- Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.Dick L. Willems, Hanno L. Tan, Marieke T. Blom, Rens Veeken & Marieke A. R. Bak - 2021 - BMC Medical Ethics 22 (1):1-15.details
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Ethics review of big data research: What should stay and what should be reformed?Effy Vayena, Minerva Rivas Velarde, Mahsa Shabani, Gabrielle Samuel, Camille Nebeker, S. Matthew Liao, Peter Kleist, Walter Karlen, Jeff Kahn, Phoebe Friesen, Bobbie Farsides, Edward S. Dove, Alessandro Blasimme, Mark Sheehan, Marcello Ienca & Agata Ferretti - 2021 - BMC Medical Ethics 22 (1):1-13.details
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What can data trusts for health research learn from participatory governance in biobanks?Richard Milne, Annie Sorbie & Mary Dixon-Woods - forthcoming - Journal of Medical Ethics.details
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Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.Alex McKeown, Miranda Mourby, Paul Harrison, Sophie Walker, Mark Sheehan & Ilina Singh - 2021 - Science and Engineering Ethics 27 (1):1-21.details
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Data-driven research and healthcare: public trust, data governance and the NHS. [REVIEW]Charalampia Kerasidou & Angeliki Kerasidou - 2023 - BMC Medical Ethics 24 (1):1-9.details
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Before and beyond trust: reliance in medical AI.Charalampia Kerasidou, Angeliki Kerasidou, Monika Buscher & Stephen Wilkinson - 2021 - Journal of Medical Ethics 48 (11):852-856.details
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Ethical Considerations in Research with Genomic Data.Rachel Horton & Anneke Lucassen - 2022 - The New Bioethics 29 (1):37-51.details
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Trust and The Acquisition and Use of Public Health Information.Stephen Holland, Jamie Cawthra, Tamara Schloemer & Peter Schröder-Bäck - 2021 - Health Care Analysis 30 (1):1-17.details
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TREs are still not about trust.Mackenzie Graham, Richard Milne, Paige Fitzsimmons & Mark Sheehan - 2023 - Journal of Medical Ethics 49 (9):658-660.details
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Data for sale: trust, confidence and sharing health data with commercial companies.Mackenzie Graham - 2023 - Journal of Medical Ethics 49 (7):515-522.details
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Sharing precision medicine data with private industry: Outcomes of a citizens’ jury in Singapore.Annette Braunack-Mayer, Chris Degeling, Stacy Carter, Ainsley J. Newson, E. Shyong Tai, Vicki Xafis, G. Owen Schaefer, Andrew Lau, Serene Ong, Hui Jin Toh, Tamra Lysaght & Angela Ballantyne - 2022 - Big Data and Society 9 (1).details
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Towards trust-based governance of health data research.Marieke A. R. Bak, M. Corrette Ploem, Hanno L. Tan, M. T. Blom & Dick L. Willems - 2023 - Medicine, Health Care and Philosophy 26 (2):185-200.details
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