Ethical Responsibility in Healing and Protecting the Families of the U.S. Public Health Service Syphilis Study in African American Men at Tuskegee: An Intergenerational Storytelling Approach

Ethics and Behavior 22 (6):475-481 (2012)
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Abstract

This essay is a reflection on how ethical violations continue to have an impact across generations within families of vulnerable populations that have experienced significant breaches in biomedical research. The focus is on the surviving family members of the United States Public Health Service Syphilis Study at Tuskegee (USPHS). Emphasis will be on responsible ethical practices in research and the use of an unique approach narrative storytelling to address the needs of family descendents who have been impacted by the USPHS Syphilis Study

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