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Jennifer Blumenthal-Barby [35]Jennifer S. Blumenthal-Barby [4]
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Jennifer Swindell Blumenthal-Barby
Baylor College of Medicine
  1.  61
    The End of Personhood.Jennifer Blumenthal-Barby - 2024 - American Journal of Bioethics 24 (1):3-12.
    The concept of personhood has been central to bioethics debates about abortion, the treatment of patients in a vegetative or minimally conscious states, as well as patients with advanced dementia. More recently, the concept has been employed to think about new questions related to human-brain organoids, artificial intelligence, uploaded minds, human-animal chimeras, and human embryos, to name a few. A common move has been to ask what these entities have in common with persons (in the normative sense), and then draw (...)
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  2.  21
    The End of Personhood.Jennifer Blumenthal-Barby - 2023 - American Journal of Bioethics 24 (1):3-12.
    The concept of personhood has been central to bioethics debates about abortion, the treatment of patients in a vegetative or minimally conscious states, as well as patients with advanced dementia. More recently, the concept has been employed to think about new questions related to human-brain organoids, artificial intelligence, uploaded minds, human-animal chimeras, and human embryos, to name a few. A common move has been to ask what these entities have in common with persons (in the normative sense), and then draw (...)
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  3.  98
    The Place of Philosophy in Bioethics Today.Jennifer Blumenthal-Barby, Sean Aas, Dan Brudney, Jessica Flanigan, S. Matthew Liao, Alex London, Wayne Sumner & Julian Savulescu - 2021 - American Journal of Bioethics 22 (12):10-21.
    In some views, philosophy’s glory days in bioethics are over. While philosophers were especially important in the early days of the field, so the argument goes, the majority of the work in bioethics today involves the “simple” application of existing philosophical principles or concepts, as well as empirical work in bioethics. Here, we address this view head on and ask: What is the role of philosophy in bioethics today? This paper has three specific aims: (1) to respond to skeptics and (...)
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  4.  26
    Bioethics and the Moral Authority of Experience.Ryan H. Nelson, Bryanna Moore, Holly Fernandez Lynch, Miranda R. Waggoner & Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):12-24.
    While experience often affords important knowledge and insight that is difficult to garner through observation or testimony alone, it also has the potential to generate conflicts of interest and unrepresentative perspectives. We call this tension the paradox of experience. In this paper, we first outline appeals to experience made in debates about access to unproven medical products and disability bioethics, as examples of how experience claims arise in bioethics and some of the challenges raised by these claims. We then motivate (...)
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  5.  36
    Two Minds, One Patient: Clearing up Confusion About “Ambivalence”.Bryanna Moore, Ryan H. Nelson, Peter A. Ubel & Jennifer Blumenthal-Barby - 2021 - American Journal of Bioethics 22 (6):37-47.
    Patients who experience difficulty making medical decisions are often referred to as “ambivalent.” However, the current lack of attention to the nuances between a cluster of phenomena that resemble...
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  6.  20
    What Do Psychiatrists Think About Caring for Patients Who Have Extremely Treatment-Refractory Illness?Natalie J. Dorfman, Jennifer Blumenthal-Barby, Peter A. Ubel, Bryanna Moore, Ryan Nelson & Brent M. Kious - 2024 - American Journal of Bioethics Neuroscience 15 (1):51-58.
    Questions about when to limit unhelpful treatments are often raised in general medicine but are less commonly considered in psychiatry. Here we describe a survey of U.S. psychiatrists intended to characterize their attitudes about the management of suicidal ideation in patients with severely treatment-refractory illness. Respondents (n = 212) received one of two cases describing a patient with suicidal ideation due to either borderline personality disorder or major depressive disorder. Both patients were described as receiving all guideline-based and plausible emerging (...)
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  7.  13
    Research on the Clinical Translation of Health Care Machine Learning: Ethicists Experiences on Lessons Learned.Jennifer Blumenthal-Barby, Benjamin Lang, Natalie Dorfman, Holland Kaplan, William B. Hooper & Kristin Kostick-Quenet - 2022 - American Journal of Bioethics 22 (5):1-3.
    The application of machine learning in health care holds great promise for improving care. Indeed, our own team is collaborating with experts in machine learning and statistical modeling to bu...
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  8.  35
    An AI Bill of Rights: Implications for Health Care AI and Machine Learning—A Bioethics Lens.Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):4-6.
    Just last week (October 4, 2022), the U.S. White House released a blueprint for an A.I. Bill of Rights, consisting of “five principles and associated practices to help guide the design, use, and de...
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  9.  34
    Payment of COVID-19 challenge trials: underpayment is a bigger worry than overpayment.Jennifer Blumenthal-Barby & Peter Ubel - 2021 - Journal of Medical Ethics 47 (8):585-586.
    One way to test vaccines is through human challenge trials in which participants are intentionally infected with a contagious organism to expedite the process of assessing the vaccine’s effectiveness. Some experts believe challenge trials may play an important role in fighting COVID-19, especially if the vaccines under current study do not demonstrate sufficient efficacy, if spread of COVID-19 is controlled to a point that radically slows down traditional trials, or if new vaccines need to be rapidly developed for specific subpopulations.1 (...)
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  10.  24
    Pediatric Deep Brain Stimulation for Dystonia: Current State and Ethical Considerations.Katrina A. Muñoz, Jennifer Blumenthal-Barby, Eric A. Storch, Laura Torgerson & Gabriel Lázaro-muñoz - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (4):557-573.
    Dystonia is a movement disorder that can have a debilitating impact on motor functions and quality of life. There are 250,000 cases in the United States, most with childhood onset. Due to the limited effectiveness and side effects of available treatments, pediatric deep brain stimulation has emerged as an intervention for refractory dystonia. However, there is limited clinical and neuroethics research in this area of clinical practice. This paper examines whether it is ethically justified to offer pDBS to children with (...)
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  11.  28
    Perspectives on informed assent and bodily integrity in prospective deep brain stimulation for youth with refractory obsessive-compulsive disorder.Jared N. Smith, Natalie Dorfman, Meghan Hurley, Ilona Cenolli, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A. Storch & Jennifer Blumenthal-Barby - forthcoming - Clinical Ethics.
    BackgroundDeep brain stimulation is approved for treating refractory obsessive-compulsive disorder in adults under the US Food and Drug Administration Humanitarian Device Exemption, and studies hav...
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  12.  50
    Pandemic medical ethics.Jennifer Blumenthal-Barby, Kenneth Boyd, Brian D. Earp, Lucy Frith, Rosalind J. McDougall, John McMillan & Jesse Wall - 2020 - Journal of Medical Ethics 46 (6):353-354.
    The COVID-19 pandemic will generate vexing ethical issues for the foreseeable future and many journals will be open to content that is relevant to our collective effort to meet this challenge. While the pandemic is clearly the critical issue of the moment, it’s important that other issues in medical ethics continue to be addressed as well. As can be seen in this issue, the Journal of Medical Ethics will uphold its commitment to publishing high quality papers on the full array (...)
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  13.  18
    Medical ethics and the climate change emergency.Cressida Auckland, Jennifer Blumenthal-Barby, Kenneth Boyd, Brian D. Earp, Lucy Frith, Zoë Fritz, John McMillan, Arianne Shahvisi & Mehrunisha Suleman - 2022 - Journal of Medical Ethics 48 (12):939-940.
    The editors of the _Journal of Medical Ethics_ support the call of the UK Health Alliance on Climate for urgent action to ensure that the current Conference of the Parties to the United Nations Framework Convention on Climate Change ‘finally delivers climate justice for Africa and vulnerable countries’. 1 As they note ‘Africa has suffered disproportionately although it has done little to cause the crisis’. The burden of climate change has thus far fallen disproportionately on Global South countries. The monsoon (...)
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  14.  12
    Good ethics and bad choices: the relevance of behavioral economics for medical ethics.Jennifer S. Blumenthal-Barby - 2021 - Cambridge, Massachusetts: The MIT Press.
    An original examination of the relevance of behavioral economics for the practice of medical ethics.
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  15.  8
    Ethics of speculation.Jennifer Blumenthal-Barby - 2023 - Journal of Medical Ethics 49 (8):525-525.
    In an April 2023 article in JAMA Pediatrics, ‘Life Support System for the Fetonate and the Ethics of Speculation’, authors De Bie, Flake and Feudtner critique bioethicists for practising what they call ‘speculative ethics’. The authors refer to a 2017 article that they published on the Extra-uterine Environment of Neonatal Development (EXTEND) system. This system was able to keep fetonatal (newborn, but in a fetal physiological state) lambs alive outside of the parent lamb’s womb for 4 weeks. The article has (...)
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  16. Reconciling the opposing effects of neurobiological evidence on criminal sentencing judgments.Corey Allen, Karina Vold, Gidon Felson, Jennifer Blumenthal-Barby & Eyal Aharoni - 2019 - PLoS ONE 1:1-17.
    Legal theorists have characterized physical evidence of brain dysfunction as a double-edged sword, wherein the very quality that reduces the defendant’s responsibility for his transgression could simultaneously increase motivations to punish him by virtue of his apparently increased dangerousness. However, empirical evidence of this pattern has been elusive, perhaps owing to a heavy reliance on singular measures that fail to distinguish between plural, often competing internal motivations for punishment. The present study employed a test of the theorized double-edge pattern using (...)
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  17.  16
    When Does Nudging Represent Fraudulent Disclosure?Jennifer Blumenthal-Barby, Neal W. Dickert & Derek Soled - 2021 - American Journal of Bioethics 21 (5):63-66.
    In the article “Informed Consent: What Must be Disclosed and What Must be Understood?” Joseph Millum and Danielle Bromwich argue that informed consent requires satisfaction of certain disclosure an...
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  18.  9
    Reconsidering risk attitudes: why higher-order attitudes hinder medical decision-making.Liam Francis Ryan & Jennifer Blumenthal-Barby - 2023 - Journal of Medical Ethics 49 (11):742-743.
    In his paper, ‘Patients, doctors and risk attitudes,’ Nicholas Makins1 argues that healthcare professionals should defer to a patient’s higher-order risk attitudes (ie, the risk attitudes they desire to have or endorse within themselves upon reflection) when making medical decisions. We argue against Makins’ deference to higher-order risk attitudes on the basis that (1) there are significant practical concerns regarding our ability to easily and consistently access and verify the higher-order risk attitudes of patients, (2) there is a lack of (...)
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  19.  13
    Deciding with Others: Interdependent Decision‐Making.Emily A. Largent, Justin Clapp, Jennifer S. Blumenthal-Barby, Christine Grady, Amy L. McGuire, Jason Karlawish, Joshua D. Grill, Shana D. Stites & Andrew Peterson - 2022 - Hastings Center Report 52 (6):23-32.
    Over the course of human life, health care decision‐making is often interdependent. In this article, we use “interdependence” to refer to patients’ engagement of nonclinicians—for example, family members or trusted friends—to reach health care decisions. Interdependence, we suggest, is common for patients in all stages of life, from early childhood to late adulthood. This view contrasts with the common bioethical assumption that medical decisions are either wholly independent or dependent and that independence or dependence is tightly coupled with a person's (...)
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  20.  19
    Pediatric Authenticity: Hiding in Plain Sight.Ryan H. Nelson, Bryanna Moore & Jennifer Blumenthal-Barby - 2022 - Hastings Center Report 52 (1):42-50.
    Hastings Center Report, Volume 52, Issue 1, Page 42-50, January/February 2022.
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  21.  7
    Call for moral recognition as part of paediatric assent.Jared Smith & Jennifer Blumenthal-Barby - 2023 - Journal of Medical Ethics 49 (7):481-482.
    In ‘Reification and Assent in Research Involving Those Who Lack Capacity’, Smajdor argues that adults with impaired capacity to grant informed consent (AWIC) are often excluded from participating in biomedical research because they cannot provide informed consent, leading to decreased chances AWIC will benefit from such research. Smajdor uses Honneth’s concept of reification to propose that securing assent (rather than consent) in cases involving AWIC offers patients moral recognition that is not tied to their capacities. Assent provides this recognition by (...)
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  22.  43
    When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing.Leila Jamal, Jill O. Robinson, Kurt D. Christensen, Jennifer Blumenthal-Barby, Melody J. Slashinski, Denise Lautenbach Perry, Jason L. Vassy, Julia Wycliff, Robert C. Green & Amy L. McGuire - 2017 - AJOB Empirical Bioethics 8 (2):82-88.
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  23.  44
    Nudge or Grudge? Choice Architecture and Parental Decision‐Making.Jennifer Blumenthal-Barby & Douglas J. Opel - 2018 - Hastings Center Report 48 (2):33-39.
    Richard Thaler and Cass Sunstein define a nudge as “any aspect of the choice architecture that alters people's behavior in a predictable way without forbidding any options or significantly changing their economic incentives.” Much has been written about the ethics of nudging competent adult patients. Less has been written about the ethics of nudging surrogates’ decision‐making and how the ethical considerations and arguments in that context might differ. Even less has been written about nudging surrogate decision‐making in the context of (...)
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  24.  16
    Present and future.Jennifer Blumenthal-Barby - 2021 - Journal of Medical Ethics 47 (6):361-361.
    As the COVID-19 pandemic rages on, this June 2021 issue of the JME contains several articles addressing pandemic-related ethical issues, including, discrimination against persons with disabilities,1 collective moral resilience,2 and stress in medical students due to COVID-19.3 It also contains a critical appraisal of the most recent WHO guidance document on the management of ethical issues during an infectious disease outbreak.4 This June issue of JME also addresses several important clinical ethics issues: covert administration of medication in food,5 educational pelvic (...)
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  25.  19
    Supported Decision Making: A Concept at the Margins vs. Center of Autonomy?Peter A. Ubel & Jennifer Blumenthal-Barby - 2021 - American Journal of Bioethics 21 (11):43-44.
    In their article, “Supported Decision Making with People at the Margins of Autonomy,” Peterson, Karlawish, and Largent point to the fact that the concept of ‘supported decision-making’ has recently...
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  26.  27
    Trust criteria for artificial intelligence in health: normative and epistemic considerations.Kristin Kostick-Quenet, Benjamin H. Lang, Jared Smith, Meghan Hurley & Jennifer Blumenthal-Barby - forthcoming - Journal of Medical Ethics.
    Rapid advancements in artificial intelligence and machine learning (AI/ML) in healthcare raise pressing questions about how much users should trust AI/ML systems, particularly for high stakes clinical decision-making. Ensuring that user trust is properly calibrated to a tool’s computational capacities and limitations has both practical and ethical implications, given that overtrust or undertrust can influence over-reliance or under-reliance on algorithmic tools, with significant implications for patient safety and health outcomes. It is, thus, important to better understand how variability in trust (...)
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  27.  12
    Adolescent OCD Patient and Caregiver Perspectives on Identity, Authenticity, and Normalcy in Potential Deep Brain Stimulation Treatment.Jared N. Smith, Natalie Dorfman, Meghan Hurley, Ilona Cenolli, Kristin Kostick-Quenet, Eric A. Storch, Gabriel Lázaro-Muñoz & Jennifer Blumenthal-Barby - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-14.
    The ongoing debate within neuroethics concerning the degree to which neuromodulation such as deep brain stimulation (DBS) changes the personality, identity, and agency (PIA) of patients has paid relatively little attention to the perspectives of prospective patients. Even less attention has been given to pediatric populations. To understand patients’ views about identity changes due to DBS in obsessive-compulsive disorder (OCD), the authors conducted and analyzed semistructured interviews with adolescent patients with OCD and their parents/caregivers. Patients were asked about projected impacts (...)
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  28.  17
    Clinical Ultimatums: Coercion as Subjection.Jennifer S. Blumenthal-Barby, Mollie Gordon, John H. Coverdale & C. Maxwell Shannon - 2019 - American Journal of Bioethics 19 (9):54-56.
    Volume 19, Issue 9, September 2019, Page 54-56.
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  29.  6
    Responsibility Gaps and Black Box Healthcare AI: Shared Responsibilization as a Solution.Benjamin H. Lang, Sven Nyholm & Jennifer Blumenthal-Barby - 2023 - Digital Society 2 (3):52.
    As sophisticated artificial intelligence software becomes more ubiquitously and more intimately integrated within domains of traditionally human endeavor, many are raising questions over how responsibility (be it moral, legal, or causal) can be understood for an AI’s actions or influence on an outcome. So called “responsibility gaps” occur whenever there exists an apparent chasm in the ordinary attribution of moral blame or responsibility when an AI automates physical or cognitive labor otherwise performed by human beings and commits an error. Healthcare (...)
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  30.  36
    Truth be told: not all nudging is bullshit.Jennifer Blumenthal-Barby & Peter A. Ubel - 2018 - Journal of Medical Ethics 44 (8):547-547.
    > ‘The fact about himself that the bullshitter hides, on the other hand, is that the truth-values of his statements are of no central interest to him; what we are not to understand is that his intention is neither to report the truth nor conceal it. It is just this lack of connection to a concern with truth—this indifference to how things really are—that is the essence of bullshit.’1 > —Harry Frankfurt In his paper, Nudging, informed consent, and bullshit, William (...)
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  31.  20
    Hope and Optimism in Pediatric Deep Brain Stimulation: Key Stakeholder Perspectives.Natalie Dorfman, Lilly Snellman, Ynez Kerley, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A. Storch & Jennifer Blumenthal-Barby - 2023 - Neuroethics 16 (3):1-15.
    IntroductionDeep brain stimulation (DBS) is utilized to treat pediatric refractory dystonia and its use in pediatric patients is expected to grow. One important question concerns the impact of hope and unrealistic optimism on decision-making, especially in “last resort” intervention scenarios such as DBS for refractory conditions.ObjectiveThis study examined stakeholder experiences and perspectives on hope and unrealistic optimism in the context of decision-making about DBS for childhood dystonia and provides insights for clinicians seeking to implement effective communication strategies.Materials and MethodsSemi-structured interviews (...)
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  32.  39
    Placing and Evaluating Unproven Interventions Within a Clinical Ethical Taxonomy of Treatments for Ebola Virus Disease.Nathan G. Allen, Jennifer S. Blumenthal-Barby & Laurence B. McCullough - 2015 - American Journal of Bioethics 15 (4):50-53.
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  33. Biases and Heuristics That Subtly Shape Decisions.Jennifer Blumenthal-Barby - 2021 - In John D. Lantos (ed.), The ethics of shared decision making. New York, NY: Oxford University Press.
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  34.  22
    COVID-19 current controversies.Jennifer Blumenthal-Barby - 2020 - Journal of Medical Ethics 46 (7):419-420.
    This July 2020 issue of JME introduces a new section, “COVID-19 Current Controversies,” which will be a recurring section in each issue for the foreseeable future. This issue reflects on some of the most pressing ethical issues that have arisen roughly 6 months into the pandemic. Kathleen Liddell and colleagues examine important legal considerations at play in ventilator allocation decisions raised by the pandemic.1 They point out that ethics-based triage protocols that argue from the principle of “saving the most lives” (...)
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  35.  14
    How to get your article published as a JME feature article and why they matter for the field.Jennifer Blumenthal-Barby - 2019 - Journal of Medical Ethics 45 (12):755-756.
    I published my first article in the Journal of Medical Ethics back in 2007 as an newly minted PhD. It was a proud moment. I respected the JME as a journal where I had read some of the most tightly argued and challenging essays in the literature. They inspired me to specialise in medical ethics and rethink some of my fundamental positions on various topics. This has been the case since, and I am proud now to join the editorial team (...)
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  36.  13
    Looking back and looking forward.Jennifer Blumenthal-Barby - 2022 - Journal of Medical Ethics 48 (7):429-429.
    This July 2022 issue of the JME contains several articles addressing ethical issues related to COVID-19 as well as reproductive ethics—a timely topic, given the leaked U.S. Supreme Court document, anticipating the overturn of Roe v. Wade. On the COVID-19 front, original articles in this issue include an analysis of ethical issues related to sharing research samples and data between low/middle-income countries and high-income countries,1 a retrospective analysis of European scientific societies’ triage policies early in the pandemic,2 an assessment of (...)
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  37.  8
    Rethinking Theory in Bioethics.Jennifer Blumenthal-Barby - 2022 - Hastings Center Report 52 (4):44-45.
    This book review essay points to some of the more novel and controversial contributions of A Theory of Bioethics, by Joseph Millum and David DeGrazia (Cambridge University Press, 2021), such as their account of moral status. With a remarkable breadth of topics, the book is characterized by philosophical care and nuance and by spelling out the implications of the authors’ theorizing for real‐world, pressing questions, for instance, about the implications of Millum and DeGrazia's theoretical work on moral status for embryo (...)
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  38.  32
    Paid protection? Ethics of incentivised long-acting reversible contraception in adolescents with alcohol and other drug use.Tiana Won, Jennifer Blumenthal-Barby & Mariam Chacko - 2017 - Journal of Medical Ethics 43 (3):182-187.
    Pregnant adolescents have a higher risk of poor maternal and fetal outcomes, particularly in the setting of concomitant maternal alcohol and other drug (AOD) use. Despite numerous programmes aimed at reducing overall teen pregnancy rates and the recognition of AOD use as a risk factor for unintended pregnancy in adolescents, interventions targeting this specific group have been sparse. In adult drug-using women, financial incentives for contraception have been provided but are ethically controversial. This article explores whether a trial could ethically (...)
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  39.  13
    Paid protection? Ethics of incentivised long-acting reversible contraception in adolescents with alcohol and other drug use.Tiana Won, Jennifer Blumenthal-Barby & Mariam Chacko - 2017 - Journal of Medical Ethics 43 (3):182-187.
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