Is it acceptable to contact an anonymous egg donor to facilitate diagnostic genetic testing for the donor-conceived child?
Journal of Medical Ethics 45 (6):357-360 (2019)
AbstractWe discuss a case where medically optimal investigations of health problems in a donor-conceived child would require their egg donor to participate in genetic testing. We argue that it would be justified to contact the egg donor to ask whether she would consider this, despite her indicating on a historical consent form that she did not wish to take part in future research and that she did not wish to be informed if she was found to be a carrier of a ‘harmful inherited condition’. We suggest that we cannot conjecture what her current answer might be if, by participating in clinical genetic testing, she might help reach a diagnosis for the donor-conceived child. At the point that she made choices regarding future contact, it was not yet evident that the interests of the donor-conceived child might be compromised by her answers, as it was not foreseen that the egg donor’s genome might one day have the potential to enable diagnosis for this child. Fertility consent forms tend to be conceptualised as representing incontrovertible historical boundaries, but we argue that rapid evolution in genomic practice means that consent in such cases is better seen as an ongoing and dynamic process. It cannot be possible to compel the donor to aid in the diagnosis of the donor-conceived child, but she should be given the opportunity to do so.
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Citations of this work
Contacting gamete donors to facilitate diagnostic genetic testing for the donor-conceived child: what are the rights and obligations of gamete donors in these cases? A response to Horton et al.Lucy Frith - 2020 - Journal of Medical Ethics 46 (3):220-222.
Medical ethics when moving towards non-anonymous gamete donation: the views of donors and recipients.Sandra Pinto da Silva, Cláudia de Freitas & Susana Silva - 2022 - Journal of Medical Ethics 48 (9):616-623.
Ethical Considerations in Research with Genomic Data.Rachel Horton & Anneke Lucassen - forthcoming - The New Bioethics:1-15.
Old consent and new developments: health professionals should ask and not presume.Rachel Horton, Angela Fenwick & Anneke M. Lucassen - 2020 - Journal of Medical Ethics 46 (6):412-413.
Clinical ethics and the duty of care.John McMillan - 2019 - Journal of Medical Ethics 45 (6):355-356.
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