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  1. How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.Harald Schmidt & Shawneequa Callier - 2012 - Journal of Medical Ethics 38 (5):304-309.
    So-called ‘anonymous’ tissue samples are widely used in research. Because they lack externally identifying information, they are viewed as useful in reconciling conflicts between the control, privacy and confidentiality interests of those from whom the samples originated and the public (or commercial) interest in carrying out research, as reflected in ‘consent or anonymise’ policies. High level guidance documents suggest that withdrawal of consent and samples and the provision of feedback are impossible in the case of anonymous samples. In view of (...)
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  • Deidentification and Its Discontents: Response to the Open Peer Commentaries.Mark A. Rothstein - 2010 - American Journal of Bioethics 10 (9):W1-W2.
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  • De Minimis Risk: A Proposal for a New Category of Research Risk.Rosamond Rhodes - 2011 - American Journal of Bioethics 11 (11):1-7.
    In this article the authors reflect on regulations which have been developed to protect research subjects and data in research which uses human subjects. They suggest that regulations related to informed consent and privacy protection are burdensome in research which uses human subjects. They argue that a new category of research risk must be established which informs research subjects of the level of risk that they will be exposed to by participating in the research.
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  • Urge Overkill: Protecting Deidentified Human Subjects at What Price?Misha Angrist - 2010 - American Journal of Bioethics 10 (9):17-18.