American Journal of Bioethics 3 (3):35-42 (2003)

Abstract
Progress in gene sequencing could make rapid whole genome sequencing of individuals affordable to millions of persons and useful for many purposes in a future era of genomic medicine. Using the idea of $1000 genome as a focus, this article reviews the main technical, ethical, and legal issues that must be resolved to make mass genotyping of individuals cost-effective and ethically acceptable. It presents the case for individual ownership of a person's genome and its information, and shows the implications of that position for rights to informed consent and privacy over sequencing, testing, and disclosing genomic information about identifiable individuals. Legal recognition of a person's right to control his or her genome and the information that it contains is essential for further progress in applying genomic discoveries to human lives
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1162/152651603322874762
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,259
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Cracking the Genome: Inside the Race to Unlock Human DNA.Kevin Davies - 2003 - Journal of the History of Biology 36 (3):627-629.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Personal Genomes: No Bad News?Ruth Chadwick - 2011 - Bioethics 25 (2):62-65.
Privacy and the Human Genome Project.David L. Wiesenthal & Neil I. Wiener - 1996 - Ethics and Behavior 6 (3):189 – 202.
The Human Genome Project and the Social Contract: A Law Policy Approach.Christian Byk - 1992 - Journal of Medicine and Philosophy 17 (4):371-380.

Analytics

Added to PP index
2010-09-14

Total views
34 ( #337,272 of 2,518,711 )

Recent downloads (6 months)
1 ( #408,070 of 2,518,711 )

How can I increase my downloads?

Downloads

My notes