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When science offers salvation: patient advocacy and research ethics
New York: Oxford University Press (2001)
Abstract
"Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own.
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Citations of this work
Health Research Priority Setting: The Duties of Individual Funders.Leah Pierson & Joseph Millum - 2018 - American Journal of Bioethics 18 (11):6-17.
Enlisting the Experts: Experienced Research Participants in Study Planning.Rebecca Dresser - 2020 - American Journal of Bioethics 20 (5):20-22.
Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.Benjamin S. Wilfond & Kathryn M. Porter - 2020 - American Journal of Bioethics 20 (5):22-23.
Should Patient Groups Have the Power to Redirect How Their Samples Are Used?Eleanor T. Chung & Benjamin E. Berkman - 2019 - American Journal of Bioethics 19 (8):26-28.
Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations.Mary A. Ott & Amelia S. Knopf - 2019 - American Journal of Bioethics 19 (8):28-31.
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