Results for 'Secondary use'

996 found
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  1.  68
    Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel.Stephanie M. Fullerton & Sandra S.-J. Lee - 2011 - BMC Medical Ethics 12 (1):16.
    Background: Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this paper explores the secondary uses of one de-identified DNA sample collection with limited oversight: the Human Genome Diversity Project (HGDP)-Centre d'Etude du Polymorphisme Humain, Fondation Jean Dausset (CEPH) Human Genome Diversity Panel. Methods: Using a combination (...)
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  2.  7
    Secondary Use of Health Data for Medical AI: A Cross-Regional Examination of Taiwan and the EU.Chih-Hsing Ho - forthcoming - Asian Bioethics Review:1-16.
    This paper conducts a comparative analysis of data governance mechanisms concerning the secondary use of health data in Taiwan and the European Union (EU). Both regions have adopted distinctive approaches and regulations for utilizing health data beyond primary care, encompassing areas such as medical research and healthcare system enhancement. Through an examination of these models, this study seeks to elucidate the strategies, frameworks, and legal structures employed by Taiwan and the EU to strike a delicate balance between the imperative (...)
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  3.  14
    Secondary Uses of Personal Data for Population Research.Sabrina Fortin & Bartha Knoppers - 2009 - Genomics, Society and Policy 5 (1):1-20.
    In genomic research, cohort and large-scale population studies are proliferating along with accompanying infrastructures (databases and biobanks). Population-based research links samples and data from multiple sources often obtained for other purposes. The normative frameworks of many countries are largely based on 1980 OECD principles which limit the uses of personal data, especially for secondary purposes. These limits, now found in legislation, policies and research guidelines, pose major barriers to population-based research.This text examines similarities and differences between epidemiology, public health (...)
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  4.  1
    Do Physicians Have a Duty to Support Secondary Use of Clinical Data in Biomedical Research? An Inquiry into the Professional Ethics of Physicians.Martin Jungkunz, Anja Köngeter, Eva C. Winkler & Christoph Schickhardt - 2024 - Journal of Law, Medicine and Ethics 52 (1):101-117.
    Secondary use of clinical data in research or learning activities (SeConts) has the potential to improve patient care and biomedical knowledge. Given this potential, the ethical question arises whether physicians have a professional duty to support SeConts. To investigate this question, we analyze prominent international declarations on physicians’ professional ethics to determine whether they include duties that can be considered as good reasons for a physicians’ professional duty to support SeConts. Next, we examine these documents to identify professional duties (...)
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  5.  31
    Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public’s perspective.Jean-François Ethier, Anne-Marie Cloutier, Nissrine Safa, Roxanne Dault, Adrien Barton & Annabelle Cumyn - 2021 - BMC Medical Ethics 22 (1):1-17.
    BackgroundThe advent of learning healthcare systems (LHSs) raises an important implementation challenge concerning how to request and manage consent to support secondary use of data in learning cycles, particularly research activities. Current consent models in Quebec were not established with the context of LHSs in mind and do not support the agility and transparency required to obtain consent from all involved, especially the citizens. Therefore, a new approach to consent is needed. Previous work identified the meta-consent model as a (...)
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  6.  8
    Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters.Bartha Maria Knoppers, Madelaine Saginur & Howard Cash - 2006 - Journal of Law, Medicine and Ethics 34 (2):352-365.
    This paper addresses the ethical issues of secondary uses of samples collected for identification purposes following mass disasters. It studies norms governing secondary use of samples , ultimately concluding that limited secondary research uses of these samples should be permissible.
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  7. Wittgenstein, the secondary use of words and child psychology.ter Hark Michel - 2008 - In David K. Levy & Edoardo Zamuner (eds.), Wittgenstein’s Enduring Arguments. Routledge.
     
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  8.  76
    Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data.Thomas Ploug & Søren Holm - 2016 - Bioethics 30 (9):721-732.
    In this article we provide an in-depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.
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  9.  49
    Benefits and Risks in Secondary Use of Digitized Clinical Data: Views of Community Members Living in a Predominantly Ethnic Minority Urban Neighborhood.Robert J. Lucero, Joan Kearney, Yamnia Cortes, Adriana Arcia, Paul Appelbaum, Roberto Lewis Fernández & Jose Luchsinger - 2015 - AJOB Empirical Bioethics 6 (2):12-22.
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  10.  8
    Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters.Bartha Maria Knoppers, Madelaine Saginur & Howard Cash - 2006 - Journal of Law, Medicine and Ethics 34 (2):352-365.
    In the trauma surrounding mass disasters, the need to identify victims accurately and as soon as possible is critical. DNA identification testing is increasingly used to identify human bodies and remains where the deceased cannot be identified by traditional means. This form of testing compares DNA taken from the body of the deceased with DNA taken from their personal items or from close biological relatives. DNA identification testing was used to identify the victims of the terrorist attack on the World (...)
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  11.  70
    The view of Hong Kong parents on secondary use of dried blood spots in newborn screening program.L. L. Hui, E. A. S. Nelson, H. B. Deng, T. Y. Leung, C. H. Ho, J. S. C. Chong, G. P. G. Fung, J. Hui & H. S. Lam - 2022 - BMC Medical Ethics 23 (1):1-10.
    Background Residual dried blood spots (rDBS) from newborn screening programmes represent a valuable resource for medical research, from basic sciences, through clinical to public health. In Hong Kong, there is no legislation for biobanking. Parents’ view on the retention and use of residual newborn blood samples could be cultural-specific and is important to consider for biobanking of rDBS. Objective To study the views and concerns on long-term storage and secondary use of rDBS from newborn screening programmes among Hong Kong (...)
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  12. Experience of Meaning, Secondary Use and Aesthetics.Michel Ter Hark - 2010 - Philosophical Investigations 33 (2):142-158.
  13. Primary and secondary uses of moral language.N. Fotion - 1961 - Mind 70 (280):547-550.
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  14.  51
    Is it ethical to prevent secondary use of stored biological samples and data derived from consenting research participants? The case of Malawi.Randy G. Mungwira, Wongani Nyangulu, James Misiri, Steven Iphani, Ruby Ng’ong’ola, Chawanangwa M. Chirambo, Francis Masiye & Joseph Mfutso-Bengo - 2015 - BMC Medical Ethics 16 (1):1-7.
    BackgroundThis paper discusses the contentious issue of reuse of stored biological samples and data obtained from research participants in past clinical research to answer future ethical and scientifically valid research questions. Many countries have regulations and guidelines that guide the use and exportation of stored biological samples and data. However, there are variations in regulations and guidelines governing the reuse of stored biological samples and data in Sub-Saharan Africa including Malawi.DiscussionThe current research ethics regulations and guidelines in Malawi do not (...)
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  15.  31
    The Politics of Representation in the Governance of Emergent 'Secondary Use' Biobanks: The Case of Dried Blood Spot Cards in the Netherlands.Conor Douglas, Carla van El, Maud Radstake, Sarah van Teeffelen & Martina C. Cornel - 2012 - Studies in Ethics, Law, and Technology 6 (1).
  16.  10
    Institutions, infrastructures, and data friction – Reforming secondary use of health data in Finland.Ville Aula - 2019 - Big Data and Society 6 (2).
    New data-driven ideas of healthcare have increased pressures to reform existing data infrastructures. This article explores the role of data governing institutions during a reform of both secondary health data infrastructure and related legislation in Finland. The analysis elaborates on recent conceptual work on data journeys and data frictions, connecting them to institutional and regulatory issues. The study employs an interpretative approach, using interview and document data. The results show the stark contrast between the goals of open and Big (...)
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  17.  14
    Participated without consent: Mandatory authorization of government database for secondary use.Ming-Jui Yeh - 2020 - Developing World Bioethics 20 (4):200-208.
    Compared with data that is initially collected for research purposes, the mandatory authorization of a government database for secondary use deserves greater scrutiny because it consists of information that is collected initially for administrative purposes. Using the case of Taiwan’s National Health Insurance (NHI) Database as an example, this paper analyzes the ethical issues that emerge when the research participants are “participated” in studies without their consent, according to the current policy. The proponents of secondary use for research (...)
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  18. Wittgenstein on the experience of meaning and secondary use.Michel ter Hark - 2011 - In Marie McGinn & Oskari Kuusela (eds.), The Oxford Handbook of Wittgenstein. Oxford University Press.
     
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  19.  23
    The Role of Law in Supporting Secondary Uses of Electronic Health Information.Tara Ramanathan, Cason Schmit, Akshara Menon & Chanelle Fox - 2015 - Journal of Law, Medicine and Ethics 43 (S1):48-51.
    For decades, health information has been collected and shared for health care delivery and public health purposes. While the “primary use” of patient data for providing direct health care services is the cornerstone of health care practice, health departments rely on data sharing for research and analysis to support disease prevention and health promotion in the population. As the U.S. health system undergoes a digital revolution, health information that was previously captured in paper form now can be captured electronically. Electronic (...)
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  20. The use of secondary data in business ethics research.Christopher J. Cowton - 1998 - Journal of Business Ethics 17 (4):423-434.
    The relatively recent increase in empirical research conducted in business ethics has been accompanied by a growing literature which addresses its present shortcomings and continuing challenges. Particular attention has been focused on the difficulties of obtaining valid and reliable primary data. However, little or no attention has been paid to the use of secondary data. The aim of this paper is to stimulate the interest of business ethics researchers in using secondary data, either as a substitute or complement (...)
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  21.  5
    Secondary research use of personal medical data: patient attitudes towards data donation.Michael Krawczak, Matthias Laudes, Bimba Franziska Hoyer, Christoph Borzikowsky & Gesine Richter - 2021 - BMC Medical Ethics 22 (1):1-10.
    BackgroundThe SARS-CoV-2 pandemic has highlighted once more the great need for comprehensive access to, and uncomplicated use of, pre-existing patient data for medical research. Enabling secondary research-use of patient-data is a prerequisite for the efficient and sustainable promotion of translation and personalisation in medicine, and for the advancement of public-health. However, balancing the legitimate interests of scientists in broad and unrestricted data-access and the demand for individual autonomy, privacy and social justice is a great challenge for patient-based medical research.MethodsWe (...)
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  22.  26
    Use of evidence‐based therapy for the secondary prevention of acute coronary syndromes in Malaysian practice.Yaman Walid Kassab, Yahaya Hassan, Noorizan Abd Aziz, Hadeer Akram & Omar Ismail - 2013 - Journal of Evaluation in Clinical Practice 19 (4):658-663.
  23.  2
    Using Television to Bring Science, Technology and Society into Secondary Schools.Minaruth Galey - 1986 - Bulletin of Science, Technology and Society 6 (2):287-290.
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  24.  3
    Using Television To Bring Science, Technology and Society Into Secondary Schools.Minaruth Galey - 1986 - Bulletin of Science, Technology and Society 6 (3):287-290.
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  25. Secondary science teachers' use of laboratory activities: Linking epistemological beliefs, goals, and practices.Nam‐Hwa Kang & Carolyn S. Wallace - 2005 - Science Education 89 (1):140-165.
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  26. The use of rule structures in teaching experimental design to secondary‐school students.John A. Ross & Floyd G. Robinson - 1987 - Science Education 71 (4):571-589.
     
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  27. Using cognitive interviewing to explore elementary and secondary school students' epistemic and ontological cognition.Jeffrey A. Greene [ - 2010 - In Lisa D. Bendixen & Florian C. Feucht (eds.), Personal epistemology in the classroom: theory, research, and implications for practice. New York: Cambridge University Press.
     
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  28.  9
    Using inquiry-based dialogues to explore controversial climate change issues with secondary students: An example from Norway.Lisa Steffensen, Marit Johnsen-Høines & Kjellrun Hiis Hauge - 2023 - Educational Philosophy and Theory 55 (10):1181-1192.
    Young people around the world show considerable engagement with climate change. How can education draw on this engagement in order to benefit students and society? In this article, we discuss how inquiry-based dialogues can support students’ development in their societal engagement. We argue that such dialogues should include real-world problems involving disagreement, which promote students’ agency. We elaborate on qualities of dialogues, such as developing argumentation and perspectives together through respect, attentive listening and recognition of others’ viewpoints. Central theoretical perspectives (...)
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  29.  40
    The use of research and theory in English language teaching in Botswana secondary schools.Theophilus Mooko * - 2005 - Educational Studies 31 (1):39-53.
    The purpose of this study was to establish the usage of research and theory in the teaching of English language in secondary schools in Botswana. Altogether 100 questionnaires were administered in 19 secondary schools. The results of this study indicate that teachers rarely ever refer to language research in their teaching. Less value was also placed on the theoretical information acquired during training. The respondents indicated that their teaching is essentially based on utilizing their teaching experience and individual (...)
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  30.  59
    Pitfalls and promises: The use of secondary data analysis in educational research.Emma Smith - 2008 - British Journal of Educational Studies 56 (3):323-339.
    This paper considers the use of secondary data analysis in educational research. It addresses some of the promises and potential pitfalls that influence its use and explores a possible role for the secondary analysis of numeric data in the 'new' political arithmetic tradition of social research. Secondary data analysis is a relatively under-used technique in Education and in the social sciences more widely, and it is an approach that is not without its critics. Here we consider two (...)
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  31.  3
    A Randomized Field Experiment Using Self-Reflection on School Behavior to Help Students in Secondary School Reach Their Performance Potential.Eva Feron & Trudie Schils - 2020 - Frontiers in Psychology 11.
    Recent policy reports documented that a growing group of students in secondary education could perform better given their expected performance. Studies showed that school performance is related to a range of social-emotional factors, including self-awareness, self-management, social awareness and responsible decision making. However, experimental studies in schools on the relation between these factors and school performance are scarce and results are mixed. This study used a randomized field experiment to examine whether self-reflection on school behavior of underperforming secondary (...)
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  32.  7
    10 Extensive methods: using secondary data.Tim Brown - 2002 - In Pamela Shurmer-Smith (ed.), Doing cultural geography. Thousand Oaks, Calif.: SAGE. pp. 101.
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  33.  25
    Prediction of Protein Secondary Structure Using Feature Selection and Analysis Approach.Yonge Feng, Hao Lin & Liaofu Luo - 2014 - Acta Biotheoretica 62 (1):1-14.
    The prediction of the secondary structure of a protein from its amino acid sequence is an important step towards the prediction of its three-dimensional structure. However, the accuracy of ab initio secondary structure prediction from sequence is about 80 % currently, which is still far from satisfactory. In this study, we proposed a novel method that uses binomial distribution to optimize tetrapeptide structural words and increment of diversity with quadratic discriminant to perform prediction for protein three-state secondary (...)
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  34. Adopting and Sustaining Use of New Teaching Strategies for American History in Secondary Classrooms.Rachel G. Ragland - 2007 - Journal of Social Studies Research 31 (2):43-60.
     
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  35.  30
    Eliciting meta consent for future secondary research use of health data using a smartphone application - a proof of concept study in the Danish population.Thomas Ploug & Søren Holm - 2017 - BMC Medical Ethics 18 (1):51.
    The increased use of information technology in every day health care creates vast amounts of stored health data that can be used for research. The secondary research use of routinely collected data raises questions about appropriate consent mechanisms for such use. One option is meta consent where individuals state their own consent preferences in relation to future use of their data, e.g. whether they want the data to be accessible to researchers under conditions of specific consent, broad consent, blanket (...)
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  36.  49
    IRB practices and policies regarding the secondary research use of biospecimens.Aaron J. Goldenberg, Karen J. Maschke, Steven Joffe, Jeffrey R. Botkin, Erin Rothwell, Thomas H. Murray, Rebecca Anderson, Nicole Deming, Beth F. Rosenthal & Suzanne M. Rivera - 2015 - BMC Medical Ethics 16 (1):32.
    As sharing and secondary research use of biospecimens increases, IRBs and researchers face the challenge of protecting and respecting donors without comprehensive regulations addressing the human subject protection issues posed by biobanking. Variation in IRB biobanking policies about these issues has not been well documented.
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  37.  17
    Secondary Education in COVID Lockdown: More Anxious and Less Creative—Maybe Not?Timothy J. Patston, JohnPaul Kennedy, Wayne Jaeschke, Hansika Kapoor, Simon N. Leonard, David H. Cropley & James C. Kaufman - 2021 - Frontiers in Psychology 12.
    Secondary education around the world has been significantly disrupted by covid-19. Students have been forced into new ways of independent learning, often using remote technologies, but without the social nuances and direct teacher interactions of a normal classroom environment. Using data from the School Attitudes Survey—which surveys students regarding the perceived level of difficulty, anxiety level, self-efficacy, enjoyability, subject relevance, and opportunities for creativity with regards to each of their school subjects—this study examines students' responses to this disruption from (...)
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  38.  81
    Differentiation: Teachers' views of the usefulness of recommended strategies in helping the more able pupils in primary and secondary classrooms.Trevor Kerry & Carolle A. Kerry - 1997 - Educational Studies 23 (3):439-457.
    Recent official publications have emphasised the need for differentiation to take place in classrooms in order to ensure that the needs of all pupils, including the more able, are met effectively. These publications list methods of differentiation which are ‘recommended’ for classroom use. This article researches the views of teachers about the value of these recommended methods of differentiation for able pupils in primary and secondary classrooms. It concludes that the teachers are more subtle in their use of the (...)
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  39.  31
    Secondary Stakeholder Influence on CSR Disclosure: An Application of Stakeholder Salience Theory.Thomas Thijssens, Laury Bollen & Harold Hassink - 2015 - Journal of Business Ethics 132 (4):873-891.
    The aim of this study is to analyse how secondary stakeholders influence managerial decision-making on Corporate Social Responsibility disclosure. Based on stakeholder salience theory, we empirically investigate whether differences in environmental disclosure among companies are systematically related to differences in the level of power, urgency and legitimacy of the environmental non-governmental organisations with which these companies are confronted. Using proprietary archival data for an international sample of 199 large companies, our results suggest that differences in environmental disclosures between companies (...)
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  40.  11
    Assessing Engagement in Chinese Upper Secondary School Students Using the Chinese Version of the Schoolwork Engagement Inventory: Energy, Dedication, and Absorption.Ziwen Teuber, Xin Tang, Katariina Salmela-Aro & Elke Wild - 2021 - Frontiers in Psychology 12.
    The schoolwork engagement inventory: Energy, Dedication, and Absorption is a measure of students' engagement in schoolwork and has been demonstrated valid in Western student populations. In this study, we adapted this inventory to and tested its psychometric appropriates in Chinese upper secondary school students. Participants were 1,527 general high school students and 850 vocational high school students. The mean age of the total sample was 16.21 years. The results of confirmatory factor analyses showed that a modified one-factor model fitted (...)
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  41. A Secondary Tool for Demarcation Problem: Logical Fallacies.Tevfik Uyar - 2017 - Kilikya Felsefe Dergisi / Cilicia Journal of Philosophy 4 (3):85-104.
    According to Thagard, the behavior of practitioners of a field may also be used for demarcation between science and pseudoscience due to its social dimension in addition to the epistemic one. I defended the tendency of pseudoscientists to commit fallacies, and the number of fallacies they commit can be a secondary tool for demarcation problem and this tool is consistent with Thagardian approach. In this paper, I selected the astrology as the case and I revealed nine types of logical (...)
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  42.  11
    Reflective Learning of Palliative Care by Secondary Healthcare and Sociosanitary Students Using Two Videoclips on the Experience of Cameron Duncan: “DFK6498” and “Strike Zone”.Encarnacion Perez-Bret, Paula Jaman-Mewes & Lilia M. Quiroz-Carhuajulca - 2021 - Journal of Bioethical Inquiry 18 (2):253-264.
    Educating young people about how to interact with patients at the end of their lives is challenging. A qualitative study based on Husserl’s phenomenological approach was performed to describe the learning experience of secondary education students after watching, analysing, and reflecting on two videoclips featuring Cameron Duncan, a young man suffering from terminal cancer. Students from three vocational centres providing training in ancillary nursing, pharmacy, and dependent care in the Community of Madrid visited the Palliative Care Hospital. A total (...)
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  43. Evolution of the conceptions of a secondary education biology teacher: Longitudinal analysis using cognitive maps.Consuelo Da‐Silva, Vicente Mellado, Constantino Ruiz & Rafael Porlan - 2007 - Science Education 91 (3):461-491.
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  44. Secondary Qualities as Dispositions.Nathan Rockwood - 2020 - Locke Studies 20.
    In this paper I will defend the view that, according to Locke, secondary qualities are dispositions to produce sensations in us. Although this view is widely attributed to Locke, this interpretation needs defending for two reasons. First, commentators often assume that secondary qualities are dispositional properties because Locke calls them “powers” to produce sensations. However, primary qualities are also powers, so the powers locution is insufficient grounds for justifying the dispositionalist interpretation. Second, if secondary qualities are dispositional (...)
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  45.  5
    Teaching Secondary Science: Theory and Practice.Geoff Woolcott & Robert Whannell (eds.) - 2017 - Cambridge University Press.
    Teaching Secondary Science: Theory and Practice provides a dynamic approach to preparing preservice science teachers for practice. Divided into two parts - theory and practice - the text allows students to first become confident in the theory of teaching science before showing how this theory can be applied to practice through ideas for implementation, such as sample lesson plans. These examples span a variety of age levels and subject areas, allowing preservice teachers to adapt each exercise to suit their (...)
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  46.  27
    Revisiting the use of secondary task reaction time measures in telepresence research: exploring the role of immersion and attention. [REVIEW]Cheryl Campanella Bracken, Gary Pettey & Mu Wu - 2014 - AI and Society 29 (4):533-538.
  47.  15
    Breakfast and Energy Drink Consumption in Secondary School Children: Breakfast Omission, in Isolation or in Combination with Frequent Energy Drink Use, is Associated with Stress, Anxiety, and Depression Cross-Sectionally, but not at 6-Month Follow-Up.Gareth Richards & Andrew P. Smith - 2016 - Frontiers in Psychology 7.
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  48. Secondary belief content, what is it good for?Alexander Sandgren - 2018 - Philosophical Studies 175 (6):1467-1476.
    Some use the need to explain communication, agreement, and disagreement to argue for two-dimensional conceptions of belief content. One prominent defender of an account of this sort is David Chalmers. Chalmers claims that beliefs have two kinds of content. The second dimension of belief content, which is tied to what beliefs pick out in the actual world, is supposed to help explain communication, agreement, and disagreement. I argue that it does not. Since the need to explain these phenomena is the (...)
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  49. An analysis of labwork tasks used in science teaching at upper secondary school and university levels in several European countries.Andrée Tiberghien, Laurent Veillard, Jean‐François Le Maréchal, Christian Buty & Robin Millar - 2001 - Science Education 85 (5):483-508.
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  50.  30
    Two secondary teachers’ understanding and classroom practice of dialogic teaching: a case study.Janneke van de Pol, Sue Brindley & Rupert John Edward Higham - 2017 - Educational Studies 43 (5):497-515.
    Dialogic Teaching is effective in fostering student learning; yet, it is hard to implement. Little research focused on secondary teachers’ learning of DT and on the link between teachers’ understanding and practices, although these two are usually strongly intertwined. Using a wide range of evidence, this case study systematically investigated and compared two secondary teachers’ understanding and practice of DT during their participation in a continuing professional development programme. The CPDP appeared effective to some extent. The History teacher’s (...)
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