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How are PCORI-funded researchers engaging patients in research and what are the ethical implications?
AJOB Empirical Bioethics 8 (1):1-10 (2017)
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Citations of this work
National Standards for Public Involvement in Research: missing the forest for the trees.Matthew S. McCoy, Karin Rolanda Jongsma, Phoebe Friesen, Michael Dunn, Carolyn Plunkett Neuhaus, Leah Rand & Mark Sheehan - 2018 - Journal of Medical Ethics 44 (12):801-804.
Epistemic injustice in dementia and autism patient organizations: An empirical analysis.Karin Jongsma, Elisabeth Spaeth & Silke Schicktanz - 2017 - AJOB Empirical Bioethics 8 (4):221-233.
Patient‐Engaged Research: Choosing the “Right” Patients to Avoid Pitfalls.Emily A. Largent, Holly Fernandez Lynch & Matthew S. McCoy - 2018 - Hastings Center Report 48 (5):26-34.
What Should Engagement in Health Research Look Like? Perspectives from People with Lived Experience, Members of the Public, and Engagement Managers.Bridget Pratt - 2022 - Cambridge Quarterly of Healthcare Ethics 31 (2):263-274.
Whom to Engage in Patient‐Engaged Research? Reflection on Selection.Stephanie R. Morain - 2018 - Hastings Center Report 48 (5):35-36.
References found in this work
Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
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