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Ethical Endgames: Broad Consent for Narrow Interests; Open Consent for Closed Minds
Cambridge Quarterly of Healthcare Ethics 20 (4):572-583 (2011)
Abstract
The ongoing legal and bioethics debates on consent requirements for collecting, storing, and utilizing human biological material for purposes of basic and applied research—that is, genomic research biobanking—have already managed to pass through three ostensibly dissimilar stagesMy notes
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Citations of this work
In Defence of informed consent for health record research - why arguments from ‘easy rescue’, ‘no harm’ and ‘consent bias’ fail.Thomas Ploug - 2020 - BMC Medical Ethics 21 (1):1-13.
Biomedical Big Data: New Models of Control Over Access, Use and Governance.Alessandro Blasimme & Effy Vayena - 2017 - Journal of Bioethical Inquiry 14 (4):501-513.
Eliciting meta consent for future secondary research use of health data using a smartphone application - a proof of concept study in the Danish population.Thomas Ploug & Søren Holm - 2017 - BMC Medical Ethics 18 (1):51.
Equitable Access to Human Biological Resources in Developing Countries: Benefit Sharing Without Undue Inducement.Roger Scarlin Chennells - 2015 - Cham: Imprint: Springer.
Biobanks--When is Re-consent Necessary?K. S. Steinsbekk & B. Solberg - 2011 - Public Health Ethics 4 (3):236-250.
References found in this work
Life Itself: A Comprehensive Inquiry Into the Nature, Origin, and Fabrication of Life.Robert Rosen - 2005 - Complexity in Ecological Systems.
Broadening consent--and diluting ethics?B. Hofmann - 2009 - Journal of Medical Ethics 35 (2):125-129.
Coding and Consent: Moral Challenges of the Database Project in Iceland.Vilhjálmur Árnason - 2004 - Bioethics 18 (1):27-49.
High hopes and automatic escalators: a critique of some new arguments in bioethics.S. Holm & T. Takala - 2007 - Journal of Medical Ethics 33 (1):1-4.
Zen and the Art of Motorcycle Maintenance.Robert M. Pirsig - 1974 - Philosophy and Rhetoric 9 (4):267-270.
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