In recent years, the healthcare field welcomed an emerging field of practices captured under the umbrella term ‘Big Data’. This term is surrounded with positive rhetoric and promises about the ability to analyse real-world data quickly and comprehensively. Such rhetoric is highly consequential in shaping debates on Big Data. While the fields of Science and Technology Studies and Critical Data Studies have been instrumental in elaborating the neglected and problematic dimensions of Big Data, it remains an open question how and (...) to what extent such insights become embedded in other fields. In this paper, we analyse the epistemological claims that accompany Big Data in the healthcare domain. We systematically searched scientific literature and selected 206 editorials as these reflect on developments in the domain. Through an interpretive analysis, we construct five ideal-typical discourses that all frame Big Data in specific ways. Three of the discourses frame Big Data in positive terms and disseminate a compelling rhetoric. Metaphors of ‘capturing’, ‘illuminating’ and ‘harnessing’ data presume that Big Data are benign and leading to valid knowledge. The scientist and critical-interpretive discourses question the objectivity and effectivity claims of Big Data. Metaphors of ‘selecting’ and ‘constructing’ data illustrate another political message, framing Big Data as limited. We conclude that work in the critical-interpretive discourse has not broadly infiltrated the medical domain. Ways to better integrate aspects of the discourse in the healthcare domain are urgently needed. (shrink)

BackgroundEgg freezing has emerged as a technology of assisted reproductive medicine that allows women to plan for the anticipated loss of fertility and hence to preserve the option to conceive with their own eggs. The technology is surrounded by value-conflicts and is subject to ongoing discussions. This study aims at contributing to the empirical-ethical debate by exploring women’s viewpoints on egg freezing in Austria, where egg freezing for social reasons is currently not allowed.MethodsQ-methodology was used to identify prevailing viewpoints on (...) egg freezing. 46 female participants ranked a set of 40 statements onto a 9-column forced choice ranking grid according to the level of agreement. Participants were asked to explain their ranking in a follow-up survey. By-person factor analysis was used to identify distinct viewpoints which were interpreted using both the quantitative and the qualitative data.ResultsThree distinct viewpoints were identified:(1) “women should decide for themselves”,(2) “we should accept nature but change policy”, and (3) “we need an informed societal debate”. These viewpoints provide insights into how biomedical innovations such as egg freezing are perceived by women in Austria and illustrate the normative tensions regarding such innovations.ConclusionsAcknowledging the different prioritizations of values regarding assisted reproductive technologies is important to better understand the underlying normative tensions in a country where egg freezing for social reasons is currently not allowed. The study adds new empirical insights to the ongoing debate by outlining and discussing viewpoints of those directly affected: women. Following up on the lay persons perspective is particularly important in the context of future biomedical innovations that may challenge established norms and create new tensions. It therefore also adds to the societal debate and supports evidence-informed policy making in that regard. (shrink)

This article’s aim is to understand if and how the efforts to accumulate and organize clinical data transformed the regulation of pharmaceutical care. The authors analyze how the employment of databases by collectives of physicians and researchers shape both clinical and policy practice—and thereby reshape the relation between clinical work and policy. Since the late 1990s, Dutch government has supported the development of clinical databases for specific expensive medicines to gain oversight about actual medicine use. To be able to produce (...) evidence for appropriate medicine use, the collectives set regulations in clinical practice. These internal regulations provide a framework for establishing “appropriate medicine use”, steering reimbursement decisions. However, internal regulation and policy rules differ in how quickly they can change. While the employment of databases in clinical practices results in a constant adjustment of the protocols, policy makers require the databases to provide for static moments of “proven appropriate medicine use” in order to account for and define a fixed and closed formulary. Subsequently, the employment of the databases did not deliver on the promise of oversight and control due to different clinical and policy requirements. Nevertheless, the databases did stimulate appropriate medicine use and reimbursement in clinical practice. (shrink)

Recent buzzes around big data, data science and artificial intelligence portray a data-driven future for healthcare. As a response, Europe's key players have stimulated the use of big data technologies to make healthcare more efficient and effective. Critical Data Studies and Science and Technology Studies have developed many concepts to reflect on such overly positive narratives and conduct critical policy evaluations. In this study, we argue that there is also much to be learned from studying how professionals in the healthcare (...) field affectively engage with this strong European narrative in concrete big data projects. We followed twelve hospital-based big data pilots in eight European countries and interviewed 145 professionals between 2018 and 2020. In this study, we introduce the metaphor of dreams to describe how professionals link the big data promises to their own frustrations, ideas, values and experiences with healthcare. Our research answers the question: how do professionals in concrete data-driven initiatives affectively engage with European Union's data hopes in their ‘dreams’ – and with what consequences? We describe the dreams of being seen, of timeliness, of connectedness and of being in control. Each of these dreams emphasizes certain aspects of the grand narrative of big data in Europe, makes particular assumptions and has different consequences. We argue that including attention to these dreams in our work could help shine an additional critical light on the big data developments and stimulate the development of responsible data-driven healthcare. (shrink)

Recent medical informatics and sociological literature has painted the image of a new type of patient—one that is reflexive and informed, with highly specified information needs and perceptions, as well as highly developed skills and tactics for acquiring information. Patients have been re-named “reflexive consumers.” At the same time, literature about the questionable reliability of web-based information has suggested the need to create both user tools that have pre-selected information and special guidelines for individuals to use to check the individual (...) characteristics of the information they encounter. In this article, we examine suggestions that individuals must be assisted in developing skills for “reflexive consumerism” and what these particular skills should be. Using two types of data (discursive data from websites and promotional items, and supplementary data from interviews and ethnographic observations carried out with those working to sustain these initiatives), we examine how users are directly addressed and discussed. We argue that these initiatives prescribe skills and practices that extend beyond finding and assessing information on the internet and demonstrate that they include ideals of consumerism and citizenship. (shrink)

Egg freezing has led to heated debates in healthcare policy and bioethics. A crucial issue in this context concerns the distinction between “medical” and “social” egg freezing —contrasting objections to bio-medicalization with claims for oversimplification. Yet such categorization remains a criterion for regulation. This paper aims to explore the “regulatory boundary-work” around the “medical”–”social” distinction in different egg freezing regulations. Based on systematic documents’ analysis we present a cross-national comparison of the way the “medical”–”social” differentiation finds expression in regulatory frameworks (...) in Austria, Germany, Israel, and the Netherlands. Findings are organized along two emerging themes: the definition of MEF and its distinctiveness—highlighting regulatory differences in the clarity of the definition and in the medical indications used for creating it ; and hierarchy of medical over social motivations reflected in usage and funding regulations. Blurred demarcation lines between “medical” and “social” are further discussed as representing a paradoxical inclusion of SEF while offering new insights into the complexity and normativity of this distinction. Finally, we draw conclusions for policymaking and the bioethical debate, also concerning the related cryopolitical aspects. (shrink)

In prevention and health promotion interventions, screening methods and risk profile assessments are often used as tools for establishing the interventions’ effectiveness, for the selection and determination of the health status of participants. The role these instruments fulfil in the creation of effectiveness and the effects these instruments have themselves remain unexplored. In this paper, we have analysed the role screening methods and risk profile assessments fulfil as part of prevention and health promotion programmes in the selection, enrolment and participation (...) of participants. Our analysis showed, that screening methods and health risk assessments create effects as they objectify health risks and/or the health status of individuals, i.e., they select the individuals ‘at risk’ and indicate the lifestyle modifications these people are required to make in order to improve their health. Yet, these instruments also reduce the group of participants thereby decreasing the possible effect of interventions, as they provide the legitimisation for people to make choices to whether they enrol or not and what lifestyle changes they incorporate into their lives. In other words, they present a space of interaction, in which agency is distributed across the practice nurses, the participants and the instruments. Decisions were not just made upon the projection of the outcomes of these instruments; decisions that were made by both the patients and practice nurses were the resultant of their opinions on these outcomes that were formed in interaction with the instruments. (shrink)

Although he died in obscurity, the Belgian museum conservator Aimé Rutot was one of the most famous European archaeologists between 1900 and 1920. The focus of his scientific interest was stone flints, which he claimed to be the oldest known human tools, so‐called eoliths. Skeptics maintained that the flints showed no marks of human workmanship, but Rutot nevertheless managed to spread his “Eolithic theory” in an important part of the scientific community. This essay demonstrates how material objects—series of stone flints (...) and sets of statues that purported to reconstruct prehistoric “races”—were given scientific meaning by Rutot. Rutot diffused his ideas by disseminating his stones and statues, thus enlarging his networks of influence. For a time he managed to be at the material center of a trade network as well as at the intellectual center of archaeological debate. The essay shows how Rutot achieved this status and how he eventually fell from favor among serious scientists. (shrink)

This essay tells the story of early French ethology—“the science dealing with the habits of living beings and their relations, both with each other and with the cosmic environment.” The driving force behind this “ethological movement” was the biologist Alfred Giard (1846–1908). The essay discusses how the ethological viewpoint of Giard and his pupils developed in a period in which the current disciplines of field biology were not yet crystallized. It also shows how concepts and research interests could travel within (...) Giard's network from one working context to another, even from one discipline to another. By studying this traveling process, the essay reveals that, unlike the modern ethology of Konrad Lorenz and Niko Tinbergen, Giard's ethology was not a discipline at all but, rather, a scientific attitude. This scientific attitude triggered a reappraisal of fieldwork, but at the same time Giard's ethology was never limited to the field alone. It also found its way to the laboratory, the museum, and the zoo. -/- . (shrink)

Around 1960, leading figures in the international conservation circuit – such as Julian Huxley, Frank Fraser Darling and E. Barton Worthington – successfully propagated new visions about the value of undomesticated African mammals. Against traditional ideas, they presented these mammals as a highly efficient source of protein for growing African populations. In line with this vision, they challenged non-interventionist ideals of nature preservation, and launched proposals for active management through game ‘ranching’ and ‘cropping’. As such, they created a new socio-technical (...) imaginary for Africa's future, in which the consumption of wildlife meat took up a central position. This article explores the motivations of Western conservationists for this drastic rebranding. It argues that the rationale of considering African wildlife in terms of protein played an important symbolical role at various levels. It was crucial in the reorganization of the transnational networks of conservation, but also in the boosting of their scientific reputation, in the restructuring of their institutional ties, and in their attempts to maintain an authoritative position for Western ecologists in a rapidly decolonizing world. (shrink)

In historical literature, Edouard van Beneden is mostly remembered for his cytological discoveries. Less well known, however, is that he also introduced evolutionary morphology – and indeed evolutionary theory as such – in the Belgian academic world. The introduction of this research programme cannot be understood without taking both the international and the national context into account. It was clearly the German example of the Jena University that inspired van Beneden in his research interests. The actual launch of evolutionary morphology (...) at his University of Liège was, however, also connected with the dynamic of Belgian university reforms and the local rationale of creating a research “school.” Thanks to his networks, his mastering of the rhetoric of the “new” biology, his low ideological profile and his capitalising on the new academic élan in late-19th century Belgium, van Beneden managed to turn his programme into a local success from the 1870s onwards. Two decades later, however, the conceptual underpinnings of evolutionary morphology came under attack and the “Van Beneden School” lost much of its vitality. Despite this, van Beneden’s evolutionary morphology was prototypical for the research that was to come. He was one of the first scientific heavyweights in Belgium to turn the university laboratory into a centre of scientific practice and the hub of a research school. (shrink)

In historical literature, Edouard van Beneden (1846–1910) is mostly remembered for his cytological discoveries. Less well known, however, is that he also introduced evolutionary morphology – and indeed evolutionary theory as such – in the Belgian academic world. The introduction of this research programme cannot be understood without taking both the international and the national context into account. It was clearly the German example of the Jena University that inspired van Beneden in his research interests. The actual launch of evolutionary (...) morphology at his University of Liège was, however, also connected with the dynamic of Belgian university reforms and the local rationale of creating a research “school.” Thanks to his networks, his mastering of the rhetoric of the “new” biology, his low ideological profile and his capitalising on the new academic élan in late-19th century Belgium, van Beneden managed to turn his programme into a local success from the 1870s onwards. Two decades later, however, the conceptual underpinnings of evolutionary morphology came under attack and the “Van Beneden School” lost much of its vitality. Despite this, van Beneden’s evolutionary morphology was prototypical for the research that was to come. He was one of the first scientific heavyweights in Belgium to turn the university laboratory into a centre of scientific practice and the hub of a research school. (shrink)

Numbers of European hamsters in the Dutch Province of Limburg have been subject to much scrutiny and controversy. In the late nineteenth century, policymakers who considered them too numerous set up eradication programs. In the second half of the twentieth century, even when its domestic relative increasingly circulated as a pet in urban spaces, the numbers of European hamsters in the rural areas collapsed. Large-scale preservation campaigns and reintroduction programs ensued. According to some media, all this has turned the European (...) hamster into the most expensive undomesticated animal of the Netherlands. A whole network of institutions became involved to save the species – ranging from local activist organizations, over zoos and universities, to federal ministries and international organizations. The interactions between the Dutch and ‘their’ hamsters, this article argues, were inscribed in various forms of biopolitics. The article highlights the changing discursive framings and spatial practices that have shaped the management of Cricetus cricetus over time and calls attention to the diversity of living and non-living agents that produced the multispecies choreographies of the present-day Limburg landscape. Finally, it alerts us to the kinds of agency that reside in the numbers of non-human animals. (shrink)

Summary In 1918, Henry de Dorlodot—priest, theologian, and professor of geology at the University of Louvain (Belgium)—published Le Darwinisme au point de vue de l'Orthodoxie Catholique (translated as Darwinism and Catholic Thought) in which he defended a reconciliation between evolutionary theory and Catholicism with his own particular kind of theistic evolutionism. He subsequently announced a second volume in which he would extend his conclusions to the origin of Man. Traditionalist circles in Rome reacted vehemently. Operating through the Pontifical Biblical Commission, (...) they tried to force Dorlodot to withdraw his book and to publicly disown his ideas by threatening him with an official condemnation, a strategy that had been used against Catholic evolutionists since the late nineteenth century. The archival material on the ‘Dorlodot affair’ shows how this policy ‘worked’ in the early stages of the twentieth century but also how it would eventually reach the end of its logic. The growing popularity of theistic evolutionism among Catholic intellectuals, combined with Dorlodot's refusal to pull back amidst threats, made certain that the traditionalists did not get their way completely, and the affair ended in an uncomfortable status quo. Dorlodot did not receive the official condemnation that had been threatened, nor did he withdraw his theories, although he stopped short on publishing on the subject. With the decline of the traditionalists’ power and authority, the policy of denunciation towards evolutionists made way for a growing tolerance. The ‘Dorlodot affair’—which occurred in a pivotal era in the history of the Church—can be seen as exemplary with regards to the changing attitude of the Roman authorities towards evolutionism in the first half of the twentieth century. (shrink)

This article contributes to the contemporary debate on land and water grabbing through a detailed, qualitative case study of horticultural agribusinesses which have settled in Tanzania, disrupting patterns of land and water use. In this paper we analyse how capitalist settler farms and their upstream and downstream peasant neighbours along the Nduruma river, Tanzania, expand and defend their water use. The paper is based on 3 months of qualitative field work in Tanzania. We use the echelons of rights analysis framework (...) combined with the concept of institutional bricolage to show how this contestation takes place over the full spectrum of actual abstractions, governance and discourses. We emphasise the role different (inter)national development narratives play in shaping day-to-day contestations over water shares and rule-making. Ultimately, we emphasise that water grabbing is not a one-time event, but rather an on-going struggle over different water resources. In addition, we show how a perceived beneficial development of agribusinesses switching to groundwater allows them to avoid peasant-controlled institutions, avoiding further negotiation between the different actors and improving their image among neighbouring communities. This development illustrates how complex and obscured processes of water re-allocation can be without becoming illegal per se. (shrink)

Pierre Teilhard de Chardin, jésuite et paléontologue, est surtout connu pour ses idées peu orthodoxes, au travers desquelles il tenta de concilier la science évolutionniste avec ses théories spirituelles personnelles. En dépit de la censure de la part des autorités ecclésiastiques, Teilhard essaya d’élaborer cette conciliation et de la disséminer dans les milieux intellectuels catholiques. Pour mener à bien ces deux projets, il trouva du soutien dans les cercles évolutionnistes de l’Université Catholique de Louvain et la maison jésuite de la (...) même ville belge. Le réseau louvaniste de Teilhard agit comme un amplificateur important de ses idées et lui offrit une aide concrète pour répandre celles-ci et pour éviter la censure. Malgré leur influence mutuelle significative, des divergences d’ordre philosophique entre Teilhard et ses amis louvanistes demeurèrent pourtant, et finirent par les séparer. Pendant les années 1930, le réseau louvaniste de Teilhard fut dissous en grande partie. Ses actions ne restèrent pourtant pas sans résultat. Ce petit groupe d’intellectuels fit sans aucun doute évoluer le climat en faveur de l’évolutionnisme au sein des milieux catholiques, et prépara, de cette manière, le succès des idées teilhardiennes à la suite de la Seconde Guerre mondiale. The Jesuit and palaeontologist Pierre Teilhard de Chardin is basically known for his not always orthodox conceptions by which he tried to reconcile evolutionist science with his personal spiritual ideas. In spite of censorship from the ecclesiastical authorities, Teilhard attempted to elaborate this conciliation and to spread it among catholic intellectuals. For both of these projects he found crucial support in evolutionist circles at the Catholic University of Louvain and the Jesuit house in the same Belgian town. Teilhard’s Louvain network proved to be an important sounding board and it offered concrete help in spreading his ideas and in bypassing the censorship. Despite significant mutual influences, philosophical divergences between Teilhard and his Louvain friends remained, and would eventually drive them apart. Therefore, in the 1930s, Teilhard’s Louvain network largely dissolved. However, its actions had not been without result. This small group of intellectuals definitely changed the climate among Catholics in favour of evolutionism and thus prepared the success that Teilhardian ideas would have in the aftermath of the Second World War. Pierre Teilhard de Chardin, Jesuit und Paläontologe, ist vor allem wegen seiner nicht immer orthodoxen Ideen bekannt, mit denen er versuchte, die Evolutionstheorien mit seinen persönlichen spirituellen Überzeugungen zu vereinbaren. Ungeachtet der Zensur durch die kirchlichen Autoritäten bemühte sich Teilhard um die Ausarbeitung dieser Versöhnung und um ihre Verbreitung in den katholischen Intellektuellenmilieus. Bei der Verwirklichung dieser beiden Projekte fand er Hilfe in den evolutionistischen Kreisen der Katholischen Universität Löwen und bei der Jesuitengemeinschaft derselben Stadt. Das Löwener Netzwerk half ihm dabei, seine Ideen einem größeren Publikum zugänglich zu machen, und lieferte konkrete Unterstützung bei der Verbreitung der Thesen und bei der Umgehung der Zensur. Trotz ihrer bedeutenden gegenseitigen Beeinflussung bestanden jedoch auch weiterhin philosophische Divergenzen zwischen Teilhard und seinen Löwener Freunden, die schließlich zur Trennung führten. In den 30er Jahren wurde der Löwener Kreis um Teilhard größtenteils aufgelöst. Sein Handeln blieb jedoch nicht ohne Resultat. Diese kleine Gruppe Intellektueller hat mit Sicherheit dazu beigetragen, das Klima zugunsten der Evolutionstheorien innerhalb der katholischen Kreise zu verbessern und bereitete auf diese Weise den Weg für den Erfolg der teilhardschen Ideen nach dem Zweiten Weltkrieg. (shrink)

ABSTRACT This essay tells the story of early French ethology— “the science dealing with the habits of living beings and their relations, both with each other and with the cosmic environment.” The driving force behind this “ethological movement” was the biologist Alfred Giard (1846– 1908). The essay discusses how the ethological viewpoint of Giard and his pupils developed in a period in which the current disciplines of field biology were not yet crystallized. It also shows how concepts and research interests (...) could travel within Giard’s network from one working context to another, even from one discipline to another. By studying this traveling process, the essay reveals that, unlike the modern ethology of Konrad Lorenz and Niko Tinbergen, Giard’s ethology was not a discipline at all but, rather, a scientific attitude. This scientific attitude triggered a reappraisal of fieldwork, but at the same time Giard’s ethology was never limited to the field alone. It also found its way to the laboratory, the museum, and the zoo. (shrink)

Background Policy instruments based on the working of markets have been introduced to empower consumers of healthcare. However, it is still not easy to become a critical consumer of healthcare. Objectives The aim of this study is to analyse the possibilities of the state to strengthen the position of patients with the aid of a new financial regime, such as personal health budgets. Methods Data were collected through in-depth interviews with executives, managers, professionals and client representatives of six long-term care (...) institutions. Results With the introduction of individual budgets the responsibility for budgetary control has shifted from the organisational level to the individual level in the caregiver-client relationship. Having more luxurious care on offer necessitates a stronger demarcation of regular care because organisations cannot simultaneously offer extra care as part of the standard care package. New financial instruments have an impact on the culture of receiving and giving care. Distributive justice takes on new meaning with the introduction of financial market mechanisms in healthcare; the distributing principle of ‘need’ is transformed into the principle of ‘economic demand’. Conclusion Financial instruments not only act as a countervailing power against providers insufficiently client-oriented, but are also used by providers to reinforce their own positions vis-à-vis demanding clients. Tailor-made finance is not the same as tailor-made care. (shrink)

ArgumentSince the linguistic turn, the role of rhetoric in the circulation and the popular representation of knowledge has been widely accepted in science studies. This article aims to analyze not a textual form of scientific rhetoric, but the crucial role of materiality in scientific debates. It introduces the concept ofmaterial rhetoricto understand the promotional regimes in which material objects play an essential argumentative role. It analyzes the phenomenon by looking at two students of prehistory from nineteenth-century Belgium.In the study of (...) human prehistory and evolution, material data are either fairly abundant stone tools or very scarce fossil bones. These two types of material data stand for two different strategies in material rhetoric. In this article, the first strategy is exemplified by Aimé Rutot, who gathered great masses of eoliths. The second strategy is typified by the example of Julien Fraipont, who based his scientific career on only two Neanderthal skeletons. Rutot sent his “artifacts” to a very wide audience, while Fraipont showed his skeletons to only a few selected scholars. Unlike Rutot, however, Fraipont was able to monitor his audience's interpretation of the finds by means of personal contacts. What an archaeologist gains in reach, he or she apparently loses in control. In this article we argue that only those scholars who find the right balance between the extremes of reach and control will prove to be successful. (shrink)

In the early twentieth century, ornithology underwent significant changes. So far, these changes, basically, have been studied by focussing on the elite of professional biologists working at universities or state museums. However, important developments also occurred in what Lynn Nyhart has called “the civic realm” of science – the sphere given form by private naturalist associations, nature writers, taxidermists and school teachers. This article studies the changing dynamics of civic ornithology, by looking at one particular case: the influential orinthological observatory (...) in Rossitten, East-Prussia. This observatory, the first of its kind, was founded in 1901 and led, for the first three decades of its existence, by the minister Johannes Thienemann. This article analyses the ornithological practices Thienemann developed in Rossitten and the rhetoric he used to defend these practices. In both, so it is argued, one finds a mixture of the traditional, locally anchored naturalist approach with the new ideals of the “modern” and “experimental” university laboratories. The innovations which Thienemann introduced in this hybrid form of ornithology called for specific spatial strategies which made optimal use of the natural chatacteristics of his workplace and which mobilized a large civic network of geograhically scattered amateurs. At the same time, his work also altered the space he shared with the birds – materially, conceptually and culturally. Thus, this article maintains Thienemann's ornithology can only be understood by acknowledging its continuous interaction with the geographical and civic context in which it arose. (shrink)

Une enigme litteraire - celle, posee par les textes prefaciels de Vitruve dans leur signification et leur date - qui se resout par une histoire de mots, l'histoire des mots latins du livre, dont la langue francaise et nombre de langues ...

Cet article a déjà paru dans la Revue des mondes musulmans et de la Méditerranée, n° 136, novembre 2014. Nous remercions la revue de nous avoir autorisé à le reproduire ici. Résumé : Dans une perspective d'étude sur les rythmes urbains, l'article s'attache à analyser les modalités de passage du jour à la nuit à Beyrouth. En appréhendant cette dernière comme un espace-temps multiforme aux limites labiles, l'étude de terrain a mené à l'identification d'une période de transition – la « (...) marche » – entre le jour - Géographie. (shrink)

Abstract : This introduction to a special issue on "Normes and normativity" emphasizes the difficulties and challenges of distinguishing between a positive approach and a normative approach to norms in economics. Collective life is organized by norms, however the mere fact that they regularly influence behaviours does not imply their desirability. A strict description of norms may require consideration of ethical issues, which may be reported by different methods; choosing among norms however is an activity of a fundamentally normative nature, (...) which questions the legitimacy of decisions and evaluations. The very possibility of a demarcation between is and ought is not straightforward. In welfare economics in particular, the standard approaches that aim to avoid value judgements (welfarism) or to isolate them (axiomatics) can be problematic. To conclude, we present the four articles in the special issue meant to illustrate these issues regarding the nature, knowledge, value of norms and the positive-normative distinction. -/- Résumé : Cette introduction à un dossier thématique sur le thème "Normes et normativité" insiste sur les difficultés et les enjeux de la distinction entre les approches positives et normatives des normes en économie. La vie collective est organisée par des normes, mais qu’elles ordonnent les comportements dans les faits n’impliquent pas qu’elles soient désirables. Une stricte description des normes peut nécessiter de prendre en compte les questions éthiques, lesquelles peuvent être traduites par différentes méthodes ; choisir les normes en revanche est une activité de nature fondamentalement normative, qui interroge la légitimité des décisions et des évaluations. La possibilité même de démarcation entre positif et normatif ne va pas de soi : en particulier en économie du bien-être, les approches standards qui visent à éviter les jugements de valeur (le welfarisme) ou à les isoler (l’axiomatique) peuvent s’avérer problématiques. Pour conclure, nous présentons les quatre articles du numéro qui illustrent ces questionnements relatifs à la nature, la connaissance, la valeur des normes et la distinction entre normatif et positif. (shrink)