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  1. Cultural Challenges to Biotechnology: Native American Genetic Resources and the Concept of Cultural Harm.Rebecca Tsosie - 2007 - Journal of Law, Medicine and Ethics 35 (3):396-411.
    This article examines the intercultural context of issues related to genetic research on Native peoples. In particular, the article probes the disconnect between Western and indigenous concepts of property, ownership, and privacy, and examines the harms to Native peoples that may arise from unauthorized uses of blood and tissue samples or the information derived from such samples. The article concludes that existing legal and ethical frameworks are inadequate to address Native peoples' rights to their genetic resources and suggests an intercultural (...)
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  • Cultural Challenges to Biotechnology: Native American Genetic Resources and the Concept of Cultural Harm.Rebecca Tsosie - 2007 - Journal of Law, Medicine and Ethics 35 (3):396-411.
    Our society currently faces many complex and perplexing issues related to biotechnology, including the need to define the outer boundaries of genetic research on human beings and the need to protect individual and group rights to human tissue and the knowledge gained from the study of that tissue. Scientists have increasingly become interested in studying so-called “population isolates” to discover the nature and location of genes that are unique to particular groups. Indigenous peoples are often targeted by scientists because “the (...)
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  • Health Research Priority Setting: The Duties of Individual Funders.Leah Pierson & Joseph Millum - 2018 - American Journal of Bioethics 18 (11):6-17.
    The vast majority of health research resources are used to study conditions that affect a small, advantaged portion of the global population. This distribution has been widely criticized as inequitable and threatens to exacerbate health disparities. However, there has been little systematic work on what individual health research funders ought to do in response. In this article, we analyze the general and special duties of research funders to the different populations that might benefit from health research. We assess how these (...)
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