Abstract

Direct-to-consumer personal genetic profiling services that claim to predict people’s individual disease risks may promise a new era of ‘personalised healthcare’, but a report from the Nuffield Council on Bioethics has found that the results are often inconclusive and more evidence should be provided by the companies who sell them. In September 2008, the Council established a Working Party, which I chaired, to consider the ethical issues raised by developments in medical profiling and online medicine. One of our primary tasks was to investigate the burgeoning market for personal genetic profiling services. Two years on, the Council has published its findings. The resulting report2 raises a number of concerns about personal genetic profiling services and puts forward a series of policy recommendations to address these concerns