Reliance on Advocacy is the Symptom Not the Disease

American Journal of Bioethics 23 (7):86-88 (2023)
  Copy   BIBTEX

Abstract

In their article, “Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care,” Halley et al. (2023) use three case examples to describe challenges patients with rar...

Categories

Keywords

Reprint years

DOI

10.1080/15265161.2023.2207540

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 91,503

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

My notes

Similar books and articles

Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.Meghan C. Halley, Colin M. E. Halverson, Holly K. Tabor & Aaron J. Goldenberg - 2023 - American Journal of Bioethics 23 (7):17-26.
The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease.Emily Bonkowski & Hadley Stevens Smith - 2023 - American Journal of Bioethics 23 (7):88-91.
Critiquing the Critique of Advocacy.Ari Neeman - 2023 - American Journal of Bioethics 23 (7):97-99.
Rare Disease, Advocacy, and Caregiver Burnout.Gretchen Agans - 2023 - American Journal of Bioethics 23 (7):91-94.
Does the Public Intellectual Have Intellectual Integrity?Linda MartÍn Alcoff - 2002 - Metaphilosophy 33 (5):521-534.
Does the Public Intellectual Have Intellectual Integrity?Linda Martín Alcoff - 2002 - Metaphilosophy 33 (5):521-534.
Who Is Responsible for Promoting Equity in Rare Disease Research?Matthew S. McCoy - 2023 - American Journal of Bioethics 23 (7):83-85.
Cómo hacer «advocacy» y no morir en el intento. Una mirada desde las ONG humanitarias.Víctor de Currea-Lugo - 2017 - Deusto Journal of Human Rights 5:73–85.
Cómo hacer «advocacy» y no morir en el intento. Una mirada desde las ONG humanitarias.Víctor de Currea-Lugo - 2008 - Yearbook of Humanitarian Action and Human Rights/Anuario de Acción Humanitaria y Derechos Humanos 5:73–85.
Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness.Susannah L. Rose - 2013 - Journal of Law, Medicine and Ethics 41 (3):680-687.
Patient Representation and Advocacy for Alzheimer Disease in Germany and Israel.Silke Schicktanz, Nitzan Rimon-Zarfaty, Aviad Raz & Karin Jongsma - 2018 - Journal of Bioethical Inquiry 15 (3):369-380.
Disease, Illness, and Ethics.Amnon Goldworth - 2005 - Cambridge Quarterly of Healthcare Ethics 14 (3):346-351.
The Role of Advocacy in Public Health Law.Micah L. Berman, Elizabeth Tobin-Tyler & Wendy E. Parmet - 2019 - Journal of Law, Medicine and Ethics 47 (S2):15-18.
Impact of Education on Student Nurses' Advocacy and Ethical Sensitivity.Demirören Nesime & Akın Belgin - 2022 - Nursing Ethics 29 (4):899-914.
Defining Patient Advocacy for the Context of Clinical Ethics Consultation: A Review of the Literature and Recommendations for Consultants. [REVIEW]Benjamin Wilfond, Denise Dudzinski, Taryn Lindhorst & Tracy Brazg - 2016 - Journal of Clinical Ethics 27 (2):176-184.

Analytics

Added to PP
2023-06-22

Downloads
11 (#1,129,170)

6 months
6 (#508,473)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

Add more references