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Should Patient Groups Have the Power to Redirect How Their Samples Are Used?
American Journal of Bioethics 19 (8):26-28 (2019)
Abstract
The authors of the target article briefly discuss the issue of “sample ownership” when scientists collaborate with citizen science partners (Wiggins and Wilbanks 2019). This is an important issue,...My notes
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References found in this work
The Rise of Citizen Science in Health and Biomedical Research.Andrea Wiggins & John Wilbanks - 2019 - American Journal of Bioethics 19 (8):3-14.
Research participation and the right to withdraw.Sarah J. L. Edwards - 2005 - Bioethics 19 (2):112–130.
Take Another Little Piece of My Heart: Regulating the Research Use of Human Biospecimens.Gail H. Javitt - 2013 - Journal of Law, Medicine and Ethics 41 (2):424-439.
Take Another Little Piece of My Heart1: Regulating the Research Use of Human Biospecimens.Gail H. Javitt - 2013 - Journal of Law, Medicine and Ethics 41 (2):424-439.
When science offers salvation: patient advocacy and research ethics.Rebecca Dresser - 2001 - New York: Oxford University Press.
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