What information do parents facing extremely preterm birth really need?: A bioethicist’s perspective

Ethik in der Medizin 34 (1):99-103 (2021)
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Abstract

ArgumentsPhysicians who counsel expectant parents about the needs for resuscitation and intensive care for an extremely preterm infant must be able to address many clinical facts and be prepared to face several ethical considerations. Such counseling is generally more than an acquisition of informed consent. It must be guided by ethical principles, values held dear by parents, relational priorities and directed toward an informed and shared decision-making process. Parents may come with a need for clinical facts, a desire that they be heard as they express their values, and to help physicians realize that many are determined to follow a certain path well before such counseling occurs. They may well not be moved by counseling of the physician but still desire to be heard, respected, and allowed to contribute to their newborn’s care plans.ConclusionsRealizing this, the physician can be accepting and develop a trusting relationship with the parents that will be of value throughout the hospitalization regardless of outcome.

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Brian Carter
University of Missouri, Kansas City

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Narrative Ethics.Martha Montello - 2014 - Hastings Center Report 44 (s1):2-6.
Narrative ethics: the role of stories in bioethics.Martha Montello (ed.) - 2014 - [Hoboken, New Jersey]: John Wiley and Sons.

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