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Through the Community Looking Glass: Reevaluating the Ethical and Policy Implications of Research on Adolescent Risk and Psychopathology
Ethics and Behavior 10 (2):99-118 (2000)
Abstract
Drawing on a conception of scientists and community members as partners in the construction of ethically responsible research practices, this article urges investigators to seek the perspectives of teenagers and parents in evaluating the personal and political costs and benefits of research on adolescent risk behaviors. Content analysis of focus group discussions involving over 100 parents and teenagers from diverse ethnic and socioeconomic backgrounds revealed community opinions regarding the scientific merit, social value, racial bias, and participant and group harms and benefits associated with surveys, informant reports, intervention studies, blood sampling, and genetic research on youth problems. Participant comments highlight new directions for socially responsible research.My notes
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Citations of this work
Reducing Health Disparities and Enhancing the Responsible Conduct of Research Involving LGBT Youth.Celia B. Fisher & Brian Mustanski - 2014 - Hastings Center Report 44 (s4):28-31.
Enhancing the Responsible Conduct of Sexual Health Prevention Research Across Global and Local Contexts: Training for Evidence-Based Research Ethics.Celia B. Fisher - 2015 - Ethics and Behavior 25 (2):87-96.
Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research.Celia B. Fisher - 2003 - Ethics and Behavior 13 (4):303-332.
Peruvian Female Sex Workers’ Ethical Perspectives on Their Participation in an HPV Vaccine Clinical Trial.Brandon Brown, Mariam Davtyan & Celia B. Fisher - 2015 - Ethics and Behavior 25 (2):115-128.
References found in this work
Scientific value and validity as ethical requirements for research: a proposed explication.Benjamin Freedman - 1987 - IRB: Ethics & Human Research 9 (6):7.
Relational ethics and research with vulnerable populations.Celia B. Fisher - 1999 - Reports on Research Involving Persons with Mental Disorders That May Affect Decision-Making Capacity 2:29-49.
What Patients Say about Medical Research.Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden - 1998 - IRB: Ethics & Human Research 20 (4):1.
A Relational Perspective on Ethics-in-Science Decisionmaking for Research with Vulnerable Populations.Celia B. Fisher - 1997 - IRB: Ethics & Human Research 19 (5):1.
Exclusion and emphasis reframed as a matter of ethics.Jessica Henderson Daniel - 1994 - Ethics and Behavior 4 (3):229 – 235.
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