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Sassy Molyneux [16]Sassy C. Molyneux [2]Sassy S. Molyneux [1]
  1.  11
    Deliberately Infecting Healthy Volunteers with Malaria Parasites: Perceptions and Experiences of Participants and Other Stakeholders in a Kenyan‐Based Malaria Infection Study.Irene Jao, Vicki Marsh, Primus Che Chi, Melissa Kapulu, Mainga Hamaluba, Sassy Molyneux, Philip Bejon & Dorcas Kamuya - 2020 - Bioethics 34 (8):819-832.
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  2.  36
    Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K Enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
    There is wide agreement that community engagement is important for many research types and settings, often including interaction with ‘representatives’ of communities. There is relatively little published experience of community engagement in international research settings, with available information focusing on Community Advisory Boards or Groups (CAB/CAGs), or variants of these, where CAB/G members often advise researchers on behalf of the communities they represent. In this paper we describe a network of community members (‘KEMRI Community Representatives’, or ‘KCRs’) linked to a (...)
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  3.  13
    Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast. [REVIEW]Sassy Molyneux, Stephen Mulupi, Lairumbi Mbaabu & Vicki Marsh - 2012 - BMC Medical Ethics 13 (1):13-.
    BackgroundThere is general consensus internationally that unfair distribution of the benefits of research is exploitative and should be avoided or reduced. However, what constitutes fair benefits, and the exact nature of the benefits and their mode of provision can be strongly contested. Empirical studies have the potential to contribute viewpoints and experiences to debates and guidelines, but few have been conducted. We conducted a study to support the development of guidelines on benefits and payments for studies conducted by the KEMRI-Wellcome (...)
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  4.  13
    ‘It is an Entrustment’: Broad Consent for Genomic Research and Biobanks in Sub‐Saharan Africa.Paulina Tindana, Sassy Molyneux, Susan Bull & Michael Parker - 2017 - Developing World Bioethics.
    In recent years, there has been an increase in the establishment of biobanks for genetic and genomic studies around the globe. One example of this is the Human Heredity and Health in Africa Initiative, which has established biobanks in the sub-region to facilitate future indigenous genomic studies. The concept of ‘broad consent’ has been proposed as a mechanism to enable potential research participants in biobanks to give permission for their samples to be used in future research studies. However, questions remain (...)
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  5.  59
    Consulting Communities on Feedback of Genetic Findings in International Health Research: Sharing Sickle Cell Disease and Carrier Information in Coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.
    International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on disclosing genetic findings in the context of research highlights the role of community consultation in understanding and balancing ethically important issues from participants’ perspectives, including social forms of benefit and harm, and the influence of access to care. To inform research practice locally, (...)
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  6.  52
    Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in K Enya.Dorcas M. Kamuya, Sally J. Theobald, Patrick K. Munywoki, Dorothy Koech, Wenzel P. Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):1-9.
    Fieldworkers (FWs) are community members employed by research teams to support access to participants, address language barriers, and advise on culturally appropriate research conduct. The critical role that FWs play in studies, and the range of practical and ethical dilemmas associated with their involvement, is increasingly recognised. In this paper, we draw on qualitative observation and interview data collected alongside a six month basic science study which involved a team of FWs regularly visiting 47 participating households in their homes. The (...)
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  7.  7
    “When They See Us, It’s Like They Have Seen the Benefits!”: Experiences of Study Benefits Negotiations in Community-Based Studies on the Kenyan Coast.Dorcas M. Kamuya, Vicki Marsh, Patricia Njuguna, Patrick Munywoki, Michael Parker & Sassy Molyneux - 2014 - BMC Medical Ethics 15 (1):90.
    Benefit sharing in health research has been the focus of international debates for many years, particularly in developing countries. Whilst increasing attention is being given to frameworks that can guide researchers to determine levels of benefits to participants, there is little empirical research from developing countries on the practical application of these frameworks, including in situations of extreme poverty and vulnerability. In addition, the voices of those who often negotiate and face issues related to benefits in practice - frontline researchers (...)
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  8.  21
    Community Members Employed on Research Projects Face Crucial, Often Under-Recognized, Ethical Dilemmas.Sassy Molyneux, Dorcas Kamuya & Vicki Marsh - 2010 - American Journal of Bioethics 10 (3):24-26.
  9.  38
    Working with C Ommunity H Ealth W Orkers as ‘ V Olunteers’ in a Vaccine Trial: Practical and Ethical Experiences and Implications.Vibian Angwenyi, Dorcas Kamuya, Dorothy Mwachiro, Vicki Marsh, Patricia Njuguna & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):38-47.
    Community engagement is increasingly emphasized in biomedical research, as a right in itself, and to strengthen ethical practice. We draw on interviews and observations to consider the practical and ethical implications of involving Community Health Workers (CHWs) as part of a community engagement strategy for a vaccine trial on the Kenyan Coast. CHWs were initially engaged as an important network to be informed about the trial. However over time, and in response to community advice, they became involved in trial information (...)
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  10.  39
    Field Workers at the Interface.Sassy Molyneux, Dorcas Kamuya, Philister Adhiambo Madiega, Tracey Chantler, Vibian Angwenyi & P. Wenzel Geissler - 2013 - Developing World Bioethics 13 (1).
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  11.  20
    What We Learned About Voluntariness and Consent: Incorporating “Background Situations” and Understanding Into Analyses.Dorcas Kamuya, Vicki Marsh & Sassy Molyneux - 2011 - American Journal of Bioethics 11 (8):31-33.
    The American Journal of Bioethics, Volume 11, Issue 8, Page 31-33, August 2011.
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  12.  14
    Research Involving Health Providers and Managers: Ethical Issues Faced by Researchers Conducting Diverse Health Policy and Systems Research in Kenya.Sassy Molyneux, Benjamin Tsofa, Edwine Barasa, Mary Muyoka Nyikuri, Evelyn Wanjiku Waweru, Catherine Goodman & Lucy Gilson - 2016 - Developing World Bioethics 16 (3):168-177.
    There is a growing interest in the ethics of Health Policy and Systems Research, and especially in areas that have particular ethical salience across HPSR. Hyder et al provide an initial framework to consider this, and call for more conceptual and empirical work. In this paper, we respond by examining the ethical issues that arose for researchers over the course of conducting three HPSR studies in Kenya in which health managers and providers were key participants. All three studies involved qualitative (...)
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  13.  20
    Who Should Decide About Children’s and Adolescents’ Participation in Health Research? The Views of Children and Adults in Rural Kenya.Vicki Marsh, Nancy Mwangome, Irene Jao, Katharine Wright, Sassy Molyneux & Alun Davies - 2019 - BMC Medical Ethics 20 (1):41.
    International research guidance has shifted towards an increasingly proactive inclusion of children and adolescents in health research in recognition of the need for more evidence-based treatment. Strong calls have been made for the active involvement of children and adolescents in developing research proposals and policies, including in decision-making about research participation. Much evidence and debate on this topic has focused on high-income settings, while the greatest health burdens and research gaps occur in low-middle income countries, highlighting the need to take (...)
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  14.  35
    Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast.M. Marsh Vicki, M. Kamuya Dorcas, M. Mlamba Albert, N. Williams Thomas & S. Molyneux Sassy - 2010 - BMC Medical Ethics (1):13-.
    Background: There is general consensus internationally that unfair distribution of the benefits of research is exploitative and should be avoided or reduced. However, what constitutes fair benefits, and the exact nature of the benefits and their mode of provision can be strongly contested. Empirical studies have the potential to contribute viewpoints and experiences to debates and guidelines, but few have been conducted. We conducted a study to support the development of guidelines on benefits and payments for studies conducted by the (...)
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  15.  14
    Clinical Trials Cannot Substitute for Health System Strengthening Initiatives or Specifically Designed Health Policy and Systems Research.Kwaku Poku Asante, Caroline Jones, Sodiomon Bienvenu Sirima & Sassy Molyneux - 2016 - American Journal of Bioethics 16 (6):24-26.
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  16.  29
    Feedback of Research Findings for Vaccine Trials: Experiences From Two Malaria Vaccine Trials Involving Healthy Children on the K Enyan C Oast.Caroline Gikonyo, Dorcas Kamuya, Bibi Mbete, Patricia Njuguna, Ally Olotu, Philip Bejon, Vicki Marsh & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):48-56.
    Internationally, calls for feedback of findings to be made an ‘ethical imperative’ or mandatory have been met with both strong support and opposition. Challenges include differences in issues by type of study and context, disentangling between aggregate and individual study results, and inadequate empirical evidence on which to draw. In this paper we present data from observations and interviews with key stakeholders involved in feeding back aggregate study findings for two Phase II malaria vaccine trials among children under the age (...)
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  17. The Ethical Implications of Verbal Autopsy: Responding to Emotional and Moral Distress.Sassy Molyneux, Marylene Wamukoya, Amek Nyaguara, Vicki Marsh & Alex Hinga - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundVerbal autopsy is a pragmatic approach for generating cause-of-death data in contexts without well-functioning civil registration and vital statistics systems. It has primarily been conducted in health and demographic surveillance systems in Africa and Asia. Although significant resources have been invested to develop the technical aspects of verbal autopsy, ethical issues have received little attention. We explored the benefits and burdens of verbal autopsy in HDSS settings and identified potential strategies to respond to the ethical issues identified.MethodsThis research was based (...)
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  18.  14
    Kenyan Health Stakeholder Views on Individual Consent, General Notification and Governance Processes for the Re-Use of Hospital Inpatient Data to Support Learning on Healthcare Systems.Daniel Mbuthia, Sassy Molyneux, Maureen Njue, Salim Mwalukore & Vicki Marsh - 2019 - BMC Medical Ethics 20 (1):3.
    Increasing adoption of electronic health records in hospitals provides new opportunities for patient data to support public health advances. Such learning healthcare models have generated ethical debate in high-income countries, including on the role of patient and public consent and engagement. Increasing use of electronic health records in low-middle income countries offers important potential to fast-track healthcare improvements in these settings, where a disproportionate burden of global morbidity occurs. Core ethical issues have been raised around the role and form of (...)
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  19.  2
    Ethical Practice in My Work: Community Health Workers’ Perspectives Using Photovoice in Wakiso District, Uganda.Elizabeth Ekirapa-Kiracho, Sassy Molyneux, Rawlance Ndejjo, Charles Ssemugabo & David Musoke - 2020 - BMC Medical Ethics 21 (1):1-10.
    BackgroundHealth service delivery should ensure ethical principles are observed at all levels of healthcare. Working towards this goal requires understanding the ethics-related priorities and concerns in the day-to-day activities among different health practitioners. These practitioners include community health workers who are involved in healthcare delivery in communities in many low-and middle-income countries such as Uganda. In this study, we used photovoice, an innovative community based participatory research method that uses photography, to examine CHWs' perspectives on ethical concerns in their work.MethodsWe (...)
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