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  1. A Vision for Empirical ELSI along the R&D Pipeline.Ramya M. Rajagopalan, Julie Cakici & Cinnamon S. Bloss - forthcoming - AJOB Empirical Bioethics.
    In the 30 years since its inception under the auspices of the National Human Genome Research Institute (NHGRI), the field devoted to examining the ethical, legal and social implications (ELSI) of g...
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  • Getting It Right: How Public Engagement Might (and Might Not) Help Us Determine What Is Equitable in Genomics and Precision Medicine.Sara Chandros Hull, Lawrence C. Brody & Rene Sterling - 2023 - American Journal of Bioethics 23 (7):5-8.
    The timing of this special issue of AJOB probing whether public engagement (PE)1 might help achieve equity in genomics is no coincidence. While many issues discussed by the authors are not entirely...
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  • Epistemic justice, African values and feedback of findings in African genomics research.Cornelius Ewuoso, Ambroise Wonkam & Jantina de Vries - 2022 - Global Bioethics 33 (1):122-132.
    This article draws on key normative principles grounded in important values – solidarity, partiality and friendliness – in African philosophy to think critically and deeply about the ethical challenges around returning individual genetic research findings in African genomics research. Precisely, we propose that the normative implication of solidarity, partiality and friendliness is that returning findings should be considered as a gesture of goodwill to participants to the extent that it constitutes acting for their well-being. Concretely, the value of friendliness may (...)
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