Results for 'medical crowdfunding'

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  1.  30
    Medical crowdfunding and the virtuous donor.Bryanna Moore - 2018 - Bioethics 33 (2):238-244.
    Patients and families are increasingly turning to crowdfunding to help them cover the cost of medical care. The ethics of crowdfunding has garnered some attention in the bioethical literature. In this paper I examine an ethical aspect of medical crowdfunding (MCF) that has received limited attention: the role of donors. I defend a virtue ethical approach to analyzing the role of donors in MCF. Vicious donation, where donors do not exercise the relevant virtues, can compound (...)
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  2. Medical Crowdfunding, Political Marginalization, and Government Responsiveness: A Reply to Larry Temkin.Alida Liberman - 2019 - Journal of Practical Ethics 7 (1):40-48.
    Larry Temkin draws on the work of Angus Deaton to argue that countries with poor governance sometimes rely on charitable giving and foreign aid in ways that enable them to avoid relying on their own citizens; this can cause them to be unresponsive to their citizens’ needs and thus prevent the long-term alleviation of poverty and other social problems. I argue that the implications of this “lack of government responsiveness argument” (or LOGRA) are both broader and narrower than they might (...)
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  3.  4
    Medical crowdfunding in China: empirics and ethics.Pingyue Jin - 2019 - Journal of Medical Ethics 45 (8):538-544.
    Medical crowdfunding has become a popular choice worldwide for people with unaffordable health needs. In low-income and middle-income countries with limited social welfare arrangements and a high incidence of catastrophic health spending, the market for medical crowdfunding is booming. However, relevant research was conducted exclusively in North America and Europe; little is known about medical crowdfunding activities inother contexts. As a first step towards filling this knowledge gap, this study depicts the realities of (...) crowdfunding in a middle-income country China through empirical investigation and ethical analysis. We examine 100 randomly selected medical campaigns from a major Chinese crowdfunding platform and analyse the relevance of the previously identified ethical concerns to the Chinese context. The empirical findings show that Chinese campaigns have low and uneven success rates, require legally the participation of charitable organisations and focus on financial distress and family values in appealing for donations. In addition, the ethical analysis suggests that medical crowdfunding in China shares several ethical concerns raised in developed countries such as the veracity of claims and privacy violation. More importantly, our research reveals the inadequacy of current evidence and the lack of indicators to evaluate ethical issues in practice. Additional research is needed to better understand this fundraising practice across different social and cultural contexts. (shrink)
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  4.  29
    Medical Crowdfunding for Unproven Medical Treatments: Should Gofundme Become a Gatekeeper?Jeremy Snyder & I. Glenn Cohen - 2019 - Hastings Center Report 49 (6):32-38.
    Medical crowdfunding has raised many ethical concerns, among them that it may undermine privacy, widen health inequities, and commodify health care. One motivation for medical crowdfunding has received particular attention among ethicists. Recent studies have shown that many individuals are using crowdfunding to finance access to scientifically unsupported medical treatments. Recently, GoFundMe prohibited campaigns for antivaccination groups on the grounds that they “promote misinformation about vaccines” and for treatment at a German clinic offering unproven (...)
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  5.  38
    Ethical implications of medical crowdfunding: the case of Charlie Gard.Gabrielle Dressler & Sarah A. Kelly - 2018 - Journal of Medical Ethics 44 (7):453-457.
    Patients are increasingly turning to medical crowdfunding as a way to cover their healthcare costs. In the case of Charlie Gard, an infant born with encephalomyopathic mitochondrial DNA depletion syndrome, crowdfunding was used to finance experimental nucleoside therapy. Although this treatment was not provided in the end, we will argue that the success of the Gard family’s crowdfunding campaign reveals a number of potential ethical concerns. First, this case shows that crowdfunding can change the way (...)
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  6.  17
    Bioethics and the use of social media for medical crowdfunding.Brenda Zanele Kubheka - 2020 - BMC Medical Ethics 21 (1):1-5.
    BackgroundSocial media has globalised compassion enabling requests for donations to spread beyond geographical boundaries. The use of social media for medical crowdfunding links people with unmet healthcare needs to charitable donors. There is no doubt that fundraising campaigns using such platforms facilitates access to financial resources to the benefit of patients and their caregivers.Main textThis paper reports on a critical review of the published literature and information from other online resources discussing medical crowdfunding and the related (...)
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  7.  67
    Online users’ donation behavior to medical crowdfunding projects: Mediating analysis of social presence and perceived differences in trust.Tao Zhang, Qianyu Zhang, Rong Jiang, Tilei Gao & Ming Yang - 2022 - Frontiers in Psychology 13.
    Perceived trust is a key factor affecting the behavior to donate online. In order to further explore the factors and influencing mechanisms that affect the success of medical crowdfunding projects, this paper, combined with the Stimulus-Organism-Response theory, introduces the mediating variable of social presence and perceived differences in trust, and constructs a model of online users’ donation behavior to medical crowdfunding projects. We collected 437 valid samples through a questionnaire survey, and processed the data with SPSS (...)
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  8.  11
    Is there room for privacy in medical crowdfunding?Jeremy Snyder & Valorie A. Crooks - 2021 - Journal of Medical Ethics 47 (12):e49-e49.
    When people use online platforms to solicit funds from others for health-related needs, they are engaging in medical crowdfunding. This form of crowdfunding is growing in popularity, and its visibility is increasing as campaigns are commonly shared via social networking. A number of ethical issues have been raised about medical crowdfunding, one of which is that it introduces a number of privacy concerns. While campaigners are encouraged to share very personal details to encourage donations, the (...)
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  9.  25
    Appealing to the crowd: ethical justifications in Canadian medical crowdfunding campaigns.Jeremy Snyder, Valorie A. Crooks, Annalise Mathers & Peter Chow-White - 2017 - Journal of Medical Ethics 43 (6):364-367.
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  10.  38
    Crowdfunding for medical care: Ethical issues in an emerging health care funding practice.Jeremy Snyder - 2016 - Hastings Center Report 46 (6):36-42.
    Crowdfunding websites allow users to post a public appeal for funding for a range of activities, including adoption, travel, research, participation in sports, and many others. One common form of crowdfunding is for expenses related to medical care. Medical crowdfunding appeals serve as a means of addressing gaps in medical and employment insurance, both in countries without universal health insurance, like the United States, and countries with universal coverage limited to essential medical needs, (...)
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  11.  20
    The Place of Crowdfunding in the Discovery of Scientific and Social Value of Medical Research.Lorenzo del Savio - 2017 - Bioethics 31 (5):384-392.
    Crowdfunding is increasingly common in medical research. Some critics are concerned that by adopting crowdfunding, some researchers may sidestep the established systems of review of the social and scientific value of studies, especially mechanisms of expert-based review. I argue firstly that such concerns are based on a misleading picture of how research value is assessed and secondly that crowdfunding may turn out to be an useful complement of extant funding systems. I start with the idea that (...)
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  12.  10
    Positive Sentiment and the Donation Amount: Social Norms in Crowdfunding Donations During the COVID-19 Pandemic.Yan Peng, Yuxin Li & Lijia Wei - 2022 - Frontiers in Psychology 13.
    Public welfare fundraising has been used to collect donations for medical supplies and has played an important role in the fight against the COVID-19 pandemic. This paper studies online crowdfunding donations from the Alumni Association of Wuhan University to North American alumni; donation data are used to investigate how individuals' donation behavior is affected by the previous donation amount and information provided by the fundraising platform. First, our results show that one's donation amount is positively affected by the (...)
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  13.  27
    Response from Dundee Medical Student Council to “media misinterpretation”.Medical Student Council - 2004 - Journal of Medical Ethics 30 (4):380-380.
    We write in response to the original article by Rennie and Rudland published in the April 2003 edition of this journal.1 Current and former Dundee Medical School students are concerned at the media misinterpretation of the study and the consequences that this branding of “dishonesty” will have on Dundee Medical School’s reputation and also on individuals embarking on their ….
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  14. Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects.World Medical Association - 2009 - Jahrbuch für Wissenschaft Und Ethik 14 (1):233-238.
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  15.  9
    Policy on decision making with pregnant patients at the George Washington University Hospital.Medical Center Baptist - 1991 - Midwest Medical Ethics: A Publication of the Midwest Bioethics Center 7 (1):15.
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  16.  5
    Advance Statements about Medical Treatment.Derek British Medical Association & Morgan - 1995 - BMJ Books.
    This code of practice for health professionals was prepared by a multi-professional group and reflects good clinical practice in encouraging dialogue about individuals' wishes concerning their future treatment. It has a broad practical approach, considers a range of advance statements, advises of dangers and benefits of making treatment decisions in advance and combines annotated code of practice with a quick pull out guide for easy reference.
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  17.  79
    Decisions Relating to Cardiopulmonary Resuscitation: a joint statement from the British Medical Association, the Resuscitation Council (UK) and the Royal College of Nursing.British Medical Association - 2001 - Journal of Medical Ethics 27 (5):310.
    Summary Principles Timely support for patients and people close to them, and effective, sensitive communication are essential. Decisions must be based on the individual patient's circumstances and reviewed regularly. Sensitive advance discussion should always be encouraged, but not forced. Information about CPR and the chances of a successful outcome needs to be realistic. Practical matters Information about CPR policies should be displayed for patients and staff. Leaflets should be available for patients and people close to them explaining about CPR, how (...)
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  18.  10
    Ethical Guidelines for the Care of People in Post-Coma Unresponsiveness (Vegetative State) or a Minimally Responsive State.National Health And Medical Research Council - 2009 - Jahrbuch für Wissenschaft Und Ethik 14 (1):367-402.
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  19.  27
    Principles of the German Medical Association concerning terminal medical care.German Medical Association - 2000 - Journal of Medicine and Philosophy 25 (2):254-58.
  20.  34
    Subject selection for clinical trials.American Medical Association - 1998 - IRB: Ethics & Human Research 20 (2-3):12.
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  21.  9
    Applicable Law for Contracts in the Sporting Context.Ines Medić - 2016 - Seeu Review 12 (1):197-221.
    This article presents an analysis of contractual relations in sport from the standpoint of the Croatian legislative system. Due to the complexity of the subject matter, the author considers only a small fragment of it - the significance and the role of sport in Croatian society and the law of contracts „as a cornerstone on which „sports law“ has been built and which is of primary importance in most areas where there is an interface between sport and the law, irrespective (...)
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  22. Chan ho mun and Anthony Fung.Managing Medical - 2002 - In Julia Lai Po-Wah Tao (ed.), Cross-Cultural Perspectives on the (Im) Possibility of Global Bioethics. Kluwer Academic.
     
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  23.  47
    The law and ethics of male circumcision: guidance for doctors.British Medical Association - 2004 - Journal of Medical Ethics 30 (3):259-263.
    1. Aim of the guidelines2. Principles of good practice3. Circumcision for medical purposes4. Non-therapeutic circumcision 4.1. The law 4.1.1. Summary: the law 4.2. Consent and refusal 4.2.1. Children’s own consent 4.2.2. Parents’ consent 4.2.3. Summary: consent and refusal 4.3. Best interests 4.3.1. Summary: best interests 4.4. Health issues 4.5. Standards 4.6. Facilities 4.7. Charging patients 4.8. Conscientious objection5. Useful addresses.
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  24.  19
    The Slippery Slope of Prenatal Testing for Social Traits.Courtney Canter, Kathleen Foley, Shawneequa L. Callier, Karen M. Meagher, Margaret Waltz, Aurora Washington, R. Jean Cadigan, Anya E. R. Prince & the Beyond the Medical R01 Research Team - 2023 - American Journal of Bioethics 23 (3):36-38.
    Bowman-Smart et al. (2023) argue for a framework to examine the ethical issues associated with genetic screening for non-medical traits in the context of noninvasive prenatal testing (NIPT). Such s...
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  25.  6
    The Medical Maze: A Christian Approach to Healthcare Ethics.E. David Cook & Christian Medical Fellowship - 1991
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  26. Slue chameleon ventures in.Free Catalogs, Order Catalogs Toll Free, Size Orders, Reptile Needs At Far, Tera Top Screen Covers, E. S. U. Lizard Litter, A. Quatrol Medications, Reptile Leashes, Reptile Diets & T. -Rex Frozen Foods - 1998 - Vivarium 9:27.
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  27.  29
    Subject Selection for Clinical Trials.American Medical Association Council on Ethical and Judicial Affairs - forthcoming - IRB: Ethics & Human Research.
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  28.  34
    Health Care in America.Catholic Medical Association - 2010 - Journal of Catholic Social Thought 7 (1):181-209.
  29.  19
    Every Death Is Different.From A. Physician At A. Major Medical Center - 1998 - Cambridge Quarterly of Healthcare Ethics 7 (4):443-447.
    Now I know why so many stories have been written with the theme: “everything changed in one moment.” More than 1,000 days have come and gone, and I still remember one Sunday morning and still follow and feel the effects of one decision.
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  30.  30
    A Physician’s Role Following a Breach of Electronic Health Information.Daniel Kim, Kristin Schleiter, Bette-Jane Crigger, John W. McMahon, Regina M. Benjamin, Sharon P. Douglas & American Medical Association The Council on Ethical and Judicial Affairs - 2010 - Journal of Clinical Ethics 21 (1):30-35.
    The Council on Ethical and Judicial Affairs of the American Medical Association examines physicians’ professional ethical responsibility in the event that the security of patients’ electronic records is breached.
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  31. Ethical Guidelines for the Care of People in Post-Coma Unresponsiveness (Vegetative State) or a Minimally Responsive State.National Health & Medical Research Council - 2009 - Jahrbuch für Wissenschaft Und Ethik 14 (1).
     
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  32.  5
    Genetics, Ethics, and Human Values: Human Genome Mapping, Genetic Screening, and Gene Therapy : Proceedings of the XXIVth CIOMS Conference, Tokyo and Inuyama City, Japan, 22-27 July 1990.Z. Bankowski, Alexander Morgan Capron, Council for International Organizations of Medical Sciences, Nihon Gakujutsu Kaigi & Unesco - 1991
  33.  44
    Risk and trust in public health: A cautionary tale.Matthew K. Wynia & American Medical Association - 2006 - American Journal of Bioethics 6 (2):3 – 6.
    *The views expressed are the author's own. This article should not be construed as representing policies of the American Medical Association.
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  34.  15
    Consequentialism and Outrageous Options: Response to Commentary on “Consequentialism and Harsh Interrogations”.Matthew K. Wynia & American Medical Association* - 2006 - American Journal of Bioethics 6 (2):W37-W37.
    *Disclaimer: The views expressed are the author's and should not be ascribed to the American Medical Association.
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  35.  5
    Mind and Body in 18th Century Medicine: A Study Based on Jerome Gaub's De Regimine Mentis.L. J. Rather & Wellcome Historical Medical Museum and Library - 1965 - Univ of California Press.
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  36.  22
    Multiplex Genetic Testing.American Medical Association The Council on Ethical and Judicial Affairs - forthcoming - Hastings Center Report.
  37. International Ethical Guidelines for Biomedical Research Involving Human Subjects. Geneva: CIOMS, 2002. 16. Resnik DB. The Ethics of HIV Research in Developing Nations. [REVIEW]Council for International Organizations of Medical Sciences - 1998 - Bioethics 12:286-206.
     
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  38.  9
    Saving Science by Doing Less of It?Gregory E. Kaebnick - 2016 - Hastings Center Report 46 (6):2-2.
    In the current issue of The New Atlantis, Daniel Sarewitz, professor of science and society at Arizona State University, argues that science is broken because it is managed and judged by scientists themselves, operating under Vannevar Bush's famous 1945 declaration that scientific progress depends on the “free play of free intellects … dictated by their curiosity.” With that scientific agenda, society ends up with a lot of unnecessary, uncoordinated, and unproductive research. To save science, holds Sarewitz, we need to put (...)
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  39.  7
    Disentangling Crowdfunding from Fraudfunding.Douglas Cumming, Lars Hornuf, Moein Karami & Denis Schweizer - 2021 - Journal of Business Ethics 182 (4):1-26.
    Fraud in the reward-based crowdfunding market has been of concern to regulators, but it is arguably of greater importance to the nascent industry itself. Despite its significance for entrepreneurial finance, our knowledge of the occurrence, determinants, and consequences of fraud in this market, as well as the implications for the business ethics literature, remain limited. In this study, we conduct an exhaustive search of all media reports on Kickstarter campaign fraud allegations from 2010 through 2015. We then follow up (...)
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  40.  5
    Disentangling Crowdfunding from Fraudfunding.Douglas Cumming, Lars Hornuf, Moein Karami & Denis Schweizer - 2021 - Journal of Business Ethics 182 (4):1103-1128.
    Fraud in the reward-based crowdfunding market has been of concern to regulators, but it is arguably of greater importance to the nascent industry itself. Despite its significance for entrepreneurial finance, our knowledge of the occurrence, determinants, and consequences of fraud in this market, as well as the implications for the business ethics literature, remain limited. In this study, we conduct an exhaustive search of all media reports on Kickstarter campaign fraud allegations from 2010 through 2015. We then follow up (...)
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  41.  5
    Crowdfunding Curriculum Design Based on Outcome-Based Education.Yenchun Jim Wu & Chih-Hung Yuan - 2022 - Frontiers in Psychology 13.
    Entrepreneurship has flourished in recent years; however, since education on how to raise funds has received little attention from scholars, obtaining funds remains a difficult task. The development of crowdfunding has provided new opportunities to entrepreneurs, thus solving the funding, marketing, and distribution problems they previously faced. The main purpose of this study is to organize crowdfunding literature and to develop a crowdfunding curriculum grounded on output-based education. Students are asked to develop a product and a (...) plan within the span of one semester. This study explains the teaching content separately from the crowdfunding plan competition, course elements, and timetable. (shrink)
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  42.  6
    Crowdfunding Conservation Science: Tracing the Participatory Dynamics of Native Parrot Genome Sequencing.Hallam Stevens & Courtney Addison - 2022 - Science, Technology, and Human Values 47 (3):568-596.
    Who gets to practice and participate in science? Research teams in Puerto Rico and New Zealand have each sequenced the genomes of parrot populations native to these locales: the iguaca and kākāpō, respectively. In both cases, crowdfunding and social media were instrumental in garnering public interest and funding. These forms of Internet-mediated participation impacted how conservation science was practiced in these cases and shaped emergent social roles and relations. As citizens “follow,” fund, and “like” the labor of conservation, they (...)
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  43. The Impact of Crowdfunding Financial Attributes On Entrepreneurship Risk Taking.Youssef M. Abu Amuna & Mazen J. Al Shobaki - 2019 - المثقال 5 (1):513-520.
    This paper aims to study the impact of Crowdfunding financial attributes on entrepreneurship risk taking. This study was applied on Arabic Crowdfunding platforms from all crowdfunding models. The population of the study consists of individuals, entrepreneurs, investors, employees at electronic-crowd funding Arabic platforms. According to last statics at (2018), there are (12) legit Arabic platforms working in this field. Several statistical tools were used for data analysis and hypotheses testing, including reliability Correlation using Cronbach’s alpha, “ANOVA”, Simple (...)
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  44.  13
    Religious Expression and Crowdfunded Microfinance Success: Insights from Role Congruity Theory.Aaron H. Anglin, Hana Milanov & Jeremy C. Short - 2022 - Journal of Business Ethics 185 (2):397-426.
    Crowdfunded microfinance provides financial resources to impoverished entrepreneurs across the globe based on online appeals describing the entrepreneur’s values and venture potential and is considered a key player in the ethical finance movement. Despite knowledge that the content of the appeals impacts funding success, little is known regarding the role of religious expression, which is common and consequential in socially-oriented contexts. We leverage role congruity theory to address a theoretical tension concerning the effects of religious expression on crowdfunded microfinance funding (...)
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  45.  10
    Why do funders support social welfare crowdfunding platforms? An elaboration likelihood perspective.Aqsa Sajjad, Qingyu Zhang, Ghadah Alarifi, Enrico Battisti & Elisa Arrigo - forthcoming - Business Ethics, the Environment and Responsibility.
    Crowdfunding entails small funds or contributions collected from the public to support and develop certain services or products. It has been widely adopted as an alternative method to fund social, cultural, and technological projects. Crowdfunding platforms can capitalize the social and digital networks, making them more efficient in targeting funders with minimum operational costs. The emergence of crowdfunding platforms as social information systems attracts researchers and academicians to study their increasing acceptance. In complement to qualitative and big-data (...)
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  46.  21
    Medical humanities.Martyn Evans & Ilora G. Finlay (eds.) - 2001 - London: BMJ.
    The purpose of medical humanities is to improve the delivery of effective health care through a better understanding of disease in society, and in the individual. The interfaces between the science of medicine and the arts, philosophy, sociology and law interpret causes and effects of disease. The field of medical ethics is the most prominent offspring of this wider debate, yet the context of disease in the life of the individual and of society is profound and far-reaching. The (...)
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  47.  15
    Vulnerable Populations and Individual Social Responsibility in Prosocial Crowdfunding: Does the Framing Matter for Female and Rural Entrepreneurs?Maria Figueroa-Armijos & John P. Berns - 2022 - Journal of Business Ethics 177 (2):377-394.
    Prosocial crowdfunding was originally conceived as a financial mechanism to assist vulnerable unbanked populations, typically excluded from formal financial markets. It subsequently grew into a billion-dollar scheme in the multi-billion-dollar crowdfunding industry. However, recent evidence claims prosocial crowdfunding may be shifting away from its goal to support the poor and underserved. Drawing on a composite social responsibility and framing theory framework, we examine the role that vulnerability plays in successfully raising funds in a prosocial crowdfunding context. (...)
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  48.  16
    How Pro-social Framing Affects the Success of Crowdfunding Projects: The Role of Emphasis and Information Crowdedness.Daniela Defazio, Chiara Franzoni & Cristina Rossi-Lamastra - 2020 - Journal of Business Ethics 171 (2):357-378.
    Crowdfunding is regarded a financing mechanism that could improve the funding opportunities of businesses with a pro-social orientation. Indeed, it is assumed that on digital platforms, citizens are inclined to provide more support to projects with a social benefit than to those without such an orientation, with significant ethical implications for the common good. Yet, extant empirical evidence regarding such a claim is still inconclusive. To advance this discussion, the present paper analyzes the conditions that influence crowd support for (...)
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  49.  4
    Review on Social Welfare Crowdfunding in China Based on PEST-SWOT Model.Jing Liang & Ao Chen - 2021 - Complexity 2021:1-11.
    Research shows that social welfare crowdfunding is in the rising stage of development in China, showing a vigorous development trend. Social welfare crowdfunding owns advantages such as accuracy and efficiency that traditional social welfare forms do not have, but problems including imperfect relevant policies and regulations, lack of supervision of social welfare crowdfunding platform, and low process transparency still exist. From the perspective of PEST-SWOT model, this paper sums up the research trends and development status of social (...)
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  50.  9
    Do backers prefer crowdfunding or pre-order? An empirical study.Yuan Zhou, Jie Cui & Nianxin Wang - 2022 - Frontiers in Psychology 13.
    To advertise or estimate demand, many pre-order items appear on crowdfunding platforms. Few studies have explored backers’ preferences between crowdfunding projects and pre-order items. To analyze backers’ preferences, 1,800 technology and innovation campaigns were collected from the Indiegogo crowdfunding platform. Using the product stage badge, the campaigns in the concept and prototype stages were treated as crowdfunding projects, while those in the production and shipping stages were labeled pre-order items, resulting in 1,305 crowdfunding projects and (...)
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