Community-Engaged Research with People with Developmental Disabilities: A Conversation with Community Researchers about their Ethical Inclusion

In Emily E. Anderson (ed.), Ethical Issues in Community and Patient Stakeholder–Engaged Health Research. Springer Verlag. pp. 121-128 (2023)
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Abstract

This authors of this chapter, community and academic researchers, share a conversation about the importance of team dynamics in working with communities of people with developmental disabilities. The goal should be to create a genuine sense of belonging and that fosters respect and meaningful inclusion. The authors discuss how building strong personal relationships, providing disability accommodations, and following through on promises to co-create products that can positively impact people with developmental disabilities are some ways to foster this positive environment. These actions can improve accountability and are building blocks to ethical community-engaged research with communities of people with developmental disabilities.

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