Autism, autonomy, and authenticity

Medicine, Health Care and Philosophy 23 (1):73-80 (2020)
  Copy   BIBTEX

Abstract

Autonomy of people on the autism-spectrum has only been very rarely conceptually explored. Autism spectrum is commonly considered a hetereogenous disorder, and typically described as a behaviorally-defined neurodevelopmental disorder associated with the presence of social-communication deficits and restricted and repetitive behaviors. Autism research mainly focuses on the behavior of autistic people and ways to teach them skills that are in line with social norms. Interventions such as therapies are being justified with the assumption that autists lack the capacity to be self-reflective and to be “author of their lives”. We question this assumption, as some empirical research shows that autists are aware of their strengths and are critical about social norms, we take this as a starting point to reconsider the beliefs about autistic people’s capacities. As a theoretical framework, we draw on Berlin’s idea of positive and negative liberty as he clearly distinguishes between one’s own developed preferences and the simple absence of interference. By drawing on the concept of positive liberty, we illustrate that a lot of autists are aware of their own needs, and usually do not deny their own needs, values and interests. This makes them less prone than non-autistic people to adapt their preferences to external influences, which might be seen as sticking to an authentic way of living. Our analysis shows that many autists are hindered to be autonomous due to unjustified interference, unreflected assumptions about their self-determination, or by paternalistic actions. These observations contribute to a better understanding when help and interference are justified and a more differentiated understanding of autonomy of autistic people.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 91,440

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Authenticity and autonomy in deep-brain stimulation.Alistair Wardrope - 2014 - Journal of Medical Ethics 40 (8):563-566.
Authenticity naturalized.Bruce N. Waller - 1995 - Behavior and Philosophy 23 (1):21 - 28.
Respect for Autonomy and Authenticity.Guus Timmerman - 2010 - Ethical Perspectives 17 (2):309-341.
Individual Autonomy and Authenticity.Insoo Hyun - 1999 - Dissertation, Brown University
Agency and authenticity: Which value grounds patient choice?Daniel Brudney & John Lantos - 2011 - Theoretical Medicine and Bioethics 32 (4):217-227.
Protecting autonomy as authenticity using Ulysses contracts.Theo Van Willigenburg & Patrick Delaere - 2005 - Journal of Medicine and Philosophy 30 (4):395 – 409.
Deep Brain Stimulation, Authenticity and Value.Pugh Jonathan, Maslen Hannah & Savulescu Julian - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (4):640-657.
The Paradox of Authenticity.Somogy Varga - 2011 - Telos: Critical Theory of the Contemporary 2011 (156):113-130.
Authenticity as a normative category.Alessandro Ferrara - 1997 - Philosophy and Social Criticism 23 (3):77-92.

Analytics

Added to PP
2019-06-06

Downloads
39 (#401,270)

6 months
4 (#793,623)

Historical graph of downloads
How can I increase my downloads?