Background: Family members and healthcare providers play an integral role in a person’s assisted dying journey. Their own needs during the assisted dying journey are often, however, unrecognized and underrepresented in policies and guidelines. Circumstances under which people choose assisted dying, and relational contexts such as the sociopolitical environment, may influence the experiences of family members and healthcare providers. Ethical considerations: Ethics approval was not required to conduct this review. Aim: This scoping review aims to identify the relational influences on (...) the experiences of family members and healthcare providers of adults who underwent assisted dying and of those unable to access assisted dying due to the loss of capacity to consent. Methods: A literature search was conducted in four databases, including MEDLINE, EMBASE, Cumulative Index to Nursing and Allied Health Literature and PsycINFO. The search retrieved 12,074 articles, a number narrowed down to 172 articles for full-text screening. Thirty-six articles met the established inclusion criteria. A feminist relational framework guided the data analysis. Results: Five key themes on the influences of family members’ and healthcare providers’ experiences throughout the assisted dying process were synthesized from the data. They include relationships as central to beginning the process, social and political influences on decision making, complex roles and responsibilities of family members and healthcare providers, a unique experience of death, and varying experiences following death. Conclusion: The feminist relational lens, used to guide analysis, shed light on the effect of the sociopolitical influences and the relationships among patients, families, and healthcare providers on each other’s experiences. Addressing the needs of the family members and healthcare providers is vital to improving the assisted dying process. Including families’ and healthcare providers’ needs within institutional policies and enhancing collaboration and communication among those involved could improve the overall experience. (shrink)

Abstract:Narratives are an interface that evolution has instilled in our brains for their optimal interaction with reality. Without them we would not be who we are: creatures that narrativize their experiences, integrate them into their autobiographical self, and imagine the future of this self. But narratives also distort reality by endowing it with meaning, purpose, and causality even when none exist. Literary stories with weak narrativity, such as those by Raymond Carver, remind us of another modality of the human mind (...) and selfhood available to us, one that registers the world without subjecting it to narrative selection and chronological ordering. (shrink)

Work in Western modernity is production of more than is needed, and regardless of whether the surplus is regulated by the state or reinvested by individual entrepreneurs, the social space that modern work brings to being is inseparable from alienated labor. Paradoxically, work has been also the preferred means for curing alienation. A crucial component of political ideologies, work has played a central role in various totalitarianisms, their social ideas, and political organizations. Fascism, for example, posited work as the essence (...) of man, and with the vision of community in fusion, implemented work as a tool of self-appropriation, collective strength, and expulsion of otherness. Work retained its .. (shrink)

Against the background of intellectual and political debates in France during the 1950s and 1960s, Daniel Just examines literary narratives and works of literary criticism arguing that these texts are more politically engaged than they may initially appear. As writings by Roland Barthes, Maurice Blanchot, Albert Camus, and Marguerite Duras show, seemingly disengaged literary principles - such as blankness, minimalism, silence, and indeterminateness - can be deployed to a number of potent political and ethical ends. At the time the main (...) focus of this activism was the escalation of violence in colonial Algeria. The poetics formulated by these writers suggests that blankness, weakness, and withdrawal from action are not symptoms of impotence and political escapism in the face of historical events, but deliberate literary strategies aimed to neutralize the drive to dominate others that characterized the colonial project. (shrink)