BackgroundLimited research has been conducted on explanations and understandings of biobanking for future genomic research in African contexts with low literacy and limited healthcare access. We report on the findings of a sub-study on participant understanding embedded in a multi-disease community health screening and biobank platform study known as ‘Vukuzazi’ in rural KwaZulu-Natal, South Africa.MethodsSemi-structured interviews were conducted with research participants who had been invited to take part in the Vukuzazi study, including both participants and non-participants, and research staff that (...) worked on the study. The interviews were transcribed, and themes were identified from the interview transcripts, manually coded, and thematically analysed.ResultsThirty-nine individuals were interviewed. We found that the research team explained biobanking and future genomic research by describing how hereditary characteristics create similarities among individuals. However, recollection and understanding of this explanation seven months after participation was variable. The large volume of information about the Vukuzazi study objectives and procedures presented a challenge to participant recall. By the time of interviews, some participants recalled rudimentary facts about the genetic aspects of the study, but many expressed little to no interest in genetics and biobanking.ConclusionParticipant’s understanding of information related to genetics and biobanking provided during the consent process is affected by the volume of information as well as participant’s interest in the subject matter being discussed. We recommend that future studies undertaking biobanking and genomic research treat explanations of this kind of research to participants as an on-going process of communication between researchers, participants and the community and that explanatory imagery and video graphic storytelling should be incorporated into theses explanations as these have previously been found to facilitate understanding among those with low literacy levels. Studies should also avoid having broader research objectives as this can divert participant’s interest and therefore understanding of why their samples are being collected. (shrink)

This chapter contains sections titled: The Question of Violence in South Africa Albert Luthuli Nelson Mandela Steve Biko Conclusion.

The assassination of Martin Luther King Jr, 50 years ago on 04 April 1968, has been recalled in the United States with memorial services, conferences, public discussions and books. In contrast, the commemoration in 2017 of the death of Albert John Mvumbi Luthuli, 50 years ago on December 1967, passed almost unremarked. That is to our detriment. Yet, these two Christian fighters for freedom, in different contexts, did not only have much in common, but they also left remarkably similar (...) and equally inspiring legacies for South Africa, the United States and the world in the ways they lived their lives in complete faith commitment to ideals and ways of struggle that may guide us in the ongoing struggles to make the world a more just, peacable and humane place. For South African reflections on our ethical stance in the fierce, continuing struggles for justice, dignity and the authenticity of our democracy, I propose that these two leaders should be considered in tandem. We should learn from both. This article engages Martin Luther King Jr’s belief in the ‘inescapable network of mutuality’, applies it to the struggle for freedom in South Africa and explores the ways in which South Africans can embrace these ethical ideals in facing the challenges of post-liberation. (shrink)

Individuals, organizations, and institutions adopt prominent people as political symbols for a variety of reasons. They then produce conflicting memories and images of their chosen symbols. In this article we argue that multiple representations of celebrated public figures should not only be viewed in terms of a choice between "truths" and "lies." Using the case of Chief Albert Luthuli, the president of the African National Congress from 1952 to 1967, we show that secrets and silences about aspects of his (...) political life would make it difficult for anyone to establish the veracity of competing memories which have been produced around his name since his death in 1967. We argue that many "Luthulis" were produced for different purposes and at different times during this period. We therefore suggest that to understand the motives for the making of the various images of Luthuli we need to explore in some depth the contexts in which they were made. (shrink)

This article presents hospitality as a pivotal value in the context of increasing diversity that characterises the complex relations in which leadership emerges. After reviewing the concept of Otherness in philosophy, the notion of hospitality as developed by Richard Kearney in relation to his philosophy of religion is introduced. The case of Nobel Peace Prize Laureate Chief Albert Luthuli is then presented as a biographical leadership study from the African context to illustrate how hospitality as open response to radical (...) Otherness may inspire collaboration and foster positive change. The article then addresses ways in which the notions of hospitality and Otherness present new opportunities to leadership studies for responding to the relational challenges of the globalised world. Amidst an increased scholarly focus on relationality and the need for relational intelligence, globalisation routinely confronts leaders and their followers with radical Otherness. Through dialogue between theology, philosophy of religion and leadership studies and by presenting a case from the African context, the article offers in print what is called for in the global context, namely an open response to the alterity of the Other that enables collaboration amidst increasing diversity. CONTRIBUTION: Proceeding from a transdisciplinary engagement, the article illustrates that leadership studies stood to benefit from dialogue with theology and philosophy of religion, which offers ways of addressing the Otherness that characterise the globalised context of leadership. (shrink)

This paper engages an important debate going on in the literature regarding the efficacy of nonviolence in confronting unjust regimes. I will focus on the commentators who have claimed that nonviolence, if adhered to more resolutely, would have ended South African apartheid sooner. I will contrast them to Mandela’s account that both violence and nonviolence working in tandem were needed to bring a speedy and just resolution to South Africa’s crisis of racist governance. To consider South Africa an easy case (...) of nonviolence’s success (for example, as shown in A Force More Powerful), evades many important factors. Mandela was familiar with Gandhian nonviolence and explicitly rejected it. The ANC organized an armed faction and engaged in acts of sabotage, and over time widened the scope of violent acts condoned by their organization. South African security forces responded to nonviolent protest with extreme repression, which contradicts claims often made by nonviolent proponents that sticking to nonviolence will lessen the chances of extreme repression. And the suffering of the South African people, while perhaps dwarfed when compared to genocides in other countries, was extensive and profound. One cannot understand some aspects of the difficult aftermath of apartheid’s legacy without taking into account the high level of violence emanating from several parties to the conflict. Nevertheless, in this context of violence, a broad nonviolent campaign had many successes. (shrink)