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“Being Guided”: What Oncofertility Patients’ Decisions Can Teach Us about the Efficacy of Autonomy, Agency, and Decision- Making Theory in the Contemporary Clinical Encounter
International Journal of Feminist Approaches to Bioethics 12 (2):18-35 (2019)
Abstract
Recent research on patient decision-making reveals a disconnect between theories of autonomy, agency, and decision-making and their practice in contemporary clinical encounters. This study examines these concepts in the context of female patients making oncofertility decisions in the United Kingdom in light of the phenomenon of “being guided.” Patients experience being guided as a way to cope with, understand, and defer difficult treatment decisions. Previous discussions condemn guided decision-making, but this research suggests that patients make an informed, autonomous decision to be guided by doctors. Thus, bioethicists must consider the multifaceted ways that patients enact their autonomy in medical encounters.Links
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Citations of this work
Medical versus social egg freezing: the importance of future choice for women’s decision-making.Alexis Paton & Michiel De Proost - 2022 - Monash Bioethics Review 40 (2):145-156.
Fairness, Ethnicity, and COVID-19 Ethics.Alexis Paton - 2020 - Journal of Bioethical Inquiry 17 (4):595-600.
References found in this work
Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self.Sue Campbell - 2002 - Hypatia 17 (2):165-168.
The Birth of Bioethics.Jonathan D. Moreno & Albert R. Jonsen - 1999 - Hastings Center Report 29 (4):42.
Critical bioethics: Beyond the social science critique of applied ethics.Adam M. Hedgecoe - 2004 - Bioethics 18 (2):120–143.
What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations.Erica Haimes - 2002 - Bioethics 16 (2):89–113.
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