BackgroundBiobanking biospecimens and consent are common practice in paediatric research. We need to explore children and young people’s (CYP) knowledge and perspectives around the use of and consent to biobanking. This will ensure meaningful informed consent can be obtained and improve current consent procedures.MethodsWe designed a survey, in co-production with CYP, collecting demographic data, views on biobanking, and consent using three scenarios: 1) prospective consent, 2) deferred consent, and 3) reconsent and assent at age of capacity. The survey was disseminated (...) via the Young Person’s Advisory Group North England (YPAGne) and participating CYP’s secondary schools. Data were analysed using a qualitative thematic approach by three independent reviewers (including CYP) to identify common themes. Data triangulation occurred independently by a fourth reviewer.ResultsOne hundred two CYP completed the survey. Most were between 16–18 years (63.7%, N = 65) and female (66.7%, N = 68). 72.3% had no prior knowledge of biobanking (N = 73).Acceptability of prospective consent for biobanking was high (91.2%, N = 93) with common themes: ‘altruism’, ‘potential benefits outweigh individual risk’, 'frugality', and ‘(in)convenience’.Deferred consent was also deemed acceptable in the large majority (84.3%, N = 86), with common themes: ‘altruism’, ‘body integrity’ and ‘sample frugality’. 76.5% preferred to reconsent when cognitively mature enough to give assent (N = 78), even if parental consent was previously in place. 79.2% wanted to be informed if their biobanked biospecimen is reused (N = 80).ConclusionProspective and deferred consent acceptability for biobanking is high among CYP in the UK. Altruism, frugality, body integrity, and privacy are the most important themes. Clear communication and justification are paramount to obtain consent. Any CYP with capacity should be part of the consenting procedure, if possible. (shrink)

The historical imagination, as Hayden White has reminded us, is not singular;\nit is manifest in many forms (White, 1973). Not surprisingly, this diversity\nis reflected within the pages of History of the Human Sciences and in the four papers that follow. Indeed, from its inception, the journal has sought to\npromote a variety of styles of writing, representing the many voices that have\nan interest in the human sciences and their history.\nIn the opening article, Roger Smith suggests that a distinctive feature of the\nhistorical (...) imagination is the priority given to an engagement with primary\nsources. The historical imagination, on the other hand, is to be seen in its\nmany forms as the practical realization of that engagement through the constitution\nof the historical ‘record’ as a record and the activity of explaining to\noneself and others how it has come about. For Smith, an important value of\nprimary sources is their representation of ‘otherness’, providing ‘the possibility\nof an engagement with what is foreign to, outside, what we for most\npurposes take to be our selves and our world’. And the historical imagination,\nlike imagination in general, centrally involves a preoccupation with context\nand the provision of a vantage point that is different from the one that is originally\ngiven. Smith ends his paper with some remarks about the connections\nbetween imagination and narrative.\nIn the following article, Graham Richards focuses his reflections early in\nthe 20th century, in the period between the two world wars. Through a discussion\nof some of his recent work on the popularization of Psychoanalysis\nduring those two decades, he introduces an interesting counterfactual question:\n‘How then did it feel to be living without Freud and encountering\npsychoanalytic ideas and language for the first time?’2 Richards goes on to\noutline a number of imperatives (transcendental, presentist, narrative) that he\nsees as part of the historical imagination. In considering the implications of\nhis remarks, Richards – like Smith – highlights the importance of a sound\n‘evidential’ base in the stimulation of the historical imagination and he raises\nan important issue concerning the historian’s sense of time – ‘our feel for how\nthings unfold in real time in real biographies and collective experience’. (shrink)