‘Journeys’ in the Life-Writing of Adult-Child Dementia Caregivers

Journal of Medical Humanities 34 (3):385-397 (2013)
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Abstract

This article explores how Alzheimer’s disease caregivers struggle under the impact of a parent’s memory loss on their own personality. In particular, it analyses how caregivers perceive and, thus, present their experiences of the ever intensifying caregiving activity in terms of a ‘journey’. In doing so, this work takes into account both the patient’s continuing bodily as well as cognitive decline and its intricately linked influence on the caregiver’s physical and emotional stability. Equally, this study investigates how caregivers portray memory loss, and how their portrayal fits into our conceptualisation of illness narratives and the culture of autobiographical writing

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The wounded storyteller: body, illness, and ethics.Arthur W. Frank - 1995 - Chicago: University of Chicago Press.
The Body in Pain: The Making and Unmaking of the World.Elaine Scarry - 1985 - New York: Oxford University Press USA.

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