Background Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR. Aim To assess the perspectives of genetics and genomics researchers in Uganda on CE (...) in GGR. Method A cross-sectional qualitative study was conducted at Makerere University and Uganda Virus Research Institute. Twenty-five individuals participated, the majority being male (sixteen). Participants included nineteen genetics and genomics researchers (researchers and research coordinators), two CE officers, three nurses and one nursing counsellor. Data were collected using in-depth interviews and analyzed in a thematic manner using NVivo version 12 Plus. Study findings Thirteen of the respondents had conducted CE in their GGR in either a geographical and disease-specific community. Some respondents said CE principles are the same and there is no need for special consideration for CE in GGR. Others gave ethical issues in GGR that require special consideration for CE in such research and these were categorized into six themes: GGR is new to communities, Difficulty in communicating GGR by the researchers, Genes are shared in communities, Cultural sensitivities against GGR, Community attitude toward GGR, Some GGR studies take long to end, and Negotiation of research benefits. Special considerations for CE when conducting GGR were suggested and categorized into seven themes: creating awareness of GGR in communities, obtaining both community acceptance and individual consent, CE team composition, involve communities in solving GGR challenges, prolong CE in some GGR, develop guidelines for CE in GGR, and legal considerations on GGR. Conclusion GGR was characterized by special issues that require special CE considerations for such research. (shrink)

This chapter contains sections titled: Introduction Demography and Democracy The Epistemological Roots of Consensus in Traditional Society A Monarchical Democracy The Evils of the Party System.

This paper argues for the need for a better grounded theoretical understanding of the integrity crisis facing much of sub-Saharan Africa. Many of Africa's problems are not unique or peculiar to the region. The paper locates Africa's integrity crisis in the social historical situation characterized by what we term the tribesperson in transition, a phenomenon where people find themselves caught up in tensions, conflicts and anxieties as they attempt to transit from the traditional to the modern. These conflicts, tensions and (...) anxieties create the integrity crisis we are witnessing. Problems are exacerbated by the fact that even the very states themselves are bifurcated along the lines of modern versus tribal/ethnic. Failure to develop national consensus on moral matters, a reluctance of modern states to meet their obligations to their people, and failure to incorporate moral virtues from tribal society into modern contract societies are some of the problems exacerbating the moral problem the region faces. We offer related ideas as avenues to solutions. (shrink)