Alexandra C. Kirsch, Michael J. Zaccariello, Jennifer B. McCormick, Richard R. Sharp, Randall P. Flick & David O. Warner
Ethics and Behavior 31 (6):381-394 (2021)
Abstract |
ABSTRACT There is limited guidance about whether and how to provide psychological assessment results to research participants. This paper considers several ethical challenges associated with offering individual research results in psychological assessment research. Additionally, the process used to return individual results within a study examining neurodevelopmental effects of anesthesia exposure in children and adolescents is described. Almost all participants requested to know if results were concerning; however, only around a third of those with concerning findings sought additional feedback. Ongoing research and guidance are necessary to establish evidence-based practices and manage challenges that may emerge when disclosing such results.
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DOI | 10.1080/10508422.2020.1799793 |
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References found in this work BETA
Amnestic MCI Patients’ Perspectives Toward Disclosure of Amyloid PET Results in a Research Context.Gwendolien Vanderschaeghe, Jolien Schaeverbeke, Rik Vandenberghe & Kris Dierickx - 2017 - Neuroethics 10 (2):281-297.
Utilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical Trial.Sandeep Kadimpati, Jennifer B. McCormick, Yichen Chiu, Ashley B. Parker, Aliya Z. Iftikhar, Randall P. Flick & David O. Warner - 2014 - AJOB Empirical Bioethics 5 (3):31-38.
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