Results for 'palliative care, palliative care at the end of life, neoplasms, pediatrics, nursing'

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  1.  17
    Refractory suffering at the end of life and the assisted dying debate: An interview study with palliative care nurses and doctors.Kristine Espegren Gustad, Åsta Askjer, Per Nortvedt, Olav Magnus S. Fredheim & Morten Magelssen - 2021 - Clinical Ethics 16 (2):98-104.
    Background How often does refractory suffering, which is suffering due to symptoms that cannot be adequately controlled, occur at the end of life in modern palliative care? What are the causes of such refractory suffering? Should euthanasia be offered for refractory suffering at the end of life? We sought to shed light on these questions through interviews with palliative care specialists. Methods Semi-structured interviews with six nurses and six doctors working in palliative care in (...)
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  2. Medical futility at the end of life: the perspectives of intensive care and palliative care clinicians.Ralf J. Jox, Andreas Schaider, Georg Marckmann & Gian Domenico Borasio - 2012 - Journal of Medical Ethics 38 (9):540-545.
    Objectives Medical futility at the end of life is a growing challenge to medicine. The goals of the authors were to elucidate how clinicians define futility, when they perceive life-sustaining treatment (LST) to be futile, how they communicate this situation and why LST is sometimes continued despite being recognised as futile. Methods The authors reviewed ethics case consultation protocols and conducted semi-structured interviews with 18 physicians and 11 nurses from adult intensive and palliative care units at a tertiary (...)
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  3.  9
    Encontrar sentido para continuar viviendo el reto al perder un hijo por cáncer infantil: revisión integrativa.Sonia Carreño Moreno, Lorena Chaparro Díaz & Rocío López Rangel - 2017 - Persona y Bioética 21 (1).
    The experience of losing a child to cancer represents an emotional burden for the parents with extreme individual, family and social effects that do not end with death. This integrative review is intended to identify key aspects in the experience of losing a child to cancer. The results show a pattern surrounding six moments in the mourning process These can serve as elements of intervention to accompany parents as they try to cope. It is concluded this pattern is an important (...)
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  4.  42
    Children's Hospital ICU Nurse and Physician Rankings of Important Considerations in Pediatric End-of-Life Decision Making.Wynne Morrison, Jennifer Faerber, Kari Hexem, Michael Ruppe & Chris Feudtner - 2015 - AJOB Empirical Bioethics 6 (3):50-58.
    Background: Families and clinicians must often weigh competing priorities when making medical decisions for a pediatric patient at the end of life. Few empirical data exist regarding the importance that clinicians place on varying priorities and whether clinical practice conforms to decision-making standards discussed in the literature. Methods: We administered a discrete choice experiment to understand the relative importance of nine pediatric end-of-life decision-making priorities using responses from 364 nurses and physicians from three intensive care units (ICUs) (pediatric ICU, (...)
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  5.  20
    Nurses’ care practices at the end of life in intensive care units in Bahrain.Catherine S. O’Neill, Maryam Yaqoob, Sumaya Faraj & Carla L. O’Neill - 2017 - Nursing Ethics 24 (8):950-961.
    Background:The process of dying in intensive care units is complex as the technological environment shapes clinical decisions. Decisions at the end of life require the involvement of patient, families and healthcare professionals. The degree of involvement can vary depending on the professional and social culture of the unit. Nurses have an important role to play in caring for dying patients and their families; however, their knowledge is not always sought.Objectives:This study explored nurses’ care practices at the end of (...)
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  6.  9
    Values at the End of Life: The Logic of Palliative Care by Roy Livne.Erik Lenhart - 2020 - The National Catholic Bioethics Quarterly 20 (4):853-854.
  7.  40
    Nasogastric feeding at the end of life: A virtue ethics approach.Lalit Krishna - 2011 - Nursing Ethics 18 (4):485-494.
    The use of Nasogastric (NG) feeding in the provision of artificial nutrition and hydration at the end of life has, for the most part, been regarded as futile by the medical community. This position has been led chiefly by prevailing medical data. In Singapore, however, there has been an increase in its utilization supported primarily by social, religious and cultural factors expressly to prolong life of the terminally ill patient. Here this article will seek to review the ethical and clinical (...)
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  8.  38
    Documentation of Patients' Participation in Care at the End of Life.Irma Lindström, Fannie Gaston-Johansson & Ella Danielson - 2006 - Nursing Ethics 13 (4):394-403.
    The aim of this study was to describe how patients’ participation in the care they received was documented in their health care records during the last three months of their lives. Two hundred and twenty-nine deceased adult persons were randomly identified from 12 municipalities in a Swedish county and their records were selected from different health care units. Content analysis was used to analyse the text. Four categories of patient participation were described: refusing offered care and (...)
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  9.  11
    Reconceiving Decisions at the End of Life in Pediatrics: Decision-Making as a Form of Ritual.Amy E. Caruso Brown - 2019 - Perspectives in Biology and Medicine 62 (2):301-318.
    Medical anthropologists have long recognized variation between cultures with regard to the locus of healing in different systems and traditions: that is, in some cultures, the human body is a “bounded physical unit” and healing is thus focused on the body alone. This perspective will be most familiar to Western health-care providers, and indeed, many providers do not imagine an alternative perspective. However, in many cultures, experiences of health, illness, disease, and healing are intricately connected with the social spheres. (...)
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  10.  16
    End-of-life care in a nursing home: Assistant nurses’ perspectives.Bodil Holmberg, Ingrid Hellström & Jane Österlind - 2019 - Nursing Ethics 26 (6):1721-1733.
    Background: Worldwide, older persons lack access to palliative care. In Sweden, many older persons die in nursing homes where care is provided foremost by assistant nurses. Due to a lack of beds, admission is seldom granted until the older persons have complex care needs and are already in a palliative phase when they move in. Objective: To describe assistant nurses’ perspectives of providing care to older persons at the end of life in a (...)
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  11.  32
    Sedation and care at the end of life.Daniel P. Sulmasy - 2018 - Theoretical Medicine and Bioethics 39 (3):171-180.
    This special issue of Theoretical Medicine and Bioethics takes up the question of palliative sedation as a source of potential concern or controversy among Christian clinicians and thinkers. Christianity affirms a duty to relieve unnecessary suffering yet also proscribes euthanasia. Accordingly, the question arises as to whether it is ever morally permissible to render dying patients unconscious in order to relieve their suffering. If so, under what conditions? Is this practice genuinely morally distinguishable from euthanasia? Can one ever aim (...)
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  12.  24
    Intentions at the End of Life: Continuous Deep Sedation and France’s Claeys-Leonetti law.Steven Farrelly-Jackson - 2024 - Journal of Medicine and Philosophy 49 (1):43-57.
    In 2016, France passed a major law that is unique in giving terminally ill and suffering patients the right to the controversial procedure of continuous deep sedation until death (CDS). In so doing, the law identifies CDS as a sui generis clinical practice, distinct from other forms of palliative sedation therapy, as well as from euthanasia. As such, it reconfigures the ethical debate over CDS in interesting ways. This paper addresses one aspect of this reconfiguration and its implications for (...)
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  13.  7
    Roi Livne (2019) Values at the End of Life. The Logic of Palliative Care: Harvard University Press, Cambridge, Massachusetts, 341 Seiten, 41,00 €, ISBN-13: 978-0-674-54517-5; € 41.Christoph Rehmann-Sutter - 2021 - Ethik in der Medizin 33 (3):427-429.
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  14.  13
    Comparison of Thai older patients’ wishes and nurses’ perceptions regarding end-of-life care.Manchumad Manjavong, Varalak Srinonprasert, Panita Limpawattana, Jarin Chindaprasirt, Srivieng Pairojkul, Thunchanok Kuichanuan, Sawadee Kaiyakit, Thitikorn Juntararuangtong, Kongpob Yongrattanakit, Jiraporn Pimporm & Jinda Thongkoo - 2019 - Nursing Ethics 26 (7-8):2006-2015.
    Background: Achieving a “good death” is a major goal of palliative care. Nurses play a key role in the end-of-life care of older patients. Understanding the perceptions of both older patients and nurses in this area could help improve care during this period. Objectives: To examine and compare the preferences and perceptions of older patients and nurses with regard to what they feel constitutes a “good death.” Research design: A cross-sectional study. Participants and research context: This (...)
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  15.  57
    Forgoing Treatment at the End of Life in 6 European Countries.Georg Bosshard, Tore Nilstun, Johan Bilsen, Michael Norup, Guido Miccinesi, Johannes J. M. van Delden, Karin Faisst, Agnes van der Heide & for the European End-of-Life - 2005 - JAMA Internal Medicine 165 (4):401-407.
    Modern medicine provides unprecedented opportunities in diagnostics and treatment. However, in some situations at the end of a patient’s life, many physicians refrain from using all possible measures to prolong life. We studied the incidence of different types of treatment withheld or withdrawn in 6 European countries and analyzed the main background characteristics.
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  16.  18
    Dignity at the end of life: from philosophy to health care practice - Lithuanian case.Olga Riklikienė & Žydrūnė Luneckaitė - 2022 - Monash Bioethics Review 40 (Suppl 1):28-48.
    Regulation and clinical practices regarding end of human life care differ among the nations and countries. These differences reflect the history of the development of state health systems, different societal values, and different understandings of dignity and what it means to protect or respect dignity. The result is variation in the ethical, legal, and practical approaches to end-of-life issues. The article analyzes the diversity of strategies to strengthen dignity at the end of life of terminally ill patients and to (...)
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  17.  22
    Palliative care nursing involvement in end-of-life decision-making: Qualitative secondary analysis.Pablo Hernández-Marrero, Emília Fradique & Sandra Martins Pereira - 2019 - Nursing Ethics 26 (6):1680-1695.
    Background: Nurses are the largest professional group in healthcare and those who make more decisions. In 2014, the Committee on Bioethics of the Council of Europe launched the “Guide on the decision-making process regarding medical treatment in end-of-life situations”, aiming at improving decision-making processes and empowering professionals in making end-of-life decisions. The Guide does not mention nurses explicitly. Objectives: To analyze the ethical principles most valued by nurses working in palliative care when making end-of-life decisions and investigate if (...)
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  18.  9
    Heroics at the End of Life in Pediatric Cardiac Intensive Care: The Role of the Intensivist in Supporting Ethical Decisions around Innovative Surgical Interventions.Mithya Lewis-Newby, Emily Berkman, Douglas S. Diekema & Jonna D. Clark - 2021 - Ethics in Biology, Engineering and Medicine 12 (1):1-13.
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  19.  34
    'Ambivalence' at the end of life: How to understand patients' wishes ethically.K. Ohnsorge, H. R. G. Keller, G. A. Widdershoven & C. Rehmann-Sutter - 2012 - Nursing Ethics 19 (5):629-641.
    Health-care professionals in end-of-life care are frequently confronted with patients who seem to be ‘ambivalent’ about treatment decisions, especially if they express a wish to die. This article investigates this phenomenon by analysing two case stories based on narrative interviews with two patients and their caregivers. First, we argue that a respectful approach to patients requires acknowledging that coexistence of opposing wishes can be part of authentic, multi-layered experiences and moral understandings at the end of life. Second, caregivers (...)
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  20.  13
    The balancing of virtues—Muslim perspectives on palliative and end of life care: Empirical research analysing the perspectives of service users and providers.Mehrunisha Suleman - 2022 - Bioethics 37 (1):57-68.
    In this paper, I will share findings from a qualitative study that offers a thematic analysis of 76 interviews with Muslim patients and families as well as doctors, nurses, allied health professionals, chaplains and community faith leaders across the United Kingdom. The data show that for many Muslims, Islam—its texts and lived practice—is of central importance when they are deliberating about death and dying. Central to these deliberations are virtues rooted within Islamic theology and ethics, the traditions of adab (virtue) (...)
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  21.  70
    The traditional account of ethics and law at the end of life—and its discontents.Roger S. Magnusson - 2009 - Journal of Bioethical Inquiry 6 (3):307-324.
    For the past 30 years, the Melbourne urologist Dr Rodney Syme has quietly—and more recently, not-so-quietly—assisted terminally and permanently ill people to die. This paper draws on Syme’s recent book, A Good Death: An Argument for Voluntary Euthanasia , to identify and to reflect on some important challenges to what I outline as the traditional account of law, ethics, and end of life decisions. Among the challenges Syme makes to the traditional view is his argument that physicians’ intentions are frail (...)
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  22.  6
    Kathleen Benton and Renzo Pegoraro (ed.): Finding dignity at the end of life: A spiritual reflection on palliative care: Routledge, Taylor and Francis Group (United Kingdom), 2021, 226 pp, ISBN: ISBN 978-0-367-20659-8.Rebecca Milaneschi - 2022 - Theoretical Medicine and Bioethics 43 (2):173-175.
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  23. Clinical ethics: Autonomy at the end of life: life-prolonging treatment in nursing homes—relatives’ role in the decision-making process.A. Dreyer, R. Forde & P. Nortvedt - 2009 - Journal of Medical Ethics 35 (11):672-677.
    Background: The increasing number of elderly people in nursing homes with failing competence to give consent represents a great challenge to healthcare staff’s protection of patient autonomy in the issues of life-prolonging treatment, hydration, nutrition and hospitalisation. The lack of national guidelines and internal routines can threaten the protection of patient autonomy. Objectives: To place focus on protecting patient autonomy in the decision-making process by studying how relatives experience their role as substitute decision-makers. Design: A qualitative descriptive design with (...)
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  24.  38
    Ramsey on “Choosing Life” at the End of Life: Conceptual Analysis of Euthanasia and Adjudicating End-of-Life Care Options.Patrick T. Smith - 2018 - Christian Bioethics 24 (2):151-172.
    Ramsey sees life as a gift and a trust given to people by God. This theological understanding of human life frames his judgment of the immorality of euthanasia in its many forms. Assuming Ramsey’s theological insights and framing of this issue, I highlight a particular way of thinking about euthanasia that both seems to capture the essence of the debate and does not necessarily build the moral evaluation into its description. I aim to identify and unpack the description most consistent (...)
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  25.  16
    Auditory Space, Ethics and Hospitality: ‘Noise’, Alterity and Care at the End of Life.Yasmin Gunaratnam - 2009 - Body and Society 15 (4):1-19.
    This article examines the limits and potential of hospitality through struggles over auditory space in care at the end of life. Drawing upon empirical research and a nurse’s account of noisy mourning in a multicultural hospice ward, I argue that the insurgent force of noise as corporeal generosity can produce impossible dilemmas for care, while also provoking surprising ethical relations and potentialities. Derrida’s ideas about the aporias of the gift and absolute responsibility are used to make sense of (...)
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  26. Nursing Ethics and Advanced Practice : Palliative and End of Life Care Across the Lifespan.M. Bond Stewart, E. Castle Jane, K. Uveges Melissa & J. Grace Pamela - 2018 - In Pamela June Grace & Melissa K. Uveges (eds.), Nursing ethics and professional responsibility in advanced practice. Burlington, Massachusetts: Jones & Bartlett Learning.
     
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  27.  15
    Understanding the challenges of palliative care in everyday clinical practice: an example from a COPD action research project.Geralyn Hynes, Fiona Kavanagh, Christine Hogan, Kitty Ryan, Linda Rogers, Jenny Brosnan & David Coghlan - 2015 - Nursing Inquiry 22 (3):249-260.
    Palliative care seeks to improve the quality of life for patients suffering from the impact of life‐limiting illnesses. Palliative care encompasses but is more than end‐of‐life care, which is defined as care during the final hours/days/weeks of life. Although palliative care policies increasingly require all healthcare professionals to have at least basic or non‐specialist skills in palliative care, international evidence suggests there are difficulties in realising such policies. This study reports (...)
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  28.  21
    Multi-dimensional approach to end-of-life care: The Welfare Model.Shin Wei Sim, Tze Ling Gwendoline Beatrice Soh & Lalit Kumar Radha Krishna - 2019 - Nursing Ethics 26 (7-8):1955-1967.
    Appropriate and balanced decision-making is sentinel to goal setting and the provision of appropriate clinical care that are attuned to preserving the best interests of the patient. Current family-led decision-making in family-centric societies such as those in Singapore and other countries in East Asia are believed to compromise these objectives in favor of protecting familial interests. Redressing these skewed clinical practices employing autonomy-based patient-centric approaches however have been found wanting in their failure to contend with wider sociocultural considerations that (...)
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  29.  6
    Expanding Consciousness of Suffering at the End of Life.Mary Beth Morrissey - 2011 - Schutzian Research 3:79-106.
    This analysis explores the phenomenology of suffering and temporal, genetic and social developmental aspects of suffering for seriously ill older adults. A phenomenological account of suffering is advanced using oral history data from in-depth interviews with a seriously ill, frail elderly woman. The analysis evaluates how a phenomenological account of suffering may inform ethics in end-of-life decision making, and may provide a further basis for an integrated ethical and gerontological response to suffering in palliative social work practice with seriously (...)
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  30.  1
    Parental agency in pediatric palliative care.Marta Szabat - forthcoming - Nursing Inquiry:e12594.
    The study discusses a new approach to parental agency in pediatric palliative care based on an active form of caregiving. It also explores the possibility of a positive conceptualization of parental agency in its relational context. The paper begins with an illustrative case study based on a clinical situation. This is followed by an analysis of various aspects of parental agency based on empirical studies that disclose the insufficiencies of the traditional approach to parental agency. In the next (...)
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  31.  25
    Patient Advocacy At the End of Life.Mary Brewer Love - 1995 - Nursing Ethics 2 (1):3-9.
    Caring for the competent, fragile, elderly patient at the end of life is becoming increasingly challenging. This case explores several ethical areas of concern that arise when caring for patients who have written durable powers of attorney for health care decisions and face life or death choices. Areas covered are informed consent with the elderly patient, the family's right to be involved in decision-making, futility of treatment, and the nurse's role as patient advocate during times of difficult decision-making. Recommendations (...)
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  32.  41
    French district nurses' opinions towards euthanasia, involvement in end-of-life care and nurse patient relationship: a national phone survey.M. Bendiane, A. Galinier, R. Favre, C. Ribiere, J.-M. Lapiana, Y. Obadia & P. Peretti-Watel - 2007 - Journal of Medical Ethics 33 (12):708-711.
    Objectives: To assess French district nurses’ opinions towards euthanasia and to study factors associated with these opinions, with emphasis on attitudes towards terminal patients.Design and setting: An anonymous telephone survey carried out in 2005 among a national random sample of French district nurses.Participants: District nurses currently delivering home care who have at least 1 year of professional experience. Of 803 district nurses contacted, 602 agreed to participate .Main outcome measures: Opinion towards the legalisation of euthanasia , attitudes towards terminal (...)
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  33.  16
    Spiritual Care at the End of Life.Tad Dunne - 2001 - Hastings Center Report 31 (2):22-26.
    Dying patients have more than medical needs. In fact, what they feel most sharply, whether or not they are religious, are spiritual concerns. The Christian theological virtues of faith, hope, and charity, properly interpreted and translated to reflect the universal concerns with which they are connected, provide a starting point.
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  34. Are medical ethicists out of touch? Practitioner attitudes in the US and UK towards decisions at the end of life.Donna Dickenson - 2000 - Journal of Medical Ethics 26 (4):254-260.
    To assess whether UK and US health care professionals share the views of medical ethicists about medical futility, withdrawing/withholding treatment, ordinary/extraordinary interventions, and the doctrine of double effect. A 138-item attitudinal questionnaire completed by 469 UK nurses studying the Open University course on "Death and Dying" was compared with a similar questionnaire administered to 759 US nurses and 687 US doctors taking the Hastings Center course on "Decisions near the End of Life". Practitioners accept the relevance of concepts widely (...)
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  35.  11
    Expanding choice at the end of life.Dominic Wilkinson, Laura Gilbertson, Justin Oakley & Julian Savulescu - 2023 - Journal of Medical Ethics 49 (4):269-270.
    We are grateful to the commentators on our article1 for their thoughtful engagement with the ethical and clinical complexity of expanded terminal sedation (ETS) in end-of-life care. We will start by noting some points of common ground, before moving on to the more challenging ways in which TS might be permissibly expanded. First, several commentators pointed out, and we completely concur, that it is important to provide patients with full information about their end-of-life options, including the ‘outcomes, uncertainties and (...)
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  36.  47
    Are medical ethicists out of touch? Practitioner attitudes in the US and UK towards decisions at the end of life.D. L. Dickenson - 2000 - Journal of Medical Ethics 26 (4):254-260.
    Objectives—To assess whether UK and US health care professionals share the views of medical ethicists about medical futility, withdrawing/withholding treatment, ordinary/extraordinary interventions, and the doctrine of double effectDesign, subjects and setting–A 138-item attitudinal questionnaire completed by 469 UK nurses studying the Open University course on “Death and Dying” was compared with a similar questionnaire administered to 759 US nurses and 687 US doctors taking the Hastings Center course on “Decisions near the End of Life”.Results–Practitioners accept the relevance of concepts (...)
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  37.  32
    Approaches to suffering at the end of life: the use of sedation in the USA and Netherlands: Table 1.Judith A. C. Rietjens, Jennifer R. Voorhees, Agnes van der Heide & Margaret A. Drickamer - 2014 - Journal of Medical Ethics 40 (4):235-240.
    Background Studies describing physicians’ experiences with sedation at the end of life are indispensible for informed palliative care practice, but they are scarce. We describe the accounts of physicians from the USA and the Netherlands, two countries with different regulations on end-of-life decisions regarding their use of sedation.Methods Qualitative face-to-face interviews were held in 2007–2008 with 36 physicians , including primary care physicians and specialists. We applied purposive sampling and conducted constant comparative analyses.Results In both countries, the (...)
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  38.  24
    Death's dominion ethics at the end of life.J. Coggon - 2007 - Journal of Medical Ethics 33 (12):742-742.
    Death’s Dominion is Simon Woods’ addition to the excellent and thought-provoking Facing Death series. Its timeliness is hardly at issue: the debate on euthanasia, end-of-life care and associated issues looks set to rage for some time. And it comes out at a time when the UK Parliament is debating a palliative care bill, designed to promote a duty of the state to provide palliative care to all who need it. The real concern with a work (...)
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  39.  51
    Limitation of treatment at the end of life: an empirical-ethical analysis regarding the practices of physician members of the German Society for Palliative Medicine.Jan Schildmann, Julia Hoetzel, Anne Baumann, Christof Mueller-Busch & Jochen Vollmann - 2011 - Journal of Medical Ethics 37 (6):327-332.
    Objectives To determine the frequencies and types of limitation of medical treatment performed by physician members of the German Society for Palliative Medicine and to analyse the findings with respect to clinical and ethical aspects of end-of-life practices. Design Cross-sectional postal survey. Setting Data collection via the secretary of the German Society for Palliative Medicine using the German language version of the EURELD survey instrument. Subjects All 1645 physician members of the German Society for Palliative Medicine. Main (...)
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  40.  8
    Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18.Marta Szabat - 2020 - Nursing Inquiry 2 (2):e12341.
    The purpose of this study is to analyze the experience of hope that appears in a parent's blog presenting everyday life while caring for a child with Trisomy 18 (Edwards syndrome). The author, Rebekah Peterson, began her blog on 17 March 2011 and continues to post information on her son Aaron's care. The analysis of hope in the blog is carried out using a mixed methodology: initial and focused coding using Charmaz's constructed grounded theory and elements of Colaizzi's method. (...)
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  41.  30
    The ethical decisions UK doctors make regarding advanced cancer patients at the end of life - the perceived (in) appropriateness of anticoagulation for venous thromboembolism: A qualitative study. [REVIEW]Laura Sheard, Hayley Prout, Dawn Dowding, Simon Noble, Ian Watt, Anthony Maraveyas & Miriam Johnson - 2012 - BMC Medical Ethics 13 (1):22-.
    Background: Cancer patients are at risk of developing blood clots in their veins - venous thromboembolism(VTE) - which often takes the form of a pulmonary embolism or deep vein thrombosis. Therisk increases with advanced disease. Evidence based treatment is low molecular weightheparin (LMWH) by daily subcutaneous injection. The aim of this research is to explore thebarriers for doctors in the UK when diagnosing and treating advanced cancer patients withVTE.MethodQualitative, in-depth interview study with 45 doctors (30 across Yorkshire, England and 15across (...)
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  42.  6
    Medical Care at the End of Life.Robert Card - 2006 - Philosophy Now 55:14-17.
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  43.  13
    End-of-Life Care: Forensic Medicine v. Palliative Medicine.Joseph P. Pestaner - 2003 - Journal of Law, Medicine and Ethics 31 (3):365-376.
    The increasing life expectancy of terminally-ill people has raised many public policy concerns about end-of-life care. Due to increased longevity and the lack of cures for illnesses like cancer and heart disease, palliative care, particularly pain management, has become an important mode OF medical therapy. Palliative care providers feel that “[h]ealth care professionals have a moral duty to provide adequate palliative care and pain relief, even if such care shortens the patient’s (...)
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  44. Expanding Consciousness of Suffering at the End of Life.Mary Beth Morrissey - 2011 - Schutzian Research 3:79-106.
    This analysis explores the phenomenology of suffering and temporal, genetic and social developmental aspects of suffering for seriously ill older adults. A phenomenological account of suffering is advanced using oral history data from in-depth interviews with a seriously ill, frail elderly woman. The analysis evaluates how a phenomenological account of suffering may inform ethics in end-of-life decision making, and may provide a further basis for an integrated ethical and gerontological response to suffering in palliative social work practice with seriously (...)
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  45.  30
    Artificial hydration and alimentation at the end of life: a reply to Craig.M. Ashby & B. Stoffell - 1995 - Journal of Medical Ethics 21 (3):135-140.
    Dr Gillian Craig (1) has argued that palliative medicine services have tended to adopt a policy of sedation without hydration, which under certain circumstances may be medically inappropriate, causative of death and distressing to family and friends. We welcome this opportunity to defend, with an important modification, the approach we proposed without substantive background argument in our original article (2). We maintain that slowing and eventual cessation of oral intake is a normal part of a natural dying process, that (...)
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  46.  87
    Defining end-of-life care from perspectives of nursing ethics.S. Izumi, H. Nagae, C. Sakurai & E. Imamura - 2012 - Nursing Ethics 19 (5):608-618.
    Despite increasing interests and urgent needs for quality end-of-life care, there is no exact definition of what is the interval referred to as end of life or what end-of-life care is. The purpose of this article is to report our examination of terms related to end-of-life care and define end-of-life care from nursing ethics perspectives. Current terms related to end-of-life care, such as terminal care, hospice care, and palliative care, are (...)
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  47.  20
    A conscious choice: Is it ethical to aim for unconsciousness at the end of life?Antony Takla, Julian Savulescu & Dominic J. C. Wilkinson - 2020 - Bioethics 35 (3):284-291.
    One of the most commonly referenced ethical principles when it comes to the management of dying patients is the doctrine of double effect (DDE). The DDE affirms that it is acceptable to cause side effects (e.g. respiratory depression) as a consequence of symptom‐focused treatment. Much discussion of the ethics of end of life care focuses on the question of whether actions (or omissions) would hasten (or cause) death, and whether that is permissible. However, there is a separate question about (...)
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  48.  52
    Moral concerns with sedation at the end of life.Charles Douglas - 2014 - Journal of Medical Ethics 40 (4):241-241.
    Two studies reported in the Journal of Medical Ethics add to the growing body of qualitative evidence relating to the use of sedatives at the end of life.1 ,2 Respondents in the two studies affirm a number of important concerns, most of which have been elaborated in the philosophy and palliative care literature, relating to the use of sedation. There seems little doubt that the common moral thread to most of these concerns is the possibility that end-of-life sedation (...)
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  49.  36
    Three Nursing Home Residents Speak About Meaning At the End of Life.Lise-Lotte Dwyer, Lennart Nordenfelt & Britt-Marie Ternestedt - 2008 - Nursing Ethics 15 (1):97-109.
    This article provides a deeper understanding of how meaning can be created in everyday life at a nursing home. It is based on a primary study concerning dignity involving 12 older people living in two nursing homes in Sweden. A secondary analysis was carried out on data obtained from three of the primary participants interviewed over a period of time (18—24 months), with a total of 12 interviews carried out using an inductive hermeneutic approach. The study reveals that (...)
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  50.  11
    Supporting ethical end-of-life care during pandemic: Palliative care team perspectives.Enrico De Luca, Barbara Sena & Silvia Cataldi - 2023 - Nursing Ethics 30 (4):570-584.
    Background Italy was the first European country to be involved with the COVID-19 pandemic. As a result, many healthcare professionals were deployed and suddenly faced end-of-life care management and its challenges. Aims To understand the experiences of palliative care professionals deployed in supporting emergency and critical care staff during the COVID-19 first and second pandemic waves. Research design A qualitative descriptive design was adopted, and in-depth interviews were used to investigate and analyse participants’ perceptions and points (...)
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