An object-based activity—science and culture story box—was designed, developed, and used to explore young people’s views about cultural knowledge and scientific knowledge. In informal education spaces, culture is often presented via representations of easily observable features of ethnicity such as music or dress. The development and application of knowledge in culturally diverse communities can be difficult to visualize and is rarely presented. Instead, Western science often dominates as the authoritative, valid, systematic, and useful way of thinking. Conversations about science and (...) culture can create a platform for meaningful dialogue and valuing of a variety of cultures and different funds of knowledge. Using an informal science education lens, we interrogated young people’s views about different knowledge systems. Six cohorts of Western Australian young people participated in the study. The activity involved groups of three to four young people assigning seventeen photographs of objects and or processes onto a Venn diagram of scientific knowledge, cultural knowledge, or both. Photographs were taken of the forty-four resulting Venn diagrams showing association of items with knowledge domain. This was quantified to show the number of times an item was associated with scientific knowledge, cultural knowledge, or both. Group discussions were audio recorded and transcribed. Thematic analysis of discussions and associations of items to knowledge domain revealed intriguing themes and perspectives. Young people in this study associated technology with electronic devices and scientific knowledge but not with cultural knowledge. Young people expressed views that culture was old and basic and science was new and progressive. Other impressions expressed were that cultures do not “do” science and that skin color determines culture. No clear or consistent conception emerged of Australian culture. These young people’s perspectives are discussed within the context of meaningful intercultural understanding in multicultural societies. This activity was developed as a research tool for use with young people in a multicultural society to examine views of different funds of knowledge. We propose further development and directed use of the story box in informal education spaces as a process to stimulate conversations that might enhance intercultural understanding and appreciation of multiple ways of knowing. (shrink)

BackgroundObtaining consent has become a standard way of respecting the patient’s rights and autonomy in clinical research. Ethical guidelines recommend that the child’s parent/s or authorised legal guardian provides informed consent for their child’s participation. However, obtaining informed consent in paediatric research is challenging. Parents become vulnerable because of stress related to their child’s illness. Understanding the views held by guardians and researchers about the consent process in Malawi, where there are limitations in health care access and research literacy will (...) assist in developing appropriate consent guidelines.MethodsWe conducted 20 in-depth interviews with guardians of children and research staff who had participated in paediatric clinical trial and observational studies in acute and non-acute settings in the Southern Region of Malawi. Interviews were audio-recorded, transcribed verbatim, and thematically analysed. Interviews were compared across studies and settings to identify differences and similarities in participants’ views about informed consent processes. Data analysis was facilitated by NVIVO 11 software.ResultsAll participants across study types and settings reported that they associated participating in research with therapeutic benefits. Substantial differences were noted in the decision-making process across study settings. Guardians from acute studies felt that the role of their spouses was neglected during consenting, while staff reported that they had problems obtaining consent from guardians when their partners were not present. Across all study types and settings, research staff reported that they emphasised the benefits more than the risks of the study to participants, due to pressure to recruit. Participants from non-acute settings were more likely to recall information shared during the consent process than participants in the acute setting.ConclusionThe health care context, culture and research process influenced participants’ understanding of study information across study types and settings. We advise research managers or principal investigators to define minimum requirements that would not compromise the consent process and conduct study specific training for staff. The use of one size fits all consent process may not be ideal. More guidance is needed on how these differences can be incorporated during the consent process to improve understanding and delivery of consent.Trial registration Not applicable. (shrink)