What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics

Journal of Medical Ethics 29 (2):103-108 (2003)
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Abstract

Objective: Contemporary ethical accounts of the patient-provider relationship emphasise respect for patient autonomy and shared decision making. We sought to examine the relative influence of involvement in decisions, confidence and trust in providers, and treatment with respect and dignity on patients’ evaluations of their hospital care.Design: Cross-sectional survey.Setting: Fifty one hospitals in Massachusetts.Participants: Stratified random sample of adults discharged from a medical, surgical, or maternity hospitalisation between January and March, 1998. Twelve thousand six hundred and eighty survey recipients responded.Main outcome measure: Respondent would definitely be willing to recommend the hospital to family and friends.Results: In a logistic regression analysis, treatment with respect and dignity 3.4, 99% confidence interval 2.8 to 4.2) and confidence and trust in providers were more strongly associated with willingness to recommend than having enough involvement in decisions . Courtesy and availability of staff , continuity and transition , attention to physical comfort , and coordination of care were also significantly associated with willingness to recommend.Conclusions: Confidence and trust in providers and treatment with respect and dignity are more closely associated with patients’ overall evaluations of their hospitals than adequate involvement in decisions. These findings challenge a narrow emphasis on patient autonomy and shared decision making, while arguing for increased attention to trust and respect in ethical models of health care

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References found in this work

Principles of biomedical ethics.Tom L. Beauchamp - 1994 - New York: Oxford University Press. Edited by James F. Childress.
The Theory and Practice of Autonomy.Gerald Dworkin - 1988 - New York: Cambridge University Press.
Two concepts of liberty.Ronald Dworkin - 1991 - In Isaiah Berlin, Edna Ullmann-Margalit & Avishai Margalit (eds.), Isaiah Berlin: A Celebration. University of Chicago Press. pp. 100--109.
The Contributions of Sociology to Medical Ethics.Robert Zussman - 2000 - Hastings Center Report 30 (1):7.

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