Rare Disease, Advocacy, and Caregiver Burnout

American Journal of Bioethics 23 (7):91-94 (2023)
  Copy   BIBTEX

Abstract

We, in the rare disease community are grateful to Halley et al. (2023) for highlighting some of the long-overlooked barriers to care. As the parent of a non-ambulatory, teenage boy living with Duch...

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,990

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Reliance on Advocacy is the Symptom Not the Disease.Lynette Hammond Gerido - 2023 - American Journal of Bioethics 23 (7):86-88.
Critiquing the Critique of Advocacy.Ari Neeman - 2023 - American Journal of Bioethics 23 (7):97-99.

Analytics

Added to PP
2023-06-22

Downloads
20 (#760,018)

6 months
8 (#505,340)

Historical graph of downloads
How can I increase my downloads?