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Gabrielle Samuel [15]Gabrielle N. Samuel [4]Gabrielle Natalie Samuel [1]
  1.  27
    COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale.Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel & Tamar Sharon - 2020 - Journal of Bioethical Inquiry 17 (4):835-839.
    Mobile applications are increasingly regarded as important tools for an integrated strategy of infection containment in post-lockdown societies around the globe. This paper discusses a number of questions that should be addressed when assessing the ethical challenges of mobile applications for digital contact-tracing of COVID-19: Which safeguards should be designed in the technology? Who should access data? What is a legitimate role for “Big Tech” companies in the development and implementation of these systems? How should cultural and behavioural issues be (...)
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  2.  17
    Ethics Review of Big Data Research: What Should Stay and What Should Be Reformed?Effy Vayena, Minerva Rivas Velarde, Mahsa Shabani, Gabrielle Samuel, Camille Nebeker, S. Matthew Liao, Peter Kleist, Walter Karlen, Jeff Kahn, Phoebe Friesen, Bobbie Farsides, Edward S. Dove, Alessandro Blasimme, Mark Sheehan, Marcello Ienca & Agata Ferretti - 2021 - BMC Medical Ethics 22 (1):1-13.
    BackgroundEthics review is the process of assessing the ethics of research involving humans. The Ethics Review Committee is the key oversight mechanism designated to ensure ethics review. Whether or not this governance mechanism is still fit for purpose in the data-driven research context remains a debated issue among research ethics experts.Main textIn this article, we seek to address this issue in a twofold manner. First, we review the strengths and weaknesses of ERCs in ensuring ethical oversight. Second, we map these (...)
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  3.  15
    Public Trust and ‘Ethics Review’ as a Commodity: The Case of Genomics England Limited and the UK’s 100,000 Genomes Project. [REVIEW]Gabrielle Natalie Samuel & Bobbie Farsides - 2018 - Medicine, Health Care and Philosophy 21 (2):159-168.
    The UK Chief Medical Officer’s 2016 Annual Report, Generation Genome, focused on a vision to fully integrate genomics into all aspects of the UK’s National Health Service. This process of integration, which has now already begun, raises a wide range of social and ethical concerns, many of which were discussed in the final Chapter of the report. This paper explores how the UK’s 100,000 Genomes Project —the catalyst for Generation Genome, and for bringing genomics into the NHS—is negotiating these ethical (...)
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  4.  5
    Ecologies of public trust: The nhs covid-19 contact tracing app.Gabrielle Samuel, Frederica Lucivero, Stephanie Johnson & Heilien Diedericks - 2021 - Journal of Bioethical Inquiry 18 (4):595-608.
    In April 2020, close to the start of the first U.K. COVID-19 lockdown, the U.K. government announced the development of a COVID-19 contact tracing app, which was later trialled on the U.K. island, the Isle of Wight, in May/June 2020. United Kingdom surveys found general support for the development of such an app, which seemed strongly influenced by public trust. Institutions developing the app were called upon to fulfil the commitment to public trust by acting with trustworthiness. Such calls presuppose (...)
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  5.  9
    Towards a National Genomics Medicine Service: The Challenges Facing Clinical-Research Hybrid Practices and the Case of the 100 000 Genomes Project. [REVIEW]Sandi Dheensa, Gabrielle Samuel, Anneke M. Lucassen & Bobbie Farsides - 2018 - Journal of Medical Ethics 44 (6):397-403.
    Clinical practice and research are governed by distinct rules and regulations and have different approaches to, for example, consent and providing results. However, genomics is an example of where research and clinical practice have become codependent. The 100 000 genomes project is a hybrid venture where a person can obtain a clinical investigation only if he or she agrees to also participate in ongoing research—including research by industry and commercial companies. In this paper, which draws on 20 interviews with professional (...)
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  6.  2
    Sociology of Low Expectations: Recalibration as Innovation Work in Biomedicine.Clare Williams, Gabrielle Samuel & John Gardner - 2015 - Science, Technology, and Human Values 40 (6):998-1021.
    Social scientists have drawn attention to the role of hype and optimistic visions of the future in providing momentum to biomedical innovation projects by encouraging innovation alliances. In this article, we show how less optimistic, uncertain, and modest visions of the future can also provide innovation projects with momentum. Scholars have highlighted the need for clinicians to carefully manage the expectations of their prospective patients. Using the example of a pioneering clinical team providing deep brain stimulation to children and young (...)
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  7.  16
    The Ethics Ecosystem: Personal Ethics, Network Governance and Regulating Actors Governing the Use of Social Media Research Data.Gabrielle Samuel, Gemma E. Derrick & Thed van Leeuwen - 2019 - Minerva 57 (3):317-343.
    This paper examines the consequences of a culture of “personal ethics” when using new methodologies, such as the use of social media sites as a source of data for research. Using SM research as an example, this paper explores the practices of a number of actors and researchers within the “Ethics Ecosystem” which as a network governs ethically responsible research behaviour. In the case of SM research, the ethical use of this data is currently in dispute, as even though it (...)
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  8.  7
    The Evaluation Scale: Exploring Decisions About Societal Impact in Peer Review Panels.Gemma E. Derrick & Gabrielle N. Samuel - 2016 - Minerva 54 (1):75-97.
    Realising the societal gains from publicly funded health and medical research requires a model for a reflexive evaluation precedent for the societal impact of research. This research explores UK Research Excellence Framework evaluators’ values and opinions and assessing societal impact, prior to the assessment taking place. Specifically, we discuss the characteristics of two different impact assessment extremes – the “quality-focused” evaluation and “societal impact-focused” evaluation. We show the wide range of evaluator views about impact, and that these views could be (...)
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  9.  62
    Relative Values: Perspectives on a Neuroimaging Technology From Above and Within the Ethical Landscape.Gabrielle Samuel, Alan Cribb, John Owens & Clare Williams - 2016 - Journal of Bioethical Inquiry 13 (3):407-418.
    In this paper we contribute to “sociology in bioethics” and help clarify the range of ways sociological work can contribute to ethics scholarship. We do this using a case study of an innovative neurotechnology, functional magnetic resonance imaging, and its use to attempt to diagnose and communicate with severely brain-injured patients. We compare empirical data from interviews with relatives of patients who have a severe brain injury with perspectives from mainstream bioethics scholars. We use the notion of an “ethical landscape” (...)
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  10.  14
    “The Danger of Lurking”: Different Conceptualizations of “User Awareness” in Social Media Research.Gabrielle Samuel - 2017 - American Journal of Bioethics 17 (3):25-26.
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  11.  21
    Mixing Metaphors in Umbilical Cord Blood Transplantation.Gabrielle Samuel, Rachel Ankeny & Ian Kerridge - 2006 - American Journal of Bioethics 6 (6):58-59.
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  12.  37
    Direct-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure.Christopher F. C. Jordens, Ian H. Kerridge & Gabrielle N. Samuel - 2009 - American Journal of Bioethics 9 (6-7):13-15.
  13. For What It's Worth. Unearthing the Values Embedded in Digital Phenotyping for Mental Health.Gabrielle Samuel, Federica Lucivero, Anna Lavis & Rasmus Birk - 2021 - Big Data and Society 8 (2).
    Digital phenotyping for mental health is an emerging trend which uses digital data, derived from mobile applications, wearable technologies and digital sensors, to measure, track and predict the mental health of an individual. Digital phenotyping for mental health is a growing, but as yet underexamined, field. As we will show, the rapid growth of digital phenotyping for mental health raises crucial questions about the values that underpin and are reinforced by this technology, as well as regarding to whom it may (...)
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  14.  61
    Equity, Utility, and the Marketplace: Emerging Ethical Issues of Umbilical Cord Blood Banking in Australia. [REVIEW]Gabrielle N. Samuel & Ian H. Kerridge - 2007 - Journal of Bioethical Inquiry 4 (1):57-63.
    Over the past decade, umbilical cord blood (UCB) has routinely been used as a source of haematopoietic stem cells for allogeneic stem cell transplants in the treatment of a range of malignant and non-malignant conditions affecting children and adults. UCB banks are a necessary part of the UCB transplant program, but their establishment has raised a number of important scientific, ethical and political issues. This paper examines the scientific and clinical evidence that has provided the basis for the establishment of (...)
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  15.  19
    Perspectives on Achieving Institutional Trust in Personalized Medicine.Gabrielle Samuel & Sandi Dheensa - 2018 - American Journal of Bioethics 18 (4):39-41.
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  16.  2
    Investigative Genetic Genealogy: Can Collective Privacy and Solidarity Help?Gabrielle Samuel - 2021 - Journal of Medical Ethics 47 (12):796-797.
    In their article, de Groot et al respond to a call to bring investigative genetic genealogy i to the bioethical debate.1 They explore the extent to which the ethical approach used in the medical clinical genetics context can be helpful for conceptualising the ethical issues associated with IGG. They conclude that such an individual-based model, which revolves around notions of consent and privacy, has significant limitations in the IGG context. The authors call for a broader balancing of the benefits and (...)
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  17.  3
    Shifting Ethical Boundaries in Forensic Use of DNA.Barbara Prainsack & Gabrielle Samuel - 2019 - Jahrbuch für Wissenschaft Und Ethik 24 (1):155-172.
    In this paper we explore shifts in how the law and ethics allow European law enforcement officers to use forensic genetic technologies. We do so by reviewing three technologies, ‘traditional’ forensic DNA profiling, forensic DNA phenotyping and the searching of genetic genealogy databases. In particular, we discuss changes in how ethical boundaries have been placed around what is seen as an appropriate use of genetic technologies in European criminal justice systems. While the ‘type’ of DNA that law enforcement officers are (...)
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