Background: Clinical genomic implementation studies pose challenges for informed consent. Consent forms often include complex language and concepts, which can be a barrier to diverse enrollment, and these studies often blur traditional research-clinical boundaries. There is a move toward self-directed, web-based research enrollment, but more evidence is needed about how these enrollment approaches work in practice. In this study, we developed and evaluated a literacy-focused, web-based consent approach to support enrollment of diverse participants in an ongoing clinical genomic implementation study. (...) Methods: As part of the Cancer Health Assessments Reaching Many (CHARM) study, we developed a web-based consent approach that featured plain language, multimedia, and separate descriptions of clinical care and research activities. CHARM offered clinical exome sequencing to individuals at high risk of hereditary cancer. We interviewed CHARM participants about their reactions to the consent approach. We audio recorded, transcribed, and coded interviews using a deductively and inductively derived codebook. We reviewed coded excerpts as a team to identify overarching themes. Results: We conducted 32 interviews, including 12 (38%) in Spanish. Most (69%) enrolled without assistance from study staff, usually on a mobile phone. Those who completed enrollment in one day spent an average of 12 minutes on the consent portion. Interviewees found the information simple to read but comprehensive, were neutral to positive about the multimedia support, and identified increased access to testing in the study as the key difference from clinical care. Conclusions: This study showed that interviewees found our literacy-focused, web-based consent approach acceptable; did not distinguish the consent materials from other online study processes; and valued getting access to testing in the study. Overall, conducting empirical bioethics research in an ongoing clinical trial was useful to demonstrate the acceptability of our novel consent approach but posed practical challenges. (shrink)

Esta apresentação tem como objetivo iniciar a reflexão, no contexto teórico da Ciência da Informação, dos questionamentos que possam surgir e as possibilidades teóricas para responder tais questionamentos em relação à Inteligência Artificial aplicada à fotografia. A metodologia utilizada nesse estudo foi o levantamento bibliográfico sobre fotografia e IA nas áreas que dialogam de forma interdisciplinar com a Ciência da Informação, bem como o retorno às teorias de Vilén Flusser como aporte para possíveis interpretações favoráveis ao debate conceitual aqui proposto.

Ludwig Wittgenstein apreciava as cores a ponto de utiliza-las para ilustrar o poder das proposições e seus limites, bem como criando jogos de linguagem relacionados às cores. A complexidade das proposições relacionadas às cores possibilita pensar a subjetividade de reprodução em meio digital das cores. COLORS IN WITTGENSTEIN: FROM PHENOMENOLOGY TO THE LANGUAGES GAMES AND THEDIGITAL PHOTOGRAPHYAbstractLudwig Wittgenstein liked the colors as to use them to illustrate the power of propositions and their limits, and creating language games related to colors. (...) The complexity of the proposals related to the colors enables think subjectivity of the theirs capture in digital image mediun. (shrink)

Esta apresentação deriva do projeto de pesquisa “A dimensão Iconológica segundo Aby Warburg: uma proposta de descrição contextual de fotografias (2020 – 2022)” e tem como principal objetivo traçar caminhos para responder a uma questão que pode contribuir para o desenvolvimento de formas descritivas contextuais: É possível uma distinção entre os conceitos de ilustrar e informar em fotografias? A proposta do artigo é apresentar caminhos para definições desses importantes conceitos para a descrição de fotografias. Baseia-se na leitura de teóricos como (...) Vilém Flusser e André Rouillé. (shrink)