The dangerous use of genetic information

Journal of Information, Communication and Ethics in Society 21 (4):533-549 (2023)
  Copy   BIBTEX

Abstract

Purpose The purpose of this paper is to inform or alert readers to the extensive use and ready availability of genetic information that poses varying degrees of social and legal danger. The eugenics movement of the 1920s and the general acceptance of genetic essentialism provide context for considering contemporary examples of the problem. Design/methodology/approach This paper takes an argumentative approach, supporting proposals with ideas from historical and current research literature. Findings The limits of data protection, extensive use of direct-to-consumer genetic testing and use of genetic information in white nationalist circles portend a resurgence of eugenic beliefs from a century ago. Social implications Research-based recommendations may help to avoid extreme consequences by encouraging people to make informed decisions about the use of genetic information. Originality/value The paper counterposes contemporary understanding of genetic testing and data accessibility with the much older ideology of eugenics, leading to concerns about how white nationalists might further their aims with 21st century technology.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,932

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

How distinctive is genetic information?M. Richards - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):663-687.
Sharing personal genetic information: the impact of privacy concern and awareness of benefit.Don Heath, Ali Ardestani & Hamid Nemati - 2016 - Journal of Information, Communication and Ethics in Society 14 (3):288-308.

Analytics

Added to PP
2023-10-06

Downloads
17 (#865,345)

6 months
9 (#436,568)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations