Journal of Bioethical Inquiry 4 (1):43-49 (2007)
AbstractWhakapapa is the foundation of traditional Māori social structure and it perpetuates a value base that locates people through their relationships to the physical and spiritual worlds. As part of a new envirogenomics research programme, researchers at the Institute of Environmental Science and Research (ESR) are developing a study with an iwi (tribe) to identify combinations of genetic and environmental factors that may contribute to current health status. A major objective of this study is to utilise whakapapa (genealogical information) to explore patterns of genetic variation unique to the iwi and to correlate these with potential disease or ill health. Genetic testing and screening raises numerous ethical issues, particularly when indigenous peoples are the subjects. This paper will outline ESR’s strategy for addressing indigenous concerns about genetic testing and how whakapapa forms an integral part of the envirogenomics research programme.
Similar books and articles
Familial Communication of Research Results: A Need to Know?Lee Black & Kelly A. McClellan - 2011 - Journal of Law, Medicine and Ethics 39 (4):605-613.
The nature and significance of behavioural genetic information.Ainsley Newson - 2004 - Theoretical Medicine and Bioethics 25 (2):89-111.
Genetic prediction: What are the limits?M. O. - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):619-633.
The use of genetic test information in insurance: The argument from indistinguishability reconsidered.V. Launis - 2000 - Science and Engineering Ethics 6 (3):299-310.
The adequacy of informed consent forms in genetic research in Oman: A pilot study.Asya Al-Riyami, Deepali Jaju, Sanjay Jaju & Henry J. Silverman - 2011 - Developing World Bioethics 11 (2):57-62.
How distinctive is genetic information?M. Richards - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):663-687.
Public policy implications of human genetic technology: Genetic screening.Robert H. Blank - 1982 - Journal of Medicine and Philosophy 7 (4):355-374.
Added to PP
Historical graph of downloads
Citations of this work
The treaty of waitangi and research ethics in aotearoa.Maui L. Hudson & Khyla Russell - 2009 - Journal of Bioethical Inquiry 6 (1):61-68.
Genetic research and Aboriginal and Torres Strait Islander Australians.Emma Kowal, Glenn Pearson, Chris S. Peacock, Sarra E. Jamieson & Jenefer M. Blackwell - 2012 - Journal of Bioethical Inquiry 9 (4):419-432.