Towards self-determination in quality of life research: a dialogic approach

Medicine, Health Care and Philosophy 13 (1):67-76 (2010)
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Abstract

Health-related quality of life measures aim to assess patients’ subjective experience in order to gauge an increasingly wide variety of health care issues such as patient needs; satisfaction; side effects; quality of care; disease progression and cost effectiveness. Their popularity is undoubtedly due to a larger initiative to provide patient-centered care. The use of patient perspectives to guide health care improvements and spending is rooted in the idea that we must respect patients as self-determining agents. In this paper I look at the two main orientations to quality of life measurement: standardized and individualized measures. I argue that while these measures are attempts to provide for patient self-determination, they both fail to do so. In their place I suggest a new approach which overcomes their respective difficulties: a dialogic approach

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Citations of this work

A theoretical framework for patient-reported outcome measures.Leah McClimans - 2010 - Theoretical Medicine and Bioethics 31 (3):225-240.
The Role of Measurement in Establishing Evidence.L. McClimans - 2013 - Journal of Medicine and Philosophy 38 (5):520-538.
Quality of life is a process not an outcome.Leah McClimans & John P. Browne - 2012 - Theoretical Medicine and Bioethics 33 (4):279-292.
Choosing a patient-reported outcome measure.Leah M. McClimans & John Browne - 2011 - Theoretical Medicine and Bioethics 32 (1):47-60.

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References found in this work

Truth and Method.H. G. Gadamer - 1975 - Journal of Aesthetics and Art Criticism 36 (4):487-490.
Autonomy and Trust in Bioethics.Onora O'Neill - 2002 - New York: Cambridge University Press.

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