23 found
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  1.  34
    Ethics Consultation in Pediatrics: Long-Term Experience From a Pediatric Oncology Center.Liza-Marie Johnson, Christopher L. Church, Monika Metzger & Justin N. Baker - 2015 - American Journal of Bioethics 15 (5):3-17.
    There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the physician's fiduciary responsibility to the patient. Nonpatient consultations provided guidance (...)
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  2.  3
    Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):102-103.
    Volume 20, Issue 4, May 2020, Page 102-103.
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  3.  5
    Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (10):82-83.
    Volume 20, Issue 10, October 2020, Page 82-83.
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  4.  5
    A Pragmatic Trial of Suicide Risk Assessment and Ambulance Transport Decision Making Among Emergency Medical Services Providers: Implications for Patient Consent.Liza-Marie Johnson, Jennifer Zabrowski & Benjamin S. Wilfond - 2019 - American Journal of Bioethics 19 (10):97-98.
    Volume 19, Issue 10, October 2019, Page 97-98.
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  5.  4
    Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (10):90-91.
    Volume 20, Issue 10, October 2020, Page 90-91.
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  6.  5
    Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (4):111-113.
    Volume 20, Issue 4, May 2020, Page 111-113.
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  7.  5
    When Professional Meets Personal: How Should Research Staff Advertise on Social Media for Research Opportunities?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2021 - American Journal of Bioethics 21 (10):38-39.
    As part of the regulatory review process, both the Food and Drug Administration and Office for Human Research Protections (U.S. Department of Health and Human Services [HHS]...
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  8.  10
    Should Research Participants Be Notified About Results of Currently Unknown but Potential Significance?Liza-Marie Johnson, Jennifer Zabrowski & Benjamin S. Wilfond - 2019 - American Journal of Bioethics 19 (4):73-74.
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  9.  9
    Mitigating Challenges in Dual-Role Consent: Honoring Patient Preferences to Discuss Research Participation With Someone They Know.Akshay Sharma & Liza-Marie Johnson - 2019 - American Journal of Bioethics 19 (4):30-32.
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  10.  10
    Germline Gene Editing for Sickle Cell Disease.Akshay Sharma, Nickhill Bhakta & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (8):46-49.
    Volume 20, Issue 8, August 2020, Page 46-49.
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  11.  3
    Should Poor Social Support Be an Exclusion Criterion in Bone Marrow Transplantation?Liza-Marie Johnson & Akshay Sharma - 2019 - American Journal of Bioethics 19 (11):39-41.
    Volume 19, Issue 11, November 2019, Page 39-41.
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  12. Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2022 - American Journal of Bioethics 22 (4):81-82.
    For many rare diseases, the availability of effective interventions is limited or non-existent. In this context, clinical research evaluating emerging interventions may be the only potentially “the...
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  13.  7
    The Need for Improved Access to Mental Health Services for Youth With Medically Unexplained Symptoms.Kristin Canavera, Jennifer Allen & Liza-Marie Johnson - 2018 - American Journal of Bioethics 18 (5):29-31.
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  14.  1
    Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2021 - American Journal of Bioethics 21 (4):98-99.
    As medicine and science advance, new ethical questions emerge. Over time, deliberation and analysis result in a somewhat settled approach to a problem. Often the settled approach is based on group...
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  15.  3
    Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk.Akshay Sharma & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):106-108.
    Volume 20, Issue 4, May 2020, Page 106-108.
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  16.  11
    Beyond Parenting: The Responsibility of Multidisciplinary Health Care Providers in Early Intervention Policy Guidance.Kristin Canavera, Liza-Marie Johnson & Jennifer Harman - 2018 - American Journal of Bioethics 18 (11):58-60.
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  17.  28
    Clinically Significant? Depends on Whom You Ask.Liza-Marie Johnson, Christopher L. Church, Michael F. Walsh & Justin N. Baker - 2012 - American Journal of Bioethics 12 (10):18-20.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 18-20, October 2012.
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  18.  21
    Recruiting Children for Clinical Trials: Lessons From Pediatric Oncology.Liza-Marie Johnson & Yoram Unguru - 2015 - American Journal of Bioethics 15 (11):24-26.
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  19.  8
    Informed Consent Conversations: Neither the Beginning nor the End.Liza-Marie Johnson & Barclay R. Rogers - 2021 - American Journal of Bioethics 21 (5):76-78.
    Informed Consent: What Must Be Disclosed and What Must Be Understood seeks to challenge the “standard view” of consent. It seeks to do so by segregating the “disclosure function” from the “understa...
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  20.  15
    A Randomized Trial of Rapamycin to Increase Longevity and Healthspan in Companion Animals: Navigating the Boundary Between Protections for Animal Research and Human Subjects Research.Holly A. Taylor, Christian Morales, Liza-Marie Johnson & Benjamin S. Wilfond - 2018 - American Journal of Bioethics 18 (10):58-59.
  21.  11
    Ethical Considerations for Unblinding a Participant’s Assignment to Interpret a Resolved Adverse Event.Benjamin S. Wilfond, Christian Morales, Liza-Marie Johnson & Holly A. Taylor - 2018 - American Journal of Bioethics 18 (10):66-67.
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  22.  5
    Clearing Muddy Waters: The Need to Reconceptualize Minor Increase Over Minimal Risk in Pediatric Rare Disease Research.Devan M. Duenas, Benjamin S. Wilfond & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):8-10.
    Volume 20, Issue 4, May 2020, Page 8-10.
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  23.  1
    Supporting Community-Academic Research Partnerships: Reflections From the Ground.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2021 - American Journal of Bioethics 21 (10):44-45.
    Currently, there is consensus that community engagement and partnerships are essential to inclusive patient-centered clinical research. Yet there is variation about what it means to do this well an...
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