke ji fa zhan dong tai zhi wei kao cha.Zhenyuan Du - 2021 - Beijing Shi: Guang ming ri bao chu ban she.
    本书从法理的角度对基因权利进行论述,将基因权利存在的基础,权利的来源,以及具体基因权利的完善皆放入当今科技发展这个动态的背景之下展开讨论.首先从科技发展的角度切入,深入思索基因科技发展所涵盖的伦理,法 律,社会意涵,并在伦理语境下对基因科技展开分析,对传统伦理原则进行反思.最后在经过深入研究基因权利理论基础上,探讨了人类基因权利的保障制度.
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  37. As gods: a moral history of the genetic age.Matthew Cobb - 2022 - New York: Basic Books.
    The thrilling and terrifying history of genetic engineering. In 2018, scientists manipulated the DNA of human babies for the first time. As biologist and historian Matthew Cobb shows in As Gods, this achievement was one many scientists have feared from the start of the genetic age. Four times in the last fifty years, geneticists, frightened by their own technology, have called a temporary halt to their experiments. They ought to be frightened: Now we have powers that can target the extinction (...)
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  38. Regulation of regenerative medicines: a global perspective.William Sietsema & Jocelyn Jennings (eds.) - 2022 - Rockville: Regulatory Affairs Professionals Society.
    Regulation of Regenerative Medicines: A Global Perspective covers regenerative medicine regulations globally where frameworks have been or are being established. Chapters by discipline include manufacturing, supply chain, pharmacology, pharmacokinetics, toxicology, and combination product.
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  39. Quantum Dysgenic Theory.Wilfried Schachter - manuscript
    The utilisation of quantum theories within social science and biology is often reasonably met with dubiety. It would be even more controversial should such theories be applied to concepts under the domain of eugenics. Nonetheless, this can open up a fresh and unique understanding of theories that are usually understood by their classical structure. We will provide quantum interpretations of dysgenics and dysgenic traits from different scopes and procedures. The way dysgenic traits are in a flux with the environment that (...)
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  40. The Privacy Dependency Thesis and Self-Defense.Lauritz Aastrup Munch & Jakob Thrane Mainz - forthcoming - AI and Society:1-11.
    If I decide to disclose information about myself, this act can undermine other people’s ability to effectively conceal information about themselves. One case in point involves genetic information: if I share ‘my’ genetic information with others, I thereby also reveal genetic information about my biological relatives. Such dependencies are well-known in the privacy literature and are often referred to as ‘privacy dependencies’. Some take the existence of privacy dependencies to generate a moral duty to sometimes avoid sharing information about oneself. (...)
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  41. Chancen und Gefahren der Genforschung: Protokolle und Materialien zur Anhörung des Bundesministers für Forschung und Technologie in Bonn, 19. bis 21. September 1979.Eckart Herwig & Sabine Hübner (eds.) - 1980 - Wien: Oldenbourg.
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  43. Bioetica, poder y derecho.Serrano Ruiz-Calderon & José Miguel - 1993 - Madrid: Servicio Publicaciones Facultad Derecho, Universidad Complutense Madrid.
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  44. Saengmyŏng konghak kwa pŏp.Mun-Hwan Kim - 1993 - Sŏul Tʻŭkpyŏlsi: Samyŏngsa.
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  45. Idenshi sōsa to hō: shirisugiru chi no tōsei.Ichirō Hokimoto - 1994 - Tōkyō: Nihon Hyōronsha.
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  46. Derecho y manipulación genética: calificación jurídica de la clonación.Enrique Varsi Rospigliosi - 1997 - Lima: Universidad de Lima, Fondo de Desarrollo Editorial.
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  47. El proyecto genoma humano: algunas reflexiones sobre sus relaciones con el derecho.Angela Aparisi Miralles - 1997 - Valencia: Universitat de València.
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  48. Entre el nacer y el morir.Ascensión Cambrón & Manuel Atienza (eds.) - 1998 - Granada: Editorial Comares.
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  49. Biotecnología y derecho: perspectivas en derecho comparado.Romeo Casabona & Carlos María (eds.) - 1998 - Bilbao: Cátedra Interuniversitaria Fundación BBV-Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/EHU.
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  50. Gentechnologie: Fakten und Meinungen zum Kernthema des 21. Jahrhunderts.Dirk Harreus (ed.) - 1999 - Berlin: Ullstein.
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