Joan Tronto defines care by three activities: maintaining, continuing, and repairing. These activities give care a maintenance quality, which is problematic given that caring often takes place within contexts of inequality and domination. Empirical research with paid support staff and people with intellectual and developmental disabilities (IDD) illustrate these problems: care practices tend to reinforce the social exclusion of people with IDD, particularly for people with challenging behavior. Yet, support workers’ care practices can facilitate a better quality of life for (...) people with IDD. This improved style of support maps onto Tronto’s fifth phase of care, caring with, which hinges practices of care on democratic principles of justice, equality, and freedom. As such, democratic care requires activities that Tronto excludes from care, including creativity, disruption, and pleasure. I use empirical research from the field of IDD to show how support workers and people with IDD practice creative, disruptive, and playful care to challenge persistent forms of exclusion, inequality, and stigma. (shrink)

This paper discusses the different, often competing, even conflicting, truth-claims that are heard around the personal narratives of marginalized, stigmatized and culturally muted people?in this case people with intellectual disabilities. Since people with intellectual disabilities began speaking up in the 1980s, tensions have emerged as to whose voice is authentic, whose story can be believed. This matters because we see the consequences of failure to believe those stories in scandals of abuse in settings, such as Winterbourne View (England) in 2011. (...) The article looks to ethical theory to help understand what lies behind the failure to believe, and argues that researchers who seek to facilitate the articulation of the voices of the powerless, need to be aware of the ethical groundings of competing truth claims. My personal background for doing this is over 40 years of professional engagement in the field of special education and social work with people with learning disabilities. During most of these years, I have been actively engaged as a supporter and partner in the movements of self-advocacy and self-organization by people with intellectual disabilities. (shrink)